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Husband resents ds with Down syndrome.

369 replies

BaronRock · 18/01/2026 20:18

I really dont know if Im being unreasonable or if my gut is screaming at me for a reason.

Our ds is 4 and has Down syndrome. He starts school in September which is a whole other emotional thing. Hes a lovely little boy but toileting is a massive issue. He hates us changing him at the best of times. Always has. It causes huge distress and meltdowns, especially if hes tired or unwell.

H has been pushing hard for potty training because hes four now and starting school. He is really embarrassed about ds still being in nappies and he hates taking him out because changing him is such a nightmare. The changing tables are often too small, ds panics, kicks off, tries to run away. So H now pretty much refuses to take him anywhere on his own. If I cant go too, they just dont go.

This afternoon ds had done a poo in his pants. When we tried to change him he completely lost it. Crying, stiffening his legs, running away. He wouldnt let us near him. H started snapping and then shouting. He told him to fucking stand still. Hearing that aimed at my four year old made my stomach drop.

The more H shouted, the worse ds got. In the end he was hysterical and running from room to room so I said lets just put him in the bath. That was the only way we could clean him without physically holding him down. Even then ds was sobbing.

After his bath I put a nappy on him because he was exhausted and clingy and I couldnt face another battle. H shouted at me for doing that and said whats the point, youre just undoing it, hes never going to learn.

For background, weve had a horrible few days. Ds has had a cold and a stomach bug at the same time. Hes been uncomfortable and miserable and barely sleeping. Ive barely slept either because its mostly fallen on me to settle him. H is tired too but not in the same way.

After everything calmed down, H said he didnt sign up for this. That he knew having a disabled child would be hard but he didnt realise it would be like this. That everything feels like a constant fight and hes fed up.

All evening hes been off with ds. Ds has been trying to climb on him, sit next to him, get his attention and H has just not really acknowledged him. Not cruel, just distant. Ds doesnt understand and keeps trying, which breaks my heart.

This isnt a one off. H snaps at ds a lot. He expects him to understand and comply like a typical four year old and gets angry when he cant. Afterwards he feels guilty and shuts down, but in the moment ds takes the brunt of it.

I know H is grieving the child and life he thought we would have. I know the school thing is bringing a lot up. But ds is four. He didnt choose this. I cannot accept him being shouted at and sworn at for things he genuinely cant help.

I feel like Im constantly buffering between them. Protecting ds while trying to keep H stable. Im exhausted and starting to feel resentful and scared about the long term impact on ds.

Am I being unreasonable to think this has crossed a line? How do I handle this without blowing our marriage apart or allowing ds to be emotionally hurt?

OP posts:
Gahr · 19/01/2026 14:17

geminicancerean · 19/01/2026 13:13

You don’t get to choose. I had no way of knowing that my DC would be intellectually disabled. I too would have told people that there was ‘no way’ I could ‘do it’.

I do it because I have to. Because I love him.

Not everyone does, though. I don't have kids anyway, but I have known people who have given up a disabled child at birth.

geminicancerean · 19/01/2026 14:16

OtterlyAstounding · 19/01/2026 13:21

This bizarre instance that I would have to be able to cope in this hypothetical situation, or I'd be sent to a hypothetical prison... Why? Why does it bother you so much to know that for some people, it would be impossible to cope?

People are capable of understanding that sometimes people in varied situations will have mental breakdowns, require in-patient care, attempt suicide, dissociate, or just become so sunk in depression that they can't even care for themselves, and yet when it comes to this particular situation, people insist that anyone can cope? It doesn't make sense.

You’re talking to someone who does have a disabled child and did have a severe mental breakdown, I still had to parent my kid. I still loved him.

I don’t get to decide whether I can cope or not.

Hankunamatata · 19/01/2026 14:15

Hugs op.
Do you have a good supportive network around you?

Sadly couples with disabled/additional needs have much higher than average divorce rate.
Would he do counselling with you?

HappySeven · 19/01/2026 13:49

BellissimoGecko · 18/01/2026 22:50

Jesus, why should it be up to OP to manage her h’s emotions as well as look after their ds because her h has given up?

Expect more from men. Your bar is very low.

I don't think it is up to her but if they're a family then surely they are a team which means you can look out for each other. I haven't suggested she arranges it for him, just that it's worth asking him to consider it.

cestlavielife · 19/01/2026 13:41

H has always refused all counselling,

He is not prepared to do anything to help the situation

Then he needs to go.
Might have been equally irritable at a typical child

As to being able to cope you dont know until you have to. Some put child in foster care or adoption. Tricky if one parent has different view.

menopausalfart · 19/01/2026 13:39

@OtterlyAstounding I'm glad that's your final say on the matter as you're starting to make absolutely no sense.

