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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

So lonely even DD and DH don't understand me.

331 replies

Thevegetarianchef · 09/09/2025 07:22

So after a lifetime of anxiety and bouts of depression I was finally diagnosed with ADHD and autistic traits.
This has been helpful with regard to work relationships.
Not so much my home life.At the weekend we met up with DD who left home nearly ten yrs ago.She lives hundreds of miles away so we see each other every few months.
We had all gone shopping not DHS favourite past time and were grabbing a coffee or going back.
They wanted coffee in a cosy cramped hot cafe.
I wasn't so sure.Off DD stomped and I know she gets handgry as this has happened before.
DH ran after her. We settled on good old Mand S which was spacious.
Am I unreasonable to expect anyone in my own family to realise I struggle and have always with cramped spaces or to find out about my diagnosis as DH said I Keep going on about it.I have linked articles for him to read to understand.
I feel so lonely and misunderstood and isolated already.

OP posts:
McSpoot · 09/09/2025 09:02

Lanzarotelady · 09/09/2025 08:55

Shopping and a cafe at the weekend - you already said its not your favourite activity - you have issues and to be honest it sounds like your daughter does too - this was a disaster waiting to happen!

No, she said it wasn't her DH's favourite activity. In a further post, she said that sometimes her DH and DD would go eat while she shopped - so seems like shopping is one of the OP's favourite activities (not a favourite activity of the others).

MellersSmellers · 09/09/2025 08:59

I hear you OP. It's not unreasonable to expect a hearing from your loved ones and for them to make reasonable adjustments - like choosing a cafe that isn't crowded! How hard is that.
Your diagnosis is most useful for you. It should help you identify and/or address the things that you find difficult. You need then to clearly and positively communicate these to your family, compromising when you can.
Like "oh, this cafe looks rather crowded. How about we go to M&S instead?" Quick solution for the hangry DD (who needs to grow up a bit and pre-empt her food needs!)

Didimum · 09/09/2025 08:59

I expect OP isn’t inherently selfish and always wants to get her way, as a lot of posters are suggested (typical, nasty MN behaviour.)

She likely wouldn’t have posted at all if her adult DD hadn’t stomped off like a toddler, and instead just spoken to her mother with a degree of maturity.

Autumn38 · 09/09/2025 08:58

So you made them both go to a cafe they didn’t want to? They both had to put your wishes above BOTH of theirs?

Nope I am on their side I’m afraid. Find coping strategies for these situations or apologise profusely and accept that they might be a bit fed up with having to go to soulless and bland M&S AGAIN

ComfortFoodCafe · 09/09/2025 08:57

I have autism & do not like crowded places, it can result in me having to cover my ears to cope however I dont think you should of gone on about your diagnosis to them. That doesnt change anything, you are the person you have always been to them. Your daughter shouldnt of stomped off either, sometimes I just grin & bear things for the sake of my family like the cafe I probably would of done it and just coped in my own weird way.
So yabu but so is your daughter.

Lanzarotelady · 09/09/2025 08:55

Shopping and a cafe at the weekend - you already said its not your favourite activity - you have issues and to be honest it sounds like your daughter does too - this was a disaster waiting to happen!

Typicalwave · 09/09/2025 08:53

I always find these threads interesting.

If the OP were in a wheelchair and the facility had access issues for wheelchairs what would everyone say then?

Spendthrifting · 09/09/2025 08:53

It sounds to me like there is a lot of undiagnosed autism in your family- like mine. 3 diagnosed autistic kids and with hindsight myself and dh are also autistic. This means life can be messy, chaotic and tempers can flare. The important part is to talk about it and acknowledge what’s going on. Discuss what different family members find hard and try not to have too many things going on at once. We are now at the stage where we can (gently) joke about how dad can’t cope with anyone in the kitchen at the same time as him. I know I need a lot of down time so that I can manage sorting out the kids. We get that dd gets upset if someone talks over her by accident. If myself or dh lose it and say or do something imperfect we apologise to whoever was affected and we expect dc to do the same. We all have different things that are important to us and do our best to factor this in.

Cucy · 09/09/2025 08:52

ILoveWhales · 09/09/2025 08:45

Anxiety, ocd, claustrophobia, depression etc any mental health issue can occur in NT people.

But NT people just have to suck it up and ignore because of the ND person. Thsts why there is so much defensiveness. Perfection is expected from NT people.

I completely agree.

This is why we have so many people trying to get a diagnosis or self diagnosing because apparently you can only have these struggles if you are ND.
It seems you are not taken seriously unless you have a diagnosis of being ND.

And there are lots of ND people who are undiagnosed and it’s genetic so DD is likely to also be ND. But as she’s not diagnosed then apparently she should act different and do what suits OP.

Starlight1984 · 09/09/2025 08:49

reversegear · 09/09/2025 08:12

It’s very tedious when people define everything about their daily life based on a diagnosis mental or physical. I have endometriosis a very physically painful chronic condition that has changed my entire life. I don’t tell people about it on a daily basis I don’t make people change plans because of it, I manage it myself and yes it feels lonely when people don’t understand but that’s life and I’m my own person with my own issues and needs

i also hate cramped spaces!

All of this. Not sure why you are even mentioning your ADHD diagnosis to be honest OP. You just didn't want to go to a busy cafe and they did. You got your own way. End of story.

kerstina · 09/09/2025 08:46

YANBU .i struggle massively socially. I avoid most restaurants and coffeeshops as they are too busy and I can’t relax. I am usually better on holiday away from the city. I always say to my relatives you are welcome to go there I don’t want to hold them back and spoil their fun but at the same time I just struggle so much if I try and just go. Just wanted to say I understand really.

ILoveWhales · 09/09/2025 08:45

Anxiety, ocd, claustrophobia, depression etc any mental health issue can occur in NT people.

But NT people just have to suck it up and ignore because of the ND person. Thsts why there is so much defensiveness. Perfection is expected from NT people.

Thevegetarianchef · 09/09/2025 08:44

Sunshine244 thank you.I agree.

OP posts:
ILoveWhales · 09/09/2025 08:43

AllTheChaos · 09/09/2025 08:31

Tbh it isn’t your partner’s ASD that’s the problem, it’s his selfishness. That behaviour from him was utterly unacceptable. I’m autistic and no way would I have done that. Sometimes we all have to do things we really don’t want to, in order to help or support our loved ones. It sounds like he expects all the compromise to be from your side, which isn’t ok. I’d imagine it makes you pretty wary of autistic people as you will be (consciously or not) expecting them to be selfish, when I promise that just like neurotypicals, some are but some aren’t!

Most autistic / adhd, if not all of them can't do anything they don't want to do. If you'll see from the wife and mother, she can't even go to a cafe her daughter wants. So her asd isnt to blame either she is just selfish.

Cucy · 09/09/2025 08:43

nomas · 09/09/2025 08:14

My NT mum lives 5 minutes away and I would always let her pick where she wants to eat.

OP’s dd lives hundreds of miles away, it wouldn’t have hurt the dd to go with her mum’s choice.

Some of these posts are just intolerant of older women with ADHD.

I disagree.

Lots of NT have issues like anxiety and the ND person doesn’t get to trump them just because they’re ND.

There are also lots of NT people who are undiagnosed.
As ND is genetic then it’s likely DD is also ND.

The diagnosis is completely irrelevant in this case.

Usually it’s about compromise but as DD lives hundreds of miles away then it’s her choice on the activity.
If OP didn’t like it then she could have gone somewhere else.

KateMiskin · 09/09/2025 08:38

Actually now with your update, I am not sure what's going on. Quite a lot, I think.

sunshine244 · 09/09/2025 08:37

Goodness... if you exchanged ADHD and autism for any other disability people would be up in arms about your family not being supportive or learning more about your condition.

I was recently diagnosed with ADHD. I was told I am extremely high masking and that I am at risk of burnout because of this. I'm also likely autistic but didn't take the full assessment. The masking is a huge problem, and always has been. My hope for diagnosis is to find some ADHD coaching to try and help with this.

I discovered my traits when my chikd was diagnosed and I read more about it. It is very common for ADHD and autism to run in families but so for like to attract like. So perhaps there is ND in your OH and daughter?

EverybodyLTB · 09/09/2025 08:35

Sounds like you’re all dysregulated and handling things in ways that don’t benefit one another. Food/stopping always needs to happen at some point during a day out, it would have been better to point out (probably for the millionth time) that you don’t like stuffy crowded places to eat, and agree on a place before everyone has had enough and needs food and desperate for a sit down. Your DH and DD having massive strops and storming off is not normal or OK in most adults and should be addressed as an issue in its own right. You all need to think about your psychological and emotional behaviours and lay it all out on the table and address them. It’s not all on you OP, but everyone has their own work to do here - it’s not like you’re hard work and they’re doing everything right.

