The long covid sink hole

That’s how homeopathy works. The more dilute the remedy the stronger it is.

The whole premise of homeopathy is that less of something is somehow stronger and will do more. You're right that it won't do anything though, at least not unless the patient believes it will so the homeopathy placebo effect is correspondingly stronger.

thats what the homeopath who prescribed (nhs) told me to do when i was really unwell after one remedy.

i don’t see how less of somethimg could make it stronger?

I’ve dm’d you.

That would be great if you can, thankyou! 🙂

I’ll contact her on Monday and dm you x

What is this test that would nail a diagnosis of Long Covid please? I thought it was a diagnosis made by excluding other possibilities, but if there is a specific test I'd really like to know! Thank you.

I have LC by the way. It is relatively mild compared to many cases, but has still utterly derailed my life. I used to be extremely fit and active and worked extremely hard alongside my parenting responsibilities. I'd say I'm operating at a third of my previous capacity. It's depressing.

There is no cure yet - doctors cannot do much. So it's hardly surprising people look online for things other people have found helpful.

I would be very grateful for her details too if she has been helpful

Would you be able to give me her contact details please if you wouldn't mind? On here or over PM if that's better? Thanks!

I don’t have long Covid but I read some of the info as I have an ill child with diagnosed POTs and we are looking at pans or mcas triggered by diagnosed mould allergy and this can overlap symptoms of long covid.
But I do know the nhs now had long Covid clinics.
You are mixing two things up - your brother not wanting a test to formally diagnose him as having long Covid so he can access appropriate help is a red flag about his mental health. You however taking a pop at long Covid victims because they are seemingly feeding his mental health issues is unfair

I’m in S Yorks.

She does video calls.

She used to work at a Long Covid Hub, she’s private now.

I have a friend who worked for the NHS during Covid. Covid/long Covid caused permanent heart problems including needing her heart rhythm to be ‘reset’ under general. She can no longer risk drinking alcohol or caffeine and pregnancies have been more high risk.

You are unreasonable for treating your brother’s symptoms as some kind of conspiracy that is an inconvenience to you. Count yourself lucky it’s not you going through all that. Sorry to hear your parents are also sick though.

Was it a private OT you saw or NHS?

Greater Manchester

Yeah, whereabouts are you?

Was that in response to me about OT? If so, does the OT you saw offer video/phone appointments for people who are housebound do you know? Thanks! 🙂

People started getting long covid from the start of the pandemic, well before any covid vaccines.

Why?

How many vaccines has your brother and this"community" had ?

I thought the more dilute the homeopathic remedy the more potent it was?

Yes, l have she was incredibly helpful. She was the one who put me in the road to recovery.

Does anyone have any experiences, good or bad, with any private occupational therapy services for long covid? My mum has been looking at trying one as she hasn't had much help from the NHS.

It’s possible that the guy is very unwell but also doing bugger all to actually help himself, and also for the OP to find it draining and for sympathy to wane after all these years . Especially when she’s the one left to pick up all the slack. I feel very sorry to read about the awful experiences of some posters here but I feel a lot of people are probably projecting when the truth is the OP knows her brother and likely to have a better grasp of what’s going on with him than any of you.

im sorry to hear that.

i got told i would get worse before i got better and i just needed tiny treatments as my body couldn’t take anything more.

The therapist had epstein barr and me/cfs herself so she knew all about it. Not all therapists know how bad it is. Yours probably tried to help you as much as possible but did too much.

If i go to a new therapist i always ask them to do hardly anything per treatment as i can’t handle it if you do too much. i’d rather have small positive tweaks from three carefully placed relevant needles that provide some benefit each week than get my moneys worth so to speak from twenty needles treating all my issues at once as that would not help me in fact it would crash me.

I also diluted the doses of homeopathy medicines by making up the remedy in water to the number of ml it’s supposed to be, taking one teaspoon from the glass and putting into another empty glass and making it up to the ml it’s supposed to be with water again. (throw away the first glass). And only after i was sure it was safe after a few doses had been ok would i take the full dose.

i was so weak. it was ridiculous. im come so far but i remember im not right as soon as i reach my limit and i get symptoms again. it sucks. i can seem to escape it.