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AIBU? Council repairs leaving my 86-year-old mum with nowhere suitable to live

157 replies

WhiteWinePls · 19/08/2025 18:41

I am my mum’s full-time carer. She is 86 and has lived in her council home for all of her life. She has agoraphobia. That home has now fallen into such a dangerous state that it is uninhabitable while major repairs are carried out — likely for around 6 months.

The council’s “solution” has been to offer temporary accommodation that is completely unsuitable for her, given her needs. My mum, who has paid rent faithfully for decades, is being left with nowhere safe to go. At her age, with her health, this upheaval feels cruel and frightening. They’ve adopted a ‘like it or lump it’ position with no negotiation.

I have managed to find a flat that would keep her safe and stable until she can return home. I can also stay with her to provide the full-time care she needs. The problem is that the landlord is asking for 6 months' rent up front plus a deposit, and I do not have that kind of money as I am a full-time carer.

AIBU to ask if anyone has advice on where to turn — such as charities that could help or schemes like Discretionary Housing Payments — I would be so grateful. Also has anyone ever tried setting up a fundraiser in this situation, and do you think this would be appropriate here?

Grateful for any advice. Thank you.

OP posts:
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MistressoftheDarkSide · 21/08/2025 12:27

One thing I would add from a general perspective, and acknowledging that council employees are only human, and services are stretched, vulnerable people, especially with mental health issues, find it challenging to engage. Even those without severe challenges can find the system difficult to navigate.

As an example, practises such as sending an email to an 85 year old last thing on a Fruday giving them 24 hours to accept a property they deemed suitable, despite evidence to the contrary, with the instruction to seek official external support over a weekend, and saying if it's refused or not accepted, the council will end it's duty of care and said person will be making themselves voluntarily homeless. This happened to my Dad three times in a 9 month period, and I had to involve a local councillor and our MP to get the situation looked at with any sort of humanity.

The feeling of being at the mercy of the state, and some of the administrative fubars can send people into a very dark place. The feeling of having little or no autonomy, the undertone of judgement, the implication that any objection, no matter how rationally or politely expressed can be a "black mark" is really hard, and can generate paranoia in even the most stable person.

So the OPs case is obviously complex, and we may not have all the fine detail, however, from a personal perspective and having dealt with the services referenced very recently, I understand and can empathise with the sentiments expressed.

Of course, moving forward there may have to be compromises and the OPs Mum's well-being and safety is paramount, but the phrase "the truth us rarely pure and never simple" comes to mind, and from 56 years of life experience I have learned that what should happen, and what does happen can be vastly different when dealing with officialdom, and therefore, people should at least be heard. Just because something is not my experience, I won't claim it didn't happen, because sometimes truth is stranger than fiction.

makeyerbed · 21/08/2025 11:52

Lambtangine · 21/08/2025 11:12

hard agree. That house didn’t get into that state in a few months. Or even a year or two.

Yes, have to agree. My dad lives in a HA property and while the HA are pretty good, we have to help him keep on top of it. Sometimes minor repairs are fixed by a family member and we decorate every 2 or 3 years.

The HA is also not responsible for pests inside the property (only in communal areas) so when my dad ended up with wasps in the loft, we had to call the council and paid a fee to get it removed.

As everyone has said, would guess OP’s mum’s house had become this way because of a variety of factors. I don’t think anyone would judge her (or her mum) for that. Mental health can lead to people living in truly terrible conditions. The task now is to get it fixed and honestly, just accept clean and safe alternative accommodation.

Lambtangine · 21/08/2025 11:12

PamIsAVolleyballChamp · 21/08/2025 11:06

I've read enough articles about council / HA properties in London to know there's a serious problem with tenants being left to live in disgusting conditions.

As pp above, what's causing the properties to fall into 'disgusting condition"? Agree with @SunnySideDeepDown tenants still have to acknowledge they have responsibility for upkeep of their home.
It's on the LA for structural repairs, but general cleanliness, damp, vermin thats surely on the tenant?

hard agree. That house didn’t get into that state in a few months. Or even a year or two.

PamIsAVolleyballChamp · 21/08/2025 11:06

I've read enough articles about council / HA properties in London to know there's a serious problem with tenants being left to live in disgusting conditions.

As pp above, what's causing the properties to fall into 'disgusting condition"? Agree with @SunnySideDeepDown tenants still have to acknowledge they have responsibility for upkeep of their home.
It's on the LA for structural repairs, but general cleanliness, damp, vermin thats surely on the tenant?

Goody2ShoesAndTheFilthyBeast · 21/08/2025 10:42

OlderGlaswegianLivingInDevon · 21/08/2025 10:04

There are as many holes in the Op's replies as there is in the property, due to the Op not replying fully.

I've read enough articles about council / HA properties in London to know there's a serious problem with tenants being left to live in disgusting conditions.

Seen it too. I had friends who lived in a flat in elephant and castle and the whole building was disgusting and infested with cockroaches.

What i dont get is why the op's mum cant go to live in op's home. Even if there's no bedroom and someone has to sleep in the living room its better than the current situation.

Whether the op's mum moves into temp accommodation, a private rental or the op's home the agoraphobia will be the same. Moving from the current home to any other place will be the same.

What i think is not being said is possibly the op's mum is a hoarder and that has affected the state of the property and also perhaps seeing damage or reporting repairs before it got to this point.

If thats the case then the op might be withholding that information because she fears posters will blame her mum for the situation.

OlderGlaswegianLivingInDevon · 21/08/2025 10:04

There are as many holes in the Op's replies as there is in the property, due to the Op not replying fully.

SunnySideDeepDown · 21/08/2025 06:51

WhiteWinePls · 20/08/2025 20:26

My concern re. the temporary accommodation comes from a recent cuckooing situation involving Mum. The perpetrator (a neighbour with a drug problem) stole all of Mum’s savings, jewellery belonging to Mum and both of my grandmothers and family heirlooms (my family were a prominent Quaker family so there were lots of valuable historical items). When Mum had nothing left to sell, she stole Mum’s food to the point where Mum ended up in hospital due to starvation.

The police (Bethnal Green Police Station) are aware, but have cited understaffing as their reason for not getting involved. The Council are aware but have told us to “be kind” as the perpetrator has mental health issues.

Luckily, the neighbours got together, started filming the incidents and looked out for Mum by chasing away the perpetrator. This is the point at which I returned home as her carer. However, I also have a family of my own with youngish children, so need to spend time with them as well.

My concern is that if Mum is moved to this new accommodation, we won’t have the oversight of the neighbours when I am not around. This person could start exploiting Mum again and she’ll have no one to protect her.

As her full time carer, where were you when all this happened?

How did your mum end up with holes in floorboards and ceilings coming down? That doesn’t just happen to itself, what maintainance did your mum/you do to the home over the decades she/you lived there? You need to care and upkeep your home.

Lambtangine · 21/08/2025 06:45

Barrenfieldoffucks · 21/08/2025 06:30

But she could live in this other rental that the OP wants to crowdfund for? Where would the 'young family' (that there was no mention of earlier) be living then?

I do t understand this. And I don’t understand how she’d be less prone to being cuckooed just because her home is an aparthotel. Noe do I understand how she wouldn’t be agoraphobic there but would be if she lived with the op - so much so that she can’t move to be with the op.

i also don’t understand where the young family came from who haven’t seen their mum all summer.

Barrenfieldoffucks · 21/08/2025 06:30

But she could live in this other rental that the OP wants to crowdfund for? Where would the 'young family' (that there was no mention of earlier) be living then?

Goody2ShoesAndTheFilthyBeast · 21/08/2025 06:06

Why does her agoraphobia mean she cant come to live with you?

ProudCat · 20/08/2025 23:36

My guess is that this is about succession.

And there's no way on god's green earth that social services would insist that someone's got capacity when they're 86, living in squalor, have been starved, are so severely agoraphobic that they can't move in with family, and are currently in hospital on suicide watch.

You need help, OP.

makeyerbed · 20/08/2025 22:46

Honestly OP, it’s not that you’re explaining it strangely, more that your posts contradict each other. You started off by saying you’d found a place for you all to live together but didn’t have the money for 6 months rent. But then you said you already had a house of your own but your mum couldn’t move in with you due to agoraphobia. But how was she going to move into the private rental if that was the case?

Anyway, this is not meant to be an unsupportive post - seems like the situation is complex and there are big chunks of information that are being excluded. Assuming the OP is genuine then I hope she’s able to get it sorted.

ThePure · 20/08/2025 22:45

Yes the hospital discharge planning social work team are the people to help you on this. They cannot provide housing but they can arrange care packages and speak to housing. If your mum had carers coming in multiple times a day this would put off any cuckooing people. Usually they are fairly easily put off and don’t bother to follow people out of area because sadly they prefer to move on to other vulnerable people.

Laura95167 · 20/08/2025 22:38

Try shelter or age uk

Ponderingwindow · 20/08/2025 22:02

If you take anything from this thread, please talk to the hospital social workers while your mother is there. Let them help both of you.

WhiteWinePls · 20/08/2025 22:00

Hi, not sure why MNHQ deleted my post, but I don't think I am explaining myself well as most of the replies are irrelevant to the situation. I don't want to waste any more of your time. Thank you for your help, but I need to work this out myself. No matter how many times I post, someone always gets the wrong end of the stick. I need to work on how I communicate as people don't really understand what I am saying.

OP posts:
Digdongdoo · 20/08/2025 21:54

OP I'm not sure what negativity you're seeing. We're trying to understand so we can help.
Why can't you still stay with her in the flat if that's what you want? She's in the living room and you in the only barely habitable bedroom.
If the issue is that you don't want to, or can't continue to care for her then that is better dealt with somewhere clean and safe.
I'm struggling to get my head around why anyone would stay in that house a day longer than necessary. You'll make yourself poorly.

crazeekat · 20/08/2025 21:43

If it’s such a rat infested mouldy crumbling hellhole then anything she can be moved to must be safer than this so yabvu to say anything else is not safer if it’s not what she has allowed or you as carer allowed her current home to become which on your own description sounds less
safe than anything else on offer. Either pay it up or accept the councils help for a minimum time and don’t let her home get in that bad of disrepair again .

Summerathome · 20/08/2025 21:43

PinkCampervan · 19/08/2025 22:47

Not due to her housing issue but due to her being suicidal.

She's already lost her health.
She's losing her home too.
And almost all her possessions, except those she can fit in a small room.
She's lost her daughter's constant company, possibly for the first time ever, if OP never moved out.
She'll know she's facing a care home, which may give her concerns or fears.
And with a care home comes the loss of any residual hope (however futile in reality) that she'll ever return to anything resembling normal life.

I think that's enough to make anyone suicidal, don't you?

No, I don’t.

If she has been living in such awful conditions for years, then possibly there is a cumulative impact there.

Her daughter has been living in her own home with her young family. How close is that and for how long has her mother been bed bound and what sort of care has she been receiving ?

This also raises the question of why her family didn’t intervene earlier?

PamIsAVolleyballChamp · 20/08/2025 21:30

@WhiteWinePls what do you mean by 'suicide watch,'? Is she detained?

Summerathome · 20/08/2025 21:23

You must know what needs to happen here.

Your mother is 86 and, you say, on suicide watch because of her dreadful housing which is no longer habitable. (There are many unanswered questions there)

You have your own young family living presumably in your home, elsewhere.

you either - bring her to live with you. Or - strongly advise her to move into a care home if the local authority will pay.

You cannot hope to maintain her tenancy but you must know that deep down.

there is a huge volume of advice on here for you to consider.

makeyerbed · 20/08/2025 21:22

I’m not trying to be mean but the updates just add further mystery to this thread. It doesn’t add up.

MistressoftheDarkSide · 20/08/2025 21:21

I don't think people realise just how vulnerable elderly people are to cuckooing. The chap who had the flat before my Dad, in so called extra care sheltered accomodation no less, fell victim to it and ended up dead. It's a big scandal going unaddressed and largely unreported, so what the OP describes isn't as far fetched as some are making out.

I've done some digging in my area, and it seems that some council run extra care sheltered accommodation developments seem to include flats for sale, which is not clearly advertised. There's a murky side to some of the housing provided for "vulnerable" over 55s.

If an elderly person is deemed to have capacity, it is incredibly difficult to get help and support. People with capacity have the right to make unwise decisions, and in my experience if relatives try to get involved, officials can be extremely difficult, and will often use the MHA as an excuse to pass someone with complex needs round and round between agencies like a hot potato. You rarely speak to the same person twice, and nine times out of ten they're on annual leave if you try.

Spent most of last year dealing with this sort of thing on my Dad's behalf, and between bureaucracy and my batshit SM they drove him to his grave quicker than was necessary with the constant stress of it all.

FortheloveofCheesus · 20/08/2025 21:19

If they gave offered her a flat, help her get set up and work with social services to arrange a care package so this home stays in decent repair and someone monitors her health.

This - there's a route here where you can bolt on care that makes what the council can reasonably provide, a workable solution for your mum (ideally one that reduces the direct burden on you).

PamIsAVolleyballChamp · 20/08/2025 21:17

What are the negative posts? The ones suggesting you're refusing sheltered housing for your mum because you won't be accommodated where you want in London?