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AIBU?

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I’m actually ready to shave my hair off I can’t cope with this.

91 replies

Deebee90 · 12/11/2025 00:01

im Losing my hair. That’s it really. It breaks my heart every single day the hairs falling out . I know to some it’s only hair but to me I can’t bear the thought of going bald without my choice. I’m 35 and have just had my bloods done at the doctors for iron , thyroid etc and all normal. In August I was briefly hospitalised for anemia so I think it’s from the stress of that but I have no idea. I take pumpkin seed oil, biotin the lot.

no idea what I want from writing this but I’m over it . Including pictures of my hair and my hair loss. It certainly isn’t normal.

I’m actually ready to shave my hair off I can’t  cope with this.
I’m actually ready to shave my hair off I can’t  cope with this.
I’m actually ready to shave my hair off I can’t  cope with this.
I’m actually ready to shave my hair off I can’t  cope with this.
I’m actually ready to shave my hair off I can’t  cope with this.
OP posts:
Definitelynotme2022 · 12/11/2025 15:02

I lost a lot of hair after several very stressful life events and then constant illness culminating in pneumonia last year. It was coming out in handfuls, I had bald patches, and what was left was so dry and damaged.

It's only in the last 2-3 months that my hair has actually started to thicken up a bit, and actually grow. Also my nails, how are your nails?

I had all the blood tests, and they found nothing. So things I did as I've no idea what actually helped!

  • I changed my shampoo and conditioner - I use Kin Kind solid bars, the protein one Give Me Strength and one for damaged hair Give Me More
  • I found a collagen that suited me - I use Wild Nutrition
  • I massage my scalp daily
  • I take Solgar Skin, Hair and Nails vitamins
  • I also take a really good quality Omega oils supplement

I'm not sure if this helped, but I have IBS and this helps that.... but who knows?! I take a mushroom supplement. The one I take is called Rainbow Dust, which sounds dody AF but is actually really good.

Ponoka7 · 12/11/2025 14:50

I was going to ask about a autoimmune condition. I had a massive flare up and had similar hair loss. It did grow back. I spent a fortune on private consultations, which I don't think made a difference.

BauhausOfEliott · 12/11/2025 14:45

Deebee90 · 12/11/2025 13:42

I have inflammatory bowel disease and hemolytic anemia. Had a flare of both in August and was pretty ill so I think it’s from that but who knows. I got my mum to check and there doesn’t seem to be any patches just significant thinning ,

@Deebee90The friend I mentioned in my previous post also has IBD and her hair loss looked exactly like yours.

menopausalfart · 12/11/2025 14:19

I thought it was related to menopause but I also have IBD, Ulcerative Colitis. I never thought it could also be that.

AlannaOfTrebond · 12/11/2025 14:02

Exactly the same happened to me after a bad IBD flare combined with anaemia.

My Dr reckoned it was TE and it would grow back and he was right in my case. I lost about 50% of my hair, but it is all back now, possibly thicker than ever.

Cutting it shorter helped with the regrowth, I went from bra strap length to a bob.

I can clearly remember how distressing it was, so keeping my fingers crossed you have a good result in the end too.

Deebee90 · 12/11/2025 13:48

Thank you for the comments . Lots to think about. I can’t bear to see a hairdresser currently so my mums offered to cut my hair into a long bob to take the weight off it. Her and my mil have also said they will pay for some private bloods for me as they can see how distressed I am over it, these will include hormone tests as the nhs ones didn’t include them. We will go from there over the results. From research it looks like hair thinning and shedding is very current right now so it’s nice I’m not alone .

OP posts:
Deebee90 · 12/11/2025 13:42

EgregiouslyOverdressed · 12/11/2025 09:14

What's your autoimmune condition and are you under a specialist for it? It's probably related. It could be TE from the anaemia in August or it could be chronic and linked to your autoimmune condition.

I'm so sorry, I know it's very distressing. My best friend had a very distressing episode of alopecia totalis (losing all hair on the head and body) due to a mystery autoimmune condition. She saw a private dermatologist and is now on jak inhibitors, which have treated the issue. The other option was methotrexate. These are pretty nuclear options and not suitable if you are ttc, I'm afraid.

I have inflammatory bowel disease and hemolytic anemia. Had a flare of both in August and was pretty ill so I think it’s from that but who knows. I got my mum to check and there doesn’t seem to be any patches just significant thinning ,

OP posts:
Nopenott0day · 12/11/2025 09:28

All my hair fell out just over 9 years agonwhen I was in my mid 20s a few months before our wedding. I made the decision to shave it before it got too sparse. Eyebrows and eyelashes also fell out. I ended up having my eyebrows tattooed on.

It only started growing back this year when I started methotrexate (for an unrelated reason). Also you won't be able to take that if TTC.

There is some fabulous wigs out there op.
I hope you get to the bottom of it.

dandelionandbirdcock · 12/11/2025 09:20

Rockitgirlyoucandothis · 12/11/2025 00:47

Name changed for this.
OP, I have autoimmune problems and have lost my fringe and a bit further back, think Queen Elizabeth 1. So I bit the bullet and got a wig from a local salon, they were so kind. I feel great in it and life is so much easier. At home I wear a silk head band that covers the front area of my head. It just seems so normal now. Good luck 💐

Sorry to hijack but this sounds like Frontal Fibrosing Alopecia (I have it.) Have you spoken to a dermatologist about it? I’m taking hydroxychloriquine which was stopped the inflammation and hence no more hair loss…

somethingnewandexciting · 12/11/2025 09:19

Deebee90 · 12/11/2025 09:12

Yep my b12 was normal, my gp pretty much checked everything going and it was all normal 😢. I was so looking forward to an. Answer as then it would get treated and this would go away but nothing.

Have you seen your results though? I only say because mine were literally on the line between normal and under and my GP was trying to tell me they were normal. Their baseline is just an average figure from data, not specific to your own body. My bloods now come bar with an indicator arrow, so even if they GP rattles off everything is "normal" I can see I'm low on X and Y and get a supplement to push it to the middle a bit more.

magicscares · 12/11/2025 09:17

You could try hair & me - including info on TTC on your application. I’m using it & find it better than topical minoxidil alone. It’s a prescription so they take into account your specific medical needs (I double checked this as was unsure). If you’d like a discount code pls DM me.

EgregiouslyOverdressed · 12/11/2025 09:14

What's your autoimmune condition and are you under a specialist for it? It's probably related. It could be TE from the anaemia in August or it could be chronic and linked to your autoimmune condition.

I'm so sorry, I know it's very distressing. My best friend had a very distressing episode of alopecia totalis (losing all hair on the head and body) due to a mystery autoimmune condition. She saw a private dermatologist and is now on jak inhibitors, which have treated the issue. The other option was methotrexate. These are pretty nuclear options and not suitable if you are ttc, I'm afraid.

Halloweeeeeeeeen · 12/11/2025 09:12

ApparentlyIsMyCircusAndMyMonkeys · 12/11/2025 08:55

Hi OP from another fellow sufferer here :(
If you are looking to disguise it while you figure out why it’s happening, I can recommend hair toppers! There’s a group on FB called hair toppers for volume/coverage which has lots of advice.

I agree, hair toppers are fab and will give you confidence

Deebee90 · 12/11/2025 09:12

somethingnewandexciting · 12/11/2025 09:06

I know you said bloods were done but did they check your B12? I had similar when I was low of B12 and started paying for my own injections at the pharmacy near me. They said a lot of women use them regularly because the NHS often refuses treatment so women pay for it out of their own pocket.

Yep my b12 was normal, my gp pretty much checked everything going and it was all normal 😢. I was so looking forward to an. Answer as then it would get treated and this would go away but nothing.

OP posts:
somethingnewandexciting · 12/11/2025 09:06

I know you said bloods were done but did they check your B12? I had similar when I was low of B12 and started paying for my own injections at the pharmacy near me. They said a lot of women use them regularly because the NHS often refuses treatment so women pay for it out of their own pocket.

