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AIBU?

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AIBU To be worried sick about my daughter…

33 replies

HereMe · 22/06/2025 14:00

Hi everyone, Really hoping for a handhold please. I’m on my own and just feeling so down and alone.

My daughter has had medical issues for the past few years that we haven’t quite been able to get to the bottom of. She is 11.

She has stomach issues and has had countless tests. We have a gastro appointment again soon, but I’m just reaching a point where I am just so afraid. I’m trying to tell myself that if it was something serious, we would have answers by now. She has had ultrasounds, scopes, swallowing tests etc. but sometimes she is just so unwell.

I want her to be able to finally enjoy a childhood with this behind her, but we have been fighting to get answers for 3 years. She is on medication which really helps - omeprazole and an antibiotic to speed up her digestive system. But still, she is weaker than her friends, she is struggling with stamina. I’m actually in tears because I just can’t get this fixed. I’ve tried so hard for her. I feel somehow responsible. Maybe just guilt that I haven’t been able to fix this.

I don’t have any family around and I do have friends but I don’t feel I have anyone who truly understands what I am going through, and what she has gone through.

I am always being practical with any issue we face, but underneath, I am emotionally broken by it. I wish I could win the lottery and get her the best medical care and someone who will find answers for her.

I just need to make things better… but I can’t!

OP posts:
HereMe · 22/06/2025 14:34

Poopeepoopee · 22/06/2025 14:16

Has she got some good friends and peers?

Can you help to strengthen those for her? Encourage it, so as to take her mind off it. Glad the omeprazole helps.

She has some lovely friends… but she doesn’t like people to know about her health issues. She feels embarrassed about it and tries to hide it. I think it would help her for her to have some friends she can open up to. But she is quite a private person with that sort of thing.

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HereMe · 22/06/2025 14:31

Her main symptom has been nausea, which has been relentless until she started these meds. I’m so glad that has improved, but she threw up on Friday night. No sickness bugs going round school or anything, so no idea what caused that.

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HereMe · 22/06/2025 14:29

She does swimming and dancing. But is clearly weaker in both of those than the children her age. We haven’t been able to do much in the way of cardio type activities because we have been working hard to help her gain weight. She has sore knees all the time too.

The stomach issues don’t have any seasonal link, she has experienced them for years on end, with no relief, until these current medications. Today, she is tired and lying on the sofa and just looks off colour. Im living with that constant worry in the pit of my stomach. 😢

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PeriJane · 22/06/2025 14:27

I had a grumbling appendix for 4 and a half years starting at around 13 years old…..though was constantly misdiagnosed……told it was period pain, anxiety, all in my head etc. I had an endoscopy and saw countless GPs. I eventually had my appendix removed at 18 after an OOH GP sent me to hospital during a flare up, which obviously fixed the issue and I never had it again.

Tillow4ever · 22/06/2025 14:19

My son had stomach issues last year on the run up to his GCSE’s. We thought it might be anxiety as no obvious reason for it (drs tried all sorts of medications and nothing helped him which is why they thought anxiety). It seemed to improve towards the end of the year (Dec time). It’s recently started up again. No reason this year to think it’s anxiety related - I have found a link to hayfever though. I’m wondering as it seems seasonal of it could be that - have you looked at that for your daughter?

I agree if it were something serious you’d have found it with all the tests etc. it’s not much comfort though when you just don’t know what’s wrong. I hope you get answers soon.

ThatGladTiger · 22/06/2025 14:17

I can’t help with the stomach issues, hopefully more tests can get to the bottom of it.

Does she do any form of exercise? I find that when I’m active it really improves stamina and fatigue. Maybe just go on a short walk a day and slowly build up how far you walk? Little steps like this may help.

Poopeepoopee · 22/06/2025 14:16

Has she got some good friends and peers?

Can you help to strengthen those for her? Encourage it, so as to take her mind off it. Glad the omeprazole helps.

HereMe · 22/06/2025 14:14

bumping post… sorry. I just really need someone to talk to.

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