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To think a lot of children may be being misdiagnosed with Autism & Adhd

192 replies

Dontyoujustlovethebritishsummertime · 10/08/2025 16:50

When it could really be Pans/pandas?

OP posts:
CiffHang3r · 13/08/2025 08:19

mostimportantaspect · 13/08/2025 08:01

Girls usually end up getting a misdiagnosis of a MH issue and being teens who can no longer cope and then getting a diagnosis of autism, so we are talking up to a decade later than a typically presenting boy. It’s a very different kind of fight and the journey is very protracted as everything is biased towards diagnosing male presentation. No one says boys walk away with a diagnosis and that’s it, but you will likely have had an ECHP from age 6 as the package of diagnosis. Whereas girls spend years in and out of mental health services with no answers, being blamed for your parenting, no ECHP and stigmatised as having an emotional unstable personality disorder as a young female (often with an ED on top of all this)

I feel very very strongly that everyone who thinks there is an over diagnosis of autism has no idea what women and girls have to go through to get the same treatment as males

Absolutely this!!!!!

It’s well known that autism is under diagnosed particularly in girls and the above is pretty much exactly what my daughter went through. What is shocking is the amount of families I alone came across on paediatric wards whilst my daughter was being treated who had experienced exactly the same as us.

It’s not ok and no longer excusable. I think mental health services are maybe becoming better aware but schools have a long way to go.

twinkletwinklelittlestarhiwwur · 13/08/2025 08:12

mostimportantaspect · 13/08/2025 08:04

It’s not unusual. It’s very common, often it’s a suspected or working diagnosis. Girls presenting with signs similar to EUPD should undergo an autism assessment rather than end up with a loose diagnosis of EUPD

the fact they get to teens and early adult hood without even an autism assessment is the crime in itself

Edited

Everyone I know in the mental health profession wouldn't diagnose a minor with a mental health condition in general. It's just not good practice most of the time. I do always encourage women diagnosed with EUPD to consider autism as a potential alternative.

I personally found it much easier to get my DD diagnosed as autistic. Sometimes you just have to hit the right professional. We did. My sons weren't diagnosed till several years later. They don't have a typical male presentation. Of the three most common presentation types, theirs is more 'female'. My DH, OTOH, is very typically male presenting in his autism.

OCDandUS · 13/08/2025 08:07

Can anyone recommend a dr who diagnosis adults with pandas please? Thanks

mostimportantaspect · 13/08/2025 08:04

twinkletwinklelittlestarhiwwur · 13/08/2025 07:35

Yes, a lot of girls diagnosed with EUPD will be autistic.

It would be very unusual to diagnose a minor with a personality disorder. It's not usually considered the right age for this sort of thing. A lot of mental health conditions don't even start to emerge until later teens/early adulthood.

It’s not unusual. It’s very common, often it’s a suspected or working diagnosis. Girls presenting with signs similar to EUPD should undergo an autism assessment rather than end up with a loose diagnosis of EUPD

the fact they get to teens and early adult hood without even an autism assessment is the crime in itself

mostimportantaspect · 13/08/2025 08:01

Mumofsoontobe3 · 13/08/2025 07:32

Sorry I wasn't referring to just girls, I was referring to both male and females being assessed. My DS was diagnosed just before he was 5 but it was clear a few years prior, he was very textbook in the early stages of his development then it became more obvious as he got older. I don't have experience in girls being diagnosed ASD, as I only have boys and my experience may have been different but I have been through the full battle of fighting for a diagnosis and I know it's not just as easy as a 1 and done appointment where you walk away with a diagnosis. I have had conversations with many parents with daughters who are battling to get them diagnosed, which is really sad and unfair on both their child and the parents.

Edited

Girls usually end up getting a misdiagnosis of a MH issue and being teens who can no longer cope and then getting a diagnosis of autism, so we are talking up to a decade later than a typically presenting boy. It’s a very different kind of fight and the journey is very protracted as everything is biased towards diagnosing male presentation. No one says boys walk away with a diagnosis and that’s it, but you will likely have had an ECHP from age 6 as the package of diagnosis. Whereas girls spend years in and out of mental health services with no answers, being blamed for your parenting, no ECHP and stigmatised as having an emotional unstable personality disorder as a young female (often with an ED on top of all this)

I feel very very strongly that everyone who thinks there is an over diagnosis of autism has no idea what women and girls have to go through to get the same treatment as males

twinkletwinklelittlestarhiwwur · 13/08/2025 07:35

mostimportantaspect · 13/08/2025 06:08

Is it not commonly known that girls get diagnosed with EUPD incorrectly and it is often in fact ASD? A autism presents differently in girls than boys and girls mask

Many many girls get told they are EUPD which is ‘hard to treat’ and this has hugely disadvantaged and stigmatised them with a mental health condition when they are in fact autistic and it is missed and they don’t get the help they need

we should not be trying to diagnose more children with personality disorders 😳

Edited

Yes, a lot of girls diagnosed with EUPD will be autistic.

It would be very unusual to diagnose a minor with a personality disorder. It's not usually considered the right age for this sort of thing. A lot of mental health conditions don't even start to emerge until later teens/early adulthood.

Mumofsoontobe3 · 13/08/2025 07:32

mostimportantaspect · 13/08/2025 06:18

You cannot get your girls onto the ASD pathway that early. No one will listen to you. No one joins up the dots. Girls mask. Often being emotionally deregulated in school is the only symptom they show to a teacher

Girls they get put into CAHMS for emotional dysregulation (blamed on puberty and social groups etc) and you even get accused of them having some kind of trauma.

Sorry I wasn't referring to just girls, I was referring to both male and females being assessed. My DS was diagnosed just before he was 5 but it was clear a few years prior, he was very textbook in the early stages of his development then it became more obvious as he got older. I don't have experience in girls being diagnosed ASD, as I only have boys and my experience may have been different but I have been through the full battle of fighting for a diagnosis and I know it's not just as easy as a 1 and done appointment where you walk away with a diagnosis. I have had conversations with many parents with daughters who are battling to get them diagnosed, which is really sad and unfair on both their child and the parents.

Tofudinosaur · 13/08/2025 06:24

The thing is there’s been a massive uptick in adults getting diagnosis not just children. I think it’s symptom recognition and societal acceptance of it. People also now prefer to label something in hopes of accessing therapy than just ignore it and pretend it’s not there.

mostimportantaspect · 13/08/2025 06:18

Mumofsoontobe3 · 13/08/2025 06:12

I don't think so. It's not just one appointment and there is a diagnosis there and then, it's a build up of endless reports from nurseries, school, parents, GP's. It takes a really long time and there is pre-assessments, sleep assessments and numerous appointments which are long and difficult. Very very unlikely children are being diagnosed because they've had a couple of tantrums. Emotional disregulation happens with all children but with ASD and ADHD they are projected in a different way.

You cannot get your girls onto the ASD pathway that early. No one will listen to you. No one joins up the dots. Girls mask. Often being emotionally deregulated in school is the only symptom they show to a teacher

Girls they get put into CAHMS for emotional dysregulation (blamed on puberty and social groups etc) and you even get accused of them having some kind of trauma.

mostimportantaspect · 13/08/2025 06:14

*Autistic girl mum here fyi who got pushed around for years by clinicians trying to justify she had a mental health issue, so her autism got missed and she completely failed in school and got no help or support until it was too late

I always notice on these threads the difference between mums of girls and boys, boys mothers usually report a very early diagnosis and very convinced this is because their boy was very obvious ND so it was presenting text book

girls are also obvious but they get mislabelled and treated differently. They get told they have EUPD and get diagnosed ASD very late

Mumofsoontobe3 · 13/08/2025 06:12

I don't think so. It's not just one appointment and there is a diagnosis there and then, it's a build up of endless reports from nurseries, school, parents, GP's. It takes a really long time and there is pre-assessments, sleep assessments and numerous appointments which are long and difficult. Very very unlikely children are being diagnosed because they've had a couple of tantrums. Emotional disregulation happens with all children but with ASD and ADHD they are projected in a different way.

HannahJ93 · 13/08/2025 06:10

@mostimportantaspect Yes and also women and girls who have experienced severe trauma being diagnosed with eupd when they really have ptsd.

mostimportantaspect · 13/08/2025 06:08

This reply has been deleted

This has been deleted by MNHQ for breaking our Talk Guidelines.

Is it not commonly known that girls get diagnosed with EUPD incorrectly and it is often in fact ASD? A autism presents differently in girls than boys and girls mask

Many many girls get told they are EUPD which is ‘hard to treat’ and this has hugely disadvantaged and stigmatised them with a mental health condition when they are in fact autistic and it is missed and they don’t get the help they need

we should not be trying to diagnose more children with personality disorders 😳

HannahJ93 · 13/08/2025 06:08

@ByGreyWriter I'm not sure if diagnosing personality disorders in children or teenagers is a good idea. Their personalities are still forming surely?

ByGreyWriter · 13/08/2025 05:59

This reply has been deleted

This has been deleted by MNHQ for breaking our Talk Guidelines.

Dontyoujustlovethebritishsummertime · 12/08/2025 14:54

flossydog · 12/08/2025 08:56

This highlights the harm in giving kids diagnosis-by-internet. Info about PANDAS is spread by online advocacy groups and isn't widely recognised by doctors. This leads parents into the hands of quacks and charlatans. For most children, a course of antibiotics is going to do more harm than good, and homeopathy is going to do nothing beyond the placebo effect.

Right, then what on earth do you suggest these poor parents and children do to help them out of this hell??

OP posts:
Dontyoujustlovethebritishsummertime · 12/08/2025 14:52

sunshine244 · 12/08/2025 08:33

I think things like PANS/PANDAS as a possible alternative to autism also gives false hope and attracts vulnerable parents to support groups.

We have a huge family history of autism - its clear going back generations as well as more recent formal diagnoses. One of my relatives can't cope with their child being diagnosed autistic. They have spent years cycling through various other possible diagnoses and treatments- homeopathy, dietary and supplement changes etc. They are desperate to find a cause that is theoretically curable instead of autism. I'm actually really glad they haven't yet come across this yet, as I thibk they would get sucked in.

Definitely not, the majority of parents I know would much prefer their children to be just Nd

OP posts:
Fetaface · 12/08/2025 13:05

twinkletwinklelittlestarhiwwur · 12/08/2025 11:56

Children are vulnerable by nature. A lot of ideas in your posts that are a bit odd.

It is not odd to use words properly. ND relates to all people, there is no typical brain or way of processing things.

So you are not an inclusive person?

Fetaface · 12/08/2025 13:04

twinkletwinklelittlestarhiwwur · 12/08/2025 11:53

I am not a psychiatrist. Only they can diagnose those kinds of conditions.

I think the next 'trend', though it's a real leap forward in my opinion, is further understanding of epigenetics and increased knowledge of genetic contribution to things previously believed to be environmental.

Ah thought you were with saying you were part of it. Psychiatry - the joke of the medical world! Or non-medical world! At least you aren't one of those!

Trend is what happens. Exploring how diagnosis do go in trends is very interesting to look at and it makes you wonder why that happens.

There would have to be a development in science for that to happen and it hasn't yet in that field. The next trend will be more stigma as it always has been.

HannahJ93 · 12/08/2025 12:56

I think you may be right OP. I work with someone who's daughter has PANS/PANDAS and the symptoms started abruptly after she had covid and strep at the same time. The NHS originally tried to diagnose her with autism even though she was 10 and the symptoms came on abruptly with no previous history. She sought a second opinion privately and her daughter was diagnosed with PANS/PANDAS. She was prescribed antibiotics and possibly some other meds I'm not sure and her symptoms improved quite a lot. Many people even doctors haven't heard of it so it can easily be misdiagnosed as autism or something else.

twinkletwinklelittlestarhiwwur · 12/08/2025 12:31

twinkletwinklelittlestarhiwwur · 12/08/2025 11:56

Children are vulnerable by nature. A lot of ideas in your posts that are a bit odd.

Apologies for the way that was stated. It sounds a bit harsh.

twinkletwinklelittlestarhiwwur · 12/08/2025 11:56

Fetaface · 12/08/2025 10:34

Absolutely we do as all are ND.

The only reason a child is vulnerable to abuse is being in the vicinity of an abuser. Remove that and no child is vulnerable.

Children are vulnerable by nature. A lot of ideas in your posts that are a bit odd.

twinkletwinklelittlestarhiwwur · 12/08/2025 11:53

Fetaface · 12/08/2025 10:32

Given the 'symptoms' marry up for both then yes I can see how it is easily done.

Do you diagnose trauma? Why do diagnosis go in patterns? What will be the next 'trend'? Did you misdiagnose when bipolar was the latest trend or is there another reason for the sudden decline?

Edited

I am not a psychiatrist. Only they can diagnose those kinds of conditions.

I think the next 'trend', though it's a real leap forward in my opinion, is further understanding of epigenetics and increased knowledge of genetic contribution to things previously believed to be environmental.

Fetaface · 12/08/2025 10:34

CiffHang3r · 12/08/2025 08:38

We do not live in a ND world at all. That declaration in itself raises red flags

Re safeguarding, I have never ever experienced views like that. If anything a ND diagnosis brings more awareness of vulnerability as it’s well known ND children and young people are at a higher risk of abuse.

Absolutely we do as all are ND.

The only reason a child is vulnerable to abuse is being in the vicinity of an abuser. Remove that and no child is vulnerable.

Fetaface · 12/08/2025 10:32

twinkletwinklelittlestarhiwwur · 12/08/2025 08:28

Yeah and I'm the person who you'd refer to and would make decisions. I don't agree but you obviously have seen at least one instance to make you think that it's easy to do that.

Given the 'symptoms' marry up for both then yes I can see how it is easily done.

Do you diagnose trauma? Why do diagnosis go in patterns? What will be the next 'trend'? Did you misdiagnose when bipolar was the latest trend or is there another reason for the sudden decline?