Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

DS 20 not coping with work - get him to claim UC?

313 replies

dswork · 16/01/2026 09:20

DS 20 has ASD and ADHD. Since 18 he has had multiple jobs and not coped with any in any form. FT, PT, retail, hospitality, admin etc etc.

Every job requires me to support him SO much. I have to help him get ready, deal with panic attacks and anxiety daily. Call in when he can’t leave the house, drop him off and pick him up and through every shift offer support with calls and messages when he has to take breaks . I’m exhausted and he just can’t seem to cope.

He gets PIP. Do I suggest to him that he puts a claim in for UC? To have a temporary break from working as it really doesn’t seem to be working out at all? The GP is supportive as says the stress and anxiety for DS is so high that he’s in burnout.

OP posts:
TheLovelinessOfDemons · 17/01/2026 07:47

MatildaTheCat · 16/01/2026 09:26

I’d be concerned about the temporary fix becoming permanent. Do you have ideas for supporting him into work at a later date? Also he might become quite isolated if he’s not working so while this sounds a reasonable plan I would be cautious about him not wanting to start again.

UC don't let you sit there on benefits, they'll be trying to get him into work.

Penelope23145 · 17/01/2026 00:23

A 20 year old claiming UC currently with the LCWRA element in place meaning no work commitments due to health would be looking at around £739 UC per month with PIP on top ( possibly £300-£400 every four weeks ). I personally think this is a lot for a young person living at home and will hardly incentivize anyone to begin looking for work when they are well enough.
The UC amount would be less for anyone going through the LCWRA process after April 2026 as that element is halving for new claimants. I suspect with the number of young people claiming and the fact that over 2/3 of people going through the work capability process are awarded LCWRA rather than the lesser paid LCW, this is why they are reducing/ halving that element. It's completely unaffordable with the sheer numbers that are claiming.

LunarEclipser · 16/01/2026 23:45

SleeplessInWherever · 16/01/2026 22:19

Those people are either not living off £400, because it’s a top up, or they’re likely getting their housing costs subsidised.

I have absolutely no issue with a 20 year old who has tried his best to work, and cannot cope, having £400 of tax payers money to use as disposable income. He deserves a life too.

There are many more able to work who choose not to, and claim - he sounds far more worthy, if it was even up to us to decide who should have money they’re entitled to.

Why do you say this? This is what I was given because I own my home. Actually, £3 less.

I know you’re supportive of the son in this situation (as am I, as posted earlier) but this is the reality of UC.

SleeplessInWherever · 16/01/2026 22:19

BIossomtoes · 16/01/2026 21:55

Yes he should take a break but, given that he lives at home and already receives PIP he shouldn’t claim any more benefits. There are single people living on universal credit who have to feed, clothe themselves and pay their bills out of that £400 a month. While I have every sympathy with him I think claiming benefits he doesn’t need is a pisstake.

Edited

Those people are either not living off £400, because it’s a top up, or they’re likely getting their housing costs subsidised.

I have absolutely no issue with a 20 year old who has tried his best to work, and cannot cope, having £400 of tax payers money to use as disposable income. He deserves a life too.

There are many more able to work who choose not to, and claim - he sounds far more worthy, if it was even up to us to decide who should have money they’re entitled to.

Changefromsugartolard · 16/01/2026 22:09

BIossomtoes · 16/01/2026 21:55

Yes he should take a break but, given that he lives at home and already receives PIP he shouldn’t claim any more benefits. There are single people living on universal credit who have to feed, clothe themselves and pay their bills out of that £400 a month. While I have every sympathy with him I think claiming benefits he doesn’t need is a pisstake.

Edited

Thats daft. If he is entitled to claim the benefits then he can. It has nothing to do with whether he needs the money.

DoubtfulCat · 16/01/2026 21:59

@dswork you both sound like awesome people.

I second the pp saying he should get signed off for now. Burnout is no joke. And then when he is feeling more himself again, and his eating and sleeping are a bit better, maybe have a think about what he might do to occupy himself. It is good to keep working at expanding your window of tolerance, if he could get support to live on perhaps he can find an occupation that suits his skills, talents, and interests better without the pressure of an actual job.

BIossomtoes · 16/01/2026 21:55

LunarEclipser · 16/01/2026 20:48

We’re adults for a long time, earning money, paying bills. If your son needs a break right now, he should take it.

Yes he should take a break but, given that he lives at home and already receives PIP he shouldn’t claim any more benefits. There are single people living on universal credit who have to feed, clothe themselves and pay their bills out of that £400 a month. While I have every sympathy with him I think claiming benefits he doesn’t need is a pisstake.

SleeplessInWherever · 16/01/2026 21:50

NorthXNorthWest · 16/01/2026 21:42

I know all about the fight and the frustration and I still disagree with signing on for more benefits.

What would you prefer he did, continued descending into misery?

NorthXNorthWest · 16/01/2026 21:42

dswork · 16/01/2026 20:41

I don’t think people realise unless they have SEN dc that you have to fight and wait years for a diagnosis, then you don’t get automatic help you have to again wait years for CAMHS and then it’s hit and miss if they are even helpful. Schools can be great or terrible dealing with SEN it’s just down to luck and before you know it you have a child who is failing and burnt out. DS has always tried hard and had high expectations for himself but it’s as if ASD and ADHD fight against each other in his mind every minute of every day. I keep reading how very early diagnosis and intervention before age 5 has the best outcome but we are nowhere near achieving that in the UK. SEN children are just let down , there’s only so much parents can do especially if they are not on a high income as then you can’t buy in support/SALT/OT etc.

I know all about the fight and the frustration and I still disagree with signing on for more benefits.

Sometimeswinning · 16/01/2026 21:15

Maybe you could support him financially whilst he waits to find out? It sounds like he needs to quit his job or get a doc appointment.

LunarEclipser · 16/01/2026 20:48

We’re adults for a long time, earning money, paying bills. If your son needs a break right now, he should take it.

fashionqueen0123 · 16/01/2026 20:46

dswork · 16/01/2026 09:40

It’s just exhausting and he’s not coping but neither am I now as well I feel unwell from stress and tiredness

What job does he do now?

I agree could he try something outdoors - maybe using experience. So if he’s worked in retail. Try part time in a garden centre or something? Something less hectic and maybe a tad quieter. Retail can be full of horrible customers but some places like that can be less demanding.

Or shelf stacking. Some supermarkets have these roles and no customers etc involved

dswork · 16/01/2026 20:41

I don’t think people realise unless they have SEN dc that you have to fight and wait years for a diagnosis, then you don’t get automatic help you have to again wait years for CAMHS and then it’s hit and miss if they are even helpful. Schools can be great or terrible dealing with SEN it’s just down to luck and before you know it you have a child who is failing and burnt out. DS has always tried hard and had high expectations for himself but it’s as if ASD and ADHD fight against each other in his mind every minute of every day. I keep reading how very early diagnosis and intervention before age 5 has the best outcome but we are nowhere near achieving that in the UK. SEN children are just let down , there’s only so much parents can do especially if they are not on a high income as then you can’t buy in support/SALT/OT etc.

OP posts:
ButterPecanCookie · 16/01/2026 20:39

dswork · 16/01/2026 09:20

DS 20 has ASD and ADHD. Since 18 he has had multiple jobs and not coped with any in any form. FT, PT, retail, hospitality, admin etc etc.

Every job requires me to support him SO much. I have to help him get ready, deal with panic attacks and anxiety daily. Call in when he can’t leave the house, drop him off and pick him up and through every shift offer support with calls and messages when he has to take breaks . I’m exhausted and he just can’t seem to cope.

He gets PIP. Do I suggest to him that he puts a claim in for UC? To have a temporary break from working as it really doesn’t seem to be working out at all? The GP is supportive as says the stress and anxiety for DS is so high that he’s in burnout.

It sounds like majority of it is anxiety related - would he be open to trialling prescribed medication for his anxiety? (I am also autistic using this type of medication)

Paperwhite209 · 16/01/2026 20:06

Is he on ADHD medication? And has he had any other kind of therapy to help with his SEN?

If the GP is saying he's in neurodivergent burnout he definitely needs a break for now, but it would be good to have a plan going forward.

NorthXNorthWest · 16/01/2026 19:40

Penelope23145 · 16/01/2026 18:27

Uc would likely double the amount he currently gets on PIP. I can see why people go down this route.

This country is screwed.

NorthXNorthWest · 16/01/2026 19:33

ArseInTheCoOpWindow · 16/01/2026 19:31

😂😂😂

Stupid😂😂

Why not stamp your little foot too?

Edited

Ironic seeing as you brought the tantrum and stupid to the party. Once an Arse, I guess...

ArseInTheCoOpWindow · 16/01/2026 19:31

NorthXNorthWest · 16/01/2026 19:29

The OP clearly isn't considering this.

Just a heads up - this is AIBU, if it is too triggering for you, you know where the door is. Can't help you with the stupid though, good luck with that.

😂😂😂

Stupid😂😂

Why not stamp your little foot too?

NorthXNorthWest · 16/01/2026 19:29

ArseInTheCoOpWindow · 16/01/2026 18:43

Gosh, why didn’t all the parents struggling with their children in ND burnout think of this? We must be stupid.

Thank you so much for pointing it out. We never thought of it🙄

The OP clearly isn't considering this.

Just a heads up - this is AIBU, if it is too triggering for you, you know where the door is. Can't help you with the stupid though, good luck with that.

SleeplessInWherever · 16/01/2026 18:59

Tiddlywinky · 16/01/2026 18:34

Wouldn't he be expected to work some hours though? 16 or so?

Edited

He should qualify for LCWRA, so he won’t have a job seeking requirement - ideally.

ArseInTheCoOpWindow · 16/01/2026 18:43

NorthXNorthWest · 16/01/2026 15:49

It's mad that so many people think best option is Benefits. Parents, whilst being their child's biggest supporter, can be their biggest enabler of avoidance and in turn failure. Benefits is not where you go with a child like this if you want to prepare them for the world.

Edited

Gosh, why didn’t all the parents struggling with their children in ND burnout think of this? We must be stupid.

Thank you so much for pointing it out. We never thought of it🙄

Tiddlywinky · 16/01/2026 18:34

Penelope23145 · 16/01/2026 18:27

Uc would likely double the amount he currently gets on PIP. I can see why people go down this route.

Wouldn't he be expected to work some hours though? 16 or so?

Penelope23145 · 16/01/2026 18:27

NorthXNorthWest · 16/01/2026 15:49

It's mad that so many people think best option is Benefits. Parents, whilst being their child's biggest supporter, can be their biggest enabler of avoidance and in turn failure. Benefits is not where you go with a child like this if you want to prepare them for the world.

Edited

Uc would likely double the amount he currently gets on PIP. I can see why people go down this route.

Tiddlywinky · 16/01/2026 18:17

Could he cope with WFH OP? and maybe volunteering a few hours a week so that he gets out of the house.

crackofdoom · 16/01/2026 18:09

dswork · 16/01/2026 11:41

We’ve tried an equal amount of PT and FT jobs he just can’t seem to cope at all. In 2.5 years he’s had 9 jobs. He seems to want desperately to be working but then each day is crippled with anxiety before hand, can’t focus or concentrate and keeps having meltdowns during them sleeping after and neglecting most other things (this has got worse lately as he is sleeping through some meals plus isn’t showering daily as too tired or in a rush)

He's probably internalised the common attitude that if you're not working full time then you're some kind of scrounger and not a proper member of society (hellooooo PPs! 👋).
Believe you me, I know this one well. Being bright (I don't know if your DS is OP, but obviously lots of autistic people are) yet unable to achieve even a basic level of adulting success can leave you weighed down with guilt and a sense of inadequacy. I am constantly, constantly beating myself up at being unable to work full time as an autistic, perimenopausal single mum.

He has to unlearn all his expectations of what he should be doing to be a good little worker drone, and look at how he finds fulfilment and productivity through other routes.

Is he bright? What is he into? Does he have a classic circadian rhythm that works well with a 9-5 ?