House26 · 19/01/2026 13:39

SleepingStandingUp · 19/01/2026 12:46

But Gahr has said she's child free by choice so she doesn't need to think about all of that. I don't get why she's getting a hard time for admitting her limits when she's made sure she never has to test them.

I wasn't talking about any particular person, just the point in general. There were several posters saying that they wouldn't cope with a disabled child. If someone decided not to have children because they wouldn't cope with a child with additional needs, then that's very sensible. It's much better than having a child and then being cruel to them when they don't turn out the way you expected, like OP's husband seems to be doing.

OtterlyAstounding · 19/01/2026 13:36

menopausalfart · 19/01/2026 13:32

@OtterlyAstounding , you are also basing your opinion on what you think you would do. The parents of children with a disability were also in your position once, thinking they could never cope. All we have to go on is the experience of what it's actually like to have a child with a disability; you step up to the plate, you find reserves you never thought you had. Very few people choose to walk away.

If all it takes is 'finding reserves you never thought you had' to cope with life's challenges, whatever they may be, then no one would ever suffer depression or anxiety, require in-patient mental health care, or commit suicide. But clearly, that's not the case. Especially considering the highly elevated rates of suicide attempts in parents who care for disabled children.

Anyway, that'll be my last post on the matter, as I've made myself clear, and it's just derailing the thread, now.

menopausalfart · 19/01/2026 13:35

@x2boys Absolutely. I love my DD as much as I love my other two children. They are my world. There's nothing special about me.

x2boys · 19/01/2026 13:33

menopausalfart · 19/01/2026 13:32

@OtterlyAstounding , you are also basing your opinion on what you think you would do. The parents of children with a disability were also in your position once, thinking they could never cope. All we have to go on is the experience of what it's actually like to have a child with a disability; you step up to the plate, you find reserves you never thought you had. Very few people choose to walk away.

Indeed and .most of us do it out of love for them.

menopausalfart · 19/01/2026 13:32

@OtterlyAstounding , you are also basing your opinion on what you think you would do. The parents of children with a disability were also in your position once, thinking they could never cope. All we have to go on is the experience of what it's actually like to have a child with a disability; you step up to the plate, you find reserves you never thought you had. Very few people choose to walk away.

OtterlyAstounding · 19/01/2026 13:22

WincyWince · 19/01/2026 13:19

I also sympathise with the husband and op massively but it could be anyone in their position, even if you for birth a healthy child.

Absolutely. That's a risk that can't be avoided, only minimised, I suppose.

OtterlyAstounding · 19/01/2026 13:21

geminicancerean · 19/01/2026 13:15

You could, of course you could. The other option would be prison for child neglect.

This bizarre instance that I would have to be able to cope in this hypothetical situation, or I'd be sent to a hypothetical prison... Why? Why does it bother you so much to know that for some people, it would be impossible to cope?

People are capable of understanding that sometimes people in varied situations will have mental breakdowns, require in-patient care, attempt suicide, dissociate, or just become so sunk in depression that they can't even care for themselves, and yet when it comes to this particular situation, people insist that anyone can cope? It doesn't make sense.

WincyWince · 19/01/2026 13:19

OtterlyAstounding · 19/01/2026 11:34

But I'm not talking about anyone else? I'm talking about myself, in regards to how I can sympathise with the DH's inability to cope, even though it's not fair on the OP, or DS.

I also sympathise with the husband and op massively but it could be anyone in their position, even if you for birth a healthy child.

geminicancerean · 19/01/2026 13:15

OtterlyAstounding · 19/01/2026 11:57

Honestly, I'm not sure why you're trying to push me to say...what, that actually, I could cope with a severely disabled child, even though I know myself well enough to know that I couldn't? What's your goal here? What does my estimate of my ability to cope have to do with you?

ETA: Or to do with this thread. Again, I was just trying to say I can understand DH's feelings. And frankly, there may not be an entirely happy solution, as sad as that is, if he's just unable to adjust.

Edited

You could, of course you could. The other option would be prison for child neglect.

OtterlyAstounding · 19/01/2026 13:14

menopausalfart · 19/01/2026 13:09

@OtterlyAstounding If something happened to your child that caused them to have a disability, do you think you could cope? You'd be in the minority if you couldn't.

I never said I wouldn't be in the minority? So I'm really not sure why that's relevant.
I simply said that I would not be able to cope with parenting a child who had a severe (intellectual) disability (so can sympathise with OP's DH's feelings, if not his actions), and was then argued with and told that I of course would be able to. Very confusing.

geminicancerean · 19/01/2026 13:13

Gahr · 19/01/2026 10:44

I don't know who is. I just know that I am not.

You don’t get to choose. I had no way of knowing that my DC would be intellectually disabled. I too would have told people that there was ‘no way’ I could ‘do it’.

I do it because I have to. Because I love him.

menopausalfart · 19/01/2026 13:09

@OtterlyAstounding If something happened to your child that caused them to have a disability, do you think you could cope? You'd be in the minority if you couldn't.

OtterlyAstounding · 19/01/2026 13:07

menopausalfart · 19/01/2026 13:02

@OtterlyAstounding It's also a little shortsighted to say you couldn't cope.

No. I'm quite sure that it's not shortsighted, but rather my knowledge of my capabilities (or lack thereof).

I'm not sure why the dogged insistence from several people on this thread that I must know myself and my capabilities less than they do, despite them not knowing a thing about me. It's very strange.

menopausalfart · 19/01/2026 13:02

@OtterlyAstounding It's also a little shortsighted to say you couldn't cope.

OtterlyAstounding · 19/01/2026 13:02

SleepingStandingUp · 19/01/2026 12:53

Not to mention that disabled kids around around 3x more likely to be abused or neglected. Some of that abuse might be outside the home but certainly not all of it

That's awful - I didn't know that statistic.

I understand the majority of people just try to get on with things, and have the emotional and mental stability to withstand the strain and worry of having a disabled child, but there is a sizable minority who don't have the fortitude to do it.

SleepingStandingUp · 19/01/2026 12:53

OtterlyAstounding · 19/01/2026 12:46

ETA: @menopausalfart

I'm glad that you've managed! But not everyone does, and I think it's a little shortsighted to insist that you know what other people can cope with.

For instance, apparently in 2024 the suicide attempt rate for parents who are carers for disabled children was 10%, compared to 1% in the general population. Sadly, not everyone is capable of coping with the degree of stress and anxiety that being a parent to a child with additional needs can involve.

Edited

Not to mention that disabled kids around around 3x more likely to be abused or neglected. Some of that abuse might be outside the home but certainly not all of it

SleepingStandingUp · 19/01/2026 12:46

House26 · 19/01/2026 12:39

Also infections can cause disability. There are so many things that can happen, no-one is guaranteed a non disabled child. There's nothing wrong with wanting to screen for down syndrome etc but you have to be aware that there are many other types of disability, and many of the most common ones like autism can't be tested for during pregnancy.

Edited

But Gahr has said she's child free by choice so she doesn't need to think about all of that. I don't get why she's getting a hard time for admitting her limits when she's made sure she never has to test them.

OtterlyAstounding · 19/01/2026 12:46

ETA: @menopausalfart

I'm glad that you've managed! But not everyone does, and I think it's a little shortsighted to insist that you know what other people can cope with.

For instance, apparently in 2024 the suicide attempt rate for parents who are carers for disabled children was 10%, compared to 1% in the general population. Sadly, not everyone is capable of coping with the degree of stress and anxiety that being a parent to a child with additional needs can involve.

SleepingStandingUp · 19/01/2026 12:44

DotAndCarryOne2 · 19/01/2026 09:37

Remorse for what ? He’s struggling to accept life with a disabled child and his resentment is spilling over into his relationship with DS. It’s not a case of showing remorse, it’s needing to access support to come to terms with things and be the parent he needs to be. He’s not abusing the child as such, he’s behaving as he would with a non-disabled child and expecting his son to learn from that in the same way. That’s what needs to be addressed here.

Remorse for snapping and shouting, for swearing at his kid, for continuing to shout even when the child is upset, for then ignoring him for hours.

Even if you think it's OK for a parent to test their child like this. As a one off, it isn't a one off. Op is constantly buffering this behaviour.

It isn't il to treat a disabled child I na lesser way than a non disabled child.

And yes, even if this was the first time it had ever happened, I'd expect any decent parent to feel remorse at shouting and swearing at their child and making them upset.

It's scary that you a. Think he should feel bad, he couldn't help it b. Think it's OK cos his son is disabled