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To think “neurodivergent” is being used too casually and too often?

192 replies

MauveOrca · 06/07/2025 11:42

Every quirk or preference doesn’t mean you’re ND. I know diagnoses help some people but it feels like it’s now shorthand for anything outside the mainstream. Can we not just have variation without a label?

OP posts:
Confuuzed · 06/07/2025 21:17

beesandstrawberries · 06/07/2025 21:04

I have to agree. My son is obviously neurodivergent (as told by health visitors, doctors he’s seen both at the gp and hospital, the school etc) but because hes been awaiting his diagnosis for 4 years now on the list - I say ‘suspected autism/adhd’. It’s ridiculous because I know someone who is all on the Facebook groups for autism and claims her daughter is autistic and plays on it, but she has NEVER took her even to the gp to seek help. She plasters her daughter with this medical condition but has never sought help for testing for a diagnosis.

Yet my poor son is only in part time school (even with an ehcp) because his needs are so severe and he attacks me and himself daily to the point where I have bald spots on my head, he also has vicious daily meltdowns which basically end up in panic attacks and he runs into roads on a daily basis. But hey, because everyone labels their child as neurodivergent and are blocking up the waiting lists, genuine people like my son can’t get a diagnosis .

Other ND children aren't the problem. The problem is massive underfunding in every area that affects ND children leading to years long waiting lists. You're directing your anger at the wrong people, but i guess berating other ND children and parents on mumsnet is an easier target than lobbying the government for change.

I'm also confused as to how this other woman is taking up space on a waiting list if as you've said, she hasn't been to the GP. That's how you get on the waiting list. So she can't be both taking up space on a waiting list and also never have been to the GP.

While you're writing to your MP to lobby for help for more healthcare for ND children, id suggest you get your son on the right to choose pathway.

Also - who are you to decide all these other people aren't ND but your kid is?

L1ghyn1ngBug · 06/07/2025 21:17

aGirlLikeJesamine · 06/07/2025 21:12

1% of children have an autism diagnosis, 5% adhd. “Neurodiversity” isn’t a diagnosis it’s an internet catch all phrase.

Goody2ShoesAndTheFilthyBeast · 06/07/2025 21:14

aGirlLikeJesamine · 06/07/2025 20:39

ok they dont need to hide their quirky, individual behaviour, but do they really need to embrace it so much, and mention it - it feels like, who ISNT neurodivergent to me

Have you considered that people may mention it because they are hoping to be treated with a little understanding rather than being treated like shit for being different?

It is outrageous that anyone should feel they need to disclose their medical information for a chance of being treated with thoughtfulness but sadly NT people are not generally known for their willingness to embrace ND.

If youre not disabled you're fine, if you're disabled enough you get the pity, the bless you's, the tick box inclusion and the performative compassion but if you're in the 'not nt enough not nd enough' section then you can either tell people your struggles or you can get laughed at, sneered at, bullied and ostracised.

My younger son is much more severely autistic than my older son. He gets more understanding from strangers than my older son, who is autistic enough to be seen as weird and be rejected but not autistic enough for the NTs to get themselves some kindness stickers on their inclusion star chart.

I dont blame any autistic person for doing what they need to do to get by.

aGirlLikeJesamine · 06/07/2025 21:12

15% @L1ghyn1ngBug
Raising Teens: Neurodiversity | Make Good Trouble

L1ghyn1ngBug · 06/07/2025 21:12

aGirlLikeJesamine · 06/07/2025 21:08

most of those on the waiting lists are diagnosed tbh

Because they are screened beforehand.

aGirlLikeJesamine · 06/07/2025 21:09

i read it online @L1ghyn1ngBug
Are we becoming a more neurodiverse nation? - Options Autism

L1ghyn1ngBug · 06/07/2025 21:09

aGirlLikeJesamine · 06/07/2025 21:03

20% of the population consider themselves neurodiverse.

Says who,you? Who cares anyway. Neurodiversity isn’t a diagnosis. It’s an internet catch all phrase.

aGirlLikeJesamine · 06/07/2025 21:08

most of those on the waiting lists are diagnosed tbh

aGirlLikeJesamine · 06/07/2025 21:04

cloudyblueglass · 06/07/2025 20:59

Oh bless.

it is not just in this particular context,
i read on another thread, Tell me you know nothing about working for the NHS without telling me you don’t know what it’s like

ergh

do you actually speak to people like this?

beesandstrawberries · 06/07/2025 21:04

I have to agree. My son is obviously neurodivergent (as told by health visitors, doctors he’s seen both at the gp and hospital, the school etc) but because hes been awaiting his diagnosis for 4 years now on the list - I say ‘suspected autism/adhd’. It’s ridiculous because I know someone who is all on the Facebook groups for autism and claims her daughter is autistic and plays on it, but she has NEVER took her even to the gp to seek help. She plasters her daughter with this medical condition but has never sought help for testing for a diagnosis.

Yet my poor son is only in part time school (even with an ehcp) because his needs are so severe and he attacks me and himself daily to the point where I have bald spots on my head, he also has vicious daily meltdowns which basically end up in panic attacks and he runs into roads on a daily basis. But hey, because everyone labels their child as neurodivergent and are blocking up the waiting lists, genuine people like my son can’t get a diagnosis .

aGirlLikeJesamine · 06/07/2025 21:03

aGirlLikeJesamine · 06/07/2025 20:45

pretty sure it is more

20% of the population consider themselves neurodiverse.

