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Husband resents ds with Down syndrome.

369 replies

BaronRock · 18/01/2026 20:18

I really dont know if Im being unreasonable or if my gut is screaming at me for a reason.

Our ds is 4 and has Down syndrome. He starts school in September which is a whole other emotional thing. Hes a lovely little boy but toileting is a massive issue. He hates us changing him at the best of times. Always has. It causes huge distress and meltdowns, especially if hes tired or unwell.

H has been pushing hard for potty training because hes four now and starting school. He is really embarrassed about ds still being in nappies and he hates taking him out because changing him is such a nightmare. The changing tables are often too small, ds panics, kicks off, tries to run away. So H now pretty much refuses to take him anywhere on his own. If I cant go too, they just dont go.

This afternoon ds had done a poo in his pants. When we tried to change him he completely lost it. Crying, stiffening his legs, running away. He wouldnt let us near him. H started snapping and then shouting. He told him to fucking stand still. Hearing that aimed at my four year old made my stomach drop.

The more H shouted, the worse ds got. In the end he was hysterical and running from room to room so I said lets just put him in the bath. That was the only way we could clean him without physically holding him down. Even then ds was sobbing.

After his bath I put a nappy on him because he was exhausted and clingy and I couldnt face another battle. H shouted at me for doing that and said whats the point, youre just undoing it, hes never going to learn.

For background, weve had a horrible few days. Ds has had a cold and a stomach bug at the same time. Hes been uncomfortable and miserable and barely sleeping. Ive barely slept either because its mostly fallen on me to settle him. H is tired too but not in the same way.

After everything calmed down, H said he didnt sign up for this. That he knew having a disabled child would be hard but he didnt realise it would be like this. That everything feels like a constant fight and hes fed up.

All evening hes been off with ds. Ds has been trying to climb on him, sit next to him, get his attention and H has just not really acknowledged him. Not cruel, just distant. Ds doesnt understand and keeps trying, which breaks my heart.

This isnt a one off. H snaps at ds a lot. He expects him to understand and comply like a typical four year old and gets angry when he cant. Afterwards he feels guilty and shuts down, but in the moment ds takes the brunt of it.

I know H is grieving the child and life he thought we would have. I know the school thing is bringing a lot up. But ds is four. He didnt choose this. I cannot accept him being shouted at and sworn at for things he genuinely cant help.

I feel like Im constantly buffering between them. Protecting ds while trying to keep H stable. Im exhausted and starting to feel resentful and scared about the long term impact on ds.

Am I being unreasonable to think this has crossed a line? How do I handle this without blowing our marriage apart or allowing ds to be emotionally hurt?

OP posts:
DotAndCarryOne2 · 19/01/2026 19:31

SleepingStandingUp · 19/01/2026 17:30

So it's two fold. Disabled children where they lack the ability to communicate are at risk from abuse because they're (sickeningly) an easy target but then there's parents who take the disability out on the kid / can't or won't meet their needs. It's scary that the most vulnerable part of society is the part people are most likely to pre date on

What on earth are you talking about ? Because parents can’t cope with their childs’ disability doesn’t make them abusive and doesn’t make the child a ‘target’. ‘Predation’ doesn’t apply - in most cases it’s being unable (as opposed to unwilling) to meet the childs’ needs and needing various levels of help according to the severity of the disability.

DotAndCarryOne2 · 19/01/2026 19:21

SleepingStandingUp · 19/01/2026 18:40

Sorry, I meant general care homes not special residential ones, my bad for lack of clarity

If a child is so severely disabled that the parents can’t cope, then they would likely require specialist residential facilities - which can’t be conjured up at a moments’ notice no matter how urgently they’re needed. Placements for significantly disabled children are notoriously difficult to secure.

ProudCat · 19/01/2026 19:19

He didn't sign up for this?

Yes he did. Unless he only wanted 'a normal one'.

My son is severely disabled. In over 30 years, I've never doubted that his father was actually a reasonable human being.

I'm not saying it was easy. I am saying that general rules of compassion and regulation from the actual adult who brought them into the world are non negotiable.

DotAndCarryOne2 · 19/01/2026 19:16

SleepingStandingUp · 19/01/2026 18:39

You don't think screaming and swearing at a four year old is abusive? If he was a typical child but still 4 and not always doing things how his Dad thinks he should, would you still be OK with the screaming and swearing at a 4 year old?

What if he hits the boy out of frustration? Locks him in the house alone and leaves him there all day? Shakes him until he's unconscious?

What exactly is it OK to do to a disabled child cos you're frustrated that it wouldn't be OK to do to a non disabled child?

I haven’t suggested that anything like this is OK behaviour towards any child, disabled or not. Neither am l suggesting that DH’s behaviour is acceptable. Only that it is understandable in the circumstances. The frustrated response from DH comes from expecting a four year old with a significant learning/cognitive disability to respond the way a child without the disability would at that age. He needs to engage with professionals to educate himself and to work through his issues. I haven’t said anything to the contrary.

DotAndCarryOne2 · 19/01/2026 19:07

SleepingStandingUp · 19/01/2026 12:44

Remorse for snapping and shouting, for swearing at his kid, for continuing to shout even when the child is upset, for then ignoring him for hours.

Even if you think it's OK for a parent to test their child like this. As a one off, it isn't a one off. Op is constantly buffering this behaviour.

It isn't il to treat a disabled child I na lesser way than a non disabled child.

And yes, even if this was the first time it had ever happened, I'd expect any decent parent to feel remorse at shouting and swearing at their child and making them upset.

It's scary that you a. Think he should feel bad, he couldn't help it b. Think it's OK cos his son is disabled

It's scary that you a. Think he should feel bad, he couldn't help it b. Think it's OK cos his son is disabled

Show me where I’ve said either of these things ?

These things are not black and white. Nobody is perfect and DH is clearly angry at his lot and harbouring resentment. He and OP are both also clearly grieving the life they thought they would have with their child. If course it’s never acceptable to treat a child like this and at no point have l said it is. But it is understandable.

Of course DH needs to engage with help to process how he feels and to access support in better understanding his sons’ condition, but OP can’t force this and a sledge hammer like approach has been proven time and time again to be counter productive.

SleepingStandingUp · 19/01/2026 18:43

{mention:Kirbert2}but@Kirbert2but there are posters on here adament that two poster who say they wouldn't cope absolutely would because they must. It doesn't work like that. They might surprise themselves. Maternal love might overrule any consideration to do anything but try. Thry might turn out to be good parents, they might not. But one can know oneself well enough to know you wouldn't want to. It's uncomfortable to admit but it's true

SleepingStandingUp · 19/01/2026 18:40

Kirbert2 · 19/01/2026 18:00

You can't just decide to send your disabled child to residential special school because you can't cope though. It doesn't work like that and is always a last resort because the LA's don't want to pay for it.

Of course not all parents can cope and extreme things happen just as it does with parents of children without disabilities.

I think most parents would believe they wouldn't be able to cope before it happened and most parents would surprise themselves.

I don't feel like I'm more strong or brave or special because I have a disabled child.

Sorry, I meant general care homes not special residential ones, my bad for lack of clarity

SleepingStandingUp · 19/01/2026 18:39

DotAndCarryOne2 · 19/01/2026 17:54

No, he’s not. He’s failing to recognise that his disabled son isn’t capable of responding in the way he intends. There’s a huge difference between a parent intentionally emotionally abusing their child, and one who is at the end of their tether because nothing works. He needs support to find help - this isn’t going to resolve itself.

Edited

You don't think screaming and swearing at a four year old is abusive? If he was a typical child but still 4 and not always doing things how his Dad thinks he should, would you still be OK with the screaming and swearing at a 4 year old?

What if he hits the boy out of frustration? Locks him in the house alone and leaves him there all day? Shakes him until he's unconscious?

What exactly is it OK to do to a disabled child cos you're frustrated that it wouldn't be OK to do to a non disabled child?

DotAndCarryOne2 · 19/01/2026 18:27

Onlyontuesday · 19/01/2026 10:33

He might do, but he shouldn't, and OP shouldn't hold the door open for him to endorse this.

Agree, and by the same token OP shouldn’t be facilitating him staying and checking out of childcare simply because he can’t cope with the disability. OP’s life is hard enough now, single parenting would be horribly difficult, so she should encourage finding help together as a first step

CantThinkofaNam · 19/01/2026 18:25

I feel for your little boy. He really can’t help it, he will have many challenges and needs his parents support.
your dh is not accepting him, I think this will only become worse as he grows. When did you find out about the DS during your pregnancy and what was his reaction?
If he doesn’t want to do any counselling and be a better parent, then you would need to leave. Your ds can’t be subjected to a life where he will be emotionally abused purely because of his disability

DotAndCarryOne2 · 19/01/2026 18:15

x2boys · 19/01/2026 09:58

Of course but have you any idea how hard it is to get respite?

This is exactly my point. Posters have no idea how hard it is to obtain respite, or that in the majority of cases, it’s not free, and it’s expensive.

InterIgnis · 19/01/2026 18:08

Kirbert2 · 19/01/2026 17:11

It includes residential special schools so it makes sense that the majority are disabled.

Sure, and those children are under a section 20 because their parents cannot cope and/or meet their needs.

Some people say ‘I couldn’t cope’ and find themselves being able to, and others will say ‘I couldn’t cope’ and be absolutely right in their assessment of themselves.

DotAndCarryOne2 · 19/01/2026 18:05

Kirbert2 · 19/01/2026 16:21

Cancer services support children and their families in various ways but I don't know of any who offer regular respite.

I’ve been a disability support worker for over 20 years, and I don’t know of this either. It’s absolute nonsense.

DotAndCarryOne2 · 19/01/2026 18:01

Stillupatmidnight · 19/01/2026 15:58

Admittedly respite is not easy to come by I know that but it is out there. I think we all need a break sometimes. Yes hubby needs to do his part but caring for a relative with disability can be very challenging and in my opinion it is important to plan in breaks.

They can plan in breaks all they want, but unfortunately, unless they’re prepared to pay privately, respite isn’t there on demand. It’s patchy according to area. As a disability support worker I’ve supported families with adult children who are severely autistic, violent and have outgrown their parents. Many families are at the point where they have to designate a safe room within their own homes because the behaviour is so extreme that no suitable facility can be found to cope with the needs. The same is true of children with complex needs - placements are few and far between because the facilities to cope with those needs are just not there - even short term.

Kirbert2 · 19/01/2026 18:00

SleepingStandingUp · 19/01/2026 17:53

And they exist because some parents can't cope.

We know some parents cope with a healthy, intellectually standard child. People have abostions. They abandon newborns. They neglect, abuse, kill their healthy typical children. Care homes are full of kids abandoned by their parents or removed from their homes.

Why can't you accept that some of those reasons are the kids disability.

You can't just decide to send your disabled child to residential special school because you can't cope though. It doesn't work like that and is always a last resort because the LA's don't want to pay for it.

Of course not all parents can cope and extreme things happen just as it does with parents of children without disabilities.

I think most parents would believe they wouldn't be able to cope before it happened and most parents would surprise themselves.

I don't feel like I'm more strong or brave or special because I have a disabled child.

SleepingStandingUp · 19/01/2026 17:59

They're not, I absolutely wouldn't do what they've done. I do it out of love, I would have just assumed I'd cope but it's been hard.

Pretending everyone is fine and copes is ridiculous.

This whole thread is about a person NOT COPING

DotAndCarryOne2 · 19/01/2026 17:54

BellissimoGecko · 19/01/2026 17:49

He’s being emotionally abusive towards his young son. He should realise that for himself and do something about it.

No, he’s not. He’s failing to recognise that his disabled son isn’t capable of responding in the way he intends. There’s a huge difference between a parent intentionally emotionally abusing their child, and one who is at the end of their tether because nothing works. He needs support to find help - this isn’t going to resolve itself.

Sweetnessandbite · 19/01/2026 17:54

Gahr · 19/01/2026 17:33

Yes, but why do those residential special schools exist? They exist because there are enough parents who cant' manage complex needs.

These are usually for children with extreme behaviour. Such a child who is physically dangerous to siblings. Not usually for a 4 Yr old DS child who isn't toilet trained.

SleepingStandingUp · 19/01/2026 17:53

Kirbert2 · 19/01/2026 17:42

They exist because some children require complex care that parents can't meet.

The same parents who fight hard against the LA who would rather do anything else than pay for a child to take up one of these places despite the fact that they are heartbroken at the thought of their child not living with them but they push ahead with it and fight because they know it is in the best interests of their child.

To me that is very different than requesting your child to be put in care because you can't cope and/or don't want to be their parent.

And they exist because some parents can't cope.

We know some parents cope with a healthy, intellectually standard child. People have abostions. They abandon newborns. They neglect, abuse, kill their healthy typical children. Care homes are full of kids abandoned by their parents or removed from their homes.

Why can't you accept that some of those reasons are the kids disability.

Gahr · 19/01/2026 17:53

SleepingStandingUp · 19/01/2026 17:51

My amazing friends.

One had a disabled child and when they got the diagnosis they decided to foster another disabled child. Their daughter died, one of their foster children died, one grew up and went into supported living and they adopted the last boy.

Another had her kids and once they grew up, she fostered. Her now adopted daughter was physically harmed by her parents, which caused a healthy child profound and life long disabilities.
But I'm aware my friends are like gold nuggets. Precious and rare.

I also worked with a guy who chose to adopt a deaf girl because he knew statistically it would be harder for her to find a forever home.

Most of them remain in care.

Those people are truly amazing. I take my hat off to them and I mean that sincerely. Most people are very much not like that.

SleepingStandingUp · 19/01/2026 17:51

Gahr · 19/01/2026 17:39

I was talking about residential care, not adoption. No, of course I don't think that! Who would?

My amazing friends.

One had a disabled child and when they got the diagnosis they decided to foster another disabled child. Their daughter died, one of their foster children died, one grew up and went into supported living and they adopted the last boy.

Another had her kids and once they grew up, she fostered. Her now adopted daughter was physically harmed by her parents, which caused a healthy child profound and life long disabilities.
But I'm aware my friends are like gold nuggets. Precious and rare.

I also worked with a guy who chose to adopt a deaf girl because he knew statistically it would be harder for her to find a forever home.

Most of them remain in care.

BellissimoGecko · 19/01/2026 17:49

HappySeven · 19/01/2026 13:49

I don't think it is up to her but if they're a family then surely they are a team which means you can look out for each other. I haven't suggested she arranges it for him, just that it's worth asking him to consider it.

He’s being emotionally abusive towards his young son. He should realise that for himself and do something about it.

Gahr · 19/01/2026 17:44

Kirbert2 · 19/01/2026 17:42

They exist because some children require complex care that parents can't meet.

The same parents who fight hard against the LA who would rather do anything else than pay for a child to take up one of these places despite the fact that they are heartbroken at the thought of their child not living with them but they push ahead with it and fight because they know it is in the best interests of their child.

To me that is very different than requesting your child to be put in care because you can't cope and/or don't want to be their parent.

Why is it different? The end result is the same. Love is not always unconditional and that's ok.

Kirbert2 · 19/01/2026 17:42

Gahr · 19/01/2026 17:33

Yes, but why do those residential special schools exist? They exist because there are enough parents who cant' manage complex needs.

They exist because some children require complex care that parents can't meet.

The same parents who fight hard against the LA who would rather do anything else than pay for a child to take up one of these places despite the fact that they are heartbroken at the thought of their child not living with them but they push ahead with it and fight because they know it is in the best interests of their child.

To me that is very different than requesting your child to be put in care because you can't cope and/or don't want to be their parent.

SleepingStandingUp · 19/01/2026 17:41

menopausalfart · 19/01/2026 13:39

@OtterlyAstounding I'm glad that's your final say on the matter as you're starting to make absolutely no sense.

She absolutely is making sense.

Why the insistence that Everyone would coeo with a disabled child when we know how fucking hard it is to cope with and not everyone is able or willing to cope with everything. Yes, I cope out of a lack of choices I'm willing to mske. But people put disabled kids up for adoption when they'd have kept a non disabled child. They cope badly and have them removed. They neglect and abuse them. They walk out on the other parent. They commit suicide. They commit murder/suicide. They stay in the home and scream and swear at their 4 to for not being like a "normal" child.
Ops partner isn't coping. My friends sons birth mother didn't cope. The women on the news who killed herself and her son didn't cope.

Perhaps we'd have more support for parents of disabled children if we accepted that like @OtterlyAstounding@OtterlyAstounding@{mention:OtterlyAstounding}ot@OtterlyAstoundingot everyone copes!