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To be so annoyed with bloody paternalistic NHS

261 replies

MyKindHiker · 30/11/2025 14:34

I am a lifetime migraine sufferer and as I'm getting closer to menopause they are getting worse in frequency and severity. At least half of all days I wake up with some form of aura, go through packs of nurofen and sumatriptan. Anyways it's been years since I considered any intervention other than just taking meds when one coming on (not necessary as not that frequent through adulthood), but I gather from talking to others there are some really effective meds available now which can prevent them entirely.

Go to GP who looks at recent bloodwork done to check my hormones and says as I'm still fertile and having periods, he can't prescribe in case I get pregnant while on them. I explain I have 2 kids and don't want more. In fact, can't technically have more anyway due to birth injury with second. And husband has had vasectomy to prevent accidental pregnancy as due to birth injury I could get pregnant but couldn't carry baby to anywhere near term. Which is beside the point as I do not want any more kids anyway.

Anyway doc says I still can't have the meds and the rule is for women of childbearing age the rule is they need to go to a special clinic with a 12 month waiting list and do all the steps first (elimination diet etc... I have TRIED THIS OVER 30 YEARS) and prove I'm not pregnant.

I mean what is with these people? If I was a man, I would have just got the meds to prevent a very debilitating condition. But because I'm a woman I can't have the meds 'in case' I become pregnant as though I'm just a uterus on legs who can't think for myself and decide not to become pregnant? Why is my word not enough that I will not have an affair with a non-vasectomied man and get myself up the spout. Ridiculous.

OP posts:
EveryKneeShallBow · 30/11/2025 15:22

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I was told this, too.

Iloveyoubut · 30/11/2025 15:22

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Well I can assume you’re intelligent enough that you know the undertones of your post … they were hardly coming from a place of being helpful. Anyway… I’m not here to police what you say … it just annoyed me tbh but I’ll deal with it

Extragreen · 30/11/2025 15:20

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Iloveyoubut · 30/11/2025 15:18

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Well you know it’s not so…

Extragreen · 30/11/2025 15:16

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Iloveyoubut · 30/11/2025 15:15

Extragreen · 30/11/2025 14:43

Because of your migraines? Not as a policy for all women in their 40s presumably?!

Yes because of her migraines, are you daft? Or just asking questions like this because you’re a wannabe lawyer!

FancyLimePoet · 30/11/2025 15:15

Why don’t you consider a long acting contraception like a more a coil ?

Doctors are very cautious as they quite rightly fear litigation.

Did you see that case of the girl with spinabifida suing the GP because they didn’t tell them to take folic acid ?

HorrorFan81 · 30/11/2025 15:15

I've tried so many medications for migraine including topimerate, proponalol, canderstarten, gabapentin and anti CGRP injections - i havent been on birth control at all for any of this so it's definitely possible. I would ask for a neurology referral and get under a specialist

gemma9239 · 30/11/2025 15:15

I agree with you, it's a similar thing to not being allowed to take your kids on holiday during term time. Just nanny state blanket guidelines implying that we are all too stupid to make sensible decisions for ourselves!

On another note, have you been checked for chiari malformation (a brain scan would pick it up) just woth you saying you've had long term migraines which are getting worse xx

LikeMaria · 30/11/2025 15:14

Topseyt123 · 30/11/2025 15:04

Then you aren't trying very hard to understand. It really isn't difficult. OP wants to be appreciated by the medical profession as an intelligent woman who is able to make her own decisions and understand her own circumstances.

Also, you simply cannot just go in and order a hysterectomy. The NHS just doesn't work that way and there are many hoops that you normally have to jump through. Removal of fibroids, ablation, mirena coil, other long term medications too. Hysterectomy is seen as the final resort, and I am not saying that I agree with that because I don't necessarily.

I understand you OP. It is the patriarchy patronising women. They think we are all too stupid to know what is good for us, or what we need, or whether or not we know how to keep safe from getting pregnant (a successful vasectomy is extremely safe).

Ridiculous. Would you get a different answer if you had the means to go private? Do you have access to medical insurance that might cover it? Some doctors will see you privately and once a diagnosis or agreement is reached might then transfer you to their NHS clinics for ongoing prescriptions and check-ups.

This. Medical misogyny is far too common. Women aren't walking incubators.

TigerRag · 30/11/2025 15:13

That is ridiculous. I've been on various migraine medications since 2012 when I was 23.

I've been told at least twice I can't have children if I'm on those meds. Every doctor has just made it clear not to get pregnant.

I have never been refused medication (any, not just for migraine) on the basis I may get pregnant and am not on contraception

LikeMaria · 30/11/2025 15:12

wirefluff · 30/11/2025 15:07

A lot of people find the mini pill makes their migraine worse even with a good preventative in place. I can't use it due to this reason although it doesn't have the same risk as oral oestrogen.

