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AIBU?

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To not take my mum to the GP? (Mild cognitive impairment)

87 replies

Didimum · 23/05/2025 19:34

Sorry this is long. I'm fairly certain my mum has mild cognitive impairment. She is 68 and lives alone, after my dad passed away two years ago.

She has had a fairly stressful life for at least the last couple of decades. Firstly my dad had always been very controlling and, to be honest, mildly abusive. She was always very anxious of him. He controlled bills, finances, things around the house etc. She worked in the NHS and the workload was horrendous – she used to cry often and was very beaten down. Luckily she could retire early, so she did. Shorty after she left the NHS, Covid hit and my parents did not fair well – all loss of routine and socialisation, my dad grew worse in his behaviour towards her. She lost an enormous amount of confidence during all this.

My dad then passed suddenly in 2023 after a very short illness. She was shattered and shocked. Her brain fog was severe. She has improved since this, has got happier and does enjoy life on her own – she sees her friends, has a cat, joined a pilates class, keeps up with all medical appointments. I do not worry about her living day to day – she is able to follow her routine perfectly well. She struggles with bills, paperwork, insurance, pensions, computers, etc – but she never had these skills as my dad just took over all of it. Myself and my sister help her mange these things.

My sister and me noticed, probably 5 years ago, that her memory was beginning to be affected in stand out ways. Her short term recall is quite poor (with some things and not others, though she can remember when prompted). For an example, I'm sorted out some insurance stuff for her – I asked if they had called her the day before and she said no. They told me they had, so I prompted her and then she recalled it. Later that evening, my sister asked her the same question and again she said no ... this is fairly typical. However, it's more typical it happens with things like insurance as she just seems to blank it out. She was babysitting my kids recently and asked repeatedly what time to put them to bed. She also repeats questions and stories a fair bit – to the point where others have noticed. She has also been scammed by phone scammers a few times as she panics over the phone when strangers call about something seemingly 'complicated'. She doesn't struggle to find words or follow conversations or take care of herself, cat, medication, her appointments etc. That appears to be the extent of it right now, and it has remained fairly stable over last 5yrs, perhaps dipping a bit when my dad passed.

My sister and I sometimes discuss getting her assessed, but we both really fear that she will be extremely upset and anxious over it and that it will be a detriment and not benefit her. Another really important part of this story is that her sister was diagnosed with dementia in 2019 and just passed away a month ago (sister was 20yrs older than her however, and there is no other family history). My mum, again, was devastated by her sister's rapid decline and death. She is aware of her memory issues and I know she is very anxious that the same fate awaits her.

Long story short - while my mum is still independent and functioning well, AIBU to leave her be and not cause her distress unless it becomes necessary, since there is no treatment for MCI? She has regular check ups and blood tests and is physically very fit and well.

I do know MCI can be caused by stress/depression/anxiety, and my mum is still prone to bouts of upset and crying. She says she feels stupid and that everyone feels annoyed at her all time. This is not true, and I fear her confidence in herself has been battered by decades of how my father used to treat her. He always used to call her stupid and tell her she wasn't capable of anything. I think counselling might be a good option for her?

AIBU? Or is the GP and memory clinic always the best?

OP posts:
Breadcat24 · 24/05/2025 17:12

Hi if there are genuine concerns then she needs to be assessed in order to get access to medication that might significantly slow her decline.
There is not much out there to treat later stages but there are drugs to help at early stage to slow progression. How will you or she feel if she loses the opportunity to be treated by these drugs by avoiding seeing a doctor until it is too late? Cholinesterase inhibitors are the primary drugs - but you need a diagnosis.
It may also be the case that she would benefit from antidepressants
Assessment need not be awful. My father was assessed in his own home by a doctor- who kept it a reasonably light conversation and did not push too hard if my did not want to count backwards in 3s etc.
If she still has capacity then you need to do power of attorneys now. You cannot do it after mental incapacity has been diagnosed.
You could minimize the stress of doing the POA by saying you were doing one for yourself.

NerrSnerr · 24/05/2025 16:33

@sipandcleanjust seen your further comments. You initially said there are no meds. I have worked as a dementia nurse for many years. For some people you can’t see how they’re helping (they may slow down progression but it’s hard to measure(m) but others they make a huge difference. Rivastigmine also really helps with symptoms of Parkinson’s dementia/ lewt body dementia.

