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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be beyond frustrated my MH trust told me I’m too complex?

90 replies

Sillyquestion123 · 29/09/2025 13:14

I had my assessment call today, and the lady albeit very nice and understanding told me that they spontaneously be able to help as the talking therapies within my trust don’t deal with complex trauma.

As I’m also not currently depressed nor anxious, and only get symptoms when triggered I’m no way a priority.

Ive already contacted Mind which were nice, and NAPAC who were super helpful.

apparently the next step is my GP to ask to be referred to a psychiatrist.

I've only heard about his via the charities.

So AIBU for feeling so let down by my local trust?

OP posts:
ThePure · 30/09/2025 08:17

Sillyquestion123 · 30/09/2025 08:10

I’m fine with paying for it, but nobody seems to be able to actually tell me what’s the type of treatment that would work for me.

MIND just told me to go through the directory of the BACP website but that’s as helpful as a chocolate teapot IMO.

I've been through YEARS of talking therapy (paid for) and it obviously didn’t help.

I feel like I need a proper assessment with diagnosis and am some sort of action plan with the type of clinician I need. I’m then happy to source that for myself.

In which case you probably need to pay for a one off assessment with a private psychiatrist to make a diagnosis. Psychologists and therapists do not usually diagnose. Private psychiatry is relatively available. Look for someone with experience in trauma related presentations.

or cut to the chase and just get an experienced EMDR therapist if you feel cPTSD is the problem. Sometimes a diagnostic label is not as helpful as a formulation which a good psychologist would be all over.

Honestly if you are able to afford to pay I doubt you will improve on that with NHS services and I say that as someone who works exclusively for the NHS. It doesn’t do everything and this is an area that is poorly served by the NHs.

Sillyquestion123 · 30/09/2025 08:15

Lookingforwardto2025 · 30/09/2025 08:13

I had to go private to see a psychiatrist and get a diagnosis of cptsd and then had private EMDR. It was amazing and cured me so very worth the money but I am very aware how lucky I was to be able to afford it and it makes me sad and angry that not everyone can.

That’s helpful so did you approach the psychiatrist directly?

I feel like I need either a clinical psychologist or a psychiatrist not someone with just a random degree and a post grad in therapy/counselling.

OP posts:
LoftyRobin · 30/09/2025 08:13

There is the cuts in funding, but there is also research that shows much of what the NHS was offering was totally ineffective anyway.

Lookingforwardto2025 · 30/09/2025 08:13

I had to go private to see a psychiatrist and get a diagnosis of cptsd and then had private EMDR. It was amazing and cured me so very worth the money but I am very aware how lucky I was to be able to afford it and it makes me sad and angry that not everyone can.

ThePure · 30/09/2025 08:11

decenteringmen · 29/09/2025 13:28

The NHS are notoriously shite at dealing with anything outside of anxiety and depression. If they can't address it with eight sessions of CBT, and some antidepressants, they won't help.

I found this out the hard way trying to get help for my CPTSD.

It’s literally a cost thing nothing ideological.

CBT is manualised, can be delivered by less qualified people and a time limited course works for many conditions. Group therapies and skills training courses are also cost effective and are able to be offered online now so a lot of places are offering group DBT or CFT.

Compare those to the expense of months of 1:1 therapy with a highly qualified clinical psychologist who has a degree, PhD and post grad training that you would need for EMDR or any trauma therapy and you can see that the economics does not stack up for the NHS to be able to offer that level of input to people with anything but the most severe cases.

We’d like to help more people. We don’t somehow enjoy turning people away but the amount of investment that would be needed is absolutely huge and money would need to be diverted from other NHS services or from other government spending to do it

I remember the days before IAPT/ Talking therapies services existed and there was only 2nd care psychology and the wait list was well over 2 years to get any therapy for anything at all so the current situation is an improvement for people with conditions that NHS TT can treat but can’t be the solution for many others unless the funding model changes.

Sillyquestion123 · 30/09/2025 08:10

ThePure · 30/09/2025 07:55

Most NHS Talking Therapies services would indeed not deal with cPTSD. They do almost entirely CBT for anxiety and depression. That does not equate to the entire mental health trust having nothing to offer you only the IAPT/ Taking therapy part of the service so you were correctly advised to go back to your GP and ask for a referral to a different part of the service.

In our area the symptoms and severity you describe would not meet criteria for secondary care mental health services which require significant risk and/ or disability. There is an under served gap for people with issue that don’t fit under primary care but aren’t severe enough for secondary. In some areas there may be services that do operate in that gap but, due to cost, these are fairly likely to be online groups as individual therapy for all who would like it and would benefit is simply unaffordable or unfunded by the ICB.

If there is not a suitable service then the only options ar le 3rd sector charitable ones like MIND or private. Your GP or local MIND might know if there are any charities locally who provide subsidised therapy. In our area there are a few but it’s different in different places.

I’m fine with paying for it, but nobody seems to be able to actually tell me what’s the type of treatment that would work for me.

MIND just told me to go through the directory of the BACP website but that’s as helpful as a chocolate teapot IMO.

I've been through YEARS of talking therapy (paid for) and it obviously didn’t help.

I feel like I need a proper assessment with diagnosis and am some sort of action plan with the type of clinician I need. I’m then happy to source that for myself.

OP posts:
ThePure · 30/09/2025 07:55

Sillyquestion123 · 30/09/2025 07:17

but what is the answer then?

I oscillate between thinking I need treatment and then thinking I don’t.

I'm highly functioning but the more I think about it I think that either something happened to me in my earlier years that I don’t remember or definitely the generational trauma left a mark.

When I was little I always thought something was going to happen to me at night (at first I thought I would be possessed by a demon and later thought I would be adducted by aliens) so I felt safer by not sleeping. Fast forward to my pre teens / teens and I always had a fear my dad could/would rape me. None of that ever happened, but at the same time I feel they must be related.

my DH who knows me best and has the kindest of intentions but doesn’t know a lot about treatments thinks that I should focus on the autism diagnosis first and then the other stuff second.

he also has a “sense of duty “ with family which I don’t AT ALL and that’s a massive disconnect between the 2 of us.

i don’t have that many flashbacks nor triggers (I still have them) and I also have the “nightmares” but I don’t think I experience any of those symptoms more than 3,4 times a year

Most NHS Talking Therapies services would indeed not deal with cPTSD. They do almost entirely CBT for anxiety and depression. That does not equate to the entire mental health trust having nothing to offer you only the IAPT/ Taking therapy part of the service so you were correctly advised to go back to your GP and ask for a referral to a different part of the service.

In our area the symptoms and severity you describe would not meet criteria for secondary care mental health services which require significant risk and/ or disability. There is an under served gap for people with issue that don’t fit under primary care but aren’t severe enough for secondary. In some areas there may be services that do operate in that gap but, due to cost, these are fairly likely to be online groups as individual therapy for all who would like it and would benefit is simply unaffordable or unfunded by the ICB.

If there is not a suitable service then the only options ar le 3rd sector charitable ones like MIND or private. Your GP or local MIND might know if there are any charities locally who provide subsidised therapy. In our area there are a few but it’s different in different places.

Sillyquestion123 · 30/09/2025 07:54

MaryBeardsShoes · 30/09/2025 07:42

Sorry for whinging on your thread! MH services suck.

They do! But I also don’t feel comfortable talking to my GP about my whole life it’s A LOT and I end up crying.

every time I have to explain what do I mean by traume it takes me like 2 steps back.

im happy to write it though, just not talk about it

OP posts:
MaryBeardsShoes · 30/09/2025 07:42

Sorry for whinging on your thread! MH services suck.

MaryBeardsShoes · 30/09/2025 07:29

I’m currently on a programme with Talking Therapies after calling my GP who recorded my problems as “mild mood observations” and told me to read some nhs articles and then self refer to TT if I felt needed. I was having daily panic attacks, crying all the time, insomnia, etc etc This has been on going since I was a child but I had no support at home to access help. Still no one gives a shit.

The TT assessment did view me as severe GAD and depression, with possible OCD, which they never followed up.

I go through the motions of the course, but it’s easy to omit things when no one looks you in the eyes.

The only thing they show mild interest in is self harm/suicidal ideation. I’m not sure how qualified my supporter is. She could be going through a script.

Gettingbysomehow · 30/09/2025 07:28

I got referred really quickly via GP and the service in my area has been great. I've had CPTSD for around 50 years they think and diagnosed far too late. I learnt to cope with it on my own. But they are on it right away if I have an episode where I need help. It really is something that needs to be treated by specialist services.

Sillyquestion123 · 30/09/2025 07:17

but what is the answer then?

I oscillate between thinking I need treatment and then thinking I don’t.

I'm highly functioning but the more I think about it I think that either something happened to me in my earlier years that I don’t remember or definitely the generational trauma left a mark.

When I was little I always thought something was going to happen to me at night (at first I thought I would be possessed by a demon and later thought I would be adducted by aliens) so I felt safer by not sleeping. Fast forward to my pre teens / teens and I always had a fear my dad could/would rape me. None of that ever happened, but at the same time I feel they must be related.

my DH who knows me best and has the kindest of intentions but doesn’t know a lot about treatments thinks that I should focus on the autism diagnosis first and then the other stuff second.

he also has a “sense of duty “ with family which I don’t AT ALL and that’s a massive disconnect between the 2 of us.

i don’t have that many flashbacks nor triggers (I still have them) and I also have the “nightmares” but I don’t think I experience any of those symptoms more than 3,4 times a year

OP posts:
StElwicksNeighbourhoodAssociation · 30/09/2025 00:16

CharlotteLightandDark · 29/09/2025 13:28

I worked in NHS talking therapies for years.

their remit is mild-moderate depression, GAD, panic disorder, health anxiety, OCD and PTSD (usually single event and fitting the treatment protocol closely)

for these presentations it’s really good and works well. For anything outside of these it’s not generally considered the right option as the assumption is people will need longer term therapy - which would be fine but it doesn’t exist in statutory services so those people end up getting passed to third sector services eg MINDA who also don’t have the training or capacity to offer that sort of therapy.

they really shouldn’t be using terms like ‘too complex’ as it’s probably more like the persons symptoms don’t fit well enough into the disorder specific protocols.

for example the PTSD treatment protocol is based around the client fitting a certain type of PTSD which a lot of people who have experienced trauma don’t present with. Lots of people with a complex trauma history don’t have dissociative flashbacks for example.

That's interesting to read @CharlotteLightandDark - thank you for posting. I've completed a course of CBT having had it twice before and it not working, but told I had to go through it again. I've also been referred back to the service as my issues are "too complex" for CBT - which is what I told them in the first place. I feel bad that someone has had to wait while I went through their process, which was always going to be a waste of everyone's time and resources.

Hubblebubble · 29/09/2025 22:53

I was given a temporary diagnosis of c ptsd post partum, told therapy could re traumatise me and give me a mental breakdown, so I didn't pursue it and there has been no follow up whatsoever.

Hotflushesandchilblains · 29/09/2025 22:48

Sorry that should say seems to be philosophical.

Hotflushesandchilblains · 29/09/2025 22:47

RedToothBrush · 29/09/2025 22:44

It was a while ago. Total car crash.

And no that didn't help. My trust is so unbelievably useless it's untrue.

There is literally no mental health support where I am as far as I am concerned. My GP has been staggered at what has happened to me and how no one would do anything because I don't fit their tick boxes. Long story I'm not prepared to go into on here.

I am doing ok now, thanks.

But yes, anyone who says they can't get access to services, I believe because I've had first hand experience of it. People don't understand just how terrible the situation is unless they've had to deal with it.

Its a lot of the reason I left working in general MH in the NHS. It was soul destroying to see people in need and know there was nothing you could do.

Having moved I can also see that Trusts are drastically different. Its not just about money either - see to be philosophical too. The ICBs have a lot to answer for.

RedToothBrush · 29/09/2025 22:44

Hotflushesandchilblains · 29/09/2025 22:38

Oh, thats really poor. I am so sorry. Could you get to A&E or call 999? Hope you are doing better now.

It was a while ago. Total car crash.

And no that didn't help. My trust is so unbelievably useless it's untrue.

There is literally no mental health support where I am as far as I am concerned. My GP has been staggered at what has happened to me and how no one would do anything because I don't fit their tick boxes. Long story I'm not prepared to go into on here.

I am doing ok now, thanks.

But yes, anyone who says they can't get access to services, I believe because I've had first hand experience of it. People don't understand just how terrible the situation is unless they've had to deal with it.

Hotflushesandchilblains · 29/09/2025 22:42

The stress of dealing with this fuckwittery itself damages mental health - and it's people who did this shit least who are getting fucked by this.

The people needing to answer for this are the commissioners who are constantly cutting money for MH services and the government ministers on both sides who are pushing for services to be outsourced. It might be cheaper in the short term, but it puts money first, and patient care last.

Unfortunately, because most people dont really understand what is happening and why, it is the burned out staff working to impossible criteria who get focused on. Not that there arent some terrible staff there. But there are a lot of great people working in impossible situations.

Hotflushesandchilblains · 29/09/2025 22:38

Oh, thats really poor. I am so sorry. Could you get to A&E or call 999? Hope you are doing better now.

RedToothBrush · 29/09/2025 22:33

Hotflushesandchilblains · 29/09/2025 22:28

That is great @Sillyquestion123 .

I am sorry that happened to you @RedToothBrush . Sounds like you needed the crisis team, not the Talking Therapy service. I hope its better now.

That was the crisis team.

RedToothBrush · 29/09/2025 22:32

bakebeans · 29/09/2025 22:22

They have assessed you and deemed that you need more specialist care than what they can provide for you.
They have done the right thing. YABU

So they've assessed someone and said 'we are the mental health team, but you are too mentally ill for us so you aren't are fucking problem so we are going to dump you off our books and are going to make someone with very complex mental health needs try and navigate a complex system all by themselves".

They aren't fit for purpose.

The number of NHS departments who just go 'nope you don't tick our box, not our fucking problem' and then dump you from great height and then no one will take you on is appalling.

There was a case of a guy, highlighted by the BBC not so long ago, who was so fed up of being dumped by departments who won't take responsibility and falling between them that he's now refusing treatment which will lead to his death because the stress of dealing with this kaftasque system has become that much.

The stress of dealing with this fuckwittery itself damages mental health - and it's people who did this shit least who are getting fucked by this.

Hotflushesandchilblains · 29/09/2025 22:28

That is great @Sillyquestion123 .

I am sorry that happened to you @RedToothBrush . Sounds like you needed the crisis team, not the Talking Therapy service. I hope its better now.

RedToothBrush · 29/09/2025 22:26

Octavia64 · 29/09/2025 13:17

Yes I had this as well.

they assessed me and then said they didn’t offer anything suitable for me.

They wouldn't even assess me, because I couldn't speak on the phone and they only do phone assessments.

I'd was acknowledged as in crisis at the time.

I don't actually know what the point of them is where I live.

bakebeans · 29/09/2025 22:22

They have assessed you and deemed that you need more specialist care than what they can provide for you.
They have done the right thing. YABU

FlyingUnicornWings · 29/09/2025 21:50

Sillyquestion123 · 29/09/2025 13:14

I had my assessment call today, and the lady albeit very nice and understanding told me that they spontaneously be able to help as the talking therapies within my trust don’t deal with complex trauma.

As I’m also not currently depressed nor anxious, and only get symptoms when triggered I’m no way a priority.

Ive already contacted Mind which were nice, and NAPAC who were super helpful.

apparently the next step is my GP to ask to be referred to a psychiatrist.

I've only heard about his via the charities.

So AIBU for feeling so let down by my local trust?

There’s a middle ground between talking therapies and secondary mental health care that is a bit of a void in most trusts.

In some (the trust I used to work for) there is GPimhs, which stands for GP integrated mental health services. It fills that gap and takes patients who are “too unwell for talking therapies” but not unwell enough for being accepted by community mental health services (which the bar is very very very high to get accepted by them, you have to have a serious mental health illness). Can you see if your trust provides this service, or a similar service?

Having said that, let the GP do your referral to CMHS. They might accept you and you deserve to get the help you need, even if the system isn’t fit for purpose.

I hope you get the support you need.

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