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AIBU?

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To wish my GP practice had told me about this upward trend earlier?

285 replies

polarband · 01/08/2025 14:45

I have used a blood pressure medication to treat migraines for several years now. As a result I need to go for blood tests and a BP check every 6 months as my BP tends to be low on this medication. The blood tests are mainly to check my kidneys but they do other checks as well, after each test I just call and they tell me everything's fine and I go again in another 6 months.

This time after my check I got called back in to speak to the doctor and was told I have high cholesterol and prediabetes. I asked him what could have caused the problem so suddenly and he said it hadn't been sudden and that if he looked at my blood test results over the past 6 years he could see that my cholesterol and blood glucose levels had been creeping up but its only now just crossed over into clinical diagnosis. I am fit, a healthy weight, a non smoking, non drinking, active woman with ideal blood pressure who eats a healthy whole food diet so when I was told my results were normal I thought that meant I was healthy not that things were getting worse.

I'm not mad that it's happened because these things do happen of course, I'm 50 now and there is type 2 diabetes in my family but I just wish they had told me earlier when this upward trend was noticed and I could have made some changes to prevent getting to this level. My GP just said they don't treat at anything below clinical diagnosis level and anything below that is in the healthy range and therefore normal.

Is it so unreasonable to think that they should flag up something like this to patients?

OP posts:
polarband · 01/08/2025 18:03

@Mirabai Thank you I will look into that. I was keen to avoid CGRP meds due to the possible increased risk of metabolic issues. I am not on that specific ARB and was led to believe it should have a beneficial effect.

OP posts:
HerNotIndoors · 01/08/2025 18:02

polarband · 01/08/2025 17:56

@HerNotIndoors 100% not available online, it were I'd have been on that as soon as if became available and very hard to get a print out at my GP's and apparently elsewhere in Scotland as attested to by multiple posters from Scotland on this thread.

Looks like Scotland is in the dark ages.

My elderly Dad doesn't have an app- he's too old to manage IT but I can see his results online by logging into patient data. This has been available for years. (England)

HerNotIndoors · 01/08/2025 17:57

TempestTost · 01/08/2025 17:54

I understand why you feel that way OP, but the thing is,these "diagnoses" are actually not disease in themselves - they are the warning you are asking for.

If they were to decide to tell people at some earlier level, you would just have the same situation but pushed back earlier.

The have to make a decision at what point things have crossed over to where risk may be increased and you need to keep an eye on things. That's all they have told you, not that you are ill or have a disease.

Sadly, in the 'old days' the family GP would be taking an interest in their patient and warning them that for 6 years their results were heading in the wrong direction.

It's just another example of the NHS failing and going downhill.

But also, people need to be proactive and more invested in getting their data, not just accepting 'normal'.

Mirabai · 01/08/2025 17:57

polarband · 01/08/2025 17:00

@Horserider5678 I disagree I would have taken notice. There is no Familial hypercholesterolemia in my family, there an apparent higher likelihood of type 2 diabetes which must be genetic and I suspect the higher cholesterol is to do with this given that higher blood glucose can alter blood fat control.

ARBs are linked to small increased risk of new diabetes cases esp Olmesartan.

Although beta blockers have a more marked link esp Propranolol, Atenolol, Metoprolol..

polarband · 01/08/2025 17:56

@HerNotIndoors 100% not available online, it were I'd have been on that as soon as if became available and very hard to get a print out at my GP's and apparently elsewhere in Scotland as attested to by multiple posters from Scotland on this thread.

OP posts:
HerNotIndoors · 01/08/2025 17:55

Orangesandlemons77 · 01/08/2025 17:54

You can ask for full clinical access and see everything in the app (in England) including details of everything the GPs and other staff write about you in consultations.

It takes several weeks for them to approve though. I have anxiety and they sent me a message saying they were not responsible for any anxiety it caused me though!

It's actually really helpful, as is the e-consult system. You can see your letters from consultants, print them off if you need to as well.

Edited

How many times does the OP have to say she's in Scotland?

Orangesandlemons77 · 01/08/2025 17:54

You can ask for full clinical access and see everything in the app (in England) including details of everything the GPs and other staff write about you in consultations.

It takes several weeks for them to approve though. I have anxiety and they sent me a message saying they were not responsible for any anxiety it caused me though!

It's actually really helpful, as is the e-consult system. You can see your letters from consultants, print them off if you need to as well.

TempestTost · 01/08/2025 17:54

I understand why you feel that way OP, but the thing is,these "diagnoses" are actually not disease in themselves - they are the warning you are asking for.

