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Anyone had a failed endoscopy?

62 replies

Tink3rbell30 · 19/11/2025 16:46

Posting for traffic. I worked myself up so much for this and they couldn't even do it. I had full sedation and they said I was moving, trying to lift my head up and waving my arm. I have no memory of this. If the drugs don't stop me doing this then how would I ever be able to do it? Of course the people before and after me managed it fine. I'm gutted.

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XWKD · 20/11/2025 08:13

Maybe you were pulling at the tube because you weren't in the full of your senses. I've had it without sedation and it was fine. Yet I screamed when I was put in an MRI machine. 🤣

Tink3rbell30 · 20/11/2025 07:35

TheFairyCaravan · 19/11/2025 23:54

I had a failed one 2 weeks ago. I had the throat spray, because I’ve previously had an endoscopy done with the throat spray before, and whilst it wasn’t pleasant it was fine. This time though the nurse was pushing the tube against the back of my throat saying my throat was too tight so she couldn’t get it down. I could feel it on bashing on the right hand side, it wasn’t going down the middle iyswim. She took the tube out three or four times but couldn’t do it, the spray was wearing off so she said I’d have to come back and have sedation.

I’ve got an appointment for this Sunday morning with a senior doctor to have another go. A nurse phoned me yesterday to go through it and said I wouldn’t necessarily have to have sedation, I really don’t want it, because the doctor is more experienced and would probably be able to do it without, but not to worry if I do, he’d give it me at the time. She said if they can’t manage it this time, there’s other tests that can be done.

I felt a right prat when I had to leave after it had failed. DH had taken time off work to take me, I’d used up time that was precious and, tbh, the nurses in the room weren’t the nicest. I’m just hoping I get it done this weekend. I hope they manage to find a way to get yours done too, @Tink3rbell30

I hope yours goes successfully! I'm not sure now, just gutted as thought I'd get a diagnosis yesterday and now there's no plan and it could be months :( my notes also say "patient withdrew consent" so I'm worried GP is going to be funny. I did not withdraw consent as I couldn't speak. I was moving around and had no memory of it and they chose to abandon the procedure.

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TheFairyCaravan · 19/11/2025 23:54

I had a failed one 2 weeks ago. I had the throat spray, because I’ve previously had an endoscopy done with the throat spray before, and whilst it wasn’t pleasant it was fine. This time though the nurse was pushing the tube against the back of my throat saying my throat was too tight so she couldn’t get it down. I could feel it on bashing on the right hand side, it wasn’t going down the middle iyswim. She took the tube out three or four times but couldn’t do it, the spray was wearing off so she said I’d have to come back and have sedation.

I’ve got an appointment for this Sunday morning with a senior doctor to have another go. A nurse phoned me yesterday to go through it and said I wouldn’t necessarily have to have sedation, I really don’t want it, because the doctor is more experienced and would probably be able to do it without, but not to worry if I do, he’d give it me at the time. She said if they can’t manage it this time, there’s other tests that can be done.

I felt a right prat when I had to leave after it had failed. DH had taken time off work to take me, I’d used up time that was precious and, tbh, the nurses in the room weren’t the nicest. I’m just hoping I get it done this weekend. I hope they manage to find a way to get yours done too, @Tink3rbell30

Tink3rbell30 · 19/11/2025 23:22

JifNtGif · 19/11/2025 23:09

It should be neither heartening or disheartening to be honest. It's just one of those things and is no one's fault. It happened that when they gave you a standard dose of midazolam it didn't help you much, that was your body's reaction. As a PP said, non anaesthetists won't give higher doses of painkillers/ sedative medication and you wouldn't want them to, as they don't have the skills needed to manage an airway.

Most people would have been fine with some throat spray and midazolam for a gastroscopy/ OGD, but you weren't.

I know, just got me down I suppose after being so panicked and actually managing to get in there and try it to then be told the whole thing was pointless as it failed. Yes of course I'd be one of the few it doesn't work on 😂🙄 always the way. Will see what GP says now.

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Tink3rbell30 · 19/11/2025 23:21

JustMerelyHere · 19/11/2025 22:35

I've had a gastroscopy twice without sedation. For me I think if I was sedated I'd be confused and struggle. As it was, with the throat spray it was unpleasant but not painful and was over quickly. When I had to have another some years after I chose the same again. I think everyone is different and it seems odd to me they'd be so definitive in telling you that you'd have no chance of getting through without it.