Vroomfondleswaistcoat · 09/09/2025 08:35

I am also late diagnosed. It has made my behaviour make sense TO ME because now I know I do certain things because of the way my brain is wired. But to everyone else I am still me. And throwing around phrases like 'I'm disregulated!'makes me sound like a dick, as though I'm inventing excuses for behaving badly. I've had years of learning to mask, so when I'm out in public and HAVING to behave a certain way, or at work, then I mask. Because it makes life more pleasant for other people, and having masked for all these years I know it's not going to kill me.

Because, basically, nobody else cares about your diagnosis. It's tough, because you want to talk to everyone about it, you want life to make sense now. But it doesn't affect them, so they aren't bothered. You were you before, and you are still you now, and life is all about compromise as it always was.

HoneyHoneyHowYouThrillMe · 09/09/2025 08:35

I'm glad to hear you're on the up. What a brilliant thing to be able to travel again! I've started HRT and it's helped a lot, and my sleep has improved. As you know, patience with yourself is important. Patience with others is part of it too - it'd be nice if they could understand but on the other hand, it's challenging to absorb stress and anxiety no matter how much you might love the person.

You're not alone.

Thevegetarianchef · 09/09/2025 08:32

Honeyhoneyhowyouthrillme.
Sorry you have experienced this.The hormones did make the wheels fall off.
I'm on the up though being able to travel after many years of missing holidays.
It is a real knock to confidence and I'm trying to reassess my life.

OP posts:
AllTheChaos · 09/09/2025 08:31

ILoveWhales · 09/09/2025 07:50

See my partner is the autistic one. But when we were on holiday and got caught up in a festival that we didn't know about the public transport was absolutely rammed like sardines.

I said to him, I can't do this. I don't like enclosed spaces.And as far as I know, i'm not autistic.

Enclosed spaces, especially rammed public transport, makes me panic. Because there's nothing you can do.You can't move and you can't get off your trapped.And I hate that trapped feeling.

Even on my daily commute home from work.If the train is rammed, I will let it go and get the next one.

I wanted to get a taxi and I said, I d pay for it. His autism said he can't get a taxi as he wonders if it will go the right way. I had to give way to the hallowed special autistic person who must always get their way. He can't do taxis, so we have to do what I can't do.

I was the one who had an absolute meltdown on the transport crushed, in like sardines, just because it's what he wanted, because he can't cope with the taxi. He was furious and annoyed with me.For panicking, when I deal with him, panicking on a daily basis.

I don't think autistic people realize how fucking selfish they are sometimes. They can never, ever ever, just give way to their partners needs for once. Everything has to be about them.

Tbh it isn’t your partner’s ASD that’s the problem, it’s his selfishness. That behaviour from him was utterly unacceptable. I’m autistic and no way would I have done that. Sometimes we all have to do things we really don’t want to, in order to help or support our loved ones. It sounds like he expects all the compromise to be from your side, which isn’t ok. I’d imagine it makes you pretty wary of autistic people as you will be (consciously or not) expecting them to be selfish, when I promise that just like neurotypicals, some are but some aren’t!

Hankunamatata · 09/09/2025 08:29

I try to saynthis gently but perhaps your daughter has had enough your anxiety condition controlling situations - what they can and cant do

Thevegetarianchef · 09/09/2025 08:27

Katemiskin thank you.
You are spot on and very helpful.
Many years ago I had panic attacks and an eating disorder as a teen.
Trying to fit in and be like others has been really exhausting.
You are right though they will have their own thoughts and I need a decent therapist.

OP posts:
CancelTheTableAlan · 09/09/2025 08:27

She hasn't been shutting up and masking though. She has been avoiding visiting her daughter, eating out, going to the theatre or cimema, or going anywhere for years, as I understand.

So the whole family has suffered from the lack of an accurate diagnosis. Her daughter and DH have temper issues. They have all been chronically dysregulated.

Yes OP has loads of work to do on herself. Read the post above from the person who said her diagnosis remapped her brain, it's brilliantly put.

I just don't like the dismissive judgey tone of many posters assuming the OP is just selfish when really she's an unskilful person trying to manage her and her family's emotions with ND.