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Trapped caring for ageing parent

61 replies

Dappy777 · 07/08/2025 15:16

I'm worried about my brother and could do with some outside perspective. For context, he's 48 and I'm 45. He lives with our 78-year-old mother in the family home. I live 200 miles away. Brother had MH problems in his teens and 20s which held him back and stopped him working and forming relationships. When he was 29, my dad died. I had moved away by then with my boyfriend (now husband). My mother had been with my dad since they were 15 and was totally broken (anti-depressants, constant crying, near breakdown). She sort of clung to my brother, and it suited both of them to carry on living together – he didn't have to worry about rent or bills, and she got company and support.

Unfortunately, as the years have gone by they've developed a pretty toxic/co-dependent relationship. In his 30s, he grew more confident and did a bit of dating. I know there were a couple of women he could have built serious relationships with, but he let them go, partly (I think) because he felt responsible for my mother. It isn't all one sided, however. He's an avoidant, introverted, depressed sort of character without any interest in a career. Taking care of my mother became an excuse. He did an MA in literature at the local uni and could have been a teacher, but I know he'd have hated it. He isn't on the spectrum btw. That much I'm sure of. I'd say he had a full-blown avoidant personality disorder in his teens (which he still struggles with).

The older he's got, however, the more ashamed he feels, and the shame reinforces the avoidance. He's never really worked and just makes do with side hussles. But I'm worried about the future. He's 48 and she's 78. As he moves into his 50s and she moves into her 80s I can see things getting messy. He doesn't speak to the neighbours (mainly because of shame) and has lost touch with all his friends (again because of shame). If my mother gets ill and has to go into a home, I'm not sure what rights he'd have. Would the LA take the house and sell it? Would he be homeless? Even if my mother dies suddenly and he gets his inheritance, he'll be a 50-something man with no partner, no friends, no job and no experience of surviving on his own.

I was speaking to someone about all this the other day. She said she used to work in social care and often dealt with middle-aged men like him – men who'd never been officially diagnosed with anything, and never had therapy or claimed benefits. They'd just lived with their parents in the family home and hidden away from the world. Then the parents die and everything falls apart. They've often got poor physical health, no life skills, no work experience, and no social life. I've tried talking to them, but they've got their heads in the sand. I know my brother would rather have moved away, but I don't think he ever felt he could, and now he feels trapped. In reality, he is trapped. I wish I could do more tbh, but I'm 200 miles away with three kids and a stressed husband. Whenever I've tried talking to my mother she just cries. And my brother doesn't want to know.

OP posts:
Dappy777 · 07/08/2025 18:01

Fraudornot · 07/08/2025 17:08

Im interested why you have ruled out autism here?

Well, I can't 100% rule it out. But if he is autistic then it's a unique kind of autism. He ticks none of the boxes. In fact, he's the exact opposite in so many ways – highly empathetic, emotionally intelligent, very ironic, quick to sense sarcasm or double meaning, highly sensitive to other people's moods, etc. He has a very literary, arty sort of mind. He's never literal or blunt in conversation. He never had any obsessions as a kid either. And there was no arranging things on shelves, no meltdowns, no need for routine, none of the stuff you normally get.

OP posts:
Iclyn · 07/08/2025 17:55

I knew someone in the same kind of situation except the mum was in her 60s when she died and he was in his 30s with mild learning difficulties and never had a job .T

They lived in a 3 bed council house and when his mum died he had to move out but they gave him a 1 bed flat .

Said kindly , as much as this could have been the family home for years , you cannot expect the council to allow a single man to remain in a 3 bed ( if it is )

Fraudornot · 07/08/2025 17:54

Yes I agree there is more you could do in this situation OP. It doesn’t sound like your mother needs constant care so could you invite your brother to come and stay with you for a night or get an air b and b near them with your kids and have him come and stay over without her to give him a bit of space and freedom. His art sounds like an outlet so could he be persuaded to join a club for that, maybe online if face to face is too threatening

Dappy777 · 07/08/2025 17:51

beetr00 · 07/08/2025 16:10

Sorry @Dappy777, why is your brother ashamed though?

Have I misunderstood?

I see a man who, although he's enmeshed, (with his Mum) has freely made that choice, so there must be some kind of pay off, for them both?

I think he's ashamed to be a 48-year-old man who lives with his mum in the family home. Well, I know he is (because he's told me). It's also why he doesn't date or try to build close friendships. As he's got older, he's sort of dropped out of the world, and I know it's largely due to shame. That's why he avoids the neighbours and doesn't speak to them. (Actually, that also worries me, because as she ages he may need to turn to them for help.)

OP posts:
Lemonadeat8 · 07/08/2025 17:49

My neighbour who is 40 is also stuck at home caring for an ageing parent who won’t move all day never mind help themself.

He is going to have no life or family of his own but his siblings focus on their own lives. It’s awful to see.

Take some responsibility and for something sorted for your eldery morher. It’s massively unfair for one child to have their entire life wasted.

CeilingStarsSparkes · 07/08/2025 17:49

It is your brothers choice to stay there

If he receives an inheritance in the future, perhaps he will travel the world or buy a camper van
He may have dreams

CeilingStarsSparkes · 07/08/2025 17:47

I suggest getting your DM to get this signed
So that it is ready if you need it in the future
Health
Wealth

www.gov.uk/power-of-attorney

Dappy777 · 07/08/2025 17:46

Cyclebabble · 07/08/2025 16:04

I have a friend from Uni who finished up being her mum's life carer. She showed great promise in her field, but sadly never worked and just kind of stumbled into caring. Over time she has suffered from quite severe depression and now in her late 50s faces an uncertain picture . When Mum dies the house will be split three ways. She has no pension, not even a state one and faces a life supported by benefits which I think will be bleak. At mid 40s though there is still hope. If he started to work now he could work for 20 years before retirement and develop a good life. I would be doing everything I could to encourage him to do so.

Yes, I do think his life has been a waste tbh. I don't just mean career wise. I mean romantically as well. He could have made someone very happy. He's a good looking guy. He's also funny, interesting and emotionally intelligent. Had he wanted to, I think he'd have made a good teacher too – he's well read and very good with children. He had a lot to give the world.

It's not fair to 100% blame my mother. I do think she's partly to blame, and I know he felt (and still feels) he can't leave her. That in turn has meant deep feelings of shame, which led to avoidance and detachment. But he's also an introvert and a bit misanthropic (and lazy). I'm not sure how he feels about his life. And I'm not sure what sort of person he'd have been if he'd gone off to Australia in his early 20s before dad died. I suspect he regrets not having had a good, long-term relationship. I know they're not for everyone, and I'm glad society is more tolerant of the long-term single, and more accepting of those who opt out of kids and marriage, but he's quite a sensitive, emotional, arty sort of guy. Had he found the right person, I think he'd have been very happy. The cynicism and detachment are a mask. He's become that way because he's full of shame and because he's spent years avoiding people. Over time you get used to it and it becomes the norm.

Like your friend (maybe?) he's a shadow of the person he could have been. Not that there's a 'right' way to live your life of course. But it does seem so empty and unfulfilling – sexually, socially, romantically and creatively. He's had so little intimacy and fun, that's the sad thing.

Actually, the tragedy of his life is that he overcame his mental health problems too late. In his 20s he was crippled with social anxiety and probably had an avoidant personality disorder. In his 30s, he did a lot of (casual) dating, did an MA, took up hobbies, and grew in confidence. But by then he felt trapped, and that's how he's lived ever since. Had he left home at 18, my mother would have had to adapt to my father's death. Tbh I think he sort of gave up on life when he turned 40.

OP posts:
Fraudornot · 07/08/2025 17:45

@CeilingStarsSparkesits £196 per week he can earn

beetr00 · 07/08/2025 17:40

Ted27 · 07/08/2025 17:26

@beetr00

Is shame that really hard to understand?
How many posts have I seen here asking if you would date a middle aged man who lives with his mum?
Whatever his difficulties he is probably very aware that he hasn't done what other people do , ie leave home, go to uni, get a job, go on holiday with his mates. So he is ashamed and shame stops you from doing stuff. Its a vicious circle

shame is not difficult for me to understand, at all @Ted27

If @Dappy777 had said "her brother is embarrassed" I could have "somewhat" understood due to societal connotations.

But she used shame which is significantly different, why would he be "ashamed" by living with and caring for his Mum?

CeilingStarsSparkes · 07/08/2025 17:40

If your DM has any health issues, she can claim attendance allowance which is not means tested.

Your brother could claim carers allowance, where he can work & earn up to a maximum of £196 per month
National insurance contributions are also paid whether he works or not
If he earns more than £196; the allowance is stopped

Ted27 · 07/08/2025 17:26

@beetr00

Is shame that really hard to understand?
How many posts have I seen here asking if you would date a middle aged man who lives with his mum?
Whatever his difficulties he is probably very aware that he hasn't done what other people do , ie leave home, go to uni, get a job, go on holiday with his mates. So he is ashamed and shame stops you from doing stuff. Its a vicious circle

ArseInTheCoOpWindow · 07/08/2025 17:25

Fraudornot · 07/08/2025 17:08

Im interested why you have ruled out autism here?

Me too. He sounds classic ND.

Everyday99 · 07/08/2025 17:22

stayathomer · 07/08/2025 17:19

I know you say you’re 200km away and have your own stuff but could you start travelling to see them more? My sister does equivalent every three weeks/ once a month for two or three days to see my brother and mum, she said she wasn’t going to wait until after mum died before she started visiting. Can you invite them over for a few days too? Frame it as a holiday? They need to shake up their lives. I have an autistic nearly forty year old db and we’re trying to get both Jim and mum to realise life is not just about existing, I’m travelling up to go to the cinema and out for dinner this weekend. Sorry this is happening op, it’s not easy x

Curious what shake up you plan for them and will they approve of your plans

Everyday99 · 07/08/2025 17:21

Ahh but the GP, the council...they aren't getting my money, my relative will

stayathomer · 07/08/2025 17:19

I know you say you’re 200km away and have your own stuff but could you start travelling to see them more? My sister does equivalent every three weeks/ once a month for two or three days to see my brother and mum, she said she wasn’t going to wait until after mum died before she started visiting. Can you invite them over for a few days too? Frame it as a holiday? They need to shake up their lives. I have an autistic nearly forty year old db and we’re trying to get both Jim and mum to realise life is not just about existing, I’m travelling up to go to the cinema and out for dinner this weekend. Sorry this is happening op, it’s not easy x

Everyday99 · 07/08/2025 17:19

Curious also because someone might live with me also all my life and I'll secure their future. Whose business is this but mine...

Everyday99 · 07/08/2025 17:18

I am genuinely curious when such posts appeae from relatives. What do you want to happen?? Your needy relative leaving your needy mum so then there are two separate tragedies dealing with. Why

Everyday99 · 07/08/2025 17:13

They both gave great deal. What the tragedy here. He's going to sell the house or it might be already given him in a will.

He's got problems emotionally, so the mum too. Everybody lives with various emotions

Fraudornot · 07/08/2025 17:08

Im interested why you have ruled out autism here?

WiddlinDiddlin · 07/08/2025 17:04

If he has a disability and is therefore in some way dependent on DM, then they can't just hoof him out easily.

Do NOT follow advice to have her sign the house over to him, thats deprivation of assets, gets folk into trouble and doesn't actually work.

mn5962 · 07/08/2025 16:50

@Dappy777 Is the home owned by your DM or is it a rented / council property?

I assume its owned as you mentioned your DB living rent free etc. Anyway, if its a council property i believe he can apply for the tenancy should your DM pass and there is a process for this as he has lived there for so long. He could also be put on the tenancy.

If its owned by your DM, with or without a mortgage, any equity in the home could be used to pay for any care your DM requires over a threshold. I cant remember the ins and outs of it but ultimately if your DM needed to go into care then it would be funded until she died then the house would have to be sold as part of her estate to pay for care costs up to a threshold amount which is something like 16k or 20k. Your DB would then need to move and find alternative housing.

If you DM signed her home over to you / your DB as an early inheritance she would need to live for at least 7 years to ensure no IHT is due but if she has ailments currently and needed care in a few years time then it could be seen a deprivation of assets and still form part of her estate etc.

If you are worried about your DB and his housing and what would happen when the time comes with your DM i would highly recommend getting some professional advise. What i have said only comes from memory of something similair i had to deal with a few years ago so maynot be 100% correct.

BoundaryGirl3939 · 07/08/2025 16:16

Pomegranatecarnage · 07/08/2025 16:11

If your Mum owns her home, maybe she needs to sign it over to him. I have a friend who has a brother in an identical situation but 10 years older, it’s all got very difficult as his Mum has just been diagnosed with a terminal illness and the flat they share is Housing Association.

This is not as straightforward. They know people are up to these tricks. They look back over your assets and property over the past decade or so to see what happened to it.

There are ways around it but Ops mum needs to start doing her homework now.