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Original poster

Informed consent

82 replies

CokeEverything · 27/07/2025 13:56

I'm making this post as something has been bothering me for a while.

I've been watching uploads on social media of a granddaughter posting videos of her grandmother who is in late stages of dementia.

The videos are touching and very moving. They are raising awareness of dementia as they are recieving many views. The granddaughter who uploads them is also very informative and gives some excellent advice how to handle the disease.

I could go on and on about how positive the videos are.

The niggle I have is informed consent and how this works for the lady who is the centre of these weekly recordings.

She doesn't understand she's being filmed. She doesn't know thousands of people are watching her every week. She can not unconsent to any previous consent she has previously given.

How do others feel about this?

I do enjoy the videos and I like the granddaughter and how she interacts with her lovely, witty nan. I can see there is genuine love, hurt and care there.

I'm on the fence if I should stop watching these videos as it's wrong or not. Or to keep watching them as it's lovely and heart-warming to watch but sometimes makes me feel uncomfortable. It's greatly raising awareness of dementia and will definitely be helping care givers with the skills and support how to care for their loved ones with this cruel disease.

OP posts:
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mightbetheone · 29/07/2025 22:19

CokeEverything · 29/07/2025 12:46

UPDATE

The granddaughter just posted a video entitled 'A Big Announcement'. I assumed she was doing the correct thing and was going to say that she is stopping filming her nan and posting these videos.

No.

She's explaining that she is now having two completely separate channels. A lifestyle vlog and a channel just for nan video content where she will continue the narrative of raising awareness of dementia.

I don't know what to make of this decision but it seems to me she's getting her ducks in a row for when her nan passes on and trying to make her brands more sustainable.

So the BIG ANNOUNCEMENT wasn't what I thought it was sadly.

I saw this earlier. Prior to this I always thought she was a nice character. Ethics still questionable but she seemed genuinely loving and supportive towards her gran and the whole raising awareness thing. Now she just feels like another wannabe influencer.

lynx67 · 29/07/2025 14:56

I have reported this channel to youtube. After watching these vidoes im shocked it is allowed to happen. No matter how fuffy it seems on the serface.

I suggest others follow suit.

https://www.youtube.com/@Little_Jessx

Kinneddar · 29/07/2025 14:54

CokeEverything · 29/07/2025 14:51

When I say she doesn't have any idea she's being filmed. She truly has no idea.

Show quote history

Definitely not. Theres no way she'd give consent for people to see her like that

The other creator tells her gran sometimes that shes filming but she hasn't a clue what she means. You can see shes just agreeing when she talks about TT etc

Original poster
CokeEverything · 29/07/2025 14:51

Kinneddar · 29/07/2025 14:39

@CokeEverything

Oh my Lord. Ive just seen some of her videos. Theyre awful

The other creator i thought you mentioned visits her gran but shes lucid a lot of the time, is up, dressed and they go out for lunch etc. Granny very often clearly has no clue what her grand daughter is talking about but agrees with her

Albeit its still filming without consent it has a very different feel to it than the one you're highlighting

When I say she doesn't have any idea she's being filmed. She truly has no idea.

OP posts:
Kinneddar · 29/07/2025 14:39

@CokeEverything

Oh my Lord. Ive just seen some of her videos. Theyre awful

The other creator i thought you mentioned visits her gran but shes lucid a lot of the time, is up, dressed and they go out for lunch etc. Granny very often clearly has no clue what her grand daughter is talking about but agrees with her

Albeit its still filming without consent it has a very different feel to it than the one you're highlighting

Kinneddar · 29/07/2025 14:30

Thats the first time I've seen her but she came up on my fyp just now

The creator i thought you were talking about who also films her grandma with dementia made an identical announcement at the weekend.

Original poster
CokeEverything · 29/07/2025 12:46

UPDATE

The granddaughter just posted a video entitled 'A Big Announcement'. I assumed she was doing the correct thing and was going to say that she is stopping filming her nan and posting these videos.

No.

She's explaining that she is now having two completely separate channels. A lifestyle vlog and a channel just for nan video content where she will continue the narrative of raising awareness of dementia.

I don't know what to make of this decision but it seems to me she's getting her ducks in a row for when her nan passes on and trying to make her brands more sustainable.

So the BIG ANNOUNCEMENT wasn't what I thought it was sadly.

OP posts:
Charityshopqueen · 28/07/2025 21:50

It's abuse imo. My mil had dementia and this would be the last thing I'd consider. I protected her more than anything.
The world's gone mad. So many attention seeking bastards.

grumpygrape · 28/07/2025 21:43

CokeEverything · 28/07/2025 21:33

Yes it's the correct video.

I don't get the 6k marathon either. At all.

Show quote history

Thanks, I thought I'd got the right one.
As I said in a previous post, I'd be interested to know what her purpose is.
Definitely felt dirty and squirmy after watching, and would not put my husband through this.

Kinneddar · 28/07/2025 21:43

CokeEverything · 28/07/2025 21:24

No I'm not talking about this one. I've never heard of this family.

It just shows though that it's going to become more and more common and the norm. I wouldnt want this for me.

Quite depressing that more than one person fits the description so well

Original poster
CokeEverything · 28/07/2025 21:33

grumpygrape · 28/07/2025 21:31

I put my big girl pants on and watched a few, one of which was where a girl was banging on about running a 'marathon' of 16 k. Uh ?
Please God let me die before anyone starts talking to me in that bloody sing song voice.
Don't know if I got the right vlogger but I felt dirty after watching a few.

Yes it's the correct video.

I don't get the 6k marathon either. At all.

