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To wish my GP practice had told me about this upward trend earlier?

285 replies

polarband · 01/08/2025 14:45

I have used a blood pressure medication to treat migraines for several years now. As a result I need to go for blood tests and a BP check every 6 months as my BP tends to be low on this medication. The blood tests are mainly to check my kidneys but they do other checks as well, after each test I just call and they tell me everything's fine and I go again in another 6 months.

This time after my check I got called back in to speak to the doctor and was told I have high cholesterol and prediabetes. I asked him what could have caused the problem so suddenly and he said it hadn't been sudden and that if he looked at my blood test results over the past 6 years he could see that my cholesterol and blood glucose levels had been creeping up but its only now just crossed over into clinical diagnosis. I am fit, a healthy weight, a non smoking, non drinking, active woman with ideal blood pressure who eats a healthy whole food diet so when I was told my results were normal I thought that meant I was healthy not that things were getting worse.

I'm not mad that it's happened because these things do happen of course, I'm 50 now and there is type 2 diabetes in my family but I just wish they had told me earlier when this upward trend was noticed and I could have made some changes to prevent getting to this level. My GP just said they don't treat at anything below clinical diagnosis level and anything below that is in the healthy range and therefore normal.

Is it so unreasonable to think that they should flag up something like this to patients?

OP posts:
Threeboystwocatsandadog · 01/08/2025 16:48

I’m also in Scotland and have the same difficulty getting blood results. My GP is great and will print them out if ask but obviously, they are not going to give me a GP appointment to get my blood results and the nurses and reception are less keen. I had a phone call last week to say I needed my blood rechecked next week as something had come back abnormal. When I asked what the result was the receptionist told she wasn’t clinically trained but she thought something was high! I suppose I should have pushed further but I’m a terrible people pleaser.

@polarband I’m going to try to be a bit more assertive and insist on a printout. I also had results that were “just over” normal limits recently and it’s a bit of a shock when everything has always been fine (as far as we know) up until now.

Negroany · 01/08/2025 16:45

Hellohelga · 01/08/2025 15:03

Tricky not having the app. In England at 50 you get a full health review with bloods, blood pressure, bmi, questionnaire re eating/drinking/smoking habits and a follow up to discuss any concerns or potential risks. But I’m not sure about Scotland. At least you know now OP and can take measures before it gets worse.

I never had anything like that at 50 (or any age).

I also can't see any test results in the app, it says "you do not have access to this section". Yet, I've had plenty of tests over the years.

Despite all that, I always ask for printed versions of blood tests and check the levels myself online.

Mini2025 · 01/08/2025 16:41

OP you could write to your MP demanding the app. I can't believe you don't have it!

polarband · 01/08/2025 16:40

DeerWatch · 01/08/2025 16:37

@polarband

Okay, I asked about betablockers as the can raise blood glucose levels. Something I was not aware of until recently and I have been on them for many years for palpitations due to heart defect.

I will double check the medication I am on to see if there is any similar issue, thanks for the heads up.

OP posts:
RubySquid · 01/08/2025 16:40

Hellohelga · 01/08/2025 14:59

It’s all on your NHS app and very easy to find.

In Scotland?

Mini2025 · 01/08/2025 16:39

MissHollysDolly · 01/08/2025 16:36

This is why you go privately for an annual check up. It cost a few hundred pounds but it’s so useful.

This is a good point and sadly points to a line I read recently in an article which said "GP services are pretty much being forced private and it seems like the government are on board with this, in an attempt to shelve off another service they won't be paying for anymore". It reminds me of NHS dentistry few decades ago now.

My GP now gate keeps all tests and it makes a mockery of trying to stay well and healthy.

the government still didn't wake up to the fact that a healthy population equals a productive population...

JulesJules · 01/08/2025 16:38

Fibrous · 01/08/2025 15:27

Yeah you’re supposed to have a health check every five years from the age of 40. I have been invited for (both) of mine but I know other friends of a similar age who’ve never heard of it. They do a few blood tests and measure height, weight, and then ask a lot of questions about your booze intake and physical exertion. Then give you a cardiovascular risk score.

call and ask for one if you want it, and you get booked in with a nurse.

I should have had 5 of them by now then! I think it must depend on your GP/local area rather than being a national thing.

OddBoots · 01/08/2025 16:38

I agree with you @KnewYearKnewMe - it seems sensible to alert people to downward trends, even if that is an opt in thing - some people would rather not know.

I understand why it isn't happening yet, it would be too time consuming for a human to do this, but the government is talking about using digital solutions and focusing on the NHS being about health rather than just fixing disease so maybe this is something that will come.

DeerWatch · 01/08/2025 16:37

@polarband

Okay, I asked about betablockers as the can raise blood glucose levels. Something I was not aware of until recently and I have been on them for many years for palpitations due to heart defect.

