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So lonely even DD and DH don't understand me.

331 replies

Thevegetarianchef · 09/09/2025 07:22

So after a lifetime of anxiety and bouts of depression I was finally diagnosed with ADHD and autistic traits.
This has been helpful with regard to work relationships.
Not so much my home life.At the weekend we met up with DD who left home nearly ten yrs ago.She lives hundreds of miles away so we see each other every few months.
We had all gone shopping not DHS favourite past time and were grabbing a coffee or going back.
They wanted coffee in a cosy cramped hot cafe.
I wasn't so sure.Off DD stomped and I know she gets handgry as this has happened before.
DH ran after her. We settled on good old Mand S which was spacious.
Am I unreasonable to expect anyone in my own family to realise I struggle and have always with cramped spaces or to find out about my diagnosis as DH said I Keep going on about it.I have linked articles for him to read to understand.
I feel so lonely and misunderstood and isolated already.

OP posts:
Thevegetarianchef · 09/09/2025 20:58

Thank you pretty pickle.

OP posts:
Thevegetarianchef · 09/09/2025 20:56

I love the martyr comments.
I don't like ice cream and I'm lactose intolerant.
I'm vegetarian yet they had meat.
They had what they wanted.To make out I'm some nuisance when I have great strengths is weird.
The coffee was small as I'm menopausal and need to pee.Im on hrt
.I will make sure I don't mention my diagnosis that is good advice.
I hope it stops me being seen as disability or a creature of pity.

OP posts:
PrettyPickle · 09/09/2025 20:29

Thevegetarianchef · 09/09/2025 11:03

Pretty pickle I have been a real workaholic too.
I can get all consumed in one direction.

I know its tough for you and no-one is trying to minimise your feelings. Its the ability to focus in on stuff to the exclusion of all else that gave my brother his very lucrative and productive career and its no-ones fault that like you, he had lived a good deal of his life before he got the diagnosis.

Your family do see you, and do love you, exactly as you are, otherwise your partner wouldn't be with you and you wouldn't have a daughter BUT now you have a diagnosis, whilst you need them to support and understand what your are going through, you also need to appreciate that you also need to adjust and accommodate for them where you can.

steff13 · 09/09/2025 20:26

Just3ok · 09/09/2025 08:02

Op…. I think you need to see the diagnosis is a step forward in your own development.

Not a card you can thrown down whenever you want your way.

your daughter and husband fancied a particular experience. Fine, it wasn’t what you felt comfortable with. However occasionally, just suck it up. We all have to occasionally for loved ones.

Having said that…. No one comes across as particularly nice or accommodating in this scenario

Edited

I haven't read the whole thread, but I wanted to cosign this.

I'm late-diagnosed, just last year. I have used the diagnosis to work on myself, to address issues that I have functioning in the world. The people in my life are already familiar with how I "am," so I haven't really discussed the diagnosis in depth with them. It's mostly been for me to understand myself and put strategies in place to function better in my life.

SpookySpoon22 · 09/09/2025 20:26

I haven't read the whole thread but I can't understand why it seems most people are bashing the OP. Surely if you love someone, you accept the things they really can't manage (as opposed to just don't want to do) and you make reasonable adjustments so that everyone is as happy as possible. In this case, OP would have struggled massively with the hot, cramped cafe but was able to tolerate the more spacious one in m&s. That's a reasonable adjustment, not bowing to her wants. They still went to a cafe. But it's not that that the OP is upset about, it's the fact that her family made her feel bad about this adjustment. Obviously, her DH and DD are allowed to feel frustrated at times but ultimately need to be understanding. Perhaps a discussion/plan before future outings about where they could all go would help remove any animosity going forward.

PrettyPickle · 09/09/2025 20:06

pinkdelight · 09/09/2025 10:57

I completely understand and relate to this as I also have a brother in his 50s with a very similar story. My issue is that I understand that part of his condition is his inability to understand or express any interest in me or anyone else around us, so even though I know it's not his fault, I've pretty much had enough of being understanding/caring and even though I still love him, I've run out of energy for spending time with him listening to his shit without ever being asked how I am, so I just avoid seeing him now. I'm not saying OP or any other ND person is this way, but it's how he is wired and I just can't be arsed with tolerating it any more. This is why the comparisons with other disabilities can't necessarily be applied, because it's particularly hard to keep being understanding with someone who's condition can mean they're fundamentally unable to be understanding of others.

Yup, I know he can't help it but it really minimises who I am as my parents always let him have his way, and I think that is quite defeatist because other people who do not know his condition will not tolerate this behaviour and so for his own good, sometimes he needs to appreciate (not necessarily understand), that he needs to give way. The thing is, he can do it with people he is not emotionally connected with. I know he can't help that he is wired differently but it does affect the rest of the family and there have been times in my life when I have been made to feel invisible.

Just3ok · 09/09/2025 19:52

pinkdelight · 09/09/2025 19:40

You'd likely be much less concerned if she'd always been like that for 40 years so you knew there was nothing to be concerned about because it's just how she is and she was in the loop for professional support anyway hence the various diagnoses. One person's desperation is not another's problem, or else we'd be advising victims to let stalkers into their house because they're desperate, bless em.

What that poster outlines sounds like someone with a fairly serious mental health condition

Just3ok · 09/09/2025 19:51

ILoveWhales · 09/09/2025 19:42

Yes, and they need to find an outlet better suited to them. In other words a qualified professional.

A lay person who is a friend is not the appropriate outlet to read all sorts of literature about a condition. Who's got time for that. I don't have enough time to deal with my own problems. Let alone tiptoe around somebody else's and read lots of literature.

Edited

Absolutely

my very close friend of many years who clearly has mental health issues… I’d be getting involved where I can.

the thing with having a mental health condition I imagine is that it makes it tricky for you to actually see the wood for the trees and get help

ILoveWhales · 09/09/2025 19:42

Just3ok · 09/09/2025 18:50

Yes
but being desperate for attention is surely a desperate person.

A person who probably needs mental health support

Yes, and they need to find an outlet better suited to them. In other words a qualified professional.

A lay person who is a friend is not the appropriate outlet to read all sorts of literature about a condition. Who's got time for that. I don't have enough time to deal with my own problems. Let alone tiptoe around somebody else's and read lots of literature.

pinkdelight · 09/09/2025 19:40

Just3ok · 09/09/2025 19:01

a very close friend
personally, if my very close friend of many years was desperately seeking attention and multiple times asking me to read up about her multiple conditions… I would be very concerned and speaking with her about getting professional support in some way.

You'd likely be much less concerned if she'd always been like that for 40 years so you knew there was nothing to be concerned about because it's just how she is and she was in the loop for professional support anyway hence the various diagnoses. One person's desperation is not another's problem, or else we'd be advising victims to let stalkers into their house because they're desperate, bless em.

Just3ok · 09/09/2025 19:01

WhatNoRaisins · 09/09/2025 18:56

But this is just a layperson friend. Again, it's expecting too much.

a very close friend
personally, if my very close friend of many years was desperately seeking attention and multiple times asking me to read up about her multiple conditions… I would be very concerned and speaking with her about getting professional support in some way.

WhatNoRaisins · 09/09/2025 18:56

Just3ok · 09/09/2025 18:45

Your friend sounded utterly desperate for you to read more about her condition. Desperate

But this is just a layperson friend. Again, it's expecting too much.

Just3ok · 09/09/2025 18:50

SallySuperTrooper · 09/09/2025 18:49

Or just desperate for the attention, given @Just3ok has said she's done this multiple times with multiple conditions?

Yes
but being desperate for attention is surely a desperate person.

A person who probably needs mental health support

SallySuperTrooper · 09/09/2025 18:49

Just3ok · 09/09/2025 18:45

Your friend sounded utterly desperate for you to read more about her condition. Desperate

Or just desperate for the attention, given @Just3ok has said she's done this multiple times with multiple conditions?

Just3ok · 09/09/2025 18:45

Jom222 · 09/09/2025 18:39

oh she did send me many links to articles, blogs, websites etc as well a book title.

I declined to read them all. I respect that she (and OP) have had a diagnoses but again that is her diagnoses not mine. There's nothing in any of them that would cause me to change my interactions with her.

I love my friend deeply and unconditionally but that was my personal boundary (and funnily enough every other loved one declined this task too..bc it was fucking unreasonable)

I repeat my stance that this is OPs life, her diagnosis, her thing to learn to live with and I really hope she can learn some skills to help her in her daily life from all the sources she's expecting others to study. A little consideration from her H sure I can accept he may need to listen w/an open mind and possible adjust his behaviors in some instances but overall this is solely OP's life thus her responsibility to integrate into her current life.

Your friend sounded utterly desperate for you to read more about her condition. Desperate

Jom222 · 09/09/2025 18:39

Funnywonder · 09/09/2025 15:56

I do think asking you to read an entire book was a bit much. But what if your friend had asked you to read a couple of webpages? Surely that is a reasonable enough request. Of course it’s her diagnosis, but is it really so wrong of her to want the people she loves to have a little insight? Certainly when it comes to conditions such as ADHD and autism, where the person is possibly exhausted by years of masking, they might want to reduce the masking somewhat and would hope that there might be some understanding rather than just shock or surprise.

oh she did send me many links to articles, blogs, websites etc as well a book title.

I declined to read them all. I respect that she (and OP) have had a diagnoses but again that is her diagnoses not mine. There's nothing in any of them that would cause me to change my interactions with her.

I love my friend deeply and unconditionally but that was my personal boundary (and funnily enough every other loved one declined this task too..bc it was fucking unreasonable)

I repeat my stance that this is OPs life, her diagnosis, her thing to learn to live with and I really hope she can learn some skills to help her in her daily life from all the sources she's expecting others to study. A little consideration from her H sure I can accept he may need to listen w/an open mind and possible adjust his behaviors in some instances but overall this is solely OP's life thus her responsibility to integrate into her current life.

whitewineandsun · 09/09/2025 18:32

So you made them go to a quieter cafe but then ditched them for some of the time to continue shopping? Why couldn't they go to the cafe of their choice and then just bring you a takeaway coffee afterwards?

Yes, seriously this! You made it sound originally like you were sitting down with them for some time and therefore had to go to M&S.

I would have been so annoyed!

SallySuperTrooper · 09/09/2025 18:28

They ordered drinks and sat down while I mooched at clothes. So you didn't really want to eat/drank as you continued your shopping while they waited for you. Was the 'small coffee' and not having an ice cream a protest move?

Espressosummer · 09/09/2025 18:08

Thevegetarianchef · 09/09/2025 15:09

Well this all kicked off massively.
We were shopping discussing whether to go back to the accommodation and get coffee and use up bits we had there.
A couple of steps in we see this cafe with big sofas rammed full.
I was still unsure when DD had a go and ran ahead.
I should've said ok you go in there.we walked another street and the next thing we were in m and s.
They ordered drinks and sat down while I mooched at clothes.
I joined then ten mins later drank my small coffee and we left.
While I'm realising it is not about me as I can and often do go without like when they grabbed ice cream.
We went away on our holiday nr DD so we could see her.
DH makes little attempt with the grown up dcs and I pointed out we could lose contact in the future.
It wasn't a martyr thing to holiday near by it was planned.
DH loves the dcs and is probably closer to DD through hobbies.

So you made them go to a quieter cafe but then ditched them for some of the time to continue shopping? Why couldn't they go to the cafe of their choice and then just bring you a takeaway coffee afterwards?

How did you go without when they grabbed ice cream? If you wanted an ice cream you should have got one as well. If you didn't want ice cream then you've had to what, queue with them for a few mins while they buy it. Hardly some massive compromise on your part.

With the ice cream bit and how you referred earlier to allowing them to get a meal when you only wanted snacks, you are honestly coming across as someone who wants to get their way the whole time and when you have to give for just a few minutes you think you've made some amazing sacrifice.

Morningswim · 09/09/2025 17:24

Mitherations · 09/09/2025 17:05

I think that what is even more obvious to me is that the DD moved hundreds of miles away and had returned for a rare visit, and was possibly at the end of her wits with the family dynamic still playing out, hence the storming off, hence the DH going after her to bring her back.

There is clearly much more at play here than hangriness, smoothies, there is ther perspective of a young woman who's grown up with a mother, and a DH who's partnered with a wife with a particular set of needs that let's face it, are not easy to live with. They're not. It's not a popular take, but it's a fact.

Totally agree.
Op can put her needs front and centre, but that may be at the detriment of her relationships.
It's rare we can have our cake and eat it

Shewasafaireh · 09/09/2025 17:14

Thevegetarianchef · 09/09/2025 15:09

Well this all kicked off massively.
We were shopping discussing whether to go back to the accommodation and get coffee and use up bits we had there.
A couple of steps in we see this cafe with big sofas rammed full.
I was still unsure when DD had a go and ran ahead.
I should've said ok you go in there.we walked another street and the next thing we were in m and s.
They ordered drinks and sat down while I mooched at clothes.
I joined then ten mins later drank my small coffee and we left.
While I'm realising it is not about me as I can and often do go without like when they grabbed ice cream.
We went away on our holiday nr DD so we could see her.
DH makes little attempt with the grown up dcs and I pointed out we could lose contact in the future.
It wasn't a martyr thing to holiday near by it was planned.
DH loves the dcs and is probably closer to DD through hobbies.

With kindness, I think there was probably a lot more at play with this outings that any of us would be able to gather from a one sided post.

Your language also seems to be a bit self victimising, “small coffee”, “often go without” - there’s no need for this, I doubt anyone would have stopped you from getting ice cream.

Maybe couples/family therapy is an option to consider down the line if it’s affordable.

Mitherations · 09/09/2025 17:05

Equimum · 09/09/2025 13:06

Oh I do get that, but I wonder how many time over the duration of her relationship and parenting OP has put everyone else's needs first. We cannot just assume that because she wanted something on this occasion, that she always expects this. Personally, I am wondering why everyone is so accepting that a presumably neurotypical adult allowed herself to get so hungry that she couldn't even tolerate a small wait for food! To me, that in itself is quite concerning - can we all just snap and expect the world to resolve around d us because we are hungry, when as an adult, she could have presumably expressed that need earlier so their was time for compromise. But everyone is quick to jump on the neurodivergent being h reasonable, even though here, it seems that someone else failing to express their need early enough may be the bigger issue.

I think that what is even more obvious to me is that the DD moved hundreds of miles away and had returned for a rare visit, and was possibly at the end of her wits with the family dynamic still playing out, hence the storming off, hence the DH going after her to bring her back.

There is clearly much more at play here than hangriness, smoothies, there is ther perspective of a young woman who's grown up with a mother, and a DH who's partnered with a wife with a particular set of needs that let's face it, are not easy to live with. They're not. It's not a popular take, but it's a fact.

WhatNoRaisins · 09/09/2025 16:59

OP obviously I don't know you but I can't help but notice in general that there are a lot of people with very high expectations about how much they expect everyone from family, friends, the public etc, to be informed about their particular condition. It's not always about being ND, it can be all sorts.

These expectations often won't be met and I think when it comes to loved ones it's better to condense it down to some need to know bullet points rather than feeling hard done by because they won't go away and "educate themselves".

pinkdelight · 09/09/2025 16:26

Funnywonder · 09/09/2025 16:10

Then it isn’t relevant to this thread I guess.

It's not my post but I thought it was a relevant angle, especially as she's been friends with that person the same length of time that OP has been with DH, so the point about knowing them very well regardless of their diagnoses feels valid. And after 12 pages, the discussion can evolve.

Funnywonder · 09/09/2025 16:10

pinkdelight · 09/09/2025 16:02

I think that ignores the bulk of the context about how that friend has been for 40 years. It's clearly a long-term repeating pattern that the poster and all the other friends/family have got fed up of, not a new development that warrants attention.

Then it isn’t relevant to this thread I guess.