Although if you can't find a better option OP you could see if the Dr will prescribe the meds along with the mini pill, and then just not take the pill. The Dr has no way of knowing if you don't take it.

gogomomo2 · 30/11/2025 15:11

The flip side is if a child is born due to contraception failure with birth defects the parents will be sueing the nhs for prescribing, it happens.

we had to fight for dsds meds similar reasons but hospital consultant could authorise

Ansjovis · 30/11/2025 15:09

I'm with you here. I have been told not to attempt pregnancy as it would be too dangerous for me but in the next breath I am told I cannot be sterilised because I am too young and may want to have children! It's an absolute joke.

Pessismistic · 30/11/2025 15:09

Hi op have you seen a neurologist? I would suggest this as first point of call ask gp to refer you on nhs.

poetryandwine · 30/11/2025 15:09

PinkFootstool · 30/11/2025 14:43

Is it topiramate?

If so, you're not missing anything. Dreadful drug, I was being tested for blood cancers and other diseases because the side effects were so bad and the GP couldn't see how it could be that. It was.

FWIW, topiramate worked incredibly well for my migraines and made all the difference in the world to my life. I know that it is Marmite and patients need to work with a neurologist to get it right. I am sorry it didn’t work for you, but we have no idea what OP’s experience would be.

I started it while on the coil in another country. OP’s situation sounds crazy, whether the concern is topiramate or something else.

I did have a hard time getting a migraine review with a neurologist upon moving to the UK. Finally after a period of degeneration I was under Neurology for a few years. Before then I had Neurology reviews every year or two and any problems were nipped in the bud.

OP, is your GP trying to manage your migraines? Perhaps a neurologist would take a more reasonable attitude? I don’t think asking for a Neurology referral to get around the contraceptive Catch 22 is good tactics, but perhaps you could ask on the grounds that your life is being badly disrupted. I haven’t looked nut I suspect there are online forums for British migraine sufferers that would give you some tips on how to get a referral.

Best wishes

CantSeeTheWolfForTheTrees · 30/11/2025 15:08

If it’s topiramate or sodium valproate then you need to be on a pregnancy prevention programme - your husband having a vasectomy doesn’t count.

www.gov.uk/drug-safety-update/topiramate-topamax-introduction-of-new-safety-measures-including-a-pregnancy-prevention-programme

wirefluff · 30/11/2025 15:07

TheRolyPolyByrd · 30/11/2025 14:59

If you have migraine with aura you can't get the combined pill OP, but you can get the mini pill (unless you have other risk factors you haven't mentioned).

A lot of people find the mini pill makes their migraine worse even with a good preventative in place. I can't use it due to this reason although it doesn't have the same risk as oral oestrogen.

CantSeeTheWolfForTheTrees · 30/11/2025 15:07

If it’s topiramate or sodium valproate then you need to be on a pregnancy prevention programme - your husband having a vasectomy doesn’t count.

www.gov.uk/drug-safety-update/topiramate-topamax-introduction-of-new-safety-measures-including-a-pregnancy-prevention-programme

LikeMaria · 30/11/2025 15:05

Naws · 30/11/2025 14:55

Not being able to carry a baby doesn't mean you can't get pregnant.

And apparently 'I'm not the brightest spark'? 😳

So what? If OP or anyone else has an unwanted pregnancy they can just get an abortion, it's not 1950.

YourFairCyanReader · 30/11/2025 15:05

Have you considered HRT? If your migraines are getting worse due to menopause, this could help.

Topseyt123 · 30/11/2025 15:04

Naws · 30/11/2025 14:37

I don't understand what you're not understanding.

That men can't get pregnant?

Could you have a hysterectomy to prevent pregnancy, therefore putting you on an even footing with men?

Then you aren't trying very hard to understand. It really isn't difficult. OP wants to be appreciated by the medical profession as an intelligent woman who is able to make her own decisions and understand her own circumstances.

Also, you simply cannot just go in and order a hysterectomy. The NHS just doesn't work that way and there are many hoops that you normally have to jump through. Removal of fibroids, ablation, mirena coil, other long term medications too. Hysterectomy is seen as the final resort, and I am not saying that I agree with that because I don't necessarily.

I understand you OP. It is the patriarchy patronising women. They think we are all too stupid to know what is good for us, or what we need, or whether or not we know how to keep safe from getting pregnant (a successful vasectomy is extremely safe).

Ridiculous. Would you get a different answer if you had the means to go private? Do you have access to medical insurance that might cover it? Some doctors will see you privately and once a diagnosis or agreement is reached might then transfer you to their NHS clinics for ongoing prescriptions and check-ups.

AnnaMagnani · 30/11/2025 15:01

Is this that your GP won't prescribe the combined pill? Because if so, they are right- age and migraine history are against you.

You can have the progesterone only pill and if your migraine is cyclical it can be helpful in eliminating these.

If your GP isn't prescribing any migraine prevention that is very odd as there are so many of them.

TheRolyPolyByrd · 30/11/2025 14:59

If you have migraine with aura you can't get the combined pill OP, but you can get the mini pill (unless you have other risk factors you haven't mentioned).

Rebecca230 · 30/11/2025 14:58

MyKindHiker · 30/11/2025 14:53

Yes, this! Thank you!

And thanks for the links x

Good luck! 🙂

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