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AIBU?

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To wish my GP practice had told me about this upward trend earlier?

285 replies

polarband · 01/08/2025 14:45

I have used a blood pressure medication to treat migraines for several years now. As a result I need to go for blood tests and a BP check every 6 months as my BP tends to be low on this medication. The blood tests are mainly to check my kidneys but they do other checks as well, after each test I just call and they tell me everything's fine and I go again in another 6 months.

This time after my check I got called back in to speak to the doctor and was told I have high cholesterol and prediabetes. I asked him what could have caused the problem so suddenly and he said it hadn't been sudden and that if he looked at my blood test results over the past 6 years he could see that my cholesterol and blood glucose levels had been creeping up but its only now just crossed over into clinical diagnosis. I am fit, a healthy weight, a non smoking, non drinking, active woman with ideal blood pressure who eats a healthy whole food diet so when I was told my results were normal I thought that meant I was healthy not that things were getting worse.

I'm not mad that it's happened because these things do happen of course, I'm 50 now and there is type 2 diabetes in my family but I just wish they had told me earlier when this upward trend was noticed and I could have made some changes to prevent getting to this level. My GP just said they don't treat at anything below clinical diagnosis level and anything below that is in the healthy range and therefore normal.

Is it so unreasonable to think that they should flag up something like this to patients?

OP posts:
Enrichetta · 02/08/2025 23:38

TiptoeThroughTheToadstools · 02/08/2025 23:35

I tend to do one every 6 months or so, depending on how much I have needed medical assistance. I agree its ludicrous, but that's the system. It was just a suggestion for OP to get a more complete view of her medical history.

This is just bizarre! I assume you have raised this with the Practice Manager and the GP partners. What is their reasoning or justification for putting these obstacles in your way - sure they acknowledge that you have a legal right to your medical records?

TiptoeThroughTheToadstools · 02/08/2025 23:35

Enrichetta · 02/08/2025 22:56

And then….. what happens next time you have a test or an investigation?

It is totally ludicrous that patients should have to resort to SAR to obtain something that is rightfully theirs.

I tend to do one every 6 months or so, depending on how much I have needed medical assistance. I agree its ludicrous, but that's the system. It was just a suggestion for OP to get a more complete view of her medical history.

justasking111 · 02/08/2025 23:26

HostaCentral · 02/08/2025 23:24

The reason that Scotland and Wales doesn't have the app, is that they could, but chose not to, as the devolved governments, apparently, didn't want NHS England having access to their citizens health data, and it's an NHS England developed app. Heresay, but who knows?

Doesn't surprise me in the least.

HostaCentral · 02/08/2025 23:24

The reason that Scotland and Wales doesn't have the app, is that they could, but chose not to, as the devolved governments, apparently, didn't want NHS England having access to their citizens health data, and it's an NHS England developed app. Heresay, but who knows?

justasking111 · 02/08/2025 23:04

EsmeSusanOgg · 02/08/2025 23:03

Wish we had the NHS app in Wales

So do I

EsmeSusanOgg · 02/08/2025 23:03

RosesAndHellebores · 01/08/2025 14:49

They don't, which is why it's always wise to get copies of the results rather than a "fine". It's your health, we need to take personal responsibility for it.

Get the NHS app. The test results are uploaded to it and you can monitor personally.

Wish we had the NHS app in Wales

Enrichetta · 02/08/2025 22:56

TiptoeThroughTheToadstools · 02/08/2025 22:31

I asked for all my records, not 1 thing, the whole lot.

And then….. what happens next time you have a test or an investigation?

It is totally ludicrous that patients should have to resort to SAR to obtain something that is rightfully theirs.

TiptoeThroughTheToadstools · 02/08/2025 22:31

SelkieSeal · 02/08/2025 22:08

Right and who's got time to put in an SAR every time they get a blood test? Just because it's technically legally possible doesn't mean the average person can do it every time they need some info. Just give us the NHS app already, please, someone 🙏

I asked for all my records, not 1 thing, the whole lot.

SelkieSeal · 02/08/2025 22:09

gardenflowergirl · 02/08/2025 19:32

When these results are available on the NHS app you could have checked yourself, so you could have known anytime. I always look at my test results.

Tell me you haven't read the whole thread without telling me you haven't read the whole thread 🤣

SelkieSeal · 02/08/2025 22:08

TiptoeThroughTheToadstools · 02/08/2025 20:01

That is wrong, you can have a copy for yourself. I completed and SAR and recieved printed copy of everything the first time, and a CD of scanned documents the second time. This is information about you, they cant prevent you from having it.

Right and who's got time to put in an SAR every time they get a blood test? Just because it's technically legally possible doesn't mean the average person can do it every time they need some info. Just give us the NHS app already, please, someone 🙏

TiptoeThroughTheToadstools · 02/08/2025 20:01

Sundaybananas · 02/08/2025 19:52

When I asked for this I was told I would need to complete an SAR and wait for several months, at which point I would be allowed to come into the practice and sit with someone who would access what I requested on the computer. I wasn’t able to get any kind of download or printout, and I would have to be specific in what I was asking for at the time.

That is wrong, you can have a copy for yourself. I completed and SAR and recieved printed copy of everything the first time, and a CD of scanned documents the second time. This is information about you, they cant prevent you from having it.

Sundaybananas · 02/08/2025 19:52

TiptoeThroughTheToadstools · 02/08/2025 19:44

Did you know you can ask your GP for a copy of your medical records? You can have it all, or specify something particular ie blood pressure. They are obligated to provide them and usually charge £10 fee. YANBU your GP should have told you. I similarly have to go see the nurse for an MOT and she always tells me if my tests change, in any direction. Its not about whether they decide to treat it, its about you being informed about your own health. If it were me, I would complain.

When I asked for this I was told I would need to complete an SAR and wait for several months, at which point I would be allowed to come into the practice and sit with someone who would access what I requested on the computer. I wasn’t able to get any kind of download or printout, and I would have to be specific in what I was asking for at the time.

TiptoeThroughTheToadstools · 02/08/2025 19:44

polarband · 01/08/2025 14:45

I have used a blood pressure medication to treat migraines for several years now. As a result I need to go for blood tests and a BP check every 6 months as my BP tends to be low on this medication. The blood tests are mainly to check my kidneys but they do other checks as well, after each test I just call and they tell me everything's fine and I go again in another 6 months.

This time after my check I got called back in to speak to the doctor and was told I have high cholesterol and prediabetes. I asked him what could have caused the problem so suddenly and he said it hadn't been sudden and that if he looked at my blood test results over the past 6 years he could see that my cholesterol and blood glucose levels had been creeping up but its only now just crossed over into clinical diagnosis. I am fit, a healthy weight, a non smoking, non drinking, active woman with ideal blood pressure who eats a healthy whole food diet so when I was told my results were normal I thought that meant I was healthy not that things were getting worse.

I'm not mad that it's happened because these things do happen of course, I'm 50 now and there is type 2 diabetes in my family but I just wish they had told me earlier when this upward trend was noticed and I could have made some changes to prevent getting to this level. My GP just said they don't treat at anything below clinical diagnosis level and anything below that is in the healthy range and therefore normal.

Is it so unreasonable to think that they should flag up something like this to patients?

Did you know you can ask your GP for a copy of your medical records? You can have it all, or specify something particular ie blood pressure. They are obligated to provide them and usually charge £10 fee. YANBU your GP should have told you. I similarly have to go see the nurse for an MOT and she always tells me if my tests change, in any direction. Its not about whether they decide to treat it, its about you being informed about your own health. If it were me, I would complain.

ThegargenofEden · 02/08/2025 19:42

gardenflowergirl · 02/08/2025 19:32

When these results are available on the NHS app you could have checked yourself, so you could have known anytime. I always look at my test results.

Surely you're at the wind up?

gardenflowergirl · 02/08/2025 19:32

When these results are available on the NHS app you could have checked yourself, so you could have known anytime. I always look at my test results.

Jumpers4goalposts · 02/08/2025 19:02

I got told at my last blood test that they thought I had a (non serious) genetic disorder which impacts my blood iron levels, I was really surprised as I have regular blood tests because or anaemia, the doctor said you can see it in the results for the last 20 years, I can’t believe no one said anything?

GiveDogBone · 02/08/2025 18:31

Doctor was entirely correct and there’s no evidence anything you would have done would have changed any outcome. I mean imagine if your blood pressure had been trending in one direction, they wouldn’t have treated you until it reached certain trigger levels.

FWIW, I have high cholesterol but have always eaten a low fat diet. I’ve been on statins for 15 years which control it, and the dosage has been increased whenever it gets too high.

PensionedCruiser · 02/08/2025 15:36

ThegargenofEden · 02/08/2025 14:16

I asked for my recent cholesterol levels at a face to face checkup yesterday (booked in to discuss my high cholesterol that was picked up accidentally) and they told me they couldn't access that part of the system so I had to book and see a GP!

I was offered yesterday's appointment as I received a call from the surgery recently to tell me my cholesterol was severely high and they wanted to start me immediately on a high dose of statin.