KnewYearKnewMe · 01/08/2025 16:36

@Paganpentacle- tracking trends and creating an advisory/alert based on threshold breaches, etc, is something a simple dashboard can do - not something individual staff would be expected to do.

hopefully this won’t be too far in the future for healthcare.

MissHollysDolly · 01/08/2025 16:36

This is why you go privately for an annual check up. It cost a few hundred pounds but it’s so useful.

Mini2025 · 01/08/2025 16:36

OP you are completely right to be annoyed and infuriated.

The NHS babies you as though you are 3 years old and unable to interpret any data or anything at all really and should just 'wait to be told what to do' and never ask any questions.

Thank God for the app because without it, I wouldn't have discovered that I had a life-altering disease that NHS trusts locally to me had actually moved the goal posts on, but the app still had the old measures.

You are 100% correct you need to take your health into your own hands as the NHS will literally have you crawling on the floor before they take any action or allow you any kind of proactive interventions at all.

I've found since the age of 45 I've had to become my own doctor because they won't take any of my health issues seriously. Having seen my own DM die of complications, it's driven me to be far more proactive.

I'd ask for all your data, as legally provided for by whatever NHS act provides for it. Ask ChatGPT. What else are they hiding from you?

On another note, with regards to migraines, you could look at the scientific data on vitamin B2 - high dose - to see if this helps you at all. It's not for everyone, only those with MTHFR gene and a certain type but if it works, it's life-changing and you could come off the drug.

Additionally I really recommend the Zoe Nutrition program for lowering cholestrol.

I've been repeatedly fobbed off. Just recently I've had an operation which has cured my condition which would have literally robbed me of good health but on the NHS it's a condition where you 'watch and wait'. I've watched numerous women crumble in a Facebook group waiting for help and they are repeatedly pushed back on again and again and again.

I really don't trust the NHS unless it's for acute issues or terminal diagnosis.

Even then A&E is a shocker and terminal help is also a complete shocker too. It's made me consider moving abroad, the healthcare here is so woefully underfunded.

KnewYearKnewMe · 01/08/2025 16:33

I agree with you, OP. An upward trend over time is certainly something that in an ideal world, you should be made aware of.

those saying ‘your body, your responsibility’ have no idea how hard it can be/has historically been to get detailed data.

i hope that as surgeries become more and more digitised, this sort of important tracking information will be routinely available.

polarband · 01/08/2025 16:33

DeerWatch · 01/08/2025 16:26

Are you taking betablockers for the migraines?

No its an angiotensin receptor blocker, so quite different. It is used primarily to treat high blood pressure but is used off label for migraine. I previously used betablockers but they didn't help me much.

OP posts:
OddBoots · 01/08/2025 16:32

MrsEmmelinePankhurst · 01/08/2025 16:14

Do you?? I’m 53 and have never heard of this (I’m in England). I moved house 2 years ago, meaning a change of GP surgery, and it wasn’t mentioned. So you just phone up and request it? I speak to my GP a couple of times a year re my HRT and she’s never mentioned it either. I wonder if it’s area-specific?

https://www.nhs.uk/tests-and-treatments/nhs-health-check/ - it is from age 40 and it looks like it is national. Maybe some areas are better than others at offering it.

nhs.uk

NHS Health Check

The NHS Health Check is a health check-up for adults in England aged 40 to 74.

https://www.nhs.uk/tests-and-treatments/nhs-health-check

polarband · 01/08/2025 16:31

Paganpentacle · 01/08/2025 15:56

Primary care medic here.
We have hundreds of blood tests to check and report on daily.
If its within normal limits.... that's it. Its normal. Until its not normal... at which point you will be notified.
We have no time to be looking backwards and checking trends when things are within normal limits.
If you want to take ownership of your health then you are entitled to have your blood results printed out for you to monitor the trend.
(PS sometimes things are out of range but have no clinical significance.... which is why what you perceive to be abnormal is marked otherwise)

Hi Thanks for responding, I think as has been discussed before the culture around detailed results seems to vary across the UK and someone else from Scotland has confirmed that it can be very difficult to get your hands on the results up here, no doubt it may vary from practice to practice. However I generally find staff quite hostile to requests for my results beyond normal or abnormal. People rely on the practice for help and good care and nobody wants to foster a difficult relationship with their GP's or their staff fighting them over this.

I just think that an early warning system would perhaps save the NHS and GP's work and money over time. When I saw my GP he was using AI to type his notes so perhaps in time AI could be used to flag these upward trends to patients?

OP posts:
Daygloboo · 01/08/2025 16:29

Fibrous · 01/08/2025 15:02

That’s frustrating!

