Is it a con or can it help my sick child?

No, but a similar ‘of the time’ illness that turned out to be a misdiagnosis. Feel free to drop me a PM.

It's early days.

I've done plenty of research and I agree, it's the 'holistic' approach that works. Many studies have demonstrated that being listened to and feeling that the health care provider takes you seriously gives great results, even if the treatment provided is a placebo.

OP you might like to look at success stories on online forums like this one https://latitudes.org/forums/forum/17-pans-pandas-lyme-included/

I wonder if it would be worth asking your doctors about lithium - it's considered to be a mood stabiliser. The main aim should be to avoid infections as much as you can but when she is having issues maybe it would help.

Changing gut bacteria is quite difficult so it's a slow process. Prebiotics or probiotics will help that process along, changing diet will help long term but when your child is ill you want to speed up the process.

Changing gut bacteria also might not be enough on its own.

I don't think you understand homeopathy. While there may be a place for "first aid" remedies such as you mention, generally it is uses a holistic approach, treating the person rather just the presenting sympton. Each person is different, hence the need for in-person consultations. I have always found the remedies very good value, but then I get them via a homeopath.

Anti-IL6 medications are a) not indicated for PANS/PANDA and b) contraindicated in patients with chronic or recurring infections.

Ask your doctor to test her interleukin 6 levels. If they are high ask for a blocker. Lots of new research implicating Cytokines in autoimmune and other illnesses. The drugs used for rheumatoid arthritis block IL6 release.
Sending hugs xx

You need to actually make a concerted effort with her diet - not seeing a gastro, having more tests, or giving her probiotic pills, but rather pre and probiotic foods. If you have read up on it, and actually put it into action, by now you would not be wondering if homeopathy is the answer.

Geez, love, you really need to read up on the gut-brain interaction. You have had very good advice on gut health on this thread and just ignore it.

I'm guessing they tested for coeliac? Only because my daughter had constant constipation, poor appetite, limited weight gain, bruised easily, often unwell, bloated tummy and after going back and forth many times was eventually diagnosed just before her 6th birthday. Her iron, calcium, B12 etc levels were really low as she couldn't absorb nutrition properly whilst still having gluten. 6 month post stopping, she is healthy weight, not constipated, not bloated, doesn't get sick, more energy and her recent blood tests showed significant improvements in all nutritional markers.

I hope you find an answer, it's so tough watching them go through all this x

When I used to dispense NHS prescriptions for homeopathy they were far from cheap and this was 20 years ago when it was allowed. An average 25ml bottle of alcohol (it’s not water) was £35 and then you got paid an extra £20 on top as it was classed as a special item so covers delivery etc as it had to come from weleda, not the normal drug supply routes.
In comparison, a tube of cream which actually treats the same condition was about £2.

It does in my experience. It’s worked very well for me over a period of 30+ years. It works well for my daughter. It’s worked well for the animals I’ve used it on.

I understand the results of the trials to date. I get your position. I’m not trying to convince you. I will keep using it, though, as it works for me. It works very well for a long-term condition I have for which there is no effective conventional medical treatment. It doesn’t have the side effects of pharmaceuticals. If I didn’t use it and relied on conventional medicine I would be limited in what I could do. If you find conventional medicine always works well for you then that’s great.

Like I say, I’m not trying to convince you.

OK, so PANDAS is the idea that strep throat causes tics and/or OCD-like symptoms in kids and PANS is the idea that these can be caused by any other illness. There are lots of other things a sudden occurrence of tics or OCD could be:

• Literally just Tourette's or OCD (this is screened for when you go for a diagnosis, but not if you self-diagnose)
• A functional disorder like FND
• Food restriction can be autism or anorexia instead of OCD
• Tics can be sociogenic from social media or peers

• Gut dysbiosis is a possible cause for both OCD symptoms and tics. Intensive courses of antibiotics can cause dysbiosis, and children with strep throat and other illnesses are given antibiotics, and antibiotics is a common PANS/PANDAS treatment.

But it doesn't. Trials have been done several times and found that it doesn't work any better than a placebo. Or is it like teddy bears that only move when no-one is looking and it stops working as soon as scientists are studying it?

I am open tomorrow...but nobody seems to know why it works, how it works. Just that "it does".

You don't even know... All your observations are merely anecdotal.

What could be cheaper than putting water in bottles and selling it as medicine?

They could just literally get a 1000 gallon vat of water, tip a thimble full of some substance in it. Mix it up and bottle it into 50ml vials and sell them at £62.50 a bottle.

No need for research, clinical trials, getting approval YEARS of financial investment.... They'd make an absolute fortune..

If you look up how severe mange infection can be and how serious it is for the animal, you will get more of an understanding of the transformation.

I don’t know how it works. It shouldn’t based on current knowledge. In my experience, it does though. You don’t have to be open to it if you don’t want to.