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Death in nursing home - is this normal - a bit shocked.

245 replies

MistressoftheDarkSide · 29/05/2025 03:04

I'm posting here because I have no-one I can really contact at this time of night.

My MIL has been on palliative care for the last couple of weeks - end stage dementia and possible bowel cancer which wasn't investigated fully after long conversations with her GP. She stopped recognising anyone over 5 years ago. I saw her on Tuesday and it was heartbreaking.

I had a call just after midnight to say she had passed away, and basically the nurse who called immediately asked me to arrange for her to be removed immediately. I am two hours away and my father died in the middle of April, so I am in the middle of organising his funeral. I had mentioned at a meeting with tge funeral director on Tuesday afternoon that my MIL would likely be their next customer but hadn't formally engaged them in respect of her because from experience of several deathbeds one can never be sure how long these things will take and it felt disrespectful. To be frank I'm struggling emotionally with losing my Dad and my MIL became my sole responsibility when my DP died three years ago.

I'm posting because I'm so taken aback by the almost indecent haste of all this. The nurse said she had passed literally ten minutes before they called me.

Nobody explained to me any sort of procedure when I was there on Tuesday. I was asked if anything was in place and said I would make arrangements, but nobody said that if she passed in the night I would be expected to organise everything then and there. They were most insistent that they couldn't keep her till morning even.

Fortunately the funeral directors have a 24 hour line so the nursing home contacted them, but because they are out if area it's all being done through another firm in the interim until all paperwork is completed.

I don't want to over react if this is standard procedure and this is all my fault, so has anyone else had a similar experience? I was left feeling as though I've just done everything wrong, and I'm in bits to be honest. I can't contact anyone for support till the morning, so if anyone can talk me down I'd be really grateful.

OP posts:
cumbriaisbest · 29/05/2025 11:35

Cattenberg · 29/05/2025 11:28

That's awful, I'm so sorry.

Thanks and the doctor messed up the Death Certificate. I was beside myself.

BIossomtoes · 29/05/2025 11:33

C8H10N4O2 · 29/05/2025 11:28

That is appalling. I would be interested to know how good and bad experiences correlate with independent/small chain homes vs the big chains owned by private equity companies.

The most useful piece of advice we received when navigating this for the first time was focus on independents, don’t worry if the decor isn’t pristine. The chains all have pristine paintwork in the public areas but the independents had much lower staff turnover, more local staff and more engaged residents.

My positive experiences (both parents) were with Abbey Healthcare. I had some very minor gripes about their care while they were alive which were sorted immediately. I couldn’t fault the sensitivity post mortem.

GETTINGLIKEMYMOTHER · 29/05/2025 11:33

ButterCrackers · 29/05/2025 10:44

That’s a completely different situation to what we faced. When family arrived to collect her things on the same day she died her good clothes had gone as had her best toiletries. Her things had been there the day before. Our mother died in the night. The staff were asked but said that nothing had been taken from the room. It was disgraceful. This was a private nursing home. Not to go off topic on the thread.

Edited

Sorry, I hadn’t meant to imply that your case was similar, just the realities we hadn’t thought about. My aunt was self-funded, and we’d have supplied whatever she might have needed, but evidently other residents were not so fortunate. My Dm’s care home was also a mix of self-funded and local-authority funded.

WombForTwo · 29/05/2025 11:32

YANBU, the way it’s been handled sounds shocking. But the ASC system in this country is so overstretched that they have to get rooms emptied and turned around asap. They’re also likely understaffed, so need to ensure staff don’t have to sit with your MIL. I’m sorry for your loss

ginasevern · 29/05/2025 11:31

I had a similar experience back in 2006 when my mum died. Also when I went to unpack her bag I realised they'd shoved in the last remnants of a bunch of grapes, a small opened carton of orange juice and a half eaten box of prawn/mayo salad. They were beginning to smell (it was a very hot summer) and had spilled all over mum's favourite dressing gown. It really upset me.

DoraSpenlow · 29/05/2025 11:30

So very sorry for your losses OP. What a terrible time you are having.

We must have been lucky with our experience after reading some of these posts.

Dad died unexpectedly in a nursing home. It was the afternoon though and by the time we arrived the Police were there. We were asked if we had a preferred undertaker, which we didn't as it was unexpected. The home apparently had a rota of local undertakers who they arranged to come and collect him and take him to their Chapel of Rest. We were under no obligation to use them for the funeral but they were so kind we stayed with them. All very sympathetically handled by all concerned.

Dad paid a month in advance so as he had just paid we had the month to clear the room. We cleared the room the next day as the home said they could use the clothes if we didn't want them and there was not much in the way of personal possessions. They even gave us two weeks fees back as someone was moved in almost immediately.

Sadly the home closed down not long after.

C8H10N4O2 · 29/05/2025 11:28

cumbriaisbest · 29/05/2025 11:23

I found out my mother had passed when th funeral director phoned me at 8am.
The home ( Barchester costs tousands) didn't bother telling me.

That is appalling. I would be interested to know how good and bad experiences correlate with independent/small chain homes vs the big chains owned by private equity companies.

The most useful piece of advice we received when navigating this for the first time was focus on independents, don’t worry if the decor isn’t pristine. The chains all have pristine paintwork in the public areas but the independents had much lower staff turnover, more local staff and more engaged residents.

Cattenberg · 29/05/2025 11:28

cumbriaisbest · 29/05/2025 11:23

I found out my mother had passed when th funeral director phoned me at 8am.
The home ( Barchester costs tousands) didn't bother telling me.

That's awful, I'm so sorry.

Cattenberg · 29/05/2025 11:27

C8H10N4O2 · 29/05/2025 11:22

But what regulations? I’m not aware of any legal or health requirement for a body to be removed from its location to an undertakers within two hours (as has been cited on the thread).

Its certainly not been my experience with deaths both in care/hospital settings or at home and the fact that so many posters have also had better experiences suggests that its a care home imposed rule. If care homes want to impose this rapid removal on bereaved relatives then they need the matching process at entry to discuss death arrangements and have a plan to execute.

I've no idea, to be honest. It just seemed unlike the staff to be impatient.

FamBae · 29/05/2025 11:26

When dmil died in the early hours, she couldnt be moved until the doctor had signed the death certificate the following morning, which gave us time to phone the undertakers, who came very quickly.
So sorry for your loss op 💐

cumbriaisbest · 29/05/2025 11:23

I found out my mother had passed when th funeral director phoned me at 8am.
The home ( Barchester costs tousands) didn't bother telling me.

C8H10N4O2 · 29/05/2025 11:22

Cattenberg · 29/05/2025 11:17

I'm sorry for your loss.

This does sound normal to me, unfortunately. One of my relatives died in a care home early on Christmas morning and the staff phoned us more than once to insist that she be moved ASAP. It did seem impatient and insensitive, but I'm guessing they're following regulations.

But what regulations? I’m not aware of any legal or health requirement for a body to be removed from its location to an undertakers within two hours (as has been cited on the thread).

Its certainly not been my experience with deaths both in care/hospital settings or at home and the fact that so many posters have also had better experiences suggests that its a care home imposed rule. If care homes want to impose this rapid removal on bereaved relatives then they need the matching process at entry to discuss death arrangements and have a plan to execute.

GETTINGLIKEMYMOTHER · 29/05/2025 11:22

There wasn’t a prepaid funeral or a preferred FD for DM - the care home phoned their usual FD, who I have to say were very considerate and respectful.

My (childless) aunt, OTOH, had prepaid hers, and had stated her wishes, for which we were very grateful when the time came.

Talking of ‘respectful’, we accompanied a distraught friend to the FD shortly after her dh had died in a hospice. It was years ago but I still remember the kind and considerate wording the director used. Instead of saying they’d collected him from the hospice, he said, ‘Tom* is now in our care.’

*not his real name.

Dotjones · 29/05/2025 11:20

It's disgraceful - your term "indecent" is the right word - but sadly this is pretty standard behaviour in a lot of nursing homes. The owners are only interested in profit - they don't see residents as humans, just a way to generate revenue, and once the resident dies they are no longer profitable. Unfortunately this attitude from the top usually permeates downwards through to lower-level staff.

Given the sad reality that a nursing home will see most patients there until they die, it should be a condition of running a nursing home that there is suitable provision for the storage of bodies in a respectful manner. But of course this would eat into their profits so they would never do anything unless they were forced.

Cattenberg · 29/05/2025 11:17

I'm sorry for your loss.

This does sound normal to me, unfortunately. One of my relatives died in a care home early on Christmas morning and the staff phoned us more than once to insist that she be moved ASAP. It did seem impatient and insensitive, but I'm guessing they're following regulations.

rubbishtv · 29/05/2025 11:17

It is very unusual for a relative to be asked to have body removed from care home ! Usually there is a care plan fore end of life which details what the wishes are ,regarding undertaker etc . Care home would contact undertaker directly.

pimplebum · 29/05/2025 11:14

Sorry for your loses
It’s hot day , and very hot in nursing homes
i would not want a loved one lying around in their bed it’s not nice for staff

she could have worded it better maybe

BIossomtoes · 29/05/2025 11:11

crazeekat · 29/05/2025 11:01

They are assholes. They want her bed to be filled up asap for £. Do things in your own time. Speak to the manager not the nurses.