My cholesterol recently dropped significantly when I started eating legumes every day. It went from 6,8 to 4.5 in a year. I didn’t think my diet was unhealthy before (vegetarian, tee total, non smoker) but I’ve really been working on getting the fibre in first and foremost and was surprised at the results.

Can you say what legumes and what portions etc as that sounds really useful

DeerWatch · 01/08/2025 16:26

Are you taking betablockers for the migraines?

polarband · 01/08/2025 16:24

@JamesWebbSpaceTelescope I do understand that I suppose my complaint is that I wish they had told me sooner and if they don't do this as a matter of course then perhaps they should? Hopefully in future they will be able to use AI to flag this kind of progression up. My GP was actually using AI to write his notes when I spoke to him so it can't be far off!

OP posts:
polarband · 01/08/2025 16:22

@SeaGreenSeaGlass Thank you so much for this, that is exactly it and what I think people aren't getting! The culture is really quite different it seems and access to results aren't always the norm. I had a relative quite a few years ago now ask for some information from their records to make a DLA or PIP claim and their GP practice made such a fuss about the request she ended up going ahead with the claim without it as the practice was saying she had to put her request in writing, pay a fee (fair enough) but also that it could take up to 3 months to get the information. Hopefully it isn't as bad as that now but again the culture is different it seems.

Thank you for the info on CGM I will be getting one. Unfortunately many people in my family seem to get type 2 as they age even if they are fit and not overweight so I am not sure sure I will dodge that one but I will try to delay any escalation for as long as possible.

OP posts:
JamesWebbSpaceTelescope · 01/08/2025 16:20

Slightly in the defence of you gp - they would have looked at the results in isolation, he/she wouldn’t pull up your blood result history unless there was a reason to do so. So they wouldn’t have seen anything amiss in your long term trend.

It was only when you asked why this came all of a sudden/ they got the outside of healthy range results they would have looked at the history.

It is frustrating, write to your mp and push for the NHS app.

polarband · 01/08/2025 16:16

Icanttakethisanymore · 01/08/2025 16:05

Why don't you just get the app?

Kidding, sorry 😂

Seriously OP, this is frustrating. I has some medication (infused over a week in hospital) which required me to have monthly blood tests for 5 years after and although it was sometimes met with a lot of objections, I felt I needed the results to reassure myself of what was going on. I'm not blaming you, it's not unreasonable to think this trend would have been flagged but my personal experience is that you can't rely on the NHS to necessarily do everything it should. You can't turn back time so I would just focus on doing what you need to going forward. Good luck.

Lol, you almost had me there!

Yeah like I said I did try to get the results and was told no, this was during covid times and the last thing I wanted to do was make things harder for doctors. I think in other circumstances I would have pushed harder. I suppose I did get off lightly when you consider those that missed a crucial window of diagnosis for cancer at that time.

OP posts:
MrsEmmelinePankhurst · 01/08/2025 16:14

Hellohelga · 01/08/2025 15:03

Tricky not having the app. In England at 50 you get a full health review with bloods, blood pressure, bmi, questionnaire re eating/drinking/smoking habits and a follow up to discuss any concerns or potential risks. But I’m not sure about Scotland. At least you know now OP and can take measures before it gets worse.

Do you?? I’m 53 and have never heard of this (I’m in England). I moved house 2 years ago, meaning a change of GP surgery, and it wasn’t mentioned. So you just phone up and request it? I speak to my GP a couple of times a year re my HRT and she’s never mentioned it either. I wonder if it’s area-specific?

SeaGreenSeaGlass · 01/08/2025 16:11

I feel your pain. I'm also in Scotland and I've also been fobbed off with " results are normal" , rather than being told they are steadily rising. I only know this because I asked for a print out of results, which seemed to really throw the reception staff as they didn't know how to deal with the request and a few days later called to say that if I really wanted them they'd need to request the practice nurse to authorise it. So no, in Scotland it's definitely not usual for patients to be able to easily access their own results.

I see you've mentioned CGMs, I liked the Dexcom one. You may also find it useful to listed to Ben Bikman - he explains that by the time our blood glucose has breeched the diagnostic levels, we're already insulin resistant. He also has videos about how to use your Cgm data.
Good luck

https://m.youtube.com/@benbikman

polarband · 01/08/2025 16:11

@Salome61 How awful for your friend, and yes it would have been useful for her to know that and for some feedback about her diet when she left hospital. I hope she is doing better now! When I was in hospital for a burst appendix a few years ago it my care was amazing, I don't think I could have had better care anywhere in the world. Until the day after my surgery when I was being discharged all the nurses and staff changed that day and they just told me to leave, the day before the nurse in charge had told me everything that would happen on my discharge, that I'd have my wounds checked and be given compression socks and medication to take home but none of that happened, it was fine but very disconcerting when I was already in a very vulnerable state and it just happened because of the rota switch and there being no communications between one team or the other.

OP posts: