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To be so annoyed with bloody paternalistic NHS

261 replies

MyKindHiker · 30/11/2025 14:34

I am a lifetime migraine sufferer and as I'm getting closer to menopause they are getting worse in frequency and severity. At least half of all days I wake up with some form of aura, go through packs of nurofen and sumatriptan. Anyways it's been years since I considered any intervention other than just taking meds when one coming on (not necessary as not that frequent through adulthood), but I gather from talking to others there are some really effective meds available now which can prevent them entirely.

Go to GP who looks at recent bloodwork done to check my hormones and says as I'm still fertile and having periods, he can't prescribe in case I get pregnant while on them. I explain I have 2 kids and don't want more. In fact, can't technically have more anyway due to birth injury with second. And husband has had vasectomy to prevent accidental pregnancy as due to birth injury I could get pregnant but couldn't carry baby to anywhere near term. Which is beside the point as I do not want any more kids anyway.

Anyway doc says I still can't have the meds and the rule is for women of childbearing age the rule is they need to go to a special clinic with a 12 month waiting list and do all the steps first (elimination diet etc... I have TRIED THIS OVER 30 YEARS) and prove I'm not pregnant.

I mean what is with these people? If I was a man, I would have just got the meds to prevent a very debilitating condition. But because I'm a woman I can't have the meds 'in case' I become pregnant as though I'm just a uterus on legs who can't think for myself and decide not to become pregnant? Why is my word not enough that I will not have an affair with a non-vasectomied man and get myself up the spout. Ridiculous.

OP posts:
diddl · 30/11/2025 17:09

CantSeeTheWolfForTheTrees · 30/11/2025 17:00

No it doesn’t - he’s not the only man who can get her pregnant.

Ah, so Op can't be trusted not to have sex with someone other than her husband then.

Bushwoolie · 30/11/2025 17:07

Naws · 30/11/2025 14:37

I don't understand what you're not understanding.

That men can't get pregnant?

Could you have a hysterectomy to prevent pregnancy, therefore putting you on an even footing with men?

I BEGGED for a hysterectomy for 17 years. And medically speaking, I was eligible. However I wasn't allowed one in case "I wanted to have more children".

They do not give out hysterectomies just because someone doesn't want to get pregnant. Not when they are of child baring age.

Believe me, i tried and so have thousands of women before/after me.

biedrona · 30/11/2025 17:04

wirefluff · 30/11/2025 14:44

Your GP is totally incorrect on this, you need to go and see a different GP at the practice or another surgery for a different opinion. You should be able to get first line treatments from your GP no issue. They should also be looking at your usage of Sumatriptan and Painkillers as these can cause medication over use headache. Usually you need to try at least two first line treatments such a beta blockers and atogeopant before you'll be referred to a neurologist. Go back and see another doctor urgently!

Agree, sorry you have been treated like this

gemma9239 · 30/11/2025 17:02

CantSeeTheWolfForTheTrees · 30/11/2025 16:05

@gemma9239 it’s not about nanny state guidelines, it’s about safety. Have you read the pregnancy prevention programme?

Absolutely not and I'm not about to but my original point still stands. Of course there are wider implications but if a doctor lets a pt know about the risks and they have suitable contraception in place (vasectomy) then I don't see the issue.

CantSeeTheWolfForTheTrees · 30/11/2025 17:00

diddl · 30/11/2025 16:37

So Op's husband having had a vasectomy doesn't count as being on a "pregnancy prevention programme"?

Is that because a vasectomy isn't a reliable form of contraception then..?

No it doesn’t - he’s not the only man who can get her pregnant.

Newsenmum · 30/11/2025 16:59

FirmOliveReader · 30/11/2025 14:55

Yep.

And knowing a child with foetal valporate syndrome where the Mother insisted she couldn't possibly get pregnant but did and then had a child with severe disabilities might be why the GP doesn't want to take the risk.

I get that it's shit for OP but MN has frequent threads from OPs who were absolutely sure they wouldn't get pregnant and then did.

I 100% get this perhaps if op had
proof she would definitely need to terminate pregnancy due to health anyway this could help? Because I agree there are no for women who are absolutely convinced and suddenly they’re pregnant. it seems to be particularly common when people get close to meno.

BakedBeing · 30/11/2025 16:51

Kendodd · 30/11/2025 14:39

I assume the meds cause birth defects (?)
Can you have your tubes tied and go back?

That’s mad, why should she do that? You make it sound like she could just pop into Boots and ask them to tie tubes for her.

Isekaied · 30/11/2025 16:47

Because people say all that but later when a proble. Happe s say it was t explained properly to them and then sure the doctors.

Or something happens to the patient and the family sues the doctors. Regardless of what was discussed.

It's not worth it for the doctor to put them self at risk.

Lots of news articles. Where doctors get sued for spurious reasons.

Where things have been explained to the patient then 2 years later they get sued for something that wasn't their fault.

I'm not surprised they won't prescribe it.

EarthSight · 30/11/2025 16:45

There's a lot to go through here.

You need to see a neurologist and a gynaecologist. Insist on it.

At least half of all days I wake up with some form of aura, go through packs of nurofen and sumatriptan

That's a serious issue. You are at risk of addiction, and you may already be there. You should not be taking this much ibuprofen or sumatriptan. Addiction doesn't mean that you get some sort of high on something - it's means your body develops a dependency on certain medicines and that could take a while to sort out.

It looks like the root cause is your hormones. Your GP or gynaecologist could prescribe you HRT to see if it works, but it may not be a magic cure, and it will probably be tough for you to convince them. HRT is sometimes used as a migraine therapy, btw. Less so in the U.K, I imagine. You won't be able to use HRT as contraception btw - this would purely be for your migraines or other symptoms.

A neurologist might be a little unfamiliar with that, but they will be very familiar with prescribing prophylactics, to prevent migraines. Be careful though - amitriptyline and others like it are old fashioned anti-depressants and doesn't exactly sound like a picnic to wean off. There's also increasing studies that link anticholinergic medicines with increased risk of dementia, so it's not ideal to be on something like that for a long time.

Also, in your case, I'd be concerned that this is simply masking a hormonal issue. This may not show on your blood tests though, so be prepared to be dismissed if they come back within 'normal' range.

gillefc82 · 30/11/2025 16:43

MyKindHiker · 30/11/2025 14:37

No - in your 40s (I have been told) you are no longer allowed the contraceptive pill due to hormones and risks. Hence husband has had a vasectomy. Which is contraception. And if I had an affair with anyone (which I won't), I would use barrier methods. Or take the morning after pill.

This isn’t correct. I’m 43, suffering with peri symptoms so just started HRT but also on the mini pill as have to take statins for familial hypercholesterolaemia and am currently still technically having periods and am sexually active with my DH. I’d go back and insist on contraception.

Anyahyacinth · 30/11/2025 16:39

PunishmentRoundupWithJoon · 30/11/2025 16:00

OP, ignore @Extragreen - it's clear they are one of those goady posters. I have reported them and some of their posts have been deleted. I would encourage others to do the same with all of @Extragreens posts if they are similarly goady.

Nothing you say will satisfy them. They will pick holes in everything you say. There are many of this type of poster on mumsnet at the moment, and the best thing to do is deny them oxygen. It's best not to address any of their posts as they are not posting in the right spirit and only wish to minimise your very valid concerns. Simply ignore them! (sorry, didn't meant to derail!)

And good luck getting help with your migraines!

Will do 🌻

user67392167904 · 30/11/2025 16:38

Ifeellikeateenageragain · 30/11/2025 15:47

44 year old here who just went BACK on the combined pill. Or are women on here CHOOSING not to go on the pill? Which is fine, but it's not a rule.

Not my experience - GP just wouldn’t prescribe it. I’ve no health conditions, healthy weight. GP is actually the practices women’s health go-to person.

rainbowsandraspberrygin · 30/11/2025 16:38

CantSeeTheWolfForTheTrees · 30/11/2025 16:35

@rainbowsandraspberrygin and they will all have received a risk assessment for prescribing under the pregnancy prevention programme which ensure they are using highly effective contraception.

