Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be very anxious about the assisted dying bill?

362 replies

bipbopdo · 22/06/2025 10:45

I’m surprised by how anxious I am about it. I don’t agree with it at all and I’m not sure there will ever be enough safeguards to justify making it legal. As it currently stands, it’s theoretically possible for someone with anorexia to qualify.

It took less than ten years for Canada to expand eligibility well beyond the original criteria. Assisted dying now accounts for one in twenty deaths there. I’m scared that could happen here.

OP posts:
MarySueSaidBoo · 22/06/2025 20:57

I think it's a sad reflection on society today that people are more worried about those who may be coerced into this choice rather than those in horrific pain wanting to end their days in a peaceful and calm way of their choice. 100 k people a year die in this country without access to any palliative care, and the palliative care that is available is a postcode lottery. Having experienced the system when my Dad died of cancer, I wholeheartedly give thanks for this bill.

Cherrytree86 · 22/06/2025 20:55

CorneliaCupp · 22/06/2025 20:47

Of course not, which is why I would never say it in such a scenario. That would be heartless and massively inappropriate.
In an intellectual debate, such as this, it is factually accurate though.

@CorneliaCupp

this is about real people and real lives and real suffering, it’s not purely some intellectual philosophical debate. Suffering should be ended if that’s what the person wants. It’s the humane thing to do. END OF.

Cherrytree86 · 22/06/2025 20:53

CorneliaCupp · 22/06/2025 20:16

Disabled people, and others, are told over and over again that they are a drain on society, that they have nothing to offer, that they are weak, useless, a burden. They are made to jump through hoops for even the smallest amount of totally inadequate support.
We then introduced a bill with inadequate safeguards, that gave these people a way to end the life that we, as a society, made unbearable.
People will absolutely be coerced into ending their lives because of this bill. That is why I think suffering will increase.

@CorneliaCupp

the bill is for people with a terminal illness with a limited time left to live. So im not sure why you think suffering for disabled people should increase? Surely as well they should be afforded the same opportunity as anyone else to end their life if they were terminally ill and wanted to put a stop to their suffering?

mutinyonthetwix · 22/06/2025 20:48

noodlebugz · 22/06/2025 20:34

Honestly this seems like such a niche argument to impose a blanket prohibition on everybody from being allowed an assisted death.

It's argument seems to be that there may be a person who is assessed by two doctors as being terminally ill with only six months left and is suffering intolerably as a result of that terminal illness and who decides as a result they want to die but they also have depression or some similar condition and if the person didn't take an assisted death they might have cured the person's depression in the last six months of their life and they would want to wait to die of their terminal illness instead.

I can't deny it's an impossible scenario but I am dubious it's something that plays out enough to justify taking choice away from everyone without exception.

And, like so many other critics, they say there aren't enough safeguards but don't actually say what safeguards would satisfy them.

CorneliaCupp · 22/06/2025 20:47

Cherrytree86 · 22/06/2025 20:45

@CorneliaCupp

Im sorry but this “It is not possible to completely eradicate suffering, it is a part of life” sounds incredibly flippant and heartless. If someone said that to you when you were in unbearable hideous pain and suffering, I don’t think you would like it.

Of course not, which is why I would never say it in such a scenario. That would be heartless and massively inappropriate.
In an intellectual debate, such as this, it is factually accurate though.

Cherrytree86 · 22/06/2025 20:45

CorneliaCupp · 22/06/2025 19:38

i don’t care what anyone says, my view is that people whose illness means they will only get worse not better, who are in pain and misery, who have lost all dignity etc should not be forced to keep suffering if they don’t want to. How could you deny someone in that situation that basic righ
t?

  • The vast majority of people don't want to see anyone suffer, I certainly don't.
  • I would strongly support a huge increase in funding so that everyone who needs it has good access to quality palliative care. They don't at the moment.
  • It is not possible to completely eradicate suffering, it is a part of life
  • This bill will cause MORE suffering to the vulnerable in society
  • You yourself said that you don't care what anyone says, so why carry on talking about this? Nothing I could possibly say would be sufficient.

@CorneliaCupp

Im sorry but this “It is not possible to completely eradicate suffering, it is a part of life” sounds incredibly flippant and heartless. If someone said that to you when you were in unbearable hideous pain and suffering, I don’t think you would like it.