If they were to decide to tell people at some earlier level, you would just have the same situation but pushed back earlier.

The have to make a decision at what point things have crossed over to where risk may be increased and you need to keep an eye on things. That's all they have told you, not that you are ill or have a disease.

HerNotIndoors · 01/08/2025 17:53

I understand what you're saying.

IMO many drs do inform patients if their results are borderline.
It's careless and dangerous not to do otherwise.

eg if your cholesterol is close to being too high, they should tell you.
Likewise, there is a reading for pre-diabetes.

Those results for pre-diabetes are passed on to patients and they are told to make lifestyle changes for a year before a retest. That's NHS practice and online for you to see.

However, it's negligent of any GP not to tell you the results if it's pre-diabetes.

Having said that, the onus is on you to get a print out of your results. They are YOUR data and you have a right to them. Even if you don't have the app, most practices now have a Patient site where you can log in and read your actual results.

Are you 100% sure you can't see your results online (not an app)?

SelkieSeal · 01/08/2025 17:51

justasking111 · 01/08/2025 17:45

I know I've had to argue this point on here. It's been delayed again and again.

"it's all on your NHS app" is up there with "just get an Uber" and "just get your shopping delivered like I do" 🤣🤣

polarband · 01/08/2025 17:51

@Fibrous Great advice, also username checks out!

OP posts:
Fibrous · 01/08/2025 17:48

Those asking about the legume diet that I think brought my cholesterol from 6.8 down to 4.5 - I always have lots of tins on hand but also boil up a vat of canellini beans or chickpeas every few days and have them in the fridge. I throw them into everything. I also have a lot of puy lentil salads - boil a load of them up and throw in whatever cooked veg or salad veg, cheese, seeds, etc I have lying around. Have jars of roast artichoke or peppers to chuck in. Or just a straight up tuna and canellini bean salad with some red onion. I stopped eating bread and now always have a salad instead of a sandwich for lunch. They're quite portable too if you're on the go. Evenings do a lot of dhals, curries, bean soups or stews, etc. It helps my DP is vegan and has raised cholesterol (despite a BMI of 19) so he's on board with as much legume as possible. There are lots of recipes here: https://boldbeanco.com/blogs/beanspo-recipes?srsltid=AfmBOoqRSmmuzqyjVQVbR08SX_nt8MNwRc2nkuABVnFN4_BnDgt7z21l

I wasn't trying to get my cholesterol down, I was told it was high because I have thyroid disease and so I thought diet wouldn't affect it. But I was wrong! My goal was to get at least 30g of fibre in every day as I've been having colorectal issues but the lower cholesterol has been a nice bonus. Having watched this video it seems a high fibre diet IS a cholesterol reduction diet https://www.youtube.com/shorts/CDhLdT_VFU0

I eat a lot of healthy fats - olive oil, full fat dairy, nuts, seeds, tahini, avocados, etc, but pretty much nothing with added sugar anymore as it irritates my colon. I eat overnight oats with dates, tahini, berries and nuts for breakfast every morning, as it's good to have one high fibre meal ticked off easily every day without having to plan or think about it.

THE BEST OF BEAN RECIPES

We're on a mission to make you obsessed with beans, by giving you THE BEST OF BEANS. We sell premium, jarred, beans which are slowly cooked with a pinch of salt to bring out their natural flavour; so good you can eat them straight from the jar.

https://boldbeanco.com/blogs/beanspo-recipes?srsltid=AfmBOoqRSmmuzqyjVQVbR08SX_nt8MNwRc2nkuABVnFN4_BnDgt7z21l

justasking111 · 01/08/2025 17:45

SelkieSeal · 01/08/2025 17:11

The app isn't a thing in Wales either. Extremely frustrating!

I know I've had to argue this point on here. It's been delayed again and again.

MyUmberSeal · 01/08/2025 17:45

FinancialThyme · 01/08/2025 17:43

Yes. I know. That’s why I said “I’m sorry people can’t read. YANBU”.

Shit, sorry, clearly I can’t read either 🤣.
I thought it was you saying it 🥴.

QuinionsRainbow · 01/08/2025 17:43

Newstartplease24 · 01/08/2025 16:59

I have the app and there are no test results or other records on it. I don’t know how they would get on it without someone doing something and they aren’t going to, are they. Like everyone else says it is very hard to get given the detail of test results.
I have something similar hanging over me and I just don’t know what to do. I am supposed to be being referred to a clinic as if there is a choice but only one comes up. When I try to get an appointment - “there are no appointments”. That’s it.

The "someone" who has to do something is YOU. Once you have the NHS App (in ENGLAND & etc. as pointed out countless times already in this thread), you apply to your GP Practice to have access to your Medical Records. Where we are, you need to set up an account with an intermediary online system called PatientAccess, which involves a bit of security clearance activity with your surgery. Other areas may use different systems but the principles should be similar. You should be able to start this process on your Practice web-site, or ask for details at your local Pharmacy. PatientAccess in itself gives you access to various aspects of your Medical Record, in our case history back through nearly 20 years of test results, clinical meetings, allergies, medications, viewing - not making, unfortunately- appointments etc. Once this is done, the NHS App connection is fairly straightforward, and if you have any Hospital records, limited connection to these happens behind the scenes, all done via your NHS Number. I've had Blood Sugar and Cholesterol issues in the past year, and when this was flagged up last Summer, I was immediately able to look-up test result histories and spot trends within ostensibly "Normal" data. I even identified a time of my life when I was addicted to Snickers bars!

Blushingm · 01/08/2025 17:43

Your levels were in normal range - as your results wouldn’t be flagged

FinancialThyme · 01/08/2025 17:43

MyUmberSeal · 01/08/2025 17:42

I don’t think the OP can get the app, she’s said that a few times. She’s in Scotland.

Yes. I know. That’s why I said “I’m sorry people can’t read. YANBU”.

MyUmberSeal · 01/08/2025 17:42

FinancialThyme · 01/08/2025 17:40

Honestly OP, just get the app!

I’m sorry people can’t read. YANBU. Unfortunately, doctors aren’t expected to prevent ill-health even where there are clear warning signs.

I went to the GP when I began gaining weight for no apparent reason. They said I was still healthy so not to worry, I went again when I was overweight, they said I’m not that far off normal so not to worry. Then I had other symptoms and all of them were apparently caused by me being obese.

Eventually, I went private and they found the problem. I got treatment and the weight fell off again. Turns out, a fair few of my symptoms were caused by nothing to do with my weight and once I was back to a healthy weight, they were treated and I’m fine again.

There needs to be a bigger focus on helping people stay healthy!

I don’t think the OP can get the app, she’s said that a few times. She’s in Scotland.

FinancialThyme · 01/08/2025 17:40

Honestly OP, just get the app!

I’m sorry people can’t read. YANBU. Unfortunately, doctors aren’t expected to prevent ill-health even where there are clear warning signs.

I went to the GP when I began gaining weight for no apparent reason. They said I was still healthy so not to worry, I went again when I was overweight, they said I’m not that far off normal so not to worry. Then I had other symptoms and all of them were apparently caused by me being obese.

Eventually, I went private and they found the problem. I got treatment and the weight fell off again. Turns out, a fair few of my symptoms were caused by nothing to do with my weight and once I was back to a healthy weight, they were treated and I’m fine again.

There needs to be a bigger focus on helping people stay healthy!

OddBoots · 01/08/2025 17:40

It does seem that different people get different levels of information about tests from their GP. This is a screenshot from systmonline for some blood tests and the links you see give more information, for example the first link there is this one: https://labtestsonline.org.uk/tests/albumin

It doesn't seem like everyone in England gets that, never mind in Scotland.

To wish my GP practice had told me about this upward trend earlier?
LadyQuackBeth · 01/08/2025 17:28

I think this is the warning flag you were wanting rather than a chance missed - you aren't ill yet and are very much in the "make changes," zone rather than the unhealthy zone. You sound very capable and healthy and will be able to get this back down now you know.

polarband · 01/08/2025 17:23

@Harassedevictee Thank you it is very kind of you to post all this advice, it is much appreciated.

OP posts:
polarband · 01/08/2025 17:22

@Bunpea I'm really sorry to hear that and wish that hadn't been the case for you. More proactive information would be helpful for many of us.

OP posts:
Switcher · 01/08/2025 17:21

The NHS is a heap of crap. Replace the whole thing.

Bunpea · 01/08/2025 17:18

We are being let down by our GP practices IMHO.

I can see my test results on Systmone, but did not think to look and expected the GP would be in touch if there was anything untoward from the occasional blood tests I have had over the years. Too naive and trusting!

Earlier this year my GP out of the blue announced to me that I have stage 3 kidney disease, but somehow no one had mentioned to me that I ever had stage 1 or stage 2, when I perhaps would have been able to take action to slow or stop the progression. I am not medically trained, and don’t know how to interpret blood test results but looking back at previous blood test results, the trend was evident. I feel let down by my GP practice over this.

The older blood test results show reference ranges, which I think might give me a fighting chance of realising there was a problem. But this information is not on the results of more recent tests. It just seems unhelpful.