OP posts:
grumpygrape · 28/07/2025 21:31

I put my big girl pants on and watched a few, one of which was where a girl was banging on about running a 'marathon' of 16 k. Uh ?
Please God let me die before anyone starts talking to me in that bloody sing song voice.
Don't know if I got the right vlogger but I felt dirty after watching a few.

Original poster
CokeEverything · 28/07/2025 21:24

No I'm not talking about this one. I've never heard of this family.

It just shows though that it's going to become more and more common and the norm. I wouldnt want this for me.

OP posts:
Kinneddar · 28/07/2025 21:21

Sounds like a different account then but with the same content. Grandma being used for content

Kinneddar · 28/07/2025 21:20

The one im referring to has a Grandma with dementia. She's 90. Her daughter (the Tiktokers) mother died last year and Grandma doesn't know. She posts a lot of takeaway videos with her partner who she calls Mr (surname) and ofcourse lots of content with Grandma, who's about to get her own page

Is this not the one youre talking about

Original poster
CokeEverything · 28/07/2025 21:16

Kinneddar · 28/07/2025 21:11

Yes its the same person. Theres a link on her page to her salon.

Shes the one with the grandma who has just turned 90 and has no idea her daughter has died

Id be surprised at there being 2 with the same name its not a common name

But that aside the Grandma of this one is definitely alive & well

Edited
Show quote history

This nans daughters hasn't just died. She's alive and well. She just chooses not to feature in the videos. (SERIOUSLY) You hear the voice, see the hands but NEVER the face.

OP posts:
Original poster
CokeEverything · 28/07/2025 21:14

What I know is that this granddaughter tried to break into the vlogging platform sometime ago. (I've seen comments mentioning this) and it did not work out.

Sometime later she pops up again with these videos claiming to raise awareness of dementia, featuring her nan, who is in the late stages and bedbound. She has a PO box for people to send cards and gifts to celebrate the nans birthday. Make of that what you will.

Alongside the 'nan content' as she calls them, she also posts personal lifestyle vlogs. She showcases shopping hauls, weekend trips away, skin care routines, movie nights. You get the picture. Bog standard social medial vlogging content.

She also has began posting videos of her singing songs which is pretty innocent but to me, points to a back up plan when nan is no longer with us and she still needs content, views and clicks.

It could all be so innocent and as a way for this girl to document and store memories and as she explains, to help with her mental health but like previously discussed, somethings off.

OP posts:
Kinneddar · 28/07/2025 21:11

CokeEverything · 28/07/2025 20:49

Salon? Are you sure this is the correct girl? There are two people with the same names posting content. It seems one of the girls nan did have capacity to consent to feature on films and had now passed away.

It's the other vlogger who's nan doesn't understand.

Show quote history

Yes its the same person. Theres a link on her page to her salon.

Shes the one with the grandma who has just turned 90 and has no idea her daughter has died

Id be surprised at there being 2 with the same name its not a common name

But that aside the Grandma of this one is definitely alive & well

TaupeLemur · 28/07/2025 21:07

CokeEverything · 27/07/2025 14:02

The reason I've decided to write this post is that I've just seen a video of the granddaughter explaining that she is going to do a 'trend' where she leaves the camera in the room for 1 minute and sees what her nan does in the room for the minute alone.

The nan doesn't know she's being filmed nor does she understand. She's bed bound so it's just a video of her talking to herself in what's being referred to often as 'The dementia bubble'.

The word 'trend' has really left me uncomfortable.

No, no and no! That’s awful.

RepoTheGeriatricOpera · 28/07/2025 21:04

I have her blocked for a few reasons, consent being one.

However it's very difficult in some situations, for example parents posting for help for their child, I've seen some amazing things happen, surgeons helping out, money being raised, equipment being provided, treatments being given and lives being improved, even saved.

To me there's a massive difference between posting for help, and posting for views and gifts (and attention).

Original poster
CokeEverything · 28/07/2025 20:57

Kinneddar · 28/07/2025 18:45

@smallglassbottle Could you DM me first please. This isnt my main id and DMs are only done via your main id and I dont want them connected

Hi, which person are you thinking this is? There are two posters, very different ethics.

One nan can consent
One nan can't.

Both granddaughters have the same name.

OP posts:
grumpygrape · 28/07/2025 20:56

I think the Consent issue is interesting and probably complicated. I wonder if it’s a bit like Wills which are void after, say, marriage, so maybe Consent decisions would be negated by the activation of an LPoA ?

I really don’t know but I’d be interested to find out. I still can’t decide whether to try and find these videos online.

smallglassbottle · 28/07/2025 20:53

CokeEverything · 28/07/2025 20:49

Salon? Are you sure this is the correct girl? There are two people with the same names posting content. It seems one of the girls nan did have capacity to consent to feature on films and had now passed away.

It's the other vlogger who's nan doesn't understand.

Show quote history

Can you check with kinnedar before I contact safeguarding? Don't want to get the wrong person.

smallglassbottle · 28/07/2025 20:51

Kinneddar · 28/07/2025 18:45

@smallglassbottle Could you DM me first please. This isnt my main id and DMs are only done via your main id and I dont want them connected

👍🏻 done

Original poster
CokeEverything · 28/07/2025 20:49

Kinneddar · 28/07/2025 15:20

Its actually very easy to find out where she is. She has a business page with her salons address on it

Show quote history

Salon? Are you sure this is the correct girl? There are two people with the same names posting content. It seems one of the girls nan did have capacity to consent to feature on films and had now passed away.

It's the other vlogger who's nan doesn't understand.

OP posts: