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Husband resents ds with Down syndrome.

369 replies

BaronRock · 18/01/2026 20:18

I really dont know if Im being unreasonable or if my gut is screaming at me for a reason.

Our ds is 4 and has Down syndrome. He starts school in September which is a whole other emotional thing. Hes a lovely little boy but toileting is a massive issue. He hates us changing him at the best of times. Always has. It causes huge distress and meltdowns, especially if hes tired or unwell.

H has been pushing hard for potty training because hes four now and starting school. He is really embarrassed about ds still being in nappies and he hates taking him out because changing him is such a nightmare. The changing tables are often too small, ds panics, kicks off, tries to run away. So H now pretty much refuses to take him anywhere on his own. If I cant go too, they just dont go.

This afternoon ds had done a poo in his pants. When we tried to change him he completely lost it. Crying, stiffening his legs, running away. He wouldnt let us near him. H started snapping and then shouting. He told him to fucking stand still. Hearing that aimed at my four year old made my stomach drop.

The more H shouted, the worse ds got. In the end he was hysterical and running from room to room so I said lets just put him in the bath. That was the only way we could clean him without physically holding him down. Even then ds was sobbing.

After his bath I put a nappy on him because he was exhausted and clingy and I couldnt face another battle. H shouted at me for doing that and said whats the point, youre just undoing it, hes never going to learn.

For background, weve had a horrible few days. Ds has had a cold and a stomach bug at the same time. Hes been uncomfortable and miserable and barely sleeping. Ive barely slept either because its mostly fallen on me to settle him. H is tired too but not in the same way.

After everything calmed down, H said he didnt sign up for this. That he knew having a disabled child would be hard but he didnt realise it would be like this. That everything feels like a constant fight and hes fed up.

All evening hes been off with ds. Ds has been trying to climb on him, sit next to him, get his attention and H has just not really acknowledged him. Not cruel, just distant. Ds doesnt understand and keeps trying, which breaks my heart.

This isnt a one off. H snaps at ds a lot. He expects him to understand and comply like a typical four year old and gets angry when he cant. Afterwards he feels guilty and shuts down, but in the moment ds takes the brunt of it.

I know H is grieving the child and life he thought we would have. I know the school thing is bringing a lot up. But ds is four. He didnt choose this. I cannot accept him being shouted at and sworn at for things he genuinely cant help.

I feel like Im constantly buffering between them. Protecting ds while trying to keep H stable. Im exhausted and starting to feel resentful and scared about the long term impact on ds.

Am I being unreasonable to think this has crossed a line? How do I handle this without blowing our marriage apart or allowing ds to be emotionally hurt?

OP posts:
House26 · 19/01/2026 12:39

WincyWince · 19/01/2026 11:17

Car accidents? Anything that impacts the brain like drowning can also cause serious issues. Severe allergic reactions. Fire, cancer.

I certainly don’t live my life worrying about it, but it can happen to anyone and you just have to step up.

Edited

Also infections can cause disability. There are so many things that can happen, no-one is guaranteed a non disabled child. There's nothing wrong with wanting to screen for down syndrome etc but you have to be aware that there are many other types of disability, and many of the most common ones like autism can't be tested for during pregnancy.

menopausalfart · 19/01/2026 12:35

@OtterlyAstounding I didn't think I'd cope with a child who had disabilities either but I have. If something were to happen to someone you loved, you'd cope because you love them.

Marmite1992 · 19/01/2026 12:34

You sound like a fantastic mum and the sad fact is not everyone is able to cope with a child with additional needs.
I would say to your husband that you know it's hard, but your son didn't ask to be born and if he can't get his emotions in check around his son then you won't stand for it.
He needs to take a step back and learn how to deal with his emotions.
I really feel for you, you're doing an amazing job

SleepingStandingUp · 19/01/2026 12:30

Onlyontuesday · 19/01/2026 10:33

He might do, but he shouldn't, and OP shouldn't hold the door open for him to endorse this.

I have to disagree. He's being emotionally abusive to his kid. Why should she not be swinging that door wide and protecting her kid?

Tutorpuzzle · 19/01/2026 12:27

Daisywhatsyouranswer · 19/01/2026 10:59

But you didn’t call out abuse, you simply hurled your own. Amd made a snap judgement on this man.

I give up.

But I do wonder how many times that four year old has been shouted at, sworn at and purposely ignored today.

GlomOfNit · 19/01/2026 12:16

Stillupatmidnight · 19/01/2026 09:21

You both need regular respite. Your H is just burned out. Kids will do that to you! Any family to babysit you can have a weekend the two of you? Or professional services that offer respite care? Be sure to book in regular breaks and things to look forward to and H will calm down and DS will get easier as he gets older even with his additional needs.

I'm not the only person who's taken up with this supremely naive post - but I'm wondering where you're getting this from? How easy do you think it is to 'book in regular breaks' for parents? Who looks after the vulnerable, challenging child with SEN while this happens? Most of us SEN parents don't have an obliging network of experienced and willing friends and family who will step in to free up parents for the odd city break away. There are also not that many places that are geared up for day trips if you have a challenging child who may have all sorts of needs and sensitivities.

Respite? Excuse me while I die laughing. stillupatmidnight there IS NO RESPITE CARE. Or at least, it's incredibly hard to get hold of. In my LA, I'm not aware of a way to get it without a social worker. Those are like gold dust. You cannot apply for even a few hours respite without one. I have no idea about 'professional services that offer respite care' - I'd hope all respite is professional. If you mean, something privately accessed outside the LA provision, then god alone knows what that would cost. Do you mean like a SEN nanny? I don't even know where to find one of those, and I need to retain both my kidneys, thank you.

OtterlyAstounding · 19/01/2026 11:57

x2boys · 19/01/2026 11:49

So you say you hsve children?
If they had a disability that couldnt be picked up prenatally and it was only as your much loved child started to develop you realised there were some significant concerns and delays ,you would say oh im not cut out for this ?
Similarly if your much loved child had an accident or illness that left them disabled you would just walk away ?
Most parents of disabled children think the same as you BTW that they can't cope, but they hsve to what's the alternative?

Honestly, I'm not sure why you're trying to push me to say...what, that actually, I could cope with a severely disabled child, even though I know myself well enough to know that I couldn't? What's your goal here? What does my estimate of my ability to cope have to do with you?

ETA: Or to do with this thread. Again, I was just trying to say I can understand DH's feelings. And frankly, there may not be an entirely happy solution, as sad as that is, if he's just unable to adjust.

Onlyontuesday · 19/01/2026 11:55

Gahr · 19/01/2026 10:36

It isn't a question of holding the door open. If he leaves, she can't stop him. All she can do is make sure that he pays his share.

Lots of responders have said that she should ask him to leave, which is opening the door for him.

Of course she can't make him parent his child, but if he is low enough to walk away from his son this shouldn't be made easy for him.

x2boys · 19/01/2026 11:49

OtterlyAstounding · 19/01/2026 11:34

But I'm not talking about anyone else? I'm talking about myself, in regards to how I can sympathise with the DH's inability to cope, even though it's not fair on the OP, or DS.

So you say you hsve children?
If they had a disability that couldnt be picked up prenatally and it was only as your much loved child started to develop you realised there were some significant concerns and delays ,you would say oh im not cut out for this ?
Similarly if your much loved child had an accident or illness that left them disabled you would just walk away ?
Most parents of disabled children think the same as you BTW that they can't cope, but they hsve to what's the alternative?

OtterlyAstounding · 19/01/2026 11:34

x2boys · 19/01/2026 10:39

Who do you think is cut out to be a parent of a child with learning disabilities ?
We are not some kind of special breed
Most of us are just plodding along doing our best .

But I'm not talking about anyone else? I'm talking about myself, in regards to how I can sympathise with the DH's inability to cope, even though it's not fair on the OP, or DS.

WincyWince · 19/01/2026 11:17

Gahr · 19/01/2026 10:49

Statistically it is unlikely that someone will be disabled by accident. Of course it can happen, but it is unlikely. I don't go through life thinking about what could happen.

Car accidents? Anything that impacts the brain like drowning can also cause serious issues. Severe allergic reactions. Fire, cancer.

I certainly don’t live my life worrying about it, but it can happen to anyone and you just have to step up.

x2boys · 19/01/2026 11:02

Gahr · 19/01/2026 10:44

I don't know who is. I just know that I am not.

So if you had a child that had disabilities that were not picked up until after birth because they can't or don't test for them and it only becomes apparent as your child starts to develop that there are some significant issues, would you'l just abandon them ?
This is a much loved child
Becsuse thats what happened to me
Or if your child had an accident or illness during childhood leaving them disabled, you would abandon them?

Climbinghigher · 19/01/2026 11:00

Gahr · 19/01/2026 10:44

I don't know who is. I just know that I am not.

News for you. You often don't know in advance. My son requires 24 hour 2:1 care due to intellectual disability and we have at various times had a very difficult time of it.

If you really really could not cope with anything going wrong ever, then don’t have children. My friends with so called perfect children have struggled at times as well. That’s the sort of point of children - they’re unpredictable. That’s the fun bit.

Daisywhatsyouranswer · 19/01/2026 10:59

Tutorpuzzle · 19/01/2026 10:46

Yes, I will always call out abuse. And you have no idea of my experience.

But you didn’t call out abuse, you simply hurled your own. Amd made a snap judgement on this man.

Gahr · 19/01/2026 10:49

WincyWince · 19/01/2026 10:46

Anyone can be disabled in life though, adult or child. Not pleasant to think about. Most of us are shielded from how brutal life can be.

Statistically it is unlikely that someone will be disabled by accident. Of course it can happen, but it is unlikely. I don't go through life thinking about what could happen.

Tutorpuzzle · 19/01/2026 10:46

rwalker · 19/01/2026 08:32

Very easy to say but there’s may a truth in walk a mile in someone’s shoe before you criticise them

this isn’t saying he’s not wrong but having friends with kids with additional needs I’ve seen what it’s done to them it’s absolutely broken them

Yes, I will always call out abuse. And you have no idea of my experience.

WincyWince · 19/01/2026 10:46

Gahr · 19/01/2026 10:44

I don't know who is. I just know that I am not.

Anyone can be disabled in life though, adult or child. Not pleasant to think about. Most of us are shielded from how brutal life can be.

Tutorpuzzle · 19/01/2026 10:44

GlomOfNit · 19/01/2026 08:35

As a matter of interest (and not meant as a barb - obviously I don't know you) do you yourself have direct experience of being a parent to a child with a significant disability - developmental or otherwise?

Parenting a SEND child can bring out the best in you. It can also bring out the worst, from time to time, I'm afraid. DH and I are parents to a profoundly autistic teenager with LDs. People on the outside think we do very well. Some of them think we're saint-adjacent. I've heard enough platitudes over the years about how 'only special people have special children' Envy and 'you never have a child you can't handle' and sometimes I read below these lines of crap and think - 'this is your way of consoling yourself for the horrendous fix we find ourselves in - it's ok, we're 'special' and we can cope'.

Truth is, nobody is special. Some of us have been presented with a life's work, and emotionally draining, massively hard and unpaid work at that. We do it because we're parents and love our children. Even when they're hitting us as hard as they can (because they don't understand why this isn't on) or smearing their crap in bed, or lying on the floor of the supermarket having a sensory meltdown. But for the most part, adults who don't have this in their lives find it very easy to look the other way, call us heroes but also be quick to judge.

You (and like I say, this might not be you personally) just can't get it unless you're there. None of us are born saints, and certainly in the earlier years, adjusting your expectations and your patience level takes massive effort and a sacrifice off the level expected by other parents. And that goes on, for as long as you're alive.

OP, your DH needs counselling - you both do, it's a tough gig. Even if things get worse and you separate, he's going to need support to be able to parent well and cope with it. Right now, he seems to feel that being a compassionate parent is optional and you're doing that bit so he doesn't have to. You need to talk properly about it and divide up the times that are most challenging. And it WILL get easier for both of you once your son is in school. (and school won't, or shouldn't, mind about the nappies so please don't sweat that part of it. It'll happen in time. My son with ASD came out of day nappies at 7.)

My experience is irrelevant. The OP’s husband is persistently shouting, withdrawing affection and now swearing at his pre-school son. Which is abuse. Regardless of anything else.

Gahr · 19/01/2026 10:44

x2boys · 19/01/2026 10:39

Who do you think is cut out to be a parent of a child with learning disabilities ?
We are not some kind of special breed
Most of us are just plodding along doing our best .

I don't know who is. I just know that I am not.

x2boys · 19/01/2026 10:39

OtterlyAstounding · 19/01/2026 10:34

Agreed. I do have children, but I also wouldn't have continued with a pregnancy that was at high risk of any condition that caused major intellectual disability. I know I'm not cut out to parent a child with those kinds of needs, and while it's impossible to eliminate risk entirely, it can definitely be reduced through screening etc.

But knowing that I wouldn't be able to handle a child with DS is also why I have sympathy for the DH (although obviously the way he's behaving to the son isn't acceptable). It's a difficult situation for everyone.

Who do you think is cut out to be a parent of a child with learning disabilities ?
We are not some kind of special breed
Most of us are just plodding along doing our best .

x2boys · 19/01/2026 10:36

Gahr · 19/01/2026 10:26

That's all very well, and I do agree. However, OP also needs to be prepared for the eventuality that her husband just walks out. I'm not saying that it's right at all, but it is something that she should consider. And honestly, that might have its upsides, as his current attitude is doing none of them any favours.

That could happen in any relationship
But he's still the child's father and needs to find a,way of accepting it for what it is ,I appreciate thats far easier said than done, it took me years to accept my sons disabilities.

Gahr · 19/01/2026 10:36

Onlyontuesday · 19/01/2026 10:33

He might do, but he shouldn't, and OP shouldn't hold the door open for him to endorse this.

It isn't a question of holding the door open. If he leaves, she can't stop him. All she can do is make sure that he pays his share.

OtterlyAstounding · 19/01/2026 10:34

Gahr · 19/01/2026 09:59

I also agree with this, tbh. I'm childfree anyway, but if I ever had had children I would have most certainly screened for DS, and would not have continued with a pregnancy in that case.

Agreed. I do have children, but I also wouldn't have continued with a pregnancy that was at high risk of any condition that caused major intellectual disability. I know I'm not cut out to parent a child with those kinds of needs, and while it's impossible to eliminate risk entirely, it can definitely be reduced through screening etc.

But knowing that I wouldn't be able to handle a child with DS is also why I have sympathy for the DH (although obviously the way he's behaving to the son isn't acceptable). It's a difficult situation for everyone.

Onlyontuesday · 19/01/2026 10:33

Gahr · 19/01/2026 10:26

That's all very well, and I do agree. However, OP also needs to be prepared for the eventuality that her husband just walks out. I'm not saying that it's right at all, but it is something that she should consider. And honestly, that might have its upsides, as his current attitude is doing none of them any favours.

He might do, but he shouldn't, and OP shouldn't hold the door open for him to endorse this.

Onlyontuesday · 19/01/2026 10:31

User0549533 · 19/01/2026 09:41

Your DH has mentally checked out and you need to start planning what to do if he leaves. Did you have an open discussion during pregnancy about the consequences of potentially having a child with DS? Unlike some forms of SEN, DS is screened for in virtually all pregnancies these days so there must be a longer back story. The phrase he didn't sign up for it is significant because you must have made a mutual decision together to forego screening or continue with a pregnancy that may result in a profoundly disabled child. Not all parents are cut out to be SEN parents. It's not acceptable to shout at a SEN child for things beyond their control but it's also not unreasonable as a parent to not want to deal with diapers and poo anymore during school age.

Poo is just poo. Changing an older child's nappy isn't anyone's hobby of choice but it's not awful or intolerable. The problem here is the distress their child is in, which does sound tricky.

We all risk having a child with SEN or a disability, if we feel we can't manage this we shouldn't become a parent at all. Parents of disabled children are awesome but they aren't made of something stronger than NT parents. I think NT parents are comforted by the idea they are somehow special or different as people- they aren't. It's hard.

OP's DH needs to work through this and find a way to be a parent. I don't think anyone would think it OK for a mum to walk away from a disabled child, it's no different for a dad.