Funny part was when he sprayed my throat and said "it's supposed to taste like bananas but doesn't really" I sort of smacked my lips a bit. Him "how is it?" Me "I've had worse cocktails!", him "have some more!" And I got another good squirt 😂

Please don't give up. I've you've been recommended this procedure it will be for good reason. Maybe just a different person doing it might help? Good luck !🤞

Yes they were very definite that I couldn't come back there and try again 🙈 my notes say something like "Retry under consultant with combo sedation (no thank you) or GA (long wait).

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Tink3rbell30 · 19/11/2025 23:19

alittlequinnie · 19/11/2025 20:58

Yup - the exact same for me.

They made me wait 6 hours, knew I was really nervous, wouldn't let me wait with my husband (who was there) and then suddenly they were ready and they rushed me through and I knew I was in panic mode.

I said you need to wait a second and let me take a breath - but they just stuck the sedation in which knocked me out like a GA...

.. then woke up not knowing what was going on and tried to yank the tube out - they kept telling me to stop but they were calling me the wrong name so I didn't register they were talking to me...

... afterwards I got a bollocking from the nurse who said they weren't able to do it and it was my own fault.

I've never been offered another one despite me still having the same health concerns.

I'd push for one but strictly under GA.

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JifNtGif · 19/11/2025 23:09

Tink3rbell30 · 19/11/2025 20:52

Thank you, my report says they gave 3mg midazolam. Don't know if that's much or not. They didn't mention side effects or breathing risks 😳😫 it feels like I've gone through a lot of mental stress for failure and a wasted day with no answers. It will have to be GA I think just a long wait now, really disheartening.

It should be neither heartening or disheartening to be honest. It's just one of those things and is no one's fault. It happened that when they gave you a standard dose of midazolam it didn't help you much, that was your body's reaction. As a PP said, non anaesthetists won't give higher doses of painkillers/ sedative medication and you wouldn't want them to, as they don't have the skills needed to manage an airway.

Most people would have been fine with some throat spray and midazolam for a gastroscopy/ OGD, but you weren't.

JustMerelyHere · 19/11/2025 22:35

I've had a gastroscopy twice without sedation. For me I think if I was sedated I'd be confused and struggle. As it was, with the throat spray it was unpleasant but not painful and was over quickly. When I had to have another some years after I chose the same again. I think everyone is different and it seems odd to me they'd be so definitive in telling you that you'd have no chance of getting through without it.

Funny part was when he sprayed my throat and said "it's supposed to taste like bananas but doesn't really" I sort of smacked my lips a bit. Him "how is it?" Me "I've had worse cocktails!", him "have some more!" And I got another good squirt 😂

Please don't give up. I've you've been recommended this procedure it will be for good reason. Maybe just a different person doing it might help? Good luck !🤞

Moonlightfrog · 19/11/2025 21:26

My dd is waiting for an appointment for endoscopy, she is 19 and severely autistic, the only way will be GA. It’s a procedure that I wouldn’t be able to have without GA too because I have a fear of vomiting. I don’t understand why they expect people to cope with having this procedure without offering it under GA.

ghostwhisper · 19/11/2025 21:23

I would definitely go for GA, I will if I ever need one
you’re not a redhead are you? I struggle with any form of sedation or anaesthetic, my poor dentist gets sick of injecting me and I’m asking for a cup of tea about 3 seconds after a GA

alittlequinnie · 19/11/2025 20:58

Vintagegoth · 19/11/2025 19:11

I had one in my local NHS hospital. Had sedation and it immediately knocked me out. Then remember just suddenly waking up and fighting the nurses and trying to take the tube out. Went from out of it to totally awake and fighting in a split second. Wheeled through to recovery and was wide awake while everyone else was dozing.
The second time I had been referred under a private pathway and had explained to the consultant about my earlier experience. They suggested less sedation, so I was aware of what was happening and could cooperate, but just took the edge off. It wasn't pleasant, but was over fairly quickly and they managed to get successful biopsies of my small intestine. So it is not always the case that you cannot do it by sedation again, just needs a different approach.

Yup - the exact same for me.

They made me wait 6 hours, knew I was really nervous, wouldn't let me wait with my husband (who was there) and then suddenly they were ready and they rushed me through and I knew I was in panic mode.

I said you need to wait a second and let me take a breath - but they just stuck the sedation in which knocked me out like a GA...

.. then woke up not knowing what was going on and tried to yank the tube out - they kept telling me to stop but they were calling me the wrong name so I didn't register they were talking to me...

... afterwards I got a bollocking from the nurse who said they weren't able to do it and it was my own fault.

I've never been offered another one despite me still having the same health concerns.

Tink3rbell30 · 19/11/2025 20:52

Greybeardy · 19/11/2025 20:48

anaesthetist pov...the idea of the sedation is to make the procedure more comfortable - most people still move at least a bit even if they don't remember it. Some people become paradoxiacally disinhibited with benzodiazepines but there's only one way to find out who that'll happen too. Sedation by non-anaesthetists is usually tightly protocolised because all of the usual drug options (inc. benzos and fentanyl) come with some pretty funky side effects and at higher doses can stop you breathing. Anaesthetists are more comfortable using propofol for sedation because we manage its respiratory and cardiovascular side effects day in day out. GA is the only way to get rid of any movement at all (but most endoscopists don't need the patient to be completely still...they just need to be not thrashing about). It's not a personal or moral failing to have had to bail out - sounds like it was worth a try but a GA would be a better option.

Thank you, my report says they gave 3mg midazolam. Don't know if that's much or not. They didn't mention side effects or breathing risks 😳😫 it feels like I've gone through a lot of mental stress for failure and a wasted day with no answers. It will have to be GA I think just a long wait now, really disheartening.

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Greybeardy · 19/11/2025 20:48

anaesthetist pov...the idea of the sedation is to make the procedure more comfortable - most people still move at least a bit even if they don't remember it. Some people become paradoxiacally disinhibited with benzodiazepines but there's only one way to find out who that'll happen too. Sedation by non-anaesthetists is usually tightly protocolised because all of the usual drug options (inc. benzos and fentanyl) come with some pretty funky side effects and at higher doses can stop you breathing. Anaesthetists are more comfortable using propofol for sedation because we manage its respiratory and cardiovascular side effects day in day out. GA is the only way to get rid of any movement at all (but most endoscopists don't need the patient to be completely still...they just need to be not thrashing about). It's not a personal or moral failing to have had to bail out - sounds like it was worth a try but a GA would be a better option.

Tink3rbell30 · 19/11/2025 20:40

nwilson12 · 19/11/2025 20:34

I had a failed one with sedation, I felt like I was choking and gagging so much they couldn't continue. I have a very small throat and the tube felt massive. They gave me as much sedation as possible but still couldn't proceed. I ended up getting a barium x-ray which didn't reveal anything so they said next time I'd need to get a general. I've also had colonoscopies and have to get them under a general now as apparently under sedation I'm screaming and hitting which is too traumatic for the staff

Edited

That's horrible. Are you on the list for one under GA?

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nwilson12 · 19/11/2025 20:34

I had a failed one with sedation, I felt like I was choking and gagging so much they couldn't continue. I have a very small throat and the tube felt massive. They gave me as much sedation as possible but still couldn't proceed. I ended up getting a barium x-ray which didn't reveal anything so they said next time I'd need to get a general. I've also had colonoscopies and have to get them under a general now as apparently under sedation I'm screaming and hitting which is too traumatic for the staff

Tink3rbell30 · 19/11/2025 20:27

seasid · 19/11/2025 19:35

I had a horrible colonoscopy experience in the past. They didn’t give me enough sedation and I was fully awake and screaming in agony. Today actually, I had another colonoscopy and it was lovely, no pain and was drowsy and watching on the screen what I was going through. It depends on the hospital and the staff. Some staff just see you as a number with no compassion and treat eat patient the same - yet other staff treat each patient with the individuality they deserve and with full compassion. I’ve been under about 10 different hospitals in the past for various surgeries and the difference in them all is insane.

im sorry this happened to you, i know the lead up is awful - both the anxieties and the time waiting. So for it to be failed is so stressful. I hope you can try again and it’ll go successfully and you can get to top health! X

Thank you, sorry to hear you had a bad experience first time. The build up is awful isn't it and for it to fail I went through all that anxiety for no reason. Thought I'd have my answers today and before Christmas but I won't now.

