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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Would you depend on your child to care for another sibling?

86 replies

ellie09 · 12/06/2025 11:32

Hi all,

Just interested for your views on this as its something I have been thinking about recently.

DP has a younger brother who is 20 years old and has severe ASD and is nonverbal. He requires care 24/7, so somebody always needs to be in the house or supervising him.

DP has two other sisters. All siblings have ASD to varying degrees, although not severe.

DP's older sister (who is 33) cares for her younger brother every day while her mum works. She had been to university, and is trying to do some freelance work to fit around caring for her brother, but it is difficult to fit around her mums working hours.

I would assume if you went to the effort of getting a degree etc, that you would be wanting a career etc in the future.

Since her brother left school, the sister has been in the house all day with the brother while the mum works - for around 4/5 years now. The sister obviously still lives at home too.

I asked DP if she wouldnt want an opportunity to have a career, or have a relationship/own house as she is getting older. He said its not possible because she is brothers carer.

AIBU to think that if I had a child with severe needs, that it is ultimately up to me as a parent to provide those care needs, and I would never allow my child to sacrifice their career, relationships etc so I could work?

Obviously, I havent said anything to any of the family members, but its just some unspoken thoughts in my head.

OP posts:
Afewtimesagain · 12/06/2025 13:27

ellie09 · 12/06/2025 12:26

I dont know. He says he wouldnt be able to do it. His other sister works now in a different country.

I assume its because his sister is the eldest and its just been assumed this would happen

MAJOR red flag against your partner. Sounds like he has no sympathy for his sister who has had her life dictated by a child she didn't choose to have. It's not her job to be the carer of her sibling.

Afewtimesagain · 12/06/2025 13:23

It's entirely up to the parent. It's the risk you take when you have children, that they may not be well enough to look after themselves and it's the parents responsibility to do it. It's insane the poor daughter is getting this responsibility dumped on her.

ellie09 · 12/06/2025 13:22

Shinyandnew1 · 12/06/2025 13:20

@ellie09 would your partner and the other siblings be happy to speak to the parents and agree that the house is solely left to the caring sibling? She has sacrificed everything.

Its something I would bring up to advocate for her, yes.

I do think DP mentioned briefly in the past that his sister would be getting the house, in the event of their mum passing

OP posts:
ellie09 · 12/06/2025 13:21

WearyAuldWumman · 12/06/2025 13:12

A friend has told her grandchildren that it's their job to look after their cousin with Down's. (The cousin is an only child.)

I've bitten my tongue. I'm hoping that she just meant that they should advocate for the child.

My aunt has Downs Syndrome and my mum had never been given that burden

As my grandad got older, my mum offered to take her in and care for her, but my grandad said absolutely not, and in advance, got her assisted living care and now she is thriving in this environment.

Before she moved, she couldn't cook, clean etc but since moving, she now cooks her own meals, does laundry and chores etc, plus gets the addition of socialization with others.

Im not saying it works for all, but assisted living/residential care should be discussed in situations like this IMO

OP posts:
Shinyandnew1 · 12/06/2025 13:20

@ellie09 would your partner and the other siblings be happy to speak to the parents and agree that the house is solely left to the caring sibling? She has sacrificed everything.

ellie09 · 12/06/2025 13:18

Barrenfieldoffucks · 12/06/2025 13:11

OP, are you deliberately avoiding the questions around your partner's attitude here?

I am not saying I agree with it

Maybe it all goes back to misogyny and women being expected to do carer roles which is a wider societal issue?

Just to note, his younger sister also doesnt help or support.

OP posts:
WearyAuldWumman · 12/06/2025 13:12

A friend has told her grandchildren that it's their job to look after their cousin with Down's. (The cousin is an only child.)

I've bitten my tongue. I'm hoping that she just meant that they should advocate for the child.

Barrenfieldoffucks · 12/06/2025 13:11

OP, are you deliberately avoiding the questions around your partner's attitude here?

Shinyandnew1 · 12/06/2025 13:10

Fairly large house - think its a 5 bed as they all had their own rooms growing up

Well, I hope they leave it solely to the daughter who has got absolutely no income or pension.

Greenfitflop · 12/06/2025 13:09

His poor sister.
Says a lot about him that he thinks its her responsibility.
What a thoroughly selfish mother too.
That poor woman sacrificing her life for a sibling.

TiredMame · 12/06/2025 13:07

Always amazes me why people have so many kids when there’s clear SN with the first ones. It’s always 3/4 kids too. Very unfair on the siblings but as pp said the kids are probably groomed into it.

Sera1989 · 12/06/2025 13:07

I would only allow it if it was what the sibling truly wanted, they were an adult and there was a lot of discussion around it. I would definitely see it as my job to provide care for them and wouldn't expect it from siblings.
It's not the same but I've heard of parents having a second child in order to care for the first and I think it's awful to put that expectation on someone

IfYouPutASausageInItItsNotAViennetta · 12/06/2025 13:05

We used to know a family where there were parents in their 80s, a son with Down's and severe learning difficulties in his 40s and a daughter in her 50s who didn't have any disabilities.

It was heart-breaking hearing this middle-aged man running after and calling out for his mummy; seeing this exhausted elderly woman being run ragged by him and the knowing looks on his sister's face as she realised what would be coming to her before very long.

IfYouPutASausageInItItsNotAViennetta · 12/06/2025 13:00

ellie09 · 12/06/2025 12:26

I dont know. He says he wouldnt be able to do it. His other sister works now in a different country.

I assume its because his sister is the eldest and its just been assumed this would happen

How does he know that he would be summarily incapable of doing it - whereas his sister definitely can?

Does he think his sister is somehow luckier than him because she can do it?

usedtobeaylis · 12/06/2025 12:57

Instinctively I would feel it's an unfair burden but I don't know their circumstances. I wouldn't assume she wants a specific career though, not everyone studies with the intention of using it for a defined career.

Mazzika · 12/06/2025 12:54

On one level of course you're right, it's not fair. On another you didn't see what actual choices they had to pick from. It's possible it was the least worst, it's possible it suited her at the time etc.

You see a lot on here very black and white statements like I'd never give up work to be dependent on a man, I'd never go PT because pensions, I'd never let my child watch TV or eat a hotdog or choose not to go to school ("I'd just make them go, they have to so I can work"), I'd never let the sheets go more than 7 days without washing. I think that shows a lack of understanding of how limited other people's choice can be, what roads they have travelled to end up in these places.

I'm a SEN parent, I get judged left right and centre for what people assume are bad choices. Often it's not really a choice at all, but where we have ended up when Plan A through to Plan Y have failed. Years of raising very disabled children without sufficient support tends to exhaust family resources - not just financial but energy, mental health, physical health etc. It's easy for someone who's slept more than 4 hours a night for the last 20 years to judge someone who hasn't.

ellie09 · 12/06/2025 12:53

Poynsettia · 12/06/2025 12:45

If the sisters not working or putting into a pension she will have a miserable old age too. Perhaps siblings could all pay into a fund or trust for the unpaid carer.

Yes, very sad thought IMO

OP posts:
ellie09 · 12/06/2025 12:53

EmeraldShamrock000 · 12/06/2025 12:45

Does his mother own the house? If so, she will probably leave the house with DD.
My aunt looked after my uncle when my DGM died, the deal was aunt inherited the home.

Yes house is owned by MIL with no mortgage now either, completely paid off

Fairly large house - think its a 5 bed as they all had their own rooms growing up

OP posts:
EmeraldShamrock000 · 12/06/2025 12:45

Does his mother own the house? If so, she will probably leave the house with DD.
My aunt looked after my uncle when my DGM died, the deal was aunt inherited the home.

Poynsettia · 12/06/2025 12:45

If the sisters not working or putting into a pension she will have a miserable old age too. Perhaps siblings could all pay into a fund or trust for the unpaid carer.

Shinyandnew1 · 12/06/2025 12:40

Well, look at the facts in front of you, he's extricated himself from any caring responsibilities and let it land on his sister's shoulders, and he says nothing because it's in his best interest. So let's not beat around the bush - it'll be you.

Absolutely. I'd be livid with my partner if that was his attitude.

Crunchymum · 12/06/2025 12:36

I know someone who has had their whole life overshadowed by their disabled sibling (think to the extreme of not being allowed to go to parties / sleepovers / friends houses as her sibling couldn't "do the same). She has had to deal with a lot of administrative issues for her sibling from a very young age as English wasn't her parents first language.

She's now in her 30's, still lives at home (albeit in a granny annex - family are incredibly wealthy) and despite working FT she helps with her sibling most evenings and weekends. She has a long term partner but they have no plans to live together. Her parents are aging and she will need to take care of her sibling when they pass. As a couple they rarely go away for longer than a weekend and all the holidays they have taken in the past decade have been with her parents and sibling.

I think her parents have been absolutely disgusting by putting this level of burden and responsibility on her for her whole life. Of course she loves her sister and her parents and doesn't know any different. And of course there is a brother who has had none of these expectations places on him

As a mother of a disabled child it breaks my heart to think of my older 2 being penalised for their sisters disability. There is absolutely no expectations on them to take care of their sister. I want them to live full, independent, exciting and happy lives. I don't want their lives to be dictated by their sister.

ThePhantomoftheEcobubbleOpera · 12/06/2025 12:34

If anyone left work, it would be me or DP

Well, look at the facts in front of you, he's extricated himself from any caring responsibilities and let it land on his sister's shoulders, and he says nothing because it's in his best interest.

So let's not beat around the bush - it'll be you.

Shinyandnew1 · 12/06/2025 12:30

I assume its because his sister is the eldest and its just been assumed this would happen

I think that's a really shitty attitude of your partner, tbh.

I have a son myself and if I ended up with another child with complex needs, the responsibility would never fall on him. If anyone left work, it would be me or DP

It's not looking like it would be your DP, is it?

ellie09 · 12/06/2025 12:26

Shinyandnew1 · 12/06/2025 12:22

I asked DP if she wouldnt want an opportunity to have a career, or have a relationship/own house as she is getting older. He said it's not possible because she is brothers carer.

Does he think it's fine that he gets to have a career and family but his sister can't as she's the carer? Why her and not him?

I dont know. He says he wouldnt be able to do it. His other sister works now in a different country.

I assume its because his sister is the eldest and its just been assumed this would happen

OP posts: