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With all the awareness of mental health, why is psychotic illness never really mentioned?

86 replies

NightTerrier · 27/01/2026 14:08

Am I BU to think that mental health issues are more then just anxiety and depression. You rarely hear anyone talk about having a psychotic illness.

I have paranoid schizophrenia and it's rare that we see anyone talking about it, despite the fact that it affects approx 1 in 100 people. I feel it is is still very misunderstood and stigmatised.

Even Bipolar is more widely accepted and you have people like Stephen Fry who have raised awareness for this severe mental illness. I still can't help feeling that it's much more acceptable and less stigmatising to have bipolar than paranoid schizophrenia.

In case anyone is wondering, No, I don't work and I do claim PIP for this and also for autism and long covid. Even the side effects from the meds I have to take for my schizophrenia are pretty debilitating, then I get delusional about how they are a means of the government trying to silence people that are 'more aware', so end up coming off them. Then there are the cognitive symptoms to deal with. Also negative symptoms, which is loss of motivation, social withdrawal and the like. Hallucinations and delusions are positive symptoms. I ended up having to give up work about 10 years ago after being particularly ill and haven't ever fully recovered since.

I get really angry when I tread all the rhetoric about people claiming benefits for mental health reasons. People do realise that mental illness doesn't just encompass anxiety and depression?

For what it's worth, I've never been a threat to others, only myself. I'm currently having to have a monthly injection as I get so paranoid about having to take antipsychotics and my lovely nurse visiting me to give me my injection usually ensures that I have my meds. Even with that in place I still get paranoid about it and refuse it periodically.

OP posts:
Springtimehere · 27/01/2026 17:23

This reply has been deleted

This has been deleted by MNHQ for breaking our Talk Guidelines.

OpheliaHamlet · 27/01/2026 17:23

Thanks for posting this.
Unfortunately, I think Schizophrenia is still stigmatized due to being unglamorous, not fixable, and too much for the average person to get their head around. I would welcome more education on it, also more information surrounding the link between it, and smoking weed.
I used to consider myself fairly well educated, in regards to mental health. I’ve also been diagnosed with various conditions.
I think people think of things like, Clinical Depression, or GAD, etc, as something regular people go through. I know I was incredibly naive about psychosis in general, until I experienced it!
My psychotic episodes were due to experience Menopause-associated psychosis. Thankfully, it’s been almost a year since the last one.

BillieWiper · 27/01/2026 17:20

Nospringchix · 27/01/2026 17:01

This. My dh has had psychotic episodes and this is certainly true for both of us.
I am so thankful we have a good GP surgery and nurse practitioner at the CMHT.

I'm so pleased he's got good support. Unfortunately there seems to be a big gap for some people. They'll have an episode which would have devastating consequences, but by the time MH professionals see them they present as 'normal' again.
Wishing you both the best x

Cayennepepper7 · 27/01/2026 17:14

I have CPTSD, PTSD and a severe dissociative disorder. I don't work because it's unmanageable but otherwise I present very well from the outside. When you or other people saw me out or said good morning you would probably think I was fine and there was nothing wrong with me at all - if I even mentioned anything you might think 'yeah you and everyone'. But the stress of work is more than I can manage and when I have tried I have ended up becoming extremely unwell and leaving without notice.

Then there are lots of people who believe they have dissociative disorders, or fake them online, and that leads to many people and even clinicians not believing in the disorders at all.

Basically there are different kinds of stigma - people who still don't like to talk about overt SMI and then people who think that unless you can see it from twenty paces it doesn't exist.

Nospringchix · 27/01/2026 17:01

BillieWiper · 27/01/2026 15:23

I think it's due to stigma. Also people who've never either experienced witnessed someone in psychosis finds it almost impossible to understand.

That you cannot reason with them, that they will behave in ways that they never ever would normally, it's completely against their own volition. And the things they say and say they can see and hear make so little sense to an 'ordinary' person.

It's almost a phenomenon that has to be seen/experienced to be believed. And it can obviously be absolutely devastating for the sufferer and those around them.

This. My dh has had psychotic episodes and this is certainly true for both of us.
I am so thankful we have a good GP surgery and nurse practitioner at the CMHT.

BasiliskStare · 27/01/2026 16:59

I have a family member who has recently been sectioned with severe psychosis / schizophrenia . It's a dreadful disease and I think underfunded.

My heart goes out to anyone who suffers from it or has family who do.

💐 to all

Lararoft · 27/01/2026 16:56

Hi @NightTerrieri have Schizoaffective which is a mixture of schizophrenia and bipolar. Also autism & epilepsy. Only literally 2 of my close friends know the truth due to the stigma, also my manager at my part time job knows (her daughter is autistic and EUPD so she’s understanding). I get PIP and no one except immediate family know that although others do suspect because of things they’ve said.
To other friends and work colleagues I imply I have bipolar as it’s slightly more ‘acceptable’ than an illness beginning with ‘schizo..’ and I admit to the epilepsy now. But I don’t mention the autism either.
I do feel different to others although I’ve been told that I mask very well.

SkibidiSigma · 27/01/2026 16:49

My brother has schizophrenia, also thought to be triggered by smoking weed as a teenager. It's a horrible illness. He's such a good hearted, kind man but some of the things he's done while he's been psychotic have been almost unbelievable. He is unable to work, he would never be able to hold a job down, although I know he would like to.

I think that social media has made a lot of people feel that depression and anxiety are now things everyone has rather than actual mental illnesses. Some people almost wear then as a badge of honour. Schizophrenia and similar illnesses are just too messy and inconvenient to be seen in the same way. I'm sorry you're suffering with it OP, and thank you for starting this thread.

gototogo · 27/01/2026 16:41

Unfortunately the number of people talking about very mild “mental health” when they mean poor mental health,( we all have mental health, mine is good,) means that people seem to forget that there’s lots of much more serious conditions which are lifelong and very disabling. My cleaner at work has schizophrenia with court mandated management daily, yet people say to him “I’ve got mental health, when they in reality have mild anxiety, which I’m not saying should be dismissed but it’s not the same.

Newgirls · 27/01/2026 16:32

I think if you have a friend or family member with schizophrenia or bipolar you are probably well informed. What would you like people to know? Everyone is individual and someone might get the help they need and thrive and others have a tough life.

I agree that the dangers around weed etc are massively underplayed.

smallglassbottle · 27/01/2026 16:20

What they mean by 'mental illness' is usually just emotional discomfort. They're also mysteriously well enough and have enough energy to hassle the medical profession for help.

x2boys · 27/01/2026 16:05

NightTerrier · 27/01/2026 14:46

Thanks for your thoughtful reply.

Yes, I think there is a lack of resilliance. I know people who don't work due to anxiety and the like and they seem to be able to do a lot and I envy them, but also can't help questioning why they should be signed off and claiming benefits when they have such full lives.

I didn't leave the house for a few years and was doing exposure therapy to help me get out of the house last year and the year before. I had someone with me and we were going into the local town once a week and going for coffee. This was a major achievement for me! However, I ended up getting paranoid about my meds and refused to take them, so I'm recovering from being psychotic again and am back in recluse mode.

You are right, SMI is unglamorous. Also, people seem to think people with schizophrenia are violent and dangerous, which doesn't help either.

I agree i used to be a mental health nurse and nobody ever talk about severe and enduring mental illness
People think they know all about mental illness ,but they are only scratching the surface

smallglassbottle · 27/01/2026 16:03

The slightly emotionally uncomfortable people have over medicalised their perfectly normal responses to the daily grind and this has led to the misunderstanding and pushing out of people who are genuinely sick.

I have major, aka endogenous depression and my friend is actually making me feel a lot worse by totally dismissing the fact that it causes inability to talk, socialise and affects my nervous system, which even causes me to fall over and not be able to see or hear properly. Keeps trying to get me to do stuff which I just can't do.

People can't cope with the concept of psychosis because it's not 'sexy' and doesn't involve artfully posed instagran posts of attractive young women in cosy cardigans lightly dabbing their eyes with a lace handkerchief whilst clutching a cup of chamomile tea 🙄 #askmehowdepressediam

Fullmoan · 27/01/2026 16:01

NightTerrier · 27/01/2026 15:42

I think there should be more education around it. For example smoking weed in your teens. Me and my psychiatrist both agree that that's what triggered my illness.

Yes I wish there had been discussion around this and I wish there was more effort now to raise awareness.

I smoked it a few times in my teens and when I later learn about the connection with schizophrenia I was horrified that I hadn't been aware of the risks because I would have absolutely avoided it given my family history.

I only found out when it triggered schizophrenia in a university friend.

Fullmoan · 27/01/2026 15:59

I agree with you @NightTerrier

I think we've progressed as a society with certain mental health conditions but others are still poorly treated and understood by the public at large.

I have an aunt with schizophrenia and it frustrates me the stereotypes and ignorance around the condition. She's a much loved and kind family member who has raised a very happy and successful daughter

Petrine · 27/01/2026 15:44

I don't think the current obsession with mental health 'issues' help those suffering with true mental illness at all - quite the contrary.

The normal range of human emotion has become medicalised.

I also find it unfathomable that some people are so ready to claim that they have, say, BPD (EUPD) as if it's a self-diagnosable condition and not a serious illness with a high mortality rate.

GreenPoms · 27/01/2026 15:42

In terms of work, I had to tell occupational health and my managers when I returned to work because of the nature of my job.

Socially, are you suggesting that I should keep it hidden from friends and family? I refuse to hide it because I am not ashamed of it. If those of us with these disorders aren’t open about it how do we change attitudes?

NightTerrier · 27/01/2026 15:42

I think there should be more education around it. For example smoking weed in your teens. Me and my psychiatrist both agree that that's what triggered my illness.

OP posts:
NightTerrier · 27/01/2026 15:36

GreenPoms · 27/01/2026 15:19

It really isn’t though. It might seem to be because as OP said some celebrities like Stephen Fry have been open about having it.
But in day to day life it is not accepted.

Because of my bipolar disorder, people have often made assumptions about me that aren’t true. Socially, I’ve been treated differently once people know, with some seeing me as unpredictable or difficult, which has led to being left out or not taken seriously.

At work, I’ve experienced people doubting my ability to do my job, watching me more closely than others, or holding back opportunities, not because of my work, but because of their fear or misunderstanding of my condition. At one point occupational health actually told me I wasn’t allowed to work alone.

I’ve also been treated differently by health professionals. At times, my physical symptoms or concerns haven’t been taken seriously and have been put down to my bipolar disorder instead. I’ve felt talked down to, not fully listened to, or assumed to be exaggerating or confused.

I am part of a support group for people living with bipolar and my experience is not uncommon at all

Edited

I have a good friend with bipolar and she also gets medical staff brushing off her concerns as just being her bipolar. She's in a pretty bad way at the moment and I'm actually really worried about her.

I have to say that my GP has been amazing, I am always taken seriously and I've never had any of my symptoms dismissed as being due to my mental health. I appreciate I might just be very lucky though.

So sorry that you've had to go through this too and the situation at work sounds really shitty and patronising.

My dad had bipolar as well and he also refused medication as well as it dampened his creativity.

OP posts:
NightTerrier · 27/01/2026 15:30

GreenPoms · 27/01/2026 15:19

It really isn’t though. It might seem to be because as OP said some celebrities like Stephen Fry have been open about having it.
But in day to day life it is not accepted.

Because of my bipolar disorder, people have often made assumptions about me that aren’t true. Socially, I’ve been treated differently once people know, with some seeing me as unpredictable or difficult, which has led to being left out or not taken seriously.

At work, I’ve experienced people doubting my ability to do my job, watching me more closely than others, or holding back opportunities, not because of my work, but because of their fear or misunderstanding of my condition. At one point occupational health actually told me I wasn’t allowed to work alone.

I’ve also been treated differently by health professionals. At times, my physical symptoms or concerns haven’t been taken seriously and have been put down to my bipolar disorder instead. I’ve felt talked down to, not fully listened to, or assumed to be exaggerating or confused.

I am part of a support group for people living with bipolar and my experience is not uncommon at all

Edited

Sorry to hear about your experience. You mentioned previously that you have been poorly treated by memtal health staff too.

I was diagnosed with bipolar before they changed the diagnosis to schizophrenia and I found that my CMHT were absolutely lovely.

I have a friend with bipolar and I do believe that some of her physical complaints aren't being addressed properly because of her bipolar diagnosis. So, I do understand what you mean about this.

Maybe its' my particular droctor's surgery, but when I've had to there I've always been taken seriously. I had loads of tests before they referred me to the long covid service and I was given HRT with no problem recently.

What you said about being told that you couldn't work alone is just baffling. I know a couple pf peopel with bipolar and my dad also has bipolar.

Sorry that you've had these experiences.

OP posts:
Alphabet1spaghetti2 · 27/01/2026 15:29

@GreenPoms 100% agree with you. I currently attend group therapy for bipolar 1 & 2. All of us have experienced being told by medical professionals that we are just anxious etc when having undeniable serious physical conditions - eg bowel obstructions/ broken bones etc Which someone without the diagnosis probably wouldn’t experience.
As for the micro managing at work - it adds to an already stressful day ime.
agree with your comment that celebrities experiences do not equate to real life experience at all.

YourKhakiViper · 27/01/2026 15:28

My grandmother had this and really struggled for most of her life with it. My friend on the other hand has been medicated for almost twenty years and works full time, socialises, exercises and has three children with it. You would never, ever know unless she told you.

Crunchingleaf · 27/01/2026 15:28

CraftyNavySeal · 27/01/2026 15:22

People like mental health problems that can be “fixed” by therapy, “just go to therapy” seems to be the solution to everything.

My dad had psychotic episodes and was hospitalised several times, people were surprised that he didn’t get therapy. No it’s lifelong serious psychiatric medication!

I think this is it. People don’t want to know if it can’t be fixed by a tablet and therapy.

RainbowLife · 27/01/2026 15:26

Hello @NightTerrier I'm so glad you began this thread. I have a family member with a psychotic illness and the more I can understand the better.

BillieWiper · 27/01/2026 15:23

I think it's due to stigma. Also people who've never either experienced witnessed someone in psychosis finds it almost impossible to understand.

That you cannot reason with them, that they will behave in ways that they never ever would normally, it's completely against their own volition. And the things they say and say they can see and hear make so little sense to an 'ordinary' person.

It's almost a phenomenon that has to be seen/experienced to be believed. And it can obviously be absolutely devastating for the sufferer and those around them.

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