God, there’s always one.

Griefandwithdrawing · 29/05/2025 11:10

So sorry for your losses.

My dad died in a hospice and I was really surprised how quickly they pushed to call undertakers. My mum died in a hospital and they have a morgue. It took about 2 weeks to get her death certificate and for her body to be released.

GETTINGLIKEMYMOTHER · 29/05/2025 11:09

aliceinawonderland · 29/05/2025 10:46

Yes happened with my father who was transferred from hospital to a nursing home. I'd just visited him and on arriving home (30 minutes) got a phone call to say "Hello, sorry your father has just died. We need to remove the body. Can you phone the funeral directors"

😱😱!

FormerlyPathologicallyHappy · 29/05/2025 11:08

It’s normal in my experience, when dh died within 5 hours he smelt but he was in hospital so went to the morgue after I left.

They need a quick turnaround on rooms or relatives take too long to remove belongings.

Most FD have a 24 hr line people die all times of day.

Its what a lot of you on this thread will have to deal with it’s not cruel we’re either living or decaying and bodies need cold storage asap.

crazeekat · 29/05/2025 11:01

They are assholes. They want her bed to be filled up asap for £. Do things in your own time. Speak to the manager not the nurses.

Icecreamandcoffee · 29/05/2025 11:01

@MichaelandKirk they are both private homes - same group. Both my Gran and GMIL were self funding. GMIL is still self funding. Gran died pre covid so not sure if things have changed since.

It did seem a bit morbid at the time to be filling out death procedures but it made things much smoother when Gran did die. I suppose in the stark light of day, the home arranging pick up with the chosen funeral parlour and packing the room up is more profitable for the home as they can get it cleared, packed and cleaned within hours, ready for a new resident pretty much the next day.

Maverickess · 29/05/2025 10:59

I'm sorry for your recent losses, so close together, that's really difficult to deal with and no wonder you're struggling.

In all homes I've worked in we would have a section of the care plan that details what happens to the person once they've passed away, anyone that needs to be informed immediately, any religious rituals that should be observed and which FD is to be called and if anything specific needs to go with the person at the time. Some people won't even discuss it at all and others hand you all the details, others say they will deal with it when the time comes.

It does sound like a miscommunication between the home and you, in that they asked and maybe you didn't quite realise what they meant, but by saying you would organise it, they believed that they needed to call you to arrange MIL being collected rather than them doing so.
Nowhere I've worked had an 'arrangement' as such with any FD because people use different ones, if we were to call we'd already have the information on file, or we'd have to ask the NOK at the time it happened, which isn't a great time but sometimes there is no other option.

I've done this a lot unfortunately and I've always asked the family if they would like me to make the immediate arrangements either if they've been there or if I've needed to call them, no matter what the file said, and if no FD on file, ask who their preferred one is should they want us to call.

And yes, it is always preferable for someone to be collected through the night, it can be distressing for the other residents to witness and it's not always possible to keep them away or not come through a main area with a body. Plus as unfortunate as this is, doors to the outside need to be open which poses a risk to the residents who want to leave but can't.

Morning is also the busiest time in a care home with Drs, nurses, and other professionals visiting as well as families, people being helped to wash/shower and dress and eat breakfast, take medication and most places barely have enough staff for that, so adding a funeral director into that as well is really stretching the resources.

I get that it all feels a bit rushed to you right now, but I wouldn't delve into the whys and what fors at this time, you're grieving two people you loved and that's enough for anyone to deal with in one go, I don't think it's anyone's at fault either, it's just the way it has happened.

EasierToWalkAway · 29/05/2025 10:57

DF died in a nursing home at midnight and the undertakers collected him mid afternoon the following day. It didn’t matter that much because it was an old building probably not purpose built, and his room was near the entrance so nobody but us saw his body being wheeled out.

DM died in a different, purpose-built nursing home. We knew she was going and the Manager asked us to alert local undertakers that we would likely need them within a few hours. I didn’t particularly question it at the time. She died around 6pm and had to be wheeled past the main reception/coffee area around 10pm after all the residents were tucked up in their rooms.

Could it have been a similar situation for your mum? (Although it does seem speedily insensitive, barely giving you time to say goodbye.)

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