Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask what would you expect of this person?

44 replies

Diagnosis4 · 23/10/2025 22:07

I know it’s a strange question but I have to ask for personal reasons. What would you expect of a person diagnosed with the following
underactive Thyroid
high blood pressure
Coeliac disease and irritable bowls
Osteopenia

what would you expect their lifestyle to be like?work they could commit to? How much rest would be required etc?

OP posts:
New posts on this thread. Refresh page
Notagain75 · 24/10/2025 16:12

It's impossible for anyone to comment.
Everyone is affected differently and unless people on this forum have medically assessed the individual they can't offer any meaningful answer.

minipie · 24/10/2025 16:11

FedUpofPeepShow · 24/10/2025 16:08

I have coeliac, and when I was diagnosed (20 yrs ago) I also had osteopenia. However, after sticking to the gf diet and doing weight bearing exercise, mainly running, walking my dogs etc the osteopenia has totally reversed to normal limits. So I would say that as long as u exercise and follow the diet those two extra elements will reduce in severity very quickly. Good luck!

This is amazing! Well done

FedUpofPeepShow · 24/10/2025 16:08

I have coeliac, and when I was diagnosed (20 yrs ago) I also had osteopenia. However, after sticking to the gf diet and doing weight bearing exercise, mainly running, walking my dogs etc the osteopenia has totally reversed to normal limits. So I would say that as long as u exercise and follow the diet those two extra elements will reduce in severity very quickly. Good luck!

Diagnosis4 · 24/10/2025 15:33

coxesorangepippin · 24/10/2025 15:25

Is this for a benefits claim form??

No. I have explained that I work, I work full time. Not everyone is out to claim benefits!

OP posts:
coxesorangepippin · 24/10/2025 15:25

Is this for a benefits claim form??

Diagnosis4 · 24/10/2025 14:02

EllaPaella · 24/10/2025 13:51

I have two of those conditions. My thyroid is managed effectively with levothyroxine and has no impact on my life whatever as long as my TSH is sufficiently suppressed.
Coeliac disease can also be managed effectively with the correct diet, my sister has it and now that she’s diagnosed and is not consuming gluten she’s absolutely fine.
In regards to high blood pressure- correct medical management and addressing lifestyle factors (such as maintaining a healthy weight and getting sufficient cardiovascular exercise) should allow you to live a normal life.
Hypothyroidism in particular is very common, especially in women over 40 and there is no reason once it’s treated properly why it should stop you living a normal life. I work full time, have kids, exercise at least 3 times a week. I do have times when I feel tired but that’s just to getting up at 6am five days a week and being busy with life, work and kids.

Thanks I have had the underactive thyroid since I was 20 so that is actually the least of my worries to be fair. I’m feeling very down about it all today to be honest, just feel like the second I get used to one thing I discover something else. I just keep thinking what next?!

OP posts:
EllaPaella · 24/10/2025 13:54

I’d add to this by saying make sure your TSH is sufficiently suppressed. UK GP’s are notoriously bad at managing thyroid disease. I had to fight very hard to get to the correct dose. A ‘normal’ TSH is not normal for someone with thyroid disease and we usually need our TSH to be significantly suppressed to feel okay. As soon as my TSH goes over 2.5 I feel absolutely dreadful. It might be worth getting it checked and asking for the results.

EllaPaella · 24/10/2025 13:51

I have two of those conditions. My thyroid is managed effectively with levothyroxine and has no impact on my life whatever as long as my TSH is sufficiently suppressed.
Coeliac disease can also be managed effectively with the correct diet, my sister has it and now that she’s diagnosed and is not consuming gluten she’s absolutely fine.
In regards to high blood pressure- correct medical management and addressing lifestyle factors (such as maintaining a healthy weight and getting sufficient cardiovascular exercise) should allow you to live a normal life.
Hypothyroidism in particular is very common, especially in women over 40 and there is no reason once it’s treated properly why it should stop you living a normal life. I work full time, have kids, exercise at least 3 times a week. I do have times when I feel tired but that’s just to getting up at 6am five days a week and being busy with life, work and kids.

LoveSandbanks · 24/10/2025 11:45

I have high blood pressure and a gluten allergy. Being completely gluten free, while necessary, is bloody hard. There’s the obvious and then there’s vinegar, marmite, a lot of ice creams. Last year I enjoyed blue cheese, but not for long until I broke out in hives. Ffs BLUE CHEESE?? (Apparently the mould is derived from bread mould)

Im always knackered but I’m not sure I know anyone with children (of any age) who isn’t.

Diagnosis4 · 24/10/2025 11:40

CypressGrove · 24/10/2025 11:24

I agree that addressing the osteopenia is very important- can you get some weights and work out a few times a week at home (heaps of YouTube videos) instead of going to the gym. Also you are only 40 but look out for perimenopause and seriously consider HRT at that time to help with bone strength.

That’s the plan I’m thinking, I really don’t have the time energy to get up with the house again in the evening to go to the gym. And the gym atmosphere is just not what I want or need.thank you

OP posts:
DiscoBob · 24/10/2025 11:28

Everyone is different. But none of those conditions would stop many people from working and leading a normal active life. But of course if symptoms were severe then it could limit activities. I don't think osteopeona has any symptoms does it?

I'd expect them to hopefully have a healthy GF diet and try to take plenty of calcium for their bones.

CypressGrove · 24/10/2025 11:24

Diagnosis4 · 24/10/2025 11:00

Yes I take medication for my thyroid and blood pressure so that is in order. Just starting to get used to managing the coeliac disease, but mostly fine tbh. The osteopenia is throwing me as I just need to carve out more time (that I feel I don’t have)

I agree that addressing the osteopenia is very important- can you get some weights and work out a few times a week at home (heaps of YouTube videos) instead of going to the gym. Also you are only 40 but look out for perimenopause and seriously consider HRT at that time to help with bone strength.

Diagnosis4 · 24/10/2025 11:00

Irenesortof · 24/10/2025 08:57

I would expect that someone in that position would be mostly managing their health with medication and lifestyle changes but there may be times when need a bit of sick leave. I’d expect that if they became continuously overtired they would consider going part time. I hope I would butt out because other people guessing what you need is unlikely to help.

Yes I take medication for my thyroid and blood pressure so that is in order. Just starting to get used to managing the coeliac disease, but mostly fine tbh. The osteopenia is throwing me as I just need to carve out more time (that I feel I don’t have)

OP posts:
Irenesortof · 24/10/2025 08:57

I would expect that someone in that position would be mostly managing their health with medication and lifestyle changes but there may be times when need a bit of sick leave. I’d expect that if they became continuously overtired they would consider going part time. I hope I would butt out because other people guessing what you need is unlikely to help.

Dramatic · 24/10/2025 08:25

Don't let what your colleague said limit you, if you feel ok as you are then there's nothing stopping you.

Diagnosis4 · 24/10/2025 07:58

keepmeright · 24/10/2025 07:52

Hopefully you will have more energy going GF. I find thinking about gluten free all the time is tiring on top of the actual fatigue.

I wouldn't worry about what she said. It's completely up to you how much you work.

It might be you are doing too much & need to prioritise yourself though

I have been GF since June and I’m finding I’m less bloated and a bit less sluggish at times so I can see the benefits. Hopefully it will improve as time goes on!

OP posts:
keepmeright · 24/10/2025 07:52

Hopefully you will have more energy going GF. I find thinking about gluten free all the time is tiring on top of the actual fatigue.

I wouldn't worry about what she said. It's completely up to you how much you work.

It might be you are doing too much & need to prioritise yourself though

RosesAndHellebores · 24/10/2025 07:44

@Diagnosis4 your colleague sounds like a passive aggressive catastrophiser who likes to suck the joy from other people's lives and winding them up. I'd avoid telling them much in future although it would be nice to engineer a swift but metaphorical kick up the arse.

Diagnosis4 · 24/10/2025 07:33

Sorry,I made the thread in a panic last night going to bed as I was ruminating on what a colleague said.
The coeliac disease and osteopenia are very recent.
Colleague made a flippant comment at work about me maybe having to go part-time because of my health conditions and I laughed, she said she was deadly serious as she wouldn’t expect to have to work a 39hour week if it was her.
I have no plans to reduce my hours because I’m coping well and my treatment so far and lifestyle keep things stable enough.
I have 2 dc so my evenings are busy but yes I do get so tired and as someone mentioned I also get migraines a lot too. I tend to push on through but then falling asleep last night I thought “am I expecting too much of myself?!”…and so I started the thread.

Im not overweight, I’m 5’2 and I weigh 9ish stone, I’m a solid size 10 petite. I’m 40…but I don’t want things to get worse to be honest, I bed to work another 20 odd years! I have no intentions of going on benefits!
I plan on going to the gym one evening a week, I walk 1-2 times a week and I’m going to start yoga one evening too, but I’m panicking any the thought of fitting it all in to be honest. 😩

OP posts:
SlightlyHeartbroken · 24/10/2025 06:02

Depends how recent the diagnoses are. It takes up to two years for the intestinal damage from coeliac to heal. There is a psychological aspect too, trusting other people to keep you safe if you are eating out and thinking about it every time you eat or buy food. Thyroid meds can be difficult to get right, TSH should be close to 1, being under medicated can make you feel terrible.

There can be other issues too such as low B12 and other deficiencies due to years of malabsorption. Coeliac is an autoimmune condition and hypothyrodism can be too which means there is a susceptibility to other autoimmune conditions which may go undiagnosed.

Coeliacs are still eligible for covid vaccine as well as flu and pneumococcal vaccines due to potential issues with their spleen.

Coeliac is very much more than ‘just don’t eat gluten’.

if the person says they are exhausted it’s probably true.

keepmeright · 24/10/2025 01:12

Some people have a type of ceoliac disease which Is not resolved hlny a GF diet so ...

I have other health issues but if it were 'only' ceoliac, each time I am glutened while GF, it writes off about a week of my life. That could be as simple as eating out & the restaurant makes a mistake, eating something not GF by accident, ingredients being changed in a food & not realising, mistakes in my own kitchen (it happens)

toonananana · 24/10/2025 01:12

As someone who suffers with just one of those conditions, my heart goes out to them. Depending on age and responsibilities, they must be exhausting balancing their varying needs. I work FT and have found although my bloods come back as being normal, I remain symptomatic- brain fog, slurred speech, overweight despite careful eating and exercise, hair loss, poor working memory, etc. add in anything else and I’d struggle to cope. I’m 42 and a sole parent to two little ones.

keepmeright · 24/10/2025 01:06

Ceoliac disease effects people differently. I'm eating gluten now while I await endoscopy to confirm. I'm very unwell. It causes severe stomach issues, I can't leave the house. I also get mouth ulcers, bloating, joint pain & it sets off tachycardia so can't stand longer than a couple of minutes. The fatigue is horrific & after 9 months GF it didn't improve. I'm working on vitamin deficiencies. When I am GF & eat gluten accidentally, even cross contamination, I get a cracking headache that nothing shifts, plus all the other issues. It really depends on how well managed it is so not as straight forward as don't eat gluten & you are brand new.

Assuming they got the osteopenia from undiagnosed ceoliac, they may have had it a while unknowingly. Unfortunately for some ceoliac disease untreated causes lasting damage. I have pain & weakness which may be permanent.

BauhausOfEliott · 24/10/2025 00:30

I’d assume them to be on medication for their thyroid and blood pressure, eat appropriately for their coeliac disease, manage their osteopenia to avoid getting osteoporosis, and get on with their life.

These are all very common conditions which are either treatable or manageable and if someone’s on the right medication and eating the right things to manage them, I wouldn’t expect them to appear or feel unwell on a regular basis. There’s nothing remarkable about any of this.

My mum, at the age of 81, has all of these conditions except coeliac disease and provided she takes her medication she doesn’t really struggle with anything. She walks a lot, has plenty of energy and does a lot of very heavy gardening.

Nearly50omg · 23/10/2025 23:53

Completely normal - with the right meds and diet there’s no reason not to

Swipe left for the next trending thread