I was hoping to find out more about my cholesterol levels and why they might be like this/ how you manage it but the nurse I seen had absolutely no idea why I was there or that I was even on statins! She was only told to check my weight, height and take some bloods.

I'm really not looking forward to the Monday morning hunger games scenario, to call for an appointment and actually find out what on earth is actually going on with my health.

Like you, we have no online systems or appointment's, results etc. It's all very much still stuck in the dark ages and I'm in a major Scottish city.

If you don't laugh you will cry. I feel your pain OP.

I too, live in Scotland and ask the practice for a printout of my blood results whenever I travel - so if I need to consult a doctor while I'm away, they know my baseline. The receptionist usually says that they have to ask the doctor first, but I have never been turned down. BTW, the printout shows the last 3 test samples and is a full print of all the tests they do (or don't) for each sample they take.

ThegargenofEden · 02/08/2025 15:09

I think we need an app to block all the posters on here that keep telling her to check the app! 🤣🙈

justasking111 · 02/08/2025 14:44

sunshinechaser · 02/08/2025 11:03

I agree OP-it would have been beneficial to be in charge of your own health and know the results of your blood tests.
I’m in Scotland and my GP surgery prints off my blood results without any issue. However I would be prepared to strongly defend my right to know my own blood tests results if they refused me.
It pisses me off so much that NHS Scotland can’t just adapt the app available in NHS England-as usual the SNP has to make everything here ‘more Scottishy’ and meantime we lose out!

Scottishy 😂😂😂. Ours will have to be bilingual welshy if it ever turns up.

ThegargenofEden · 02/08/2025 14:16

polarband · 01/08/2025 17:05

@MyDeftDuck As has been said now by myself and multiple other people these services are not always available in Scotland and the culture towards requests for test results can be downright hostile. My GP practice offers neither access to test results, appointments or records via the website or SystmOnline. The only option they have is for repeat prescriptions.

I asked for my recent cholesterol levels at a face to face checkup yesterday (booked in to discuss my high cholesterol that was picked up accidentally) and they told me they couldn't access that part of the system so I had to book and see a GP!

I was offered yesterday's appointment as I received a call from the surgery recently to tell me my cholesterol was severely high and they wanted to start me immediately on a high dose of statin.

I was hoping to find out more about my cholesterol levels and why they might be like this/ how you manage it but the nurse I seen had absolutely no idea why I was there or that I was even on statins! She was only told to check my weight, height and take some bloods.

I'm really not looking forward to the Monday morning hunger games scenario, to call for an appointment and actually find out what on earth is actually going on with my health.

Like you, we have no online systems or appointment's, results etc. It's all very much still stuck in the dark ages and I'm in a major Scottish city.

If you don't laugh you will cry. I feel your pain OP.

QuinionsRainbow · 02/08/2025 13:26

TheEllisGreyMethod · 01/08/2025 18:31

Sorry op, it's really rubbish. With some good diet changes you'll be able to get it under control. British heart foundation has some great resources on cholesterol lowering diet, and ask to be referred to your local t2 diabetes program like xpert.

On the strength of my raised HbA1c and cholesterol levels, my GP referred me to a scheme run by Liva-Health, funded by the NHS Diabetes Prevention Programme. I have just completed their 9-month programme, largely successsfully, although the programme materials and support were largely cr*p.

PensionedCruiser · 02/08/2025 13:11

Oliverthecat01 · 02/08/2025 06:21

If your lifestyle is as you describe in your post, there isn't much you could do in terms of change to prevent these changes from happening. Sometimes this isn't preventable - there's a big genetic component as well as lifestyle factors involved, and it sounds like you've got the lifestyle bit covered, which only leaves genetics, and there's nothing you can do about that.

Don't forget that age, too, is a big component in these changes.

sunshinechaser · 02/08/2025 11:03

I agree OP-it would have been beneficial to be in charge of your own health and know the results of your blood tests.
I’m in Scotland and my GP surgery prints off my blood results without any issue. However I would be prepared to strongly defend my right to know my own blood tests results if they refused me.
It pisses me off so much that NHS Scotland can’t just adapt the app available in NHS England-as usual the SNP has to make everything here ‘more Scottishy’ and meantime we lose out!

PensionedCruiser · 02/08/2025 09:55

The prediabetes level IS when your glucose level becomes cause for concern. It's not inevitable that it will becomefull blown diabetes. This is exactly the time to take action.

I have more frequent blood tests for a toxic medication. It is only when levels of a particular test hit a specific threshold that they look at previous results to determine a trend and a course of action. Hope this helps.

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