Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think a lot of MN are ableist?

539 replies

Sweetlifeofyours · 16/11/2025 14:15

So I wasn’t going to post but as a mum with a disabled child myself I feel like I have to get things off my chest. I have read a couple of threads over the past week or so regarding mothers who are looking for advice and support for their disabled child/children (2 that stick out to me)

I was very sad to see that there were only a few posters who actually gave support and advice to the OP’s. The rest were in my opinion, downright rude and nasty and clearly just wanted to upset the OP’s even more for whatever reason.

As a mum with a SEN child, it is incredibly difficult and I myself don’t always get the correct help and support I need so to come on here and see that other women/parents show their (somewhat) true opinions of disabled children upset me.

I am completely 100% on board that autism shouldn’t be an excuse for everything, but surely some compassion wouldn’t go amiss to a struggling parent.

One of the worst things I read was a poster saying to the OP that they should make sure their child doesn’t turn into a sex offender because he enjoys hugs. Says more to me about the poster rather than the OP and their child.

I guess my AIBU is, do you think people (maybe especially on here) should have more compassion for the disabled community or have you read threads where you agree with the majority of comments (especially where we are talking about young children)?

OP posts:
ItsDefinatelyHappeningNow · 17/11/2025 15:59

Kirbert2 · 17/11/2025 15:12

My son had cancer and due to some complications is now disabled as a result though is thankfully now in remission.

I can't even begin to imagine how much it cost and the vast, vast majority of parents wouldn't be able to self fund.

308 days in hospital including 7 weeks of specialist intensive care involving 3 different types of life support as well as dialysis
5 surgeries
4 rounds of chemotherapy as well as immunotherapy to lower the risk of relapse
many chest x rays
4 CT scans
1 bone density scan
2 echo scans (he will now need these heart scans for the rest of his life as he's now more at risk of heart failure due to some of the chemo drugs)

etc

Not to mention the cost now due to his disability and the medications he will now need to be on likely for the rest of his life.

But you wouldn't pay for it at point of use. You would take out a good health insurance policy using some of the saved money from not paying tax and NI each month.

Like car insurance - some people would claim alot, others wouldn't claim much at all. The insurance company would still make money as they would just adjust the premiums.

Paying health insurance and your own pension would just become completely normal. People would have full control over the own lives.

I mean if you write off your car because you have an accident you don't fork out 20K for a new one do you. The insurance that you pay each month covers it. Yes your premiums might go up in the future but you are still okay.

I mean at the moment you have house insurance in case your house burns down. Your house could be worth £300K. It's just the same principal.

ItsDefinatelyHappeningNow · 17/11/2025 15:55

cantkeepawayforever · 17/11/2025 15:00

Not to mention eg health risks from many choosing not to have their waste collected; wholly uneducated children because parents couldn’t pay for schooling etc etc.

It’s not that long ago that many of the poor were illiterate (my grandfather learned to read as a teenager, having had to support his mother too much to attend school as a child); stunted by malnutrition (my grandmother stood at about 4’10”, my mother - child of food rationing that brought milk and vitamin C and a basic standard of nutrition- was 5’7”, taller than both of her parents); dying or disabled by avoidable diseases like polio (my other grandfather didn’t walk unaided over the age of 7). Do we really want to return there?

There is birth control now. Before people couldn't stop babies coming (assuming their husbands were demanding sex).

Now people can live their lives and only have babies if they want to.

Surely once people see that they really are 'on their own' they would start being more responsible. Presumably most people are decent enough to not have kids when birth control is so easy now if they thought they could not afford to keep them.

Bearing in mind lots of the 'lower end' of society only has kids because they know it guarantees them a bunch of benefits. I reckon they would stop having kids if they knew there was no benefit.

ItsDefinatelyHappeningNow · 17/11/2025 15:50

cantkeepawayforever · 17/11/2025 14:53

So how would it work if a child is born disabled, or becomes disabled when very young, but their parent is in a minimum wage job which can in no way meet the medical, schooling and equipment cost for that child?

Does the child die for lack of medical care?

Even America, land of private healthcare, does have a minimal safety net and both federal and state taxation.

So all parents would have savings because no tax or ni each month. Also everybody would pay health insurance. I mean we have insurance for our pets, our dental care. Insurance for our own health is just the next natural step. Not so weird - only 80 years ago we all paid for our own healthcare.

Parents who were so poor that they couldn't afford to save even with no tax or NI would just have to accept they couldn't afford kids. I mean kind of sensible no?
You don't get a dog unless you can afford it. You don't go on holiday unless you can afford it. Kids are a choice same as everything. There is no need to have them if you don't want them or can't afford them.

Most parents would take out good policies for health insurance which would cover unexpected things like disabilities. People would probably be more practical in terms of carrying on with a pregnancy if they knew it was going to be disabled especially if they thought they couldn't provide the child with a good quality of life.

I just find it so strange that Mr Blue hands over a portion of his income each month to Mr Green to look after his kids. Why is Mr Blue responsible for anything to do with Mr Greens kids. There not his kids. Bearing in mind there is no state pension so we don't need the youngsters to fund this anymore. Plus there is not exactly a shortage of people in the world is there.

I reckon loads of people would really go for a system like that.

ItsDefinatelyHappeningNow · 17/11/2025 15:40

CheekyChickenFucker · 17/11/2025 14:39

Great idea Nige. How about you lead by example next time you get ran over, need months in hospital, a wheelchair due to severe disability, adaptions to your property and heavy doses of pain relief for the rest of your life. You can show us how it all works.

Well I'm certainly not Nigel F if that is what you are suggesting but like many others I am considering voting for him next time round.

Yes it would certainly require everyone to be more responsible and save their money more for health and pensions and the like. I don't think most people would mind that though. Bearing in mind you are paying no tax and so you can save that each month instead. It would give everyone great incentive to be slim and eat well and do all they could to avoid ill health. However if they get ill, they have lots of savings or perhaps health insurance like America.

It would also mean people would save before having kids and only have what they can afford. Again shouldn't be an issue as people are paying no tax or NI so have a bigger income each month to save.

I mean it's weird isn't it. We are all supposed to be adults. Yet we have some adults having to hand over part of their income to another adult who they don't know because they don't work. Most people really don't care about strangers so why should you share your income with them? It's just bizarre when you actually think about it.

ItsDefinatelyHappeningNow · 17/11/2025 15:33

NorthXNorthWest · 17/11/2025 15:10

It seems we have made life far too complicated.

We have made it too easy for people to avoid accountability for their decisions. Needs have been replaced with wants and gratitude with entitlement.

I would like something in the middle but we seem to be edging closer to communism.

You are probably right. Somewhere in the middle which is kind of what we had 40 years ago. There were benefits but it was considered embarrasing to be on them so everybody worked unless they lost their job temporarily.

The only disabled people seemed to be downs or spina bifada or such diseases.

We do appear to be becoming a communist state don't we. My recollection from school was that they don't work because nobody has any motivation to work hard as they get the same income anyway so they end up as failed states.

Actually Jeez i think the UK is becoming a communist state. I mean everyone seems to get the same or more benefits than the workers. Everybody is losing the motivation to work and lets be honest the UK is heading for bankruptcy.

So the UK is new USSR

ItsDefinatelyHappeningNow · 17/11/2025 15:28

This reply has been deleted

This has been deleted by MNHQ for breaking our Talk Guidelines.

Had to google that! You learn something new every day.

cantkeepawayforever · 17/11/2025 15:19

NorthXNorthWest · 17/11/2025 15:10

It seems we have made life far too complicated.

We have made it too easy for people to avoid accountability for their decisions. Needs have been replaced with wants and gratitude with entitlement.

I would like something in the middle but we seem to be edging closer to communism.

What is the evidence that we are edging closer to communism?

I would suggest that actually our ‘ethical / political’ position is very similar to where it has been for a long time - since the founding of the NHS and the Welfare State. What has changed is a) the relative prosperity of the country as a whole; b) the success of the NHS and Welfare State and universal education in lengthening lifespan; c) globalisation, meaning that jobs and people move around the world, so we have lost meaningful employment opportunities to cheaper workforces.

cantkeepawayforever · 17/11/2025 15:15

@Kirbert2 - exactly.

To even suggest that everyone should pay for all their medical care comes from a position of extreme privilege (and lack of imagination)

Kirbert2 · 17/11/2025 15:12

cantkeepawayforever · 17/11/2025 14:53

So how would it work if a child is born disabled, or becomes disabled when very young, but their parent is in a minimum wage job which can in no way meet the medical, schooling and equipment cost for that child?

Does the child die for lack of medical care?

Even America, land of private healthcare, does have a minimal safety net and both federal and state taxation.

My son had cancer and due to some complications is now disabled as a result though is thankfully now in remission.

I can't even begin to imagine how much it cost and the vast, vast majority of parents wouldn't be able to self fund.

308 days in hospital including 7 weeks of specialist intensive care involving 3 different types of life support as well as dialysis
5 surgeries
4 rounds of chemotherapy as well as immunotherapy to lower the risk of relapse
many chest x rays
4 CT scans
1 bone density scan
2 echo scans (he will now need these heart scans for the rest of his life as he's now more at risk of heart failure due to some of the chemo drugs)

etc

Not to mention the cost now due to his disability and the medications he will now need to be on likely for the rest of his life.

NorthXNorthWest · 17/11/2025 15:10

ItsDefinatelyHappeningNow · 17/11/2025 14:29

Would it be easier all round if we stopped all taxes but people paid for everything they used.

So you get your wages, you get them in full so no tax deducted or NI.

However you get absolutely nothing for free. Kids pay to go to school (or their parents do anyway). You pay for a doctor or an ambulance. You pay for a policeman to come out. You pay for your bin to be collected. Absolutely everything is a paid for service between the buyer (us) and the organisation (police, GP practice, Ambulance Service ie they all run like private businesses)

There is no goverment pensions though so you have to put away for yourself. There is no benefits of any kind. You just have the money you earn which you keep in full and you get to decide how you spend it or not.

This seems so much simpler and would stop all the arguments.

People want their sen kids to go to great schools and have taxis. Not a problem. It's between you and the private school or you and the taxi company. Nothing to do with goverment or any taxpayer (because there are none)

If you want to not see a doctor even though you are ill, then that is your choice. When you die though you (your estate) has to pay for the funeral etc

I mean it's kind of a mad system isn't it. You pay tax according to some 'rule' regardless of what you use or consume.
That isn't really a capitalist principle is it? I mean we are supposed to be a capitalist society.

I bet loads of people would go for that. Even if they were worse off they would say okay I have my gross wage. I pay for my kids schooling, I pay my everyday bills, I put money away because I know there is no state pension. I had a few extras this month - I needed a doctor once and my house caught fire so I had to pay the fire brigade to attend. I think if people were paying for what they got they wouldn't actually mind.

I can think of a few things it wouldn't work for and I guess we would need a system to cover things like roads, lights that just can't be apportioned on a pay for use system. However surely it could be implemented for most things.

People could have as many kids as they wanted or not but only pay for what they decide. If they want to have 4 kids they need to be able to support them or they go hungry I guess.

I think people would take more accountability and make better decisions and be happier paying for what they use only.

That avoids all the resentment which is currently going on in society.
You work hard, you reap the benefits.
You are a lazy fucker, you reap what you sow. It doesn't affect anyone else.

Wouldn't this actually be really straightforward and really fair? I mean I think America does operate more on a basis like this (not quite) but much closer to it than we do.

It seems we have made life far too complicated.

I think everyone would be alot more motivated as you would have complete control over your own income and your own expenditure.

It seems we have made life far too complicated.

We have made it too easy for people to avoid accountability for their decisions. Needs have been replaced with wants and gratitude with entitlement.

I would like something in the middle but we seem to be edging closer to communism.

cantkeepawayforever · 17/11/2025 15:00

Not to mention eg health risks from many choosing not to have their waste collected; wholly uneducated children because parents couldn’t pay for schooling etc etc.

It’s not that long ago that many of the poor were illiterate (my grandfather learned to read as a teenager, having had to support his mother too much to attend school as a child); stunted by malnutrition (my grandmother stood at about 4’10”, my mother - child of food rationing that brought milk and vitamin C and a basic standard of nutrition- was 5’7”, taller than both of her parents); dying or disabled by avoidable diseases like polio (my other grandfather didn’t walk unaided over the age of 7). Do we really want to return there?

cantkeepawayforever · 17/11/2025 14:53

ItsDefinatelyHappeningNow · 17/11/2025 14:29

Would it be easier all round if we stopped all taxes but people paid for everything they used.

So you get your wages, you get them in full so no tax deducted or NI.

However you get absolutely nothing for free. Kids pay to go to school (or their parents do anyway). You pay for a doctor or an ambulance. You pay for a policeman to come out. You pay for your bin to be collected. Absolutely everything is a paid for service between the buyer (us) and the organisation (police, GP practice, Ambulance Service ie they all run like private businesses)

There is no goverment pensions though so you have to put away for yourself. There is no benefits of any kind. You just have the money you earn which you keep in full and you get to decide how you spend it or not.

This seems so much simpler and would stop all the arguments.

People want their sen kids to go to great schools and have taxis. Not a problem. It's between you and the private school or you and the taxi company. Nothing to do with goverment or any taxpayer (because there are none)

If you want to not see a doctor even though you are ill, then that is your choice. When you die though you (your estate) has to pay for the funeral etc

I mean it's kind of a mad system isn't it. You pay tax according to some 'rule' regardless of what you use or consume.
That isn't really a capitalist principle is it? I mean we are supposed to be a capitalist society.

I bet loads of people would go for that. Even if they were worse off they would say okay I have my gross wage. I pay for my kids schooling, I pay my everyday bills, I put money away because I know there is no state pension. I had a few extras this month - I needed a doctor once and my house caught fire so I had to pay the fire brigade to attend. I think if people were paying for what they got they wouldn't actually mind.

I can think of a few things it wouldn't work for and I guess we would need a system to cover things like roads, lights that just can't be apportioned on a pay for use system. However surely it could be implemented for most things.

People could have as many kids as they wanted or not but only pay for what they decide. If they want to have 4 kids they need to be able to support them or they go hungry I guess.

I think people would take more accountability and make better decisions and be happier paying for what they use only.

That avoids all the resentment which is currently going on in society.
You work hard, you reap the benefits.
You are a lazy fucker, you reap what you sow. It doesn't affect anyone else.

Wouldn't this actually be really straightforward and really fair? I mean I think America does operate more on a basis like this (not quite) but much closer to it than we do.

It seems we have made life far too complicated.

I think everyone would be alot more motivated as you would have complete control over your own income and your own expenditure.

So how would it work if a child is born disabled, or becomes disabled when very young, but their parent is in a minimum wage job which can in no way meet the medical, schooling and equipment cost for that child?

Does the child die for lack of medical care?

Even America, land of private healthcare, does have a minimal safety net and both federal and state taxation.

cantkeepawayforever · 17/11/2025 14:50

Sweetlifeofyours · 17/11/2025 13:38

Could I just ask sorry as I’ve always wondered, if there are children in mainstream primary schools where they need 1:1 support (with an ehcp) is that the job of already employed TA’s or do they have to employ extra support? And if it’s down to the TA do they ever feel like “this isn’t what I signed up for”

Edited

It depends.

Funding is not immediate, and does not always cover the full cost of employing an extra person - or funded hours are shorter than full days and don’t add up to a ‘sensibly sized job’.

So if a child joins a school and it becomes apparent that they need 1:1 support, it will usually be an existing member of staff who provides it. Good practice is for there to be more than one person on the timetable, to ensure cover for breaks, sickness etc and to reflect the fact that 1:1 support can be extremely stressful.

Once funding is secured, an extra person can be employed and may become 1:1 with that child, or may back-fill where the staff were pulled from, or may be an extra person on the ‘rota’.

It’s a more and more complex juggling act as funding gets tighter and tighter. Class TAs who can do ‘short term’ 1:1 during the recruitment process are now very rare, so when a new high needs child joins the school, it can be a juggling act, especially if the needs are obvious but no EHCP is yet in place.

NorthXNorthWest · 17/11/2025 14:45

Rubbertreesurgeon · 17/11/2025 14:31

I get that argument to some point if parents to this until 18 but most are forced to carry on caring until the day they die. And that is not ok.

That is the lottery of life. Is if fair? No, because life isn't fair. That is where the State steps in to 'support' but not replace parental obligation. Ultimately it will will care for the disabled once their parents die.

CheekyChickenFucker · 17/11/2025 14:39

ItsDefinatelyHappeningNow · 17/11/2025 14:29

Would it be easier all round if we stopped all taxes but people paid for everything they used.

So you get your wages, you get them in full so no tax deducted or NI.

However you get absolutely nothing for free. Kids pay to go to school (or their parents do anyway). You pay for a doctor or an ambulance. You pay for a policeman to come out. You pay for your bin to be collected. Absolutely everything is a paid for service between the buyer (us) and the organisation (police, GP practice, Ambulance Service ie they all run like private businesses)

There is no goverment pensions though so you have to put away for yourself. There is no benefits of any kind. You just have the money you earn which you keep in full and you get to decide how you spend it or not.

This seems so much simpler and would stop all the arguments.

People want their sen kids to go to great schools and have taxis. Not a problem. It's between you and the private school or you and the taxi company. Nothing to do with goverment or any taxpayer (because there are none)

If you want to not see a doctor even though you are ill, then that is your choice. When you die though you (your estate) has to pay for the funeral etc

I mean it's kind of a mad system isn't it. You pay tax according to some 'rule' regardless of what you use or consume.
That isn't really a capitalist principle is it? I mean we are supposed to be a capitalist society.

I bet loads of people would go for that. Even if they were worse off they would say okay I have my gross wage. I pay for my kids schooling, I pay my everyday bills, I put money away because I know there is no state pension. I had a few extras this month - I needed a doctor once and my house caught fire so I had to pay the fire brigade to attend. I think if people were paying for what they got they wouldn't actually mind.

I can think of a few things it wouldn't work for and I guess we would need a system to cover things like roads, lights that just can't be apportioned on a pay for use system. However surely it could be implemented for most things.

People could have as many kids as they wanted or not but only pay for what they decide. If they want to have 4 kids they need to be able to support them or they go hungry I guess.

I think people would take more accountability and make better decisions and be happier paying for what they use only.

That avoids all the resentment which is currently going on in society.
You work hard, you reap the benefits.
You are a lazy fucker, you reap what you sow. It doesn't affect anyone else.

Wouldn't this actually be really straightforward and really fair? I mean I think America does operate more on a basis like this (not quite) but much closer to it than we do.

It seems we have made life far too complicated.

I think everyone would be alot more motivated as you would have complete control over your own income and your own expenditure.

Great idea Nige. How about you lead by example next time you get ran over, need months in hospital, a wheelchair due to severe disability, adaptions to your property and heavy doses of pain relief for the rest of your life. You can show us how it all works.

NorthXNorthWest · 17/11/2025 14:38

CheekyChickenFucker · 17/11/2025 14:32

I've got an image of someone defiantly turning their nose up and crossing their arms in a superior way as I'm reading this. 😂

I did shrug my shoulders and go 'meh' when I wrote that. Does that count? 😂

FoughtIt · 17/11/2025 14:34

This reply has been deleted

This has been deleted by MNHQ for breaking our Talk Guidelines.

Kirbert2 · 17/11/2025 14:34

Sweetlifeofyours · 17/11/2025 13:38

Could I just ask sorry as I’ve always wondered, if there are children in mainstream primary schools where they need 1:1 support (with an ehcp) is that the job of already employed TA’s or do they have to employ extra support? And if it’s down to the TA do they ever feel like “this isn’t what I signed up for”

Edited

It depends.

My son has 2:1 TA support funded by his EHCP in mainstream primary and they were already employed and known to my son.

CheekyChickenFucker · 17/11/2025 14:32

NorthXNorthWest · 17/11/2025 13:59

No, they don't. Nobody disputes that carers do a valuable job, it's just not a favour.

This is my opinion, yours is different. You don't have to change yours and I have yet to encounter any information that would make me change mind.

I've got an image of someone defiantly turning their nose up and crossing their arms in a superior way as I'm reading this. 😂

Rubbertreesurgeon · 17/11/2025 14:31

NorthXNorthWest · 17/11/2025 14:05

It's still not and never will be a favour to the state to look after your own children. Having a welfare state will always be a privilege.