Sheepsheeps · 06/07/2025 21:01

When it is used as an excuse for bad behaviour and lack of boundaries then absolutely, I agree, yes!
Otherwise, I believe the diagnosis is beneficial to help understand the needs and challenges that individual may face in everyday life so they can receive the necessary support available if the so want it.

cloudyblueglass · 06/07/2025 20:59

aGirlLikeJesamine · 06/07/2025 20:39

that phrase to me is so annoying and passive aggressive.

Oh bless.

Strawberrri · 06/07/2025 20:53

It’s self perpetuating because no one is going to post on mn that their DC is bright, has lots of friends, always chosen for the best role in the school play -do you think they could be NT? ….mind you

MissDoubleU · 06/07/2025 20:51

As an autistic woman I do dislike how interchangeably “ND” is used for meaning a specific diagnosis. ND can mean many, many things. From Autism to Dyslexic to Downs Syndrome to Bipolar.

I hate when people use it as such a broad blanket term thinking it means only “on the spectrum”

aGirlLikeJesamine · 06/07/2025 20:50

it isnt just parents seeking the diagnosis, it is teachers, so many of them

Fargo79 · 06/07/2025 20:49

Fearfulsaints · 06/07/2025 20:01

Yes the want was missing from my post. But that's exactly what I meant.

Uderstand neurodiversity is incredibly broad and I often can't be arsed to give personal medical information out to people.

I am sure they can't type out every neurodiversity on a flyer, but I also can't see how they can be friendly to such a broad range of needs that often contradict each other either. I dont find that organisations that say they are neurodivergent friendly seem any better or worse than others. It seems more about luck and understanding.

Ah OK. I'm sorry, I think I misunderstood your original comment and pounced on you a bit. Apologies.

I do agree that businesses pay lip service, but IME they do this even when they specifically name the condition i.e. "autism friendly" which I always know straight away will not be inclusive of my autistic child because they are generally only catering to the same small handful of needs that only some autistic people have. Not that I begrudge those people having their needs met whatsoever, but I think it shows there's a lack of real engagement with disabled people to dig a bit deeper into more of the barriers to participation that they face.

aGirlLikeJesamine · 06/07/2025 20:48

adhd is not even considered until after the age of 6 also

L1ghyn1ngBug · 06/07/2025 20:47

aGirlLikeJesamine · 06/07/2025 20:45

pretty sure it is more

Nope those are the stats. You can make your own up if you like.

aGirlLikeJesamine · 06/07/2025 20:47

perhaps it should be @L1ghyn1ngBug , instead of slamming people down with phrases like the one above.

PassOnThat · 06/07/2025 20:47

Disclosure - I am awaiting an ADHD diagnosis. When I look back at my childhood and time at school, I can pinpoint quite a few people who were just thought to be odd or 'off' in some way and bullied horribly for it. I suspect ND would be diagnosed in at least a couple of those cases nowadays. Can you not see how valuable it would have been for those children to have a better understanding of why their brains work in a particular way, and why they might need additional help connecting with their peers? In some cases, understanding is literally life-changing, as it removes the shame and the need to constantly mask and life becomes far easier when you just accept yourself (and your difficulties and limitations).

In my case, it would have been helpful to understand how my brain works at an earlier age, as it might have led to me making different decisions in life. For instance, as a child and teenager, I was quite immature compared to my peers which led to some social difficulties (and exhaustion caused by masking quite a lot of the time). I've since learned that actually this is quite common in children with ADHD - it's not unusual for them to be a few years behind their peers socially. My first career choice was somewhat of a disaster as it was an office-based job that didn't provide a sufficient level of sensory input and required too much in the way of executive function. I spent years over-compensating by working all hours to keep on top of things and driving myself to exhaustion and burnout. The anxiety almost led to a burnout. If I had known how my brain worked (and that it wasn't just some issue with me that could be solved by trying harder), I would never have chosen to pursue a career like that and would have gone into a quite different field of work.

L1ghyn1ngBug · 06/07/2025 20:46

aGirlLikeJesamine · 06/07/2025 20:44

but no its not helpful,
Tell me you know nothing about what it’s like to not fit in the world without telling me you don’t know what it’s like

i beg your pardon for those of us who are not fully and totally immersed in neurodiversity.

and actually isnt the saying, once you know one autistic person, you know one autistic person.

Not helpful to who? Helping the ignorant isn’t high on my priority list.

aGirlLikeJesamine · 06/07/2025 20:45

L1ghyn1ngBug · 06/07/2025 20:44

Yes not many. 1% of children are diagnosed with autism and 5% adhd. Many are the same children as it’s common to have both.

pretty sure it is more

aGirlLikeJesamine · 06/07/2025 20:45

unless i am mistaken, this is mumsnet.
not some autistic channel - please allow for ignorance

daisychain01 · 06/07/2025 20:44

MauveOrca · 06/07/2025 11:42

Every quirk or preference doesn’t mean you’re ND. I know diagnoses help some people but it feels like it’s now shorthand for anything outside the mainstream. Can we not just have variation without a label?

You've said it right there - it helps some people (actually millions of people) to reconcile and validate their experience of living with a ND condition.

so that being the case, anyone who gets fed up of people talking about Neurodiversity need to remind themselves that it isn't about them, they aren't the centre of the story and need to empathise with the struggles of other rather than doing an eyeroll.

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