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AIBU?

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PIP

30 replies

sunshine4477 · 27/01/2026 18:49

I claimed pip for my son . On the claim I put learning disabilities and Autism.
The learning difficulties are diagnosed.
After a lot of digging I’ve found out the autism isn’t diagnosed. I found this out by mistake when a doctor mentioned it wasn’t on his records.so I started inquiring why.
I’d put it on the forms as the special school annual review document stated Autism as his main condition and i believed this to be true.
I also remember them saying his autistic.
at the time i had no idea how autism assessment work so did take there word for it.
Think the annual review is connected to the statement special needs which is now called ECHP. So not sure if it’s a legal document.
i would have sent this as evidence.
His needs are still the same,every thing I said regarding support and help he needs are accurate.
I know PIP isn’t based on diagnosis but Am I in trouble?

OP posts:
WaitingForMojo · 27/01/2026 19:02

I’m a welfare rights lawyer. You are not in trouble. There’s no need for formal diagnosis in order to name a condition on the form. In fact, I would advise you to name all conditions, diagnosed or not.

Sometimes the PA4 (Assessor’s report) will mention lack of diagnosis as a reason not to award, but as a point of law that can be challenged in a mandatory reconsideration or at tribunal. You may be asked about diagnosis at assessment. Just be honest. He is awaiting full assessment and he has a working diagnosis as evidenced in the school documentation.

The important thing is that you are honest about how his conditions affect him the majority of the time and can evidence that. Which it sounds like you will have no problem doing.

sunshine4477 · 27/01/2026 19:02

plentyofsunshine · 27/01/2026 18:52

No I don't think you'll be in trouble. You said that the annual review document stated Autism as his main condition so if you have any problems you could go back to them with a copy of that report as further evidence.

I'd wait to hear from them before doing anything but I can't see how you would be in trouble for that so try not to worry.

Yes it’s on the document. The school had to put M for main condition next to it and A for additional next to other conditions
they put M next to autism and A next to learning difficulties.
ive got in touch with the NHS autism service and have no records of him. So GP has put him forward for an assessment.

OP posts:
sunshine4477 · 27/01/2026 18:54

FuzzyWolf · 27/01/2026 18:50

Are you sure he wasn’t diagnosed and somehow it’s missing from his GP records?

Can you go back to the school and ask for a DSAR?

I contacted the NHS autism service and have no records of it. Doctors are putting him forward for autism assessment. I’m just shocked it was put in a document without a diagnosis

OP posts:
plentyofsunshine · 27/01/2026 18:52

No I don't think you'll be in trouble. You said that the annual review document stated Autism as his main condition so if you have any problems you could go back to them with a copy of that report as further evidence.

I'd wait to hear from them before doing anything but I can't see how you would be in trouble for that so try not to worry.

FuzzyWolf · 27/01/2026 18:50

Are you sure he wasn’t diagnosed and somehow it’s missing from his GP records?

Can you go back to the school and ask for a DSAR?