I get that argument to some point if parents to this until 18 but most are forced to carry on caring until the day they die. And that is not ok.

ItsDefinatelyHappeningNow · 17/11/2025 14:29

Would it be easier all round if we stopped all taxes but people paid for everything they used.

So you get your wages, you get them in full so no tax deducted or NI.

However you get absolutely nothing for free. Kids pay to go to school (or their parents do anyway). You pay for a doctor or an ambulance. You pay for a policeman to come out. You pay for your bin to be collected. Absolutely everything is a paid for service between the buyer (us) and the organisation (police, GP practice, Ambulance Service ie they all run like private businesses)

There is no goverment pensions though so you have to put away for yourself. There is no benefits of any kind. You just have the money you earn which you keep in full and you get to decide how you spend it or not.

This seems so much simpler and would stop all the arguments.

People want their sen kids to go to great schools and have taxis. Not a problem. It's between you and the private school or you and the taxi company. Nothing to do with goverment or any taxpayer (because there are none)

If you want to not see a doctor even though you are ill, then that is your choice. When you die though you (your estate) has to pay for the funeral etc

I mean it's kind of a mad system isn't it. You pay tax according to some 'rule' regardless of what you use or consume.
That isn't really a capitalist principle is it? I mean we are supposed to be a capitalist society.

I bet loads of people would go for that. Even if they were worse off they would say okay I have my gross wage. I pay for my kids schooling, I pay my everyday bills, I put money away because I know there is no state pension. I had a few extras this month - I needed a doctor once and my house caught fire so I had to pay the fire brigade to attend. I think if people were paying for what they got they wouldn't actually mind.

I can think of a few things it wouldn't work for and I guess we would need a system to cover things like roads, lights that just can't be apportioned on a pay for use system. However surely it could be implemented for most things.

People could have as many kids as they wanted or not but only pay for what they decide. If they want to have 4 kids they need to be able to support them or they go hungry I guess.

I think people would take more accountability and make better decisions and be happier paying for what they use only.

That avoids all the resentment which is currently going on in society.
You work hard, you reap the benefits.
You are a lazy fucker, you reap what you sow. It doesn't affect anyone else.

Wouldn't this actually be really straightforward and really fair? I mean I think America does operate more on a basis like this (not quite) but much closer to it than we do.

It seems we have made life far too complicated.

I think everyone would be alot more motivated as you would have complete control over your own income and your own expenditure.

2x4greenbrick · 17/11/2025 14:11

NorthXNorthWest · 17/11/2025 13:59

No, they don't. Nobody disputes that carers do a valuable job, it's just not a favour.

This is my opinion, yours is different. You don't have to change yours and I have yet to encounter any information that would make me change mind.

Yes, they do. Anyone who thinks “One parent takes full time care of their child the other goes out to work.” doesn’t understand even if they claim they do. I wasn’t commenting on the ‘favour’ part of your posts. I was commenting on the assertion one parent can take on the full-time care for some disabled DC.

NorthXNorthWest · 17/11/2025 14:05

Rubbertreesurgeon · 17/11/2025 13:57

Also, most families need two full time incomes to cope. Yes, there is DLA and CA but even in combination, it makes up only for a small fraction for the loss of income. Bills don't just stop because you have a disabled child - quite the opposite.

It's still not and never will be a favour to the state to look after your own children. Having a welfare state will always be a privilege.

NorthXNorthWest · 17/11/2025 14:02

Kreepture · 17/11/2025 13:58

i'm doing it as a single parent, and have been for 8+ years. the answer to 'where is the dad' is at work, keeping a roof over his own head and paying all his own bills.

If he is not contributing, he should be. If he is, then it is nobody's business

NorthXNorthWest · 17/11/2025 13:59

2x4greenbrick · 17/11/2025 13:51

I do understand.

Your posts show otherwise.

No, they don't. Nobody disputes that carers do a valuable job, it's just not a favour.

This is my opinion, yours is different. You don't have to change yours and I have yet to encounter any information that would make me change mind.

Swipe left for the next trending thread