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Tink3rbell30 · 19/11/2025 20:25

Pozz · 19/11/2025 19:29

Sorry this happened to you. I had the same with a colonoscopy. I was sedated so don’t remember but apparently I was trying to climb off the trolley so they had to stop. I had a scan instead which was fine.

There must be an alternative for you too.

That's horrible! Apparently the alternative is try again with a combo sedation (why didn't they do that in the first place) or under GA. And possibly barium swallow test. It'll just go into next year now.

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Tink3rbell30 · 19/11/2025 20:24

HevenlyMeS · 19/11/2025 19:23

It's unfair for you - I'd recommend really being assertive & requesting if you can have a more effective sedation & try another time? It's your divine right to have this procedure because your doctor wouldn't have referred you for this, if they didn't believe it was essential 🙏
I'm praying you will be given answers & solutions soon
Remember you deserve the best treatment & it's not your fault if they gave you too mild a sedative the 1st time 💚

Thank you. Yes I'm going to mention the barium swallow test and having the endoscopy done under GA. Thought I'd get my answers today and before Christmas but now it'll go into another year. Just feeling really defeated after all that stress and panic for nothing.

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Tink3rbell30 · 19/11/2025 20:22

olympicsrock · 19/11/2025 19:21

Occasionally people need a lot of sedation.
sounds like a GA would be the next step although they could try again .

I was anxious and had throat sort and midazolam. I woke up remembering very little about it which is common.

Yes I had throat spray and the same sedative as you. Don't remember anything but obviously I ruined it for myself, absolutely gutted.

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Tink3rbell30 · 19/11/2025 20:21

Zanatdy · 19/11/2025 19:14

They can give you a GA, or something close to. As I take strong pain meds for a pancreas disease, I refused to have any without a GA as I was half away and not pleasant. I think it was called propofol. It is like a GA but doesn’t put you as fully under, but it’s not a conscious sedation like they normally give. I’ve had over 20 endoscopies and trust me, lots of people fight them without being aware.

I think I will request GA. I don't think I can risk the same thing happening again, feels so disappointing. Thought I'd have my answers today and before Christmas but nope 😢

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Tink3rbell30 · 19/11/2025 20:18

Readersgonnaread · 19/11/2025 18:43

So sorry this happened. I have a very similar experience with endoscopies - even with max sedation I am trying to pull the tube out, moving around etc. Last time my consultant did it as he is more experienced and I ended up hitting him. I have no knowledge of this. They had to stop mine but they did see what they needed.

Don’t try just the throat spray if you couldn’t manage the sedation. It’s not over quickly. I had my first one without and I gagged the whole time plus was hysterical.

They can give you more sedation and a different combo. Otherwise it will have to be done under GA.

Edited

Yes I just looked at my report and it said retry with combo sedation or GA. I don't see how adding extra sedation will stop me doing what I did today or if it's worth the risk trying.

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seasid · 19/11/2025 19:35

I had a horrible colonoscopy experience in the past. They didn’t give me enough sedation and I was fully awake and screaming in agony. Today actually, I had another colonoscopy and it was lovely, no pain and was drowsy and watching on the screen what I was going through. It depends on the hospital and the staff. Some staff just see you as a number with no compassion and treat eat patient the same - yet other staff treat each patient with the individuality they deserve and with full compassion. I’ve been under about 10 different hospitals in the past for various surgeries and the difference in them all is insane.

im sorry this happened to you, i know the lead up is awful - both the anxieties and the time waiting. So for it to be failed is so stressful. I hope you can try again and it’ll go successfully and you can get to top health! X

Pozz · 19/11/2025 19:29

Sorry this happened to you. I had the same with a colonoscopy. I was sedated so don’t remember but apparently I was trying to climb off the trolley so they had to stop. I had a scan instead which was fine.

There must be an alternative for you too.

HevenlyMeS · 19/11/2025 19:23

It's unfair for you - I'd recommend really being assertive & requesting if you can have a more effective sedation & try another time? It's your divine right to have this procedure because your doctor wouldn't have referred you for this, if they didn't believe it was essential 🙏
I'm praying you will be given answers & solutions soon
Remember you deserve the best treatment & it's not your fault if they gave you too mild a sedative the 1st time 💚

olympicsrock · 19/11/2025 19:21

Occasionally people need a lot of sedation.
sounds like a GA would be the next step although they could try again .

I was anxious and had throat sort and midazolam. I woke up remembering very little about it which is common.