Itsallabouttea · 12/11/2025 08:59

This looks like classic telogen effluvium. I have the chronic version and have been shedding on and off for 4 years, it's miserable but I'm not bald yet. Like you all my bloods were normal, unlike you I had no obvious trigger and still don't. I saw one of the uks leading consultant dermatologists who confirmed that ll serums, shampoos, wonder products etc are essentially snake oil so don't waste your money.
Hopefully your TE will resolve as it normally does when there's an obvious trigger

ApparentlyIsMyCircusAndMyMonkeys · 12/11/2025 08:55

Hi OP from another fellow sufferer here :(
If you are looking to disguise it while you figure out why it’s happening, I can recommend hair toppers! There’s a group on FB called hair toppers for volume/coverage which has lots of advice.

momager22 · 12/11/2025 08:49

Possibly telogen effluvium after an illness. You need to see a derm really rather than a gp. Could you pay privately ? I’ve had the same. The good news is it’s only for a few months then hair starts to grow in again. I cut mine shorter then grew it out again.
in the short term I’d suggest those coloured root sprays for grey hair as they help blend in bare patches, look at styling nice scarves or consider a hair piece if you really hate not having thick hair.
I started wearing a baseball cap and now my hair is ok I still love wearing it !

AlexaBeQuiet · 12/11/2025 08:45

Can you get a private appointment with a tricologist in your area that specialises in hair loss?

BauhausOfEliott · 12/11/2025 08:42

Deebee90 · 12/11/2025 00:15

No it wasn’t . I have an autoimmune condition it wasn’t heavy periods sadly .

Alopecia is also an autoimmune condition, so I think I’d be talking to your doctor about whether your hair loss is linked to the condition you have. Autoimmune conditions can attack hair follicles.

My friend has an autoimmune condition and has also experienced sudden hair loss linked to it.

Lupin61190 · 12/11/2025 08:25

Could it be a catch22 where you are extremely stressed about it which then makes it worse? So hard to not stress about it though as it’s a traumatic thing to go through.
ask for your folate levels to be checked as that can cause hair loss too. How is your diet as eating 1g of protein per kg of body weight is crucial for hair

fivebyfivefaith · 12/11/2025 08:22

This is how much I was losing every time I washed it

I’m actually ready to shave my hair off I can’t  cope with this.
Deebee90 · 12/11/2025 03:02

fivebyfivefaith · 12/11/2025 02:32

It could well be telogen effluvium after the anaemia
basically your body focuses on important stuff like being alive, blood, organs etc and hair like nails isn’t important so it stops it in the wrong phase which is why the shed starts about 3 months after (that’s basic but google will say more!)

i lost a lot of hair exactly 3 months after campylobacter and remember sobbing in the shower over it because it was handfuls. It slowed and then went back to my normal loss and regrowth started
it started very suddenly and when I say handfuls, I have photos and it really was alarming amounts
the GP did bloods and confirmed it was TE

Your Gp sounds better than mine. I took photos of the hair loss and even a clump of it. She organised the bloods which have come back normal. She didn’t test my hormones so that’s the next thing I’m gonna ask to be tested for. Have a feeling it will be a dermatology visit Aswell god knows how long I’ll wait for that.

OP posts:
fivebyfivefaith · 12/11/2025 02:32

Deebee90 · 12/11/2025 02:21

Since roughly the end of September

It could well be telogen effluvium after the anaemia
basically your body focuses on important stuff like being alive, blood, organs etc and hair like nails isn’t important so it stops it in the wrong phase which is why the shed starts about 3 months after (that’s basic but google will say more!)

i lost a lot of hair exactly 3 months after campylobacter and remember sobbing in the shower over it because it was handfuls. It slowed and then went back to my normal loss and regrowth started
it started very suddenly and when I say handfuls, I have photos and it really was alarming amounts
the GP did bloods and confirmed it was TE

Deebee90 · 12/11/2025 02:22

Pryceosh1987 · 12/11/2025 02:11

I think you should speak to your GP for advice, they will tell you how you can improve the issue.

I’m currently waiting 3 weeks for an appointment with them .

OP posts:
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