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To be a teacher asking for help from parents of children with SEND?

41 replies

sendhelpaboutsend · 25/09/2025 21:44

If you have a child with additional needs that masks very effectively at school and then becomes very dysregulated when they get home, what do you wish school would do to help? Or what do they do that you have seen has a helpful impact?

I am a primary teacher with a number of parents that are pleading for help in school.

I have seen countless posts and videos from parents of children with SEND that are furious when schools say, “they’re fine at school”, and I know I am guilty of saying this - not because I don’t want to help or don’t believe how much these kids struggle at home, but because I genuinely don’t know how to help kids with things that I only see as appearing to be coping well.

We are a very nurturing school. We have an amazing ELSA and a dedicated sensory room, we use some standing desks for children that like or benefit from them, I use visuals and reduced language, I give task lists. We are trauma informed, dyslexia friendly, have regular ASC and ADHD training…

Ultimately though, we are a mainstream school. There are sensory things which will impact some kids, there are curriculum, cognitive or language demands that impact some.

There are barely enough adults in school to support the children with demanding behaviours and needs that do present in school, never mind the ones that don’t but I want to know what I can do to try.

So, if you think there is anything that has or would help your child…please help.

OP posts:
New posts on this thread. Refresh page
sendhelpaboutsend · 26/09/2025 14:53

Thank you for all the suggestions. Lots of things here that are already in place, but some ideas to think about or incorporate.

OP posts:
Swiftie1878 · 26/09/2025 11:12

sendhelpaboutsend · 25/09/2025 21:44

If you have a child with additional needs that masks very effectively at school and then becomes very dysregulated when they get home, what do you wish school would do to help? Or what do they do that you have seen has a helpful impact?

I am a primary teacher with a number of parents that are pleading for help in school.

I have seen countless posts and videos from parents of children with SEND that are furious when schools say, “they’re fine at school”, and I know I am guilty of saying this - not because I don’t want to help or don’t believe how much these kids struggle at home, but because I genuinely don’t know how to help kids with things that I only see as appearing to be coping well.

We are a very nurturing school. We have an amazing ELSA and a dedicated sensory room, we use some standing desks for children that like or benefit from them, I use visuals and reduced language, I give task lists. We are trauma informed, dyslexia friendly, have regular ASC and ADHD training…

Ultimately though, we are a mainstream school. There are sensory things which will impact some kids, there are curriculum, cognitive or language demands that impact some.

There are barely enough adults in school to support the children with demanding behaviours and needs that do present in school, never mind the ones that don’t but I want to know what I can do to try.

So, if you think there is anything that has or would help your child…please help.

Our school runs SEND coffee mornings for the parents of SEND children, with guest speakers on different aspects of SEND - one per term.
The parents learn so much from the speakers (and the resources they signpost) and the staff learn so much about their children, directly from the parents in a safe space.
Our SENDCo organises the mornings with the Lead Governor for SEND.

ChipDaleRescueRangers · 26/09/2025 11:08

Don't assume dyslexic children are stupid! You would be amazed how many people in education think as you cant read or spell you are stupid and dont know anything. Often dyslexic children have amazing gifts in art/sports/science etc...... but also its a spectrum. Average children are dyslexic, very intelligent children are dyslexic and less intelligent children are also dyslexic.

Listen to parents when we say they are struggling with homework at home due to burn out etc..... dyslexic children have to work ten times harder than a non dyslexic child to get the same results. They are exhausted when they get home.

Skerrida · 26/09/2025 11:02

Coming back again to add another thing - sorry OP, it's just such a good question. Have the library open at break if you possibly can, or some other quiet area so students are not forced out into a noisy playground. Not just those who have been specially identified and given access to a sensory room or whatever - arguably things have already broken for these children. For every one of those there might be several who need a lighter touch "sensory break", and they can self manage with the right opportunity.

This would also be a good place for a sympathetic teacher or support staff to make a connection with these students.

neverbeenskiing · 26/09/2025 08:21

Inform us of incidents that happen during the school day, don't assume there's no need to tell us because the child seemed 'fine' afterwards. They may seem fine, but when they come home and explode and can't articulate why, it's helpful for us to have some context.

Teachingagain · 26/09/2025 08:14

I’m placing marking as I have a child who Language and Communication team describe as an incrediably high masker. I will come back later.

ThreePointOneFourOneFiveNine · 26/09/2025 08:10

Look for the signs we are telling you are there. Stop telling her off for the symptoms you are claiming you don’t see.

We saw the forms my DDs school filled in for her ADHD assessment and they’d just ticked no to most of it. I watched her at sports day jumping around like a loon waiting her turn (all the other year six kids were queuing nicely), but apparently the teachers didn’t notice. And they kept telling her off for not having paid attention if she didn’t know what she was supposed to be doing in lessons. She was trying really hard to pay attention, but she just forgets as soon as the explanation is finished. They did give her a fidget toy in primary though, whereas her new secondary school are now telling her off for fidgeting 🤦‍♀️

MyCatPrefersPeaches · 26/09/2025 08:01

For my DC it was acknowledging what their needs were and identifying them, which was through a mix of me, them and the teacher discussing what was difficult, as well as professional assessment. Little things that have really helped include fiddle toys, a wobble cushion and regular movement breaks (for my DC, that comes through being a book monitor - no resource to implement, really helps him, very clever teacher that year).

And the biggest thing was him having a couple of friends rather than being bullied - tackling bullying effectively, especially when it’s on a regular basis, even if the individual incidents are low-level, is very important.

LooLoo274 · 26/09/2025 07:59

BlackeyedSusan · 26/09/2025 07:54

Don't keep them in at playtime to do homework that they couldn't do as they were having a meltdown about being kept in at playtime yesterday for not doing homework.

Do not expect them to stay on task themselves. They need support. (Thank you Mr P) But not trouble for it. Actual support.

I agree with this as well. Taking away a breaktime from a child that needs breaks is counter-productive.

BlackeyedSusan · 26/09/2025 07:54

Don't keep them in at playtime to do homework that they couldn't do as they were having a meltdown about being kept in at playtime yesterday for not doing homework.

Do not expect them to stay on task themselves. They need support. (Thank you Mr P) But not trouble for it. Actual support.

Jellycatspyjamas · 26/09/2025 07:53

My DC both have complex trauma histories. Things that helped in school were clear expectations from teachers, giving examples of what they need to do. Don’t underestimate the impact of small changes - eg time for gym changes because something else needed done. It can’t be helped but my DD would need someone to explain that to her because the change would make her anxious thinking she had done something to make it happen.

Calm classrooms without too many wall displays or visible resources. The visual stimulation of having so much stuff around the classroom was really distracting. Think about where kids sit in the classroom. Both my DC were very hyper vigilant, so sitting next to the window was hopeless, they’d sense every movement in the playground and become anxious because they didn’t know if X movement was something safe or not. Sitting in the middle of the class meant they could focus better.

Regular movement breaks helped too - my DDs teacher would give her a job to do eg taking a message to the office, so she had a reason to walk round the school. And know where their safe space is, and go with it. My DDs safe space was the toilet, the school initially tried to find somewhere nicer for her when she needed time out, but she had chosen the toilet for good reason, when they accepted her choice of what felt safe she was much happier.

Soontobe60 · 26/09/2025 07:45

I would ask parents what is triggering their behaviours at home and take it from there. Are they hangry? If so, bring a snack when you pick them up. If they go home in the car, have their favourite calming music on ready, and don’t question them about their day - give them time to decompress. Do they find reading a chore? If so, don’t pressure them to read their reading book every night - read the book to them instead. Similarly spellings - most children hate learning them and hate spelling tests - take the pressure off and don’t force them to do spelling tests (teachers that is). If your school insists on homework, try to find a time when it can be done calmly at home. If a child refuses to do it at home or it causes a meltdown, teachers don’t make a big deal of it. I send homework home because it’s our school policy, but if a child doesn't complete it I don’t make a big deal of it; keep it low key! If they don’t like being made to wear a uniform, get them to change into something comfy as soon as they get in.
Teachers: before the end of the day, get all your children to think of one thing that has gone well that day and share with a friend - ‘today I managed to finish my maths”, “today I played with my friends at break time”, “today I was brave when I fell over”. I do this every day with my class, 5 minutes at home time.

LooLoo274 · 26/09/2025 07:44

When my child is distressed, he goes very introverted, withdrawn, into his own little world in his head. It's like he has a superpower to block out the rest of the world. Teachers see this and tell me things like "he's happy with his own company." He won't communicate that he's upset or complain like another child would. I sometimes wish his teachers could see him at the weekend playing with his cousins. He can absolutely have friendships and be engaged and social, he just withdraws at school. Then explodes at home.

My advice is just to bear in mind that children with SEN display emotions in different ways than nt children and not to assume they're OK because they're not crying or kicking off.

Thanks for asking this question ❤️

Needlenardlenoo · 26/09/2025 07:30

Ask the parent how they are? And really listen to the answer?

I don't know if anyone's done research into it but I reckon divorce among parents of SEN kids is above average as bringing up an SEN child and battling a mostly uncaring and oblivious system is tough on adult relationships. You wouldn't think so to meet me (I'm a secondary school teacher) but I was suicidal on and off when my DC was upper primary age.

Namechange822 · 26/09/2025 05:03

I think you’re already doing better than half the teachers we know if you understand that “fine in school” is masking rather than the SEN needs therefore being a parenting issue.

I agree with a lot of the suggestions above, I’d also say try some of the supports which you would give more disruptive children and then ask the parents if there has been an improvement. Wobble cushion, theraband etc. Anything you would usually use to get the stress out in school instead of it staying inside. Educational psychologist reports are very useful for these children if you’ve got a good one.

The pp who has mentioned paperwork makes a very very good point. You can’t lie obviously but you can write about the masking etc - ask parents to come in and discuss paperwork together. Diagnosis is much much more challenging when you have a child who masks and therefore only presents in one setting.

Other parents who I know have also found quiet drop off and pick ups really helpful - ie arrive 5 minutes late, leave 5 minutes early - and that that seems to reduce the coke bottle effect a bit.

unlikelychump · 26/09/2025 04:53

Skerrida · 25/09/2025 22:34

One thing that is super stressful is when the child can't advocate for themselves. Initiating action is really hard. If they have a red card to leave the classroom, or special permission to take a break, can they actually use it? Practising it when feeling ok is helpful, but it may not be enough. It feels like gaslighting to the child if teachers say "but he has xyz and he just doesn't use it" when he can't even explain that he can't, or why he can't, let alone actually do the thing. We never really solved this, except that he moved to an autism unit and somehow the LSAs there could read him literally from day 1 so he stopped needing the card. He slowly learned to communicate by spending a lot of time with them and having every attempt caught and acknowledged. Honour each and every attempt at communication, which might look like noncompliance, eg pushing chair back from desk to show that they can't do the work. If they are not writing much and you don't have time to unpick it with them, maybe contact parents and ask if they could talk to the child. There could easily be a really simple blocker that they cannot solve - a broken pencil, not knowing what a word means. As parents we have more time to talk to the child (mostly!) than you do, but we often don't know there is a problem until parents' evening and we see all the red traffic lights with "try to write more next time".

This.
Try to learn them so you can see what they can't say. My problem with my child is that he can't speak up at school. He comes home having held it together all day and says at least I can,tell you.

ittakes2 · 26/09/2025 04:45

My daughters school did 1hr lesson followed by 20min break

itsgettingweird · 26/09/2025 04:29

For me it’s understanding that if they are “fine at school” and you accept they are masking then it’s actually understanding if they are masking they aren’t “fine”. It’s finding what level of support they need to manage without masking.

yoo can do whole class stuff such as visual timetable and movement breaks throughout the day as well as individualised stuff such as a personal timetable on the desk (can be easier to follow. Fidget toys allowed. Ear defenders if the environment is too noisy. Zones of regulation.

I think the most important thing though is recognising there’s a problem if they get out of school and explode and a willingness to support which you have.

Seahawk80 · 26/09/2025 04:02

You are clearly are very caring and a great teacher- thank you! I have an 8 year old who masks at school and lets it all out at home! I am only just learning about all the things that can be done at school but for me the biggest thing is being listened to and communication.

For the last 2 years I have been asking for help and have been told by teachers “he’s fine” or “we will keep an eye on him”. It was only last May at the end of year 3 when his masking slipped a bit and his behaviour changed that I was listened to and put in touch with the SEN lead, I sent her aome
videos and everything changed. We’ve been reffered to MHST, we had a meeting with his
new teacher and the SEND lead last week. This was so important to me as instead of feeling lost and that DS was so behind and having to wait for a 10 minute parents evening almost a term in we now have a clear plan on his support at school and at home. For example at the meet the teacher day we were told we should be reading 20 mins per day and practicing times tables. DS is so resistant to anything at home. I now know that his maths is good, his reading is OK and the biggest concern is his writing so I know what to focus on. I also could tell the teacher he hides his book at school to avoid reading at home! These small things have made a world of difference to us. Especially as I work and drop off / pick up once a week so I don’t get much time to chat to the teacher informally.

WannaFOffOnHoliday · 26/09/2025 03:47

When you fill in the ECP Care Plan,
Please do it with the parent and get there input.
This is what will go to the GP and often if a child masks in school, it will say very mild or sometimes or occasionally
The Care plan can have huge effects on the outside of school support.
Im not saying lie ofcourse but please sit and talk to the parent and also the child (if appropriate)

TheClaaaw · 26/09/2025 00:34

jetlag92 · 25/09/2025 23:11

Obviously if they're fine at school you're doing a great job as a teacher....😀

What a silly comment. It is this ignorance which is exactly why children who mask at school suffer so much.

Skerrida · 26/09/2025 00:14

user1471530109 · 25/09/2025 22:58

Build a relationship with them.

I'm a teacher and also a mum to a SEND DC. The training bangs on about certain fonts, check lists, time outs etc. When actually, my 20+ years of teaching it is honestly the relationship you have with that DC.

My department buck the trend at our school with our SEND students data. We don't do anything extra in terms of all the training (in fact, I definitely don't regularly meet them all).

But I have a great relationship with those kids. I have taken the time to know them. I know what makes them tick. I can spot signs they aren't coping etc. Not just me, I think my whole department is fabulous at this. but if I've used the wrong font I get slated despite my data

I've actually raised this more than once. I get a smile like that's obvious. Those in SLT including the senco have absolutely no bloody idea what I'm on about (despite thinking they are doing what I've said).

I teach a core subject at secondary. It certainly isn't known nationally as being a subject students with challenges would excel in. But ours LIKE the subject and really LIKE their teachers. I don't just mean ask them about football etc. Really work on building trust and use humour. Invest in them.

My DD holds grudges 🙄. But if she thinks you've got her back, she will go the extra mile for you even if you've dropped the font, forgot the check list etc. Because she's also interested in you and your subject. She wants to please you by doing well. She also knows if she messes up (I don't mean academically) you won't judge and it's forgotten quickly and doesn't damage the relationship.

100%. I'm sure teachers try to do this with every child, and I wouldn't even know how to do it with so many different children, but relationship building and being "emotionally safe adults" was a huge part of the help my son received in his autism unit.

Also it's a bit trendy at the moment but watch out for the fawn stress response as "fight, flight or fawn". I'm not sure whether it's scientific, but it's an interesting characterisation of how a child can be both distressed and compliant. Are they too keen for gold stars? Do they never put a foot wrong? Do they keep quiet and shrink away when someone hurts or wrongs them? I think these children can be helped a lot by a teacher noticing the behaviour and offering validation, reassurance or a script. Saying "I see you", I suppose, in these moments.. Always difficult in a class of 30 I'm sure.

Iwantsandybeachesandgoodfood · 25/09/2025 23:20

My thing would be to notice when the quieter ones are quieter than normal. My son was relatively quiet at primary school. He has struggles but he has them quietly and the staff barely noticed him. As a result, he never really felt truly comfortable. He’s now at a secondary school that put so much into building relationships, that he’s confident and loud and is able to express it when he needs support.

NotEnoughRoom · 25/09/2025 23:19

From my experience as an ND parent of a high masking ND child, and a school governor, firstly, thank you for taking the time to ask this question.

id say most of the interventions you might offer a more disruptive child would also be beneficial for a child who is masking - the problem is that it’s harder for you to recognise when they need them, and they find it harder to tell you.

honestly, the teacher who made the most difference for my dc was the one who took the time to build a relationship with her. Because of that relationship, my dc was able to open up to her about what she needed, and equally her teacher was more able to spot when she was struggling and offer help early.

the other thing is to follow through on what you agree, because if you put something in place but don’t follow it up then you will lose any trust with them. eg if you offer use of communication cards, then make sure you take opportunities to check in on them - they might not be waving them around in the air, they might just put them on their desk and hope that you’ll see them.

I’m sure you’ll have lots of responses, and probably all different suggestions, but I hope that you’ll find the thread helpful, even if you can’t do everything!!

coronafiona · 25/09/2025 23:16

Create a network for kids who will be considerate. Create a culture of tolerance and caring. My child is visually and hearing impaired and the patience her friends have shown her is incredible.