Oh yes - I’m not saying they shouldn’t have it. But if the OP can’t carry a child and her husband has had the snip - surely she should be able to have it too.

diddl · 30/11/2025 16:37

So Op's husband having had a vasectomy doesn't count as being on a "pregnancy prevention programme"?

Is that because a vasectomy isn't a reliable form of contraception then..?

CantSeeTheWolfForTheTrees · 30/11/2025 16:35

@rainbowsandraspberrygin and they will all have received a risk assessment for prescribing under the pregnancy prevention programme which ensure they are using highly effective contraception.

CantSeeTheWolfForTheTrees · 30/11/2025 16:33

@80smonster a private GP would also have to follow the pregnancy prevention programme.

rainbowsandraspberrygin · 30/11/2025 16:32

wirefluff · 30/11/2025 14:46

Sodium Valproate is usually the medication they give you that has a high risk of birth defects and they do try to avoid using it in childbearing age women. It's usually only proscribed by a Neurologist though.

Plenty of people are prescribed this for epilepsy- I know a few who are female and of childbearing age. If it is this drug then that seems unfair that OP can’t have it.

it’s ridiculous OP. I’m so sorry 😔

80smonster · 30/11/2025 16:27

MyKindHiker · 30/11/2025 14:34

I am a lifetime migraine sufferer and as I'm getting closer to menopause they are getting worse in frequency and severity. At least half of all days I wake up with some form of aura, go through packs of nurofen and sumatriptan. Anyways it's been years since I considered any intervention other than just taking meds when one coming on (not necessary as not that frequent through adulthood), but I gather from talking to others there are some really effective meds available now which can prevent them entirely.

Go to GP who looks at recent bloodwork done to check my hormones and says as I'm still fertile and having periods, he can't prescribe in case I get pregnant while on them. I explain I have 2 kids and don't want more. In fact, can't technically have more anyway due to birth injury with second. And husband has had vasectomy to prevent accidental pregnancy as due to birth injury I could get pregnant but couldn't carry baby to anywhere near term. Which is beside the point as I do not want any more kids anyway.

Anyway doc says I still can't have the meds and the rule is for women of childbearing age the rule is they need to go to a special clinic with a 12 month waiting list and do all the steps first (elimination diet etc... I have TRIED THIS OVER 30 YEARS) and prove I'm not pregnant.

I mean what is with these people? If I was a man, I would have just got the meds to prevent a very debilitating condition. But because I'm a woman I can't have the meds 'in case' I become pregnant as though I'm just a uterus on legs who can't think for myself and decide not to become pregnant? Why is my word not enough that I will not have an affair with a non-vasectomied man and get myself up the spout. Ridiculous.

Your GP sounds heavy-handed. I would get a private GP to prescribe for me. Once you have it on your scripts, you shouldn’t need another appointment.

CantSeeTheWolfForTheTrees · 30/11/2025 16:23

@Crunchymum it depends on the medication - for topiramate and sodium valproate the prescriber must follow the pregnancy prevention programme. And the OPs husband isn’t the only man who can get her pregnant - it is about her fertility not his.

FarFarAwayB · 30/11/2025 16:23

I am so sorry you are going through this. Please contact The National Migraine Centre (see link) they will help you, even if you can make a donation.

www.nationalmigrainecentre.org.uk/migraine-clinic/funding-your-appointment/

Crunchymum · 30/11/2025 16:18

I take a medication (for an autoimmune condition) that you aren't allowed to get pregnant on. Beyond being asked if I'm using contraception it's never been a deal breaker in having my medication prescribed? (Medication causes birth defects and there is a 3 month wash out period between taking this medication and being able to ttc)

I am agog that even with your DH having had a vasectomy, you are being denied this medication @MyKindHiker

NeverDropYourMooncup · 30/11/2025 16:13

FirmOliveReader · 30/11/2025 14:55

Yep.

And knowing a child with foetal valporate syndrome where the Mother insisted she couldn't possibly get pregnant but did and then had a child with severe disabilities might be why the GP doesn't want to take the risk.

I get that it's shit for OP but MN has frequent threads from OPs who were absolutely sure they wouldn't get pregnant and then did.

More likely they're jumpy after it being prescribed to women as a cheap treatment for bipolar/medication resistant depression (ie, it being related to their environment/abuse and not their brains) for years without bothering to tell them that it's teratogenic even whilst they were pregnant.

Used to work in gynaecology. The consultant wanted to go to the local psych department and batter the boss senseless because of the numbers of women he'd seen that a) hadn't been told and b) were told to keep taking it.

starsintheirmultitudes · 30/11/2025 16:11

I had exactly the same thing said to me a few years ago - I was getting migraines that waxed and waned in intensity but essentially went on for weeks and months at a time. GP wouldn't refer me to neurology until I had tried one antidepressant as a prophylactic, a beta blocker, and then Topiramate - without trying all three unsuccessfully I couldn't be referred. But the GP also refused to prescribe Topiramate to me as it can cause birth defects and I am of child bearing age. Which seems a bit of a daft double whammy as migraines mostly (but not always) affect women of childbearing age. Anyway during Covid I saw a different (female) GP who agreed to trial it .... it didn't work and I ended up being referred to neurology anyway but now I'm able to get Botox which helps enormously.Can you see a different GP?

CantSeeTheWolfForTheTrees · 30/11/2025 16:05

@gemma9239 it’s not about nanny state guidelines, it’s about safety. Have you read the pregnancy prevention programme?

Itsasecretnow · 30/11/2025 16:05

GeorgeClooneyshouldhavemarriedme · 30/11/2025 14:41

No, you are missing the point.

She is an adult woman, capable of managing her own fertility who should not need to prove to the medical system that she is not or will not become pregnant.

And yes it's an effing disgrace that a man in the same circumstances wouldn't have to wait at all. The solution would be a simple waiver form where you sign saying that you understand the risks and accept the consequences.

Precisely this. I have had to go on meds at various points during my “childbearing years”, inc my 20s, that can have an affect on a fetus - deformity etc, quite drastic effects that would absolutely lead to major deformities, even if they somehow did make it to term, so likely wouldn’t live anyway - in particular one, that the effects were so serious they had to make sure you were on/using some kind of contraception (at the time I wasn’t using any, for various reasons, but mostly because I wasn’t currently having in sex/in a relationship, but if I was then I understood I needed to use/take contraception), that you had to sign a form saying you were told about the risks and that if you did get pregnant that you would have to agree to an abortion as the effects would be so devastating they basically wouldn’t be “compatible with life”. So in this particular case (plus an entirely different sort of med I’m on now, which they have only just started advising against pregnancy, but again they just warn you against this but you are still allowed to take it, you’re just more aware now. I’m technically/theoretically able to get pregnant still as I’m not yet menopausal [we don’t think, and I’m still advised to use contraception even at this age 50+ because there is still a small possibility] but I’m still allowed the agency to make my own mind up), the one I was on in my 20s, it really was dangerous for a fetus, and I wasn’t in any kind of relationship at that point anyway (as far as I can remember!) so wasn’t using any kind of contraception but was aware that I would have to have an abortion if I did get pregnant, but I was still allowed the meds because I signed the form and was in control of my own body and the consequences of becoming pregnant. I wasn’t denied the drug because I wasn’t on effective/any kind of contraception, I knew I’d have to use contraception if I was to have sex and the consequences of getting pregnant and what that would mean - an abortion. I don’t understand why this can’t be the case for the drug the op needs too.

And yes, like others have said not being a man is relevant, because it should make jo difference which sex you are, and whether you’re biologically able to become pregnant or not, because you can be responsible enough to manage the contraception side of things and not become pregnant. Sex should not come into it. There are disclaimers you can sign - including that legally you’d have to have an abortion on drugs that would lead to extreme and severe effects on a fetus, because the drugs were so damaging. Including, also for a period of x number of months after coming off the drug. But we were allowed to use our own agency and decide for ourselves if we wanted to go ahead with the drug, knowing all the consequences and signing these forms.

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