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Should we investigate adhd assessment or anti depressants for my ds19

162 replies

Anonymous07200408 · 14/11/2025 21:07

Some advice please from those with kids who have a spiky ND profile. What I really don’t need is the usual suspects who don’t really believe in ND weighing in with scathing remarks - there are a lot on here and I don’t need that kind of wisdom please - this is very difficult for us as a family and sensitive. I am very experienced with ND and work in the field - I know my son is ND but just need some help teasing our depression vs autistic burnout vs ADHD procrastination etc. I am posting to AIBU for traffic even if the ASN boards would probably be a more natural home for this.

my 19yr old ds got a dyspraxia diagnosis in year 3 and ever since then has had various educational and social challenges. Looking back at his report from then there seem to be loads of indications of inattentive type adhd. He had a small, tight group of friends but is very socially anxious and incredibly passive. Identified as very bright from early on - effortlessly managed straight As until his final year where he pretty much took to the sofa/buried his head in the sand and crashed out in exams. Luckily he had an unconditional offer to uni and is now nearly at the end of his first semester.

He has needed an unbelievable amount of scaffolding in every way - socially and academically and in terms of life skills. Luckily he is local so I have been in and out helping him most weeks. He literally seems unable to answer text messages/ engage fully with uni support services etc - to the point he is now very far behind academically and talking about repeating the year. He has actually done really well socially and made a small group of friends who are luckily very proactive but he has already pissed them off by not responding to WhatsApp messages. The amount he has struggled has surprised us. He presents as having a low mood and flat affect and without us chivvying him to get to lectures and friends chivvying him to go out I think he would spend most of his time doom scrolling. He reports as being “ok” and I think he’s enjoying some of the social stuff but his self esteem is on the floor and always has been.

We have now started thinking that we need to do more to help - the situation is untenable. My question is, should we be investigating a private assessment for adhd (i am very sure he has asd but can’t afford an auDHD assessment)? His procrastination, inability to start tasks, dreaming, torpor, binge eating, insane avoidance all fit with my understanding of inattentive type adhd (my other son is medicated for combined type adhd so I know a little about it).

Or should we be investigating ssris for his mood? I obviously have reservations about side effects (particularly blunting of emotions - they couldn’t be any more blunt tbh) and am not sure if he is actually depressed - he doesn’t really think he is but knows something is wrong.

thank you so much if you’ve got this far - so aibu to get him an adhd assessment with the idea of trialling meds

or ainbu if you think I should look into antidepressants?

any wisdom gratefully received - he is a gorgeous, hilariously funny, self aware, empathetic boy who is suffering at the moment 🙏🏼

OP posts:
Anonymous07200408 · 15/11/2025 10:03

LimeGoose · 15/11/2025 09:44

He’s in his first year of university and needs to find his feet without you breathing down his neck. Your posts read as if you’re panicking because he isn’t as academic as you want him to be. It’s actually upsetting to read how over-involved you are in this very important phase of his adult life. You shouldn’t know everything about his life at this age. Does he have any privacy?

Again - with all due respect I don’t believe you have any idea what it is like to have a child like mine. The fact that I have another ND child who is thriving, working, succeeding academically with no input from me, conducting relationships and has great executive function and 2 NT kids who I am not very involved with should tell you all you need to know.

I couldn’t give a shit if he is academic or not. He is though so I would like to give him every chance to explore that if he wishes. I have also encouraged him to quit uni if that’s what he wants to do. He doesn’t. Maybe read the thread again.

OP posts:
Sk73djej · 15/11/2025 10:02

LilySad91 · 15/11/2025 09:51

With all due respect, you sound like Amanda Jette Knox.

She was so desperate to find a condition for her son that ticked all the boxes (she tried autism and ADHD but that didn't lead to the change she wanted) that she settled on him being transgender, and put him on puberty blockers for years (until he revealed that he wasn't a girl).

The fact you wanted a diverse range of responses but not anyone who disagrees with you is rather telling.

What are you on about?She has had alternative views, mine included which she has handled with careful consideration. You on the other hand with due respect are sounding a little obsessive.

Octavia64 · 15/11/2025 10:02

I have a child with AuDHD who did a physics degree.

firstly, the nature of the degree will not be helping. Maths degrees they recommend not to take a year out because of deskilling. Each year (like physics) also builds on the next.

my dd had trouble in third year because she’d worked strategically in second year and not studied whole sections that were then assumed knowledge in third year.

we got her diagnosed and medicated just before college (access course) and the adhd meds did help but also unmasked the autism. So more work done, more able to pay attention but much lesssble to tolerate people,

she got dsa and also weekly study support (basically someone meeting with her weekly to help plan her work and give her a kick up the bum). Uni were very helpful. She has physical illnesses as well.

she’s been on anti depressants as pain meds for some years (has auto immune illness) so can’t comment on that.

Anonymous07200408 · 15/11/2025 10:00

LilySad91 · 15/11/2025 09:51

With all due respect, you sound like Amanda Jette Knox.

She was so desperate to find a condition for her son that ticked all the boxes (she tried autism and ADHD but that didn't lead to the change she wanted) that she settled on him being transgender, and put him on puberty blockers for years (until he revealed that he wasn't a girl).

The fact you wanted a diverse range of responses but not anyone who disagrees with you is rather telling.

The fact that I have received a diverse range of responses and you are the only one coming out with this utter bollocks is very telling 🤣🤣

OP posts:
LilySad91 · 15/11/2025 09:51

Anonymous07200408 · 15/11/2025 09:05

And you sound like someone who has zero experience of parenting an adult or child who is neurodivergent- I know this is Aibu but you are exactly who I asked not to contribute (from a place of ignorance) on my thread.

you clearly have deep seated conspiracy theories around ND and medication. I understand how this kind of rabbit hole can suck you in but your views are fringe and not welcome here - somewhere I am sharing openly and vulnerably about a real life experience- not something I read about on a Reddit thread.

this isn’t the thread wild speculation. My son and I are real people who are suffering, not a platform for you to air your unhelpful conspiracy theories. I have nearly 20 years experience of parenting 2 ND and 2 NT kids - completely differently according to their needs. I also work in the field. Respectfully please stop commenting on my thread.

With all due respect, you sound like Amanda Jette Knox.

She was so desperate to find a condition for her son that ticked all the boxes (she tried autism and ADHD but that didn't lead to the change she wanted) that she settled on him being transgender, and put him on puberty blockers for years (until he revealed that he wasn't a girl).

The fact you wanted a diverse range of responses but not anyone who disagrees with you is rather telling.

Sk73djej · 15/11/2025 09:51

LimeGoose · 15/11/2025 09:44

He’s in his first year of university and needs to find his feet without you breathing down his neck. Your posts read as if you’re panicking because he isn’t as academic as you want him to be. It’s actually upsetting to read how over-involved you are in this very important phase of his adult life. You shouldn’t know everything about his life at this age. Does he have any privacy?

ND young people often need a lot more support. It’s not breathing down his neck, it’s support.

Sk73djej · 15/11/2025 09:50

Anonymous07200408 · 15/11/2025 09:05

And you sound like someone who has zero experience of parenting an adult or child who is neurodivergent- I know this is Aibu but you are exactly who I asked not to contribute (from a place of ignorance) on my thread.

you clearly have deep seated conspiracy theories around ND and medication. I understand how this kind of rabbit hole can suck you in but your views are fringe and not welcome here - somewhere I am sharing openly and vulnerably about a real life experience- not something I read about on a Reddit thread.

this isn’t the thread wild speculation. My son and I are real people who are suffering, not a platform for you to air your unhelpful conspiracy theories. I have nearly 20 years experience of parenting 2 ND and 2 NT kids - completely differently according to their needs. I also work in the field. Respectfully please stop commenting on my thread.

Exactly this and very well said. I have similar experience and know how incredibly difficult it is . Sounds as if you’re handling things really well OP. My dc are doing so much better now they’re getting the right treatment and meds. One thing I’ve learnt is life isn’t linear or what you often expect with ND. The resilience these young people have which we often take for granted helps them push through even at the times everything seems desperate. When uni is involved it adds another layer of difficulty due to the expense and distance however it’s important to keep things in perspective and the world won’t end if they need to retake things and remember that ND is hugely disabling so they’re doing amazing just being there .❤️

LimeGoose · 15/11/2025 09:44

He’s in his first year of university and needs to find his feet without you breathing down his neck. Your posts read as if you’re panicking because he isn’t as academic as you want him to be. It’s actually upsetting to read how over-involved you are in this very important phase of his adult life. You shouldn’t know everything about his life at this age. Does he have any privacy?

Anonymous07200408 · 15/11/2025 09:07

Nephthys21 · 15/11/2025 08:47

Hi. I'm a clinical psychologist - I work with children, not adults but I have several years experience working with neurodiverse young people.

Firstly, one point Id make is not to underestimate the impact of DCD on a young person's functioning. People with DCD do often meet criteria for another ND but there have been plenty of times where we have assessed young people who dont meet the full criteria for even inattentive ADHD but do have wider executive functioning difficulties:
https://www.dyspraxiafoundation.org.uk/adults/dyspraxia-in-adults

Secondly, as this is clearly a change to his normal level of functioning, i think I would see this as a mental health difficulty and focus on how to improve his mental health. Although medication can help, therapeutic work to build long term strategies to manage the challenges of being ND may have better long term outcomes. Ideally, whether private or NHS, it may be helpful for him to see a psychologist with knowledge of ND, who can help him to make sense of what the current difficulties are, what caused them, and what strategies might help him to start feeling better - cognitive behavioural therapy is usually the go to for anxiety and depression, and i do find that it can lend itself well to people who find structure helpful, if adapted to take into account the difficulties with emotional literacy and exective functioning that can come with all ND conditions. An experienced psychologist would also be able to advise if it seemed that inattentive symptoms were a maintaining factor and would benefit from assessement/medication.

Thank you. This all sounds very sensible. So interesting how dismissive I have been of the dcd - and actually how it is generally viewed as a “lesser” condition. I do wonder when I had him assessed (when we all had much less understanding of ND) whether we were all just skirting around the issues of his asd/potential inattentive adhd though. I was definitely scared of an autism diagnosis in those days (2012) whereas I’m not at all now.

OP posts:
Anonymous07200408 · 15/11/2025 09:05

LilySad91 · 15/11/2025 08:42

Sorry to go against the grain but to me it sounds like you're too overbearing and far too involved in his life, and that's his biggest problem.

I actually find it a little chilling how you're talking about an adult, and how keen you seem to be to medicate all your sons just because they aren't achieving in the way you want them to

And you sound like someone who has zero experience of parenting an adult or child who is neurodivergent- I know this is Aibu but you are exactly who I asked not to contribute (from a place of ignorance) on my thread.

you clearly have deep seated conspiracy theories around ND and medication. I understand how this kind of rabbit hole can suck you in but your views are fringe and not welcome here - somewhere I am sharing openly and vulnerably about a real life experience- not something I read about on a Reddit thread.

this isn’t the thread wild speculation. My son and I are real people who are suffering, not a platform for you to air your unhelpful conspiracy theories. I have nearly 20 years experience of parenting 2 ND and 2 NT kids - completely differently according to their needs. I also work in the field. Respectfully please stop commenting on my thread.

OP posts:
Nephthys21 · 15/11/2025 08:47

Hi. I'm a clinical psychologist - I work with children, not adults but I have several years experience working with neurodiverse young people.

Firstly, one point Id make is not to underestimate the impact of DCD on a young person's functioning. People with DCD do often meet criteria for another ND but there have been plenty of times where we have assessed young people who dont meet the full criteria for even inattentive ADHD but do have wider executive functioning difficulties:
https://www.dyspraxiafoundation.org.uk/adults/dyspraxia-in-adults

Secondly, as this is clearly a change to his normal level of functioning, i think I would see this as a mental health difficulty and focus on how to improve his mental health. Although medication can help, therapeutic work to build long term strategies to manage the challenges of being ND may have better long term outcomes. Ideally, whether private or NHS, it may be helpful for him to see a psychologist with knowledge of ND, who can help him to make sense of what the current difficulties are, what caused them, and what strategies might help him to start feeling better - cognitive behavioural therapy is usually the go to for anxiety and depression, and i do find that it can lend itself well to people who find structure helpful, if adapted to take into account the difficulties with emotional literacy and exective functioning that can come with all ND conditions. An experienced psychologist would also be able to advise if it seemed that inattentive symptoms were a maintaining factor and would benefit from assessement/medication.

Dyspraxia In Adults - Dyspraxia Foundation

We support individuals and families affected by dyspraxia. Please […]

https://www.dyspraxiafoundation.org.uk/adults/dyspraxia-in-adults

LilySad91 · 15/11/2025 08:42

Sorry to go against the grain but to me it sounds like you're too overbearing and far too involved in his life, and that's his biggest problem.

I actually find it a little chilling how you're talking about an adult, and how keen you seem to be to medicate all your sons just because they aren't achieving in the way you want them to

ThePure · 15/11/2025 08:33

I don’t think he sounds depressed given he is socialising . However there are some antidepressant medications that are useful in ADHD and could have somewhat of a dual effect. Bupropion is best for this but off label in the UK (not in the rest of the world) so GP may not be able to prescribe. Venlafaxine and duloxetine are prescribable by UK GPs and have some (less than stimulants) effect on ADHD.

Sk73djej · 15/11/2025 08:27

Anonymous07200408 · 15/11/2025 08:16

Sorry but this has conspiracy theory vibes to it. I’d rather go with (extremely complex and often distressing) lived experience and medical consensus than this rubbish. ADHD meds have been life changing for my other adult son who has used them periodically as and when he needs them for years and is doing brilliantly. Stimulant meds are metabolised very quickly and he goes months without and has 0 side effects.

Exactly all this, it has literally changed the lives of my other 2 children. Hence me pursuing it for the third but I’m glad I checked with a psych first.

Anonymous07200408 · 15/11/2025 08:19

LondonGirrrrl · 15/11/2025 08:07

also seek careers advice and work out wether uni is the best option for him. An apprenticeship might be a natural option and a better fit for your son.

I will certainly explore but he seems adamant that he wants a degree and seems to be enjoying parts of uni life. Maybe a maths degree is just too difficult.

OP posts:
Anonymous07200408 · 15/11/2025 08:16

LilySad91 · 15/11/2025 07:59

Just bear in mind that ADHD is massively over diagnosed, very easy to get a diagnosis for, doesn't really exist according to many in the medical profession and doctors financially benefit from people being on the medication. Also the effects of the drugs on the brain are not reversible

Sorry but this has conspiracy theory vibes to it. I’d rather go with (extremely complex and often distressing) lived experience and medical consensus than this rubbish. ADHD meds have been life changing for my other adult son who has used them periodically as and when he needs them for years and is doing brilliantly. Stimulant meds are metabolised very quickly and he goes months without and has 0 side effects.

OP posts:
LondonGirrrrl · 15/11/2025 08:07

also seek careers advice and work out wether uni is the best option for him. An apprenticeship might be a natural option and a better fit for your son.

Sk73djej · 15/11/2025 08:04

LilySad91 · 15/11/2025 07:59

Just bear in mind that ADHD is massively over diagnosed, very easy to get a diagnosis for, doesn't really exist according to many in the medical profession and doctors financially benefit from people being on the medication. Also the effects of the drugs on the brain are not reversible

There is always one!🙄

You’re incorrect, it’s under diagnosed and under treated in this country.

www.england.nhs.uk/long-read/report-of-the-independent-adhd-taskforce-part-1/

HappyHedgehog247 · 15/11/2025 08:01

I'm in England so don't know how Scotland varies but I would go for a general 1 hour assessment with psychiatrist who is ND aware, rather than full ASD assessment which takes longer and you already know he has ASD. Then I'd get on the Uni or NHS waitlist for Au/adhd assessment in case this is useful in terms of exam accommodations etc.

LilySad91 · 15/11/2025 07:59

Just bear in mind that ADHD is massively over diagnosed, very easy to get a diagnosis for, doesn't really exist according to many in the medical profession and doctors financially benefit from people being on the medication. Also the effects of the drugs on the brain are not reversible

LondonGirrrrl · 15/11/2025 07:58

As someone who works with ND people and has a ND young adult (who refuses any assessment) I’d recommend getting an ADHD assessment and medication for ADHD in the first instance. See how that helps with the overwhelm and coordination. Next look to antidepressants if still required.

NearlyDec · 15/11/2025 07:50

i am interested in the stimulant meds unmasking the autism. My other son is prob auDHD and this hasn’t been his or my experience but that may be unusual. As I say, the autism is already more prevalent and he seems ok with that - ie. Social anxiety, some sensory stuff etc - I can’t see how any adhd presentation could be masking it as the symptoms seem to be mainly to do with executive function (0), daydreaming, procrastination, passivity, inability to start or complete tasks, avoidance and overwhelm. I realise these are co-morbid with asd but the executive function seems to speak more to adhd - particularly as he’s doing well socially (eg has put himself out there, tried new societies, gone clubbing and not hated it, loved the Wetherspoons crawl he did this week etc - although enthusiasm from him is “it was quite good” 😆). Please correct me if I’m missing something.

Sorry to quote a big paragraph but this could all be part of a spikey ASD profile. I think of it more like a scatter graph than a spectrum. If you listen to the podcast on the BBC, I think it’s 1800 seconds to autsim there is a man on there who holds down a professional job but employs what he refers to as a care worker who had to explain to him that when the microwave instructions say put it on, it meant cook in the microwave and not put it on top.

In terms of assessment a dual assessment for asd and adhd is much cheaper than two seperate assessment. When we paid for DD assessment they I had some minor concerns about potential adhd and they suggest they screen for adhd as part of the assessment , charger for screening but it was looking like adhd they would assess for adhd and not charge for an adhd screening as well as assessmemt. It’s worth chatting to some provider. Private providers will have waiting lists so it’s worth getting on a list and you can change your mind closer to the time.

Sk73djej · 15/11/2025 07:31

Anonymous07200408 · 15/11/2025 07:28

I also hopefully have a call with an old friend this weekend who is a very well respected and experienced psychiatrist so am trying to get my thoughts in order as he is super busy and won’t have long to chat.

Ideal!

Sk73djej · 15/11/2025 07:30

Anonymous07200408 · 15/11/2025 07:20

Thank you all so much for your thoughts - such a rich variety of experience (and all so diverse which is both really helpful and also confusing 😆).

in terms of it being about me (put very kindly and I really want all perspectives) I totally see where you are coming from. The trouble is he himself is really keen to stay. We have totally non judgementally offered him options many times now, including coming home/leaving uni, and very uncharacteristically for such a passive kid he is adamant he wants to stay. This is importance because I know lack of choice can lead to suicidal ideation. Strangely when he comes home ( every weekend where he eats, sleeps and goes out till the early hours with his 3 best home friends) he is more chatty, engaged and present than he has been for a long time. The thought of him dropping out and ending up back on the sofa scrolling X and being totally flat again seems counter productive for him and us. I would do anything to protect his mental health but I’m not sure that’s it - hence the muddle and me trying to scaffold and support him staying - which doesn’t seem to be working academically. He also has lots of siblings that I need to consider. To be honest the supportive parenting stance I take with him is that he’s doing brilliantly and we are so proud of him and have huge faith in him whilst we validate how tough it can be and offer options. The toll it’s taking on me will not be hugely obvious to him although he’s very empathetic and has acknowledged it can be burdensome to us. I’m trying to frame uni as a success whilst recognising the huge academic challenges and not making him feel trapped if that makes sense. In some ways he has surprised us socially.

the de-accommodation is designed partly for nd kids and is much more supportive and tailored than it sounds - designed to help him thrive not survive - look at the eli leibowitz stuff.

i am interested in the stimulant meds unmasking the autism. My other son is prob auDHD and this hasn’t been his or my experience but that may be unusual. As I say, the autism is already more prevalent and he seems ok with that - ie. Social anxiety, some sensory stuff etc - I can’t see how any adhd presentation could be masking it as the symptoms seem to be mainly to do with executive function (0), daydreaming, procrastination, passivity, inability to start or complete tasks, avoidance and overwhelm. I realise these are co-morbid with asd but the executive function seems to speak more to adhd - particularly as he’s doing well socially (eg has put himself out there, tried new societies, gone clubbing and not hated it, loved the Wetherspoons crawl he did this week etc - although enthusiasm from him is “it was quite good” 😆). Please correct me if I’m missing something.

i don’t think there has been trauma - we are very very open with each other. No obsessive or ritualistic behaviour. Hygiene is inconsistent and sometimes problematic (eg wearing dirty trousers and not seeing it as an issue) but I see this as a pda presentation.

please keep the thoughts coming. We are restricted financially to one assessment which is a push in itself so need to prioritise.

Totally empathise with all the above and have been through similar. The thought of leaving uni was making my son worse. I hid my worries about uni. It’s such worrying time and hard because they’re adults but still so young and you’re not directly involved.

I know money is tight( it is for us too as we’re funding uni x 2) but he does sound quite complex and if it was me I would get him looked at overall before pushing adhd meds. It’s £500 for a psych appointment I think and you do come away feeling a bit fleeced however whatever is learnt will help with next steps. ADHD meds can vary so much. I’d look for somebody well qualified if you do go down the ADHD diagnosis route.

Anonymous07200408 · 15/11/2025 07:28

I also hopefully have a call with an old friend this weekend who is a very well respected and experienced psychiatrist so am trying to get my thoughts in order as he is super busy and won’t have long to chat.

OP posts: