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ME/CFS is finally proven to be a real illness

129 replies

R0ckandHardPlace · 07/08/2025 07:22

Yesterday the findings of the biggest study to date of ME/CFS were published. The DNA of 15,500 ME/CFS sufferers was compared to over 250,000 controls. The researchers found 8 specific genetic differences between groups, which all backed up the symptoms reported by sufferers.

For years we have been told that it is all in our heads, that we can ‘exercise’ our way out of this awful disease; people (including some medical professionals) have disbelieved us and judged us as lazy hypochondriacs.

Today is a good day for the ME/CFS community. At last our voices have been heard, and hopefully this will pave the way to more research and better treatment.

https://www.theguardian.com/society/2025/aug/06/genes-me-chronic-fatigue-syndrome

So AIBU to offer a gilt-edged “F*ck you” to the doubters, including my own GP?

Scientists find link between genes and ME/chronic fatigue syndrome

Large study suggests people’s genetics could ‘tip the balance’ on whether they would develop the illness

https://www.theguardian.com/society/2025/aug/06/genes-me-chronic-fatigue-syndrome

OP posts:
GabriellaMontez · 07/08/2025 07:30

Whilst its a positive step, I dont think it proves anything.

Agix · 07/08/2025 07:28

I have M.E. Im not sure what this changes, people will continue not believing us because that's what suits them.

If evidence swayed them at all, they'd believe us already by observing and witnessing us. And the fact severely affected people die from it.

People are choosing to disbelieve us, I don't think this is going to change anything now.

zaazaazoom · 07/08/2025 07:28

I had this awful illness for 4 years. My mum also had it in the 80s when it was dismissed as yuppie flu.
Anything to make it taken seriously is good.

RampantIvy · 07/08/2025 07:24

I have two family members with this debilitating condition. Thank you for flagging this up.

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