Absentmindedsmile · 22/06/2025 20:44

mutinyonthetwix · 22/06/2025 20:00

Seems pretty clear from it's most recent statement that I can see dated 16 May that its concern is how much money its members will get.

I haven’t seen that. Can you link to it here please? Ta

Laura95167 · 22/06/2025 20:42

I totally understand the anxiety and can never think about it without being conflicted.

On the one hand id never want a relative or loved one suffering if they could have peace and dignity.

But I do worry about a variety of scenarios. Most concerning is the idea a loved one may choose assisted dying, wrongly believing they're a burden. Id never want a loved one living in unending pain but id also never want them to feel that caring for them was in anyway a burden.

And I do worry some people may feel pressurised into it. I think it needs to be handled carefully to balance protection of the vulnerable with dignity and comfort for the ones certain its for them

Annoyeddd · 22/06/2025 20:39

Unfortunately there are some people who were so aggressively against this bill and there was someone trying to get everyone in our community to protest against it that quite a few of the vulnerable elderly were saying they wouldn't go into hospital as they would be bumped off as soon as they got through the doors. No amount of explaining the conditions of the bill and that it would take a few years to set everything up would persuade them otherwise

XenoBitch · 22/06/2025 20:36

Whomitmayconcern · 22/06/2025 20:16

Tbh we put our pets to death not because they are in pain but because it’s too expensive to pay vets to investigate, treat and care for them, including pain relief and not cheap or easy to care for them at home.

Not really. For some conditions, it is best to say goodbye to your pet before they have a very traumatic crisis such as a tumour rupturing or a cancer ridden bone breaking. There is the saying ' better a week too early than a day too late".
And some pets are just very old and no amount of meds can reverse that.

noodlebugz · 22/06/2025 20:28

@XenoBitch

Sedation is often for what’s called terminal agitation, which you can look up. You’d look for slightly different signs for pain in someone who’s dying and can’t tell you. Frowning, grimacing etc. Sometimes if they’re a bit agitated and you’re not sure you can give them a little bit of both - pain relief and sedation, the sedation tends to be a benzodiazepine which would make them feel a bit more relaxed.
It’s for the patients benefit as in the last couple of days of life it’s likely they’ve lost consciousness for the majority of the time anyway.
It’s a slight tangent, and probably shouldn’t derail the thread.
I hope that helps.

RebelMoon · 22/06/2025 20:27

Whomitmayconcern · 22/06/2025 20:16

Tbh we put our pets to death not because they are in pain but because it’s too expensive to pay vets to investigate, treat and care for them, including pain relief and not cheap or easy to care for them at home.

Speak for yourself. When I had my beloved dog put to sleep it was because he was suffering, his eyes told me he'd had enough. It had nothing to do with money and I resent anyone suggesting that. I'd have remortgaged my house if there was any hope of saving him.

irregularegular · 22/06/2025 20:25

I feel less anxious about the future as a result. Having seen the way my mother died, and heard similar stories from friends, I am very happy to know that I will have the option of skipping that horrible final stage.

XenoBitch · 22/06/2025 20:22

Ilovepastafortea · 22/06/2025 20:11

Very inciteful & well-put. I am a counsellor ( I have my own private practice) & volunteer for our local Hospice.

I spend my life assuring people in the Hospice that they will be allowed to die with dignity & pretty-much pain free. I will ask about their experience of pain, invite them to tell me about their most painful experience. We have a discussion about the worst of it & I can assure them that they will not suffer that level of pain as they will be sedated if it get's that bad & will be out of it & unaware. We meet pain head on, it's generally a fact & no shying away from it. But we can do things to help with it-even if that means keeping someone so sedated that they don't know what's going on around them.

I've held the hands of many, many people while they were dying, encouraged their relatives & friends to touch them, kiss them & talk to them even if they seem unresponsive. We also encourage music to be played - the patients favourite tracks (I have mine already listed) & encourage visitors to have a chat as if the (unresponsive) patient was responsive. I am certain that they know their loved ones are there & chatting to them..

Honestly the Hospice is the most positive place that I have ever worked.

Sedating the patient until the end... whose benefit is that for?

noodlebugz · 22/06/2025 20:20

Zimunya · 22/06/2025 10:57

Sorry you’re anxious, OP. Are you in a position where you feel the bill might affect you? As @unsync says, the bill is designed to provide safeguards, and choice. I'm in favour of it. To me it's like abortion - if you don't agree with it, you don't have to do it, but that doesn't mean you should strip body autonomy rights from other women. Likewise assisted dying - if you don't approve or agree for moral or religious reasons, that's absolutely fine, and I support your right to have no part of it. But that shouldn't mean that no-one else can choose it. I especially think of people with life limiting illnesses, living daily with unimaginable pain and discomfort. Who are we to sentence them to that sort of existence if they don’t want to be here anymore?

Women of child bearing age who might seek an abortion of often (not always due to domestic violence, mental health etc) less vulnerable than people who are terminally ill. Those people (again often not always) rely on family or carers, are financially vulnerable, have associated physical and mental health challenges which come with their diagnosis and prognosis. So unless the process is watertight and people can’t be coerced by family etc. into making a decision to end their life especially when money is involved, and our social care system is on its knees and good palliative care is a postcode lottery.

In a past role have seen family coerce patients who needed a care home but didn’t quite meet the criteria for fast track / long term funding into going home with their ‘care’ and come back with what we would consider harm from pressure ulcers, so I don’t believe everyone has good intentions and can be financially motivated.

To answer sometime else somewhere in the thread, in a specialist hospice setting, patients can be given enormous doses of analgesia to manage pain if warranted.

I’m not necessarily against assisted dying especially in circumstances and some conditions spring to mind such as locked in syndrome and MND where I imagine there would be greatest need.

But a blanket carte blanche does nobody any favours. Some conditions like dementia / frailty it’s notoriously hard to accurately pin down last 6 months of life.

CorneliaCupp · 22/06/2025 20:16

Disabled people, and others, are told over and over again that they are a drain on society, that they have nothing to offer, that they are weak, useless, a burden. They are made to jump through hoops for even the smallest amount of totally inadequate support.
We then introduced a bill with inadequate safeguards, that gave these people a way to end the life that we, as a society, made unbearable.
People will absolutely be coerced into ending their lives because of this bill. That is why I think suffering will increase.

Whomitmayconcern · 22/06/2025 20:16

Tbh we put our pets to death not because they are in pain but because it’s too expensive to pay vets to investigate, treat and care for them, including pain relief and not cheap or easy to care for them at home.

Ilovepastafortea · 22/06/2025 20:11

JustGotToKeepOnKeepingOn · 22/06/2025 19:48

It’s really not meant as a threat. No doubt we’d all choose to die peacefully in our sleep but the reality is that we do need to be prepared for that not to happen.

I would prefer to know that I have the choice to die on my own terms rather than have a longer painful life which is really just prolonging the inevitable.

Reading the opinions on this thread is really interesting as it’s clear that there are some people absolutely opposed to AD. As previously mentioned it is similar to the debate around abortion. You either agree with it or you don’t. And that’s fine. This is about choice. I’m glad I had a choice about whether I wanted to go ahead with my pregnancy and I’ll be very happy if I could also have the choice to end my life if I was terminally ill.

I also don’t think for one minute that if someone chooses not to have an AD that the NHS would provide anything less than the dignified death that the person chose.

Edited

Very inciteful & well-put. I am a counsellor ( I have my own private practice) & volunteer for our local Hospice.

I spend my life assuring people in the Hospice that they will be allowed to die with dignity & pretty-much pain free. I will ask about their experience of pain, invite them to tell me about their most painful experience. We have a discussion about the worst of it & I can assure them that they will not suffer that level of pain as they will be sedated if it get's that bad & will be out of it & unaware. We meet pain head on, it's generally a fact & no shying away from it. But we can do things to help with it-even if that means keeping someone so sedated that they don't know what's going on around them.

I've held the hands of many, many people while they were dying, encouraged their relatives & friends to touch them, kiss them & talk to them even if they seem unresponsive. We also encourage music to be played - the patients favourite tracks (I have mine already listed) & encourage visitors to have a chat as if the (unresponsive) patient was responsive. I am certain that they know their loved ones are there & chatting to them..

Honestly the Hospice is the most positive place that I have ever worked.

Zanatdy · 22/06/2025 20:07

I am fully in favour of it. Recently watched one of my best friends die, though she wouldn’t have qualified anyway as the cancer had already spread to her brain by diagnosis so she wouldn’t be classes as of sound mind. My dad died a slow and horrible death from a lung disease. I really don’t think the UK would expand like Canada for example.

If someone is diagnosed with terminal cancer and has 3 months to live, what benefit do you think it brings by making them suffer to the bitter end? I don’t get why anyone would say that it’s unreasonable to want to avoid a slow and painful death. At the end of the day, even the best palliative care doesn’t stop all pain. Sitting at someone’s bedside as they slowly day is horrendous. When my friend died in March we all wished that the end would come quickly, but it dragged out which caused more pain for everyone, and too much suffering and indignity for my poor friend.

WhereIsMyJumper · 22/06/2025 20:06

CorneliaCupp · 22/06/2025 20:05

This is a valid point because these are the experts in this area. Their opinion holds weight.

So…. What is their opinion??

CorneliaCupp · 22/06/2025 20:05

WhereIsMyJumper · 22/06/2025 20:01

Why don’t you tell us seeing as this keeps being used as a valid point although I can’t figure out why

This is a valid point because these are the experts in this area. Their opinion holds weight.

WhereIsMyJumper · 22/06/2025 20:05

CorneliaCupp · 22/06/2025 20:01

Why can’t we have BOTH an assisted dying bill AND increase funding for palliative care?
Just killing someone is far cheaper than keeping them alive. It is inevitable that AD will not lead to further funding for palliative care, when there is a cheaper option.
So just because it’s not possible to eradicate ALL suffering, that means we shouldn’t try and reduce it at all?
Of course we absolutely should. I don't think that this bill does this, on balance. For some people it would, for others it would increase suffering.
How will this bill cause more suffering to the vulnerable in societ
y?
I'll let Disability Rights UK answer that:

Our focus as a society should be to ensure that all citizens live well. This is not the case at present. Disabled people and those with health conditions find ourselves battling to get NHS treatments, receiving inadequate care and support and having limited access to palliative care.

The UK Government has been found guilty of ‘grave and systematic’ violations of Disabled people’s rights by the United Nations. This includes an increase in the reliance on institutionalisation, limiting our access to basic necessities, and dehumanising us as 'economic burdens' on society.

The COVID-19 pandemic vividly demonstrated the fragility of our rights in the UK as blanket Do Not Attempt Resuscitation notices were used, and our access to critical care was denied. 60% of COVID deaths were those of Disabled people.

Assistance to die should not be easier to access than assistance to live. Parliament and Government should not allow assisted dying when political choices undermine our lives, and rights, every day.

We recognise this is an issue many feel strongly about, and not everybody (including some Disabled people) will agree with our position.

However, until access to good quality support and services become the norm, we believe that opting for assisted dying may not be a real choice, and the proposed change in the law poses a danger to Disabled people.

So why can’t the funding that would have been used for palliative care for someone that chooses AD be allocated to those who didn’t choose it?

Why do you think it would increase suffering to some people?

That statement you quoted doesn’t adequately explain why the most vulnerable in society would suffer more. It highlights a lot of important points that need to be addressed, I agree. But I cannot see a valid argument in there for not allowing AD for those that want it.

RobertJohnsonsShoes · 22/06/2025 20:03

As someone who lost a loved one in a brutal and horrendous way I support it.

As a Social Worker it’s going to be an absolute nightmare and can already see the increase in SG alerts.

BIossomtoes · 22/06/2025 20:02

Theunamedcat · 22/06/2025 19:57

Legal capacity is different to actually understanding consequences my son will say he understands if he punches the door for example it will hurt (he plays VR this happens a lot) he still plays in the wrong spot and punches the door for over 12 months he has been playing VR in the wrong spot and punching the door (i do move him btw) but he would most likely be judged as having capacity in fact social services decided he could decide if he saw his father or not at age 8! Because "he knows his own mind" yes he does but he still doesn't get consequences

This is only relevant if he’s judged to have capacity to consent to medical treatment.