Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Husband resents ds with Down syndrome.

369 replies

BaronRock · 18/01/2026 20:18

I really dont know if Im being unreasonable or if my gut is screaming at me for a reason.

Our ds is 4 and has Down syndrome. He starts school in September which is a whole other emotional thing. Hes a lovely little boy but toileting is a massive issue. He hates us changing him at the best of times. Always has. It causes huge distress and meltdowns, especially if hes tired or unwell.

H has been pushing hard for potty training because hes four now and starting school. He is really embarrassed about ds still being in nappies and he hates taking him out because changing him is such a nightmare. The changing tables are often too small, ds panics, kicks off, tries to run away. So H now pretty much refuses to take him anywhere on his own. If I cant go too, they just dont go.

This afternoon ds had done a poo in his pants. When we tried to change him he completely lost it. Crying, stiffening his legs, running away. He wouldnt let us near him. H started snapping and then shouting. He told him to fucking stand still. Hearing that aimed at my four year old made my stomach drop.

The more H shouted, the worse ds got. In the end he was hysterical and running from room to room so I said lets just put him in the bath. That was the only way we could clean him without physically holding him down. Even then ds was sobbing.

After his bath I put a nappy on him because he was exhausted and clingy and I couldnt face another battle. H shouted at me for doing that and said whats the point, youre just undoing it, hes never going to learn.

For background, weve had a horrible few days. Ds has had a cold and a stomach bug at the same time. Hes been uncomfortable and miserable and barely sleeping. Ive barely slept either because its mostly fallen on me to settle him. H is tired too but not in the same way.

After everything calmed down, H said he didnt sign up for this. That he knew having a disabled child would be hard but he didnt realise it would be like this. That everything feels like a constant fight and hes fed up.

All evening hes been off with ds. Ds has been trying to climb on him, sit next to him, get his attention and H has just not really acknowledged him. Not cruel, just distant. Ds doesnt understand and keeps trying, which breaks my heart.

This isnt a one off. H snaps at ds a lot. He expects him to understand and comply like a typical four year old and gets angry when he cant. Afterwards he feels guilty and shuts down, but in the moment ds takes the brunt of it.

I know H is grieving the child and life he thought we would have. I know the school thing is bringing a lot up. But ds is four. He didnt choose this. I cannot accept him being shouted at and sworn at for things he genuinely cant help.

I feel like Im constantly buffering between them. Protecting ds while trying to keep H stable. Im exhausted and starting to feel resentful and scared about the long term impact on ds.

Am I being unreasonable to think this has crossed a line? How do I handle this without blowing our marriage apart or allowing ds to be emotionally hurt?

OP posts:
Moonnstarz · 18/01/2026 21:18

I can only echo others comments..what support have you been given as a family? It sounds like your husband is struggling with having a disabled child and perhaps going to a support group with others would help, or for private counselling. When did you find out your child would have DS? Was any counselling offered then?
Could you also speak to the HV about help with toileting. I would also speak to the school, lots of children do now start that aren't toilet trained, especially those with medial issues or disabilities so I wouldn't be pressurising the toilet training if it's not working at the moment.

Starlightsprite · 18/01/2026 21:17

I fucking hate men! No one will ever convince me that 100 average men are worth 1 average women! Posts like this confirm it for me.

’Maybe the DH needs therapy’
’He's mourning the loss of…..”

Most women just plough on though don’t they whilst remaining loving and calm. Not men though.

No advice, I’m so very, very sorry OP. I hope you find peace, hopefully away from DH.

EmeraldShamrock000 · 18/01/2026 21:16

I recall an episode of super nanny. I know 🤪 There was an older child who wouldn’t toilet trained, he has special needs and his father was loosing his mind. I cannot remember the method that was used but there was a complete turnaround.

silverwrath · 18/01/2026 21:16

Not everyone has the temperament to cope with a disabled child.

I think you need to sit down with your husband and have an honest discussion about the future. It may be that you need some extra support. That alone may ease the pressure. Or it may not. There must be organisations that can advise you on this.

Moonlightfrog · 18/01/2026 21:15

Raising a child with SN’s is bloody hard, noticing that your child isn’t meeting milestones that other kids his age are is also very hard but your dh isn’t handling the situation well. I agree that he may need more help to understand that your child isn’t going to hit those milestones the same time as others.

My dd doesn’t have DS but she’s severely autistic and at 4 was non verbal with a very delayed understanding. Toilet training was hard and we were getting close to her starting school and preparing for the fact she may still be in pull ups. We backed right off (gave up trying) and then suddenly 3 weeks before she was due to start school she toilet trained herself. Your ds will do it eventually, when he’s ready.

My dh struggled excepting dd was disabled, we are no longer together, I split with him when dd was 8 (she’s now 19), he still really struggles to except some of her traits and the random things she does. I have to say ‘in some ways it’s been easier raising her without him here’,though it’s not been easy. Maybe your dh just needs help to understand? Maybe attending counselling or going to a parenting group could help?

AfraidToRun · 18/01/2026 21:14

Therapy or you break up, in my opinion.

candyfloss06 · 18/01/2026 21:12

LadyKenya · 18/01/2026 20:58

Tbf we have no idea if the Husband hates himself, because of how he feels about his Son, and that could be coming out in his behaviour. He could probably benefit from some counselling to help him come to terms with his present and future.

I didn’t really mean the husband would be hating himself - just that if he’s shouting at his son and then ignoring him, he needs to look at his behaviour and his lack of kindness towards his own son.
Some posters are saying he is grieving the loss of a child he thought he’d have, but to be blunt, he’s had four years to do that and he’s still behaving like an oaf. Maybe your husband does need Counselling OP.

ThejoyofNC · 18/01/2026 21:08

Livelovelaughfuckoff · 18/01/2026 21:04

Sounds like she is doing most of it alone to avoid her DH not coping. Better alone than with a man who is becoming increasingly abusive towards a four year old. His behaviour will just be creating more problems on top of existing ones.

That's easy to say but it's not the case in reality is it? The financial side of things alone is a whole different ball game when you're on your own.

EmeraldShamrock000 · 18/01/2026 21:05

Completely unfair to be getting annoyed over this.
He needs to get counselling or leave. Your beautiful boy is aware of his father’s frustration, he’s 4 sounds like he is doing great. He won’t be toilet trained with the pressure, many children aren’t. He will have support in school and will come on watching other children everyday.
I am really sorry that you are in this position with your husband, I hope he comes around. DS has a very loving mother, sometimes that is enough.

Livelovelaughfuckoff · 18/01/2026 21:04

ThejoyofNC · 18/01/2026 21:03

So many people are telling OP to end her marriage, or realising she would then have to do everything alone.

I think you both need to reach out for some professional help.

Sounds like she is doing most of it alone to avoid her DH not coping. Better alone than with a man who is becoming increasingly abusive towards a four year old. His behaviour will just be creating more problems on top of existing ones.

CarrierbagsAndPJs · 18/01/2026 21:04

H has just not really acknowledged him. Not cruel, just distant
Ignoring his child is cruel.

MartySupremeisascream · 18/01/2026 21:04

Your DH needs help accepting the reality that your DS has Down Syndrome.
Not easy for any parent.
Counselling may work for some dads but not for others.
Another possibility is for him to meet other dads of children with Down Syndrome who've been through what you are both going through.

TwinklySquid · 18/01/2026 21:03

Have you been given support for the toileting? I remember when I was trying to toilet train my daughter, one of the signs they are ready is not wanting to be changed. Some days I was lucky I didn’t get a black eye.

What worked for me was buying a potty that looked like a mini toilet (was on Amazon). She’d get a chocolate button for a wee, two for a poo. Took a weekend. I also put her I knickers while doing it so she could feel if she had a wee.

Livelovelaughfuckoff · 18/01/2026 21:03

First off stick a pin in the toilet training for now your DS is not ready. He’s not at the right developmental stage his chronological age is irrelevant.

ERIC has some good resources that are Down Syndrome specific for toilet training https://eric.org.uk/wp-content/uploads/2022/09/12096-Pants4School-Training-Programme_v4.pdf

Second of all I would seriously consider asking your DH to move out for a while. This is a terrible atmosphere for you all and his behaviour is going to be terribly damaging for your DS. Your DH needs to take responsibility for managing his feelings and finding a way to cope but he needs to go elsewhere until he can do that.

ThejoyofNC · 18/01/2026 21:03

So many people are telling OP to end her marriage, or realising she would then have to do everything alone.

I think you both need to reach out for some professional help.

Tutorpuzzle · 18/01/2026 21:02

VikaOlson · 18/01/2026 20:57

Even if he's not being a good father now, he's the only father the child has - so better to try to help him become a good father than assume that's it.
If a mother was struggling the advice wouldn't be, you're just not a good mum, might as well give up.

The thing is, it never is the mother is it? They just have to get on with it (and cope with man-child husbands, to boot).

And you can bet your life that if a mother came on this site admitting to shouting, swearing and ignoring her disabled child, she would be flayed alive, not told to get counselling.

socialdilemmawhattodo · 18/01/2026 21:02

Nelliemellie · 18/01/2026 20:26

Well you wouldn’t know then. Disability is another level.

Not always. Plenty of us have DC with all sorts of needs. Some aren't amplified through illness.

Tammygirl12 · 18/01/2026 21:02

VikaOlson · 18/01/2026 20:22

Sounds like your husband might need to some counselling or parenting courses aimed at parents of disabled children?

I think this is good calm advice

FcukBreastCancer · 18/01/2026 21:01

This is awful to read as a mum of a child with mild disabilities that included years of soiling.
I'd probably divorce if he didnt get counselling, parenting course etc

Didimum · 18/01/2026 21:01

Your DH needs crisis counselling as soon as possible. Are you in a good position financially? I would invest in a private specialised counsellor and also a specialist nanny for as many hours as you can afford a week.

This is not a failure. This is support.

localnotail · 18/01/2026 21:00

Your DH is struggling to accept your child is never going to hit the milestone of a child without a disability. He needs to have counselling to accept it as you DS is not going to hit the milestones of someone who has not the same challenges. You need to put your DS first - he needs loving and supportive parents - not someone who is harsh and cant understand what your child has to deal with.

Butterflyarms · 18/01/2026 21:00

Not what you're asking but a really supportive place for potty training children with Down Syndrome is the PADs Facebook group on potty training. I'd say your husband is not unreasonable to want to try and train, but his behaviour, lack of patience, shouting, that is all unacceptable. Husband might benefit from talking to other dads with a child with DS - could help him get some perspective.

DragonsAndDaffs · 18/01/2026 20:58

Do you attend any support groups for downs syndrome or additional needs?
It does sound like your DH is checking out.
It's really hard parenting a child with additional needs and many marriages don't survive.
Would DH consider some counselling?

LadyKenya · 18/01/2026 20:58

candyfloss06 · 18/01/2026 20:28

I feel so sorry for your son - being unwell and looking for comfort from his Dad. I’m stating the obvious here, but your son can’t help the fact that he has DS, I’m sure he’s an adorable little boy.
How can your husband look at himself in the mirror ?

Tbf we have no idea if the Husband hates himself, because of how he feels about his Son, and that could be coming out in his behaviour. He could probably benefit from some counselling to help him come to terms with his present and future.

Coffeeandbooks88 · 18/01/2026 20:58

LVhandbagsatdawn · 18/01/2026 20:27

Neither of you are wrong, but you both need help to manage things. Things are not working the way they are at the moment.

It sounds like your H needs some counselling to handle his emotions around having a child with disabilities, and parenting courses to help him handle your son and meet his needs.

Your son is going to have to be toilet trained before he starts school, and the sooner the better - don't put this off.

He doesn't have to be especially if he isn't ready and disabled. My son is autistic and fairly non verbal. I doubt he will be ready before starting school this year.