NerrSnerr · 24/05/2025 16:23

SipandClean · 24/05/2025 14:06

What meds are these? To my knowledge there aren't any.

Donepezil, rivastigmine or galantamine if you want to google

WayneEyre · 24/05/2025 15:32

With respect you haven't got a great deal of knowledge of the issue. Cognitive change could be a sign of other health or neuro problems too.

I would present this to your mum as a 'baseline check' so she can take action if need be.

Might be an idea to have bloods (e.g. cholesterol), a hearing check too.

There are meds that aim to slow down the progression of dementia. Management plans don't revert the patient to their 40 year old self, that's not realistic but please encourage your mum to speak to the GP. Also it will help if she keeps herself as mentally and physically active as possible.

MilesOfMotivation · 24/05/2025 15:15

SipandClean · 24/05/2025 15:12

They always give ‘meds’. Sadly a dr friend told me they are placebos.

Your dr friend is talking utter rubbish. If your dr friend even exists as a couple of posts ago you didn't even know drugs existed.

SipandClean · 24/05/2025 15:12

Timpot · 24/05/2025 14:30

My relative and a friend's mum are both on meds that they have been told will slow the progress of their disease. I don't know the name sorry, and maybe they misunderstood.

They always give ‘meds’. Sadly a dr friend told me they are placebos.

wonderingwhatlifemeans · 24/05/2025 15:00

My MIL has rapidly deteriorated since she fell and broke her hip last October. She has been in and out of hospital with health issues since then as she is refusing to eat and drink most of the time. She has carers four times a day and is partially bed bound. We have noticed a real decline in her cognitive ability. She no longer remembers my name. We have asked her GP to have the memory clinic do an assessment after the hospital did the test and she scored 11 where 10 and below indicates medium to severe cognitive deficits. We are still waiting and it has been quite over a month since she has been home. We are stuck in limbo as she officially can still make decisions regarding her health care. She recently told social services that she doesn’t need care and gets herself out of bed every day and has a shower. She hasn’t been upstairs since last October.

It is devastating that we feel it is such a battle to get the GP to act in her best interests and get the test done. We do have POA for financial but now will struggle to get it medically because of the situation we are in.

tartancarpetslippers · 24/05/2025 14:53

She has anxiety, worked in a stressful field, and lost her (abusive) husband only two years ago. No wonder she has some cognitive difficulties. She sounds like she needs help with her anxiety and quite likely ongoing therapy and support fo the ongoing aftereffects of her marriage. Also a review of any medications or overthecounter drugs she may be on, and some vitamin B12 and iron pills.

Just not sleeping well or being dehydrated can make someone vulnerable to memory and cognition problems.

Funnyduck60 · 24/05/2025 14:39

I'm 61 and my memory is terrible. I also am poor with organisational stuff, even though 15 years ago i was a valued secretary. I do have insomnia though. My MIL has mixed dementia and takes memantine which is a drug that may help symptoms of dementia and slow decline so there may be a value in a diagnosis if you continue to worry.

I suspect your mum isn't sleeping well and may be depressed. As friends and family retire she may feel she's missing out on that side of life, even if it wasn't something she would have done anyway, for example going on a cruise with her husband. Maybe give her some one to one time just having fun so doesn't feel guilty with you sorting things out?

Timpot · 24/05/2025 14:30

SipandClean · 24/05/2025 14:06

What meds are these? To my knowledge there aren't any.

My relative and a friend's mum are both on meds that they have been told will slow the progress of their disease. I don't know the name sorry, and maybe they misunderstood.

S0j0urn4r · 24/05/2025 14:26

Take her to the GP. Talk about memory not dementia. (Speak to GP privately before appointment explaining your concerns) If GP thinks there's an issue they will refer to memory clinic.
We are going through this with my mum and the feedback we've had is the earlier they get checked out the better.

SipandClean · 24/05/2025 14:06

Timpot · 23/05/2025 19:52

I disagree. I think if dementia is identified she can be given meds to significantly slow the progress of the condition, but she can't get back what has been lost. She's young enough that she could have 15 or 20 years of quality life ahead of her. I would definitely make an appointment.

What meds are these? To my knowledge there aren't any.

Didimum · 24/05/2025 13:42

Rosscameasdoody · 24/05/2025 06:32

The process is to go through the GP first. They do a preliminary assessment and a referral to a psychiatrist will only be made if the GP thinks there are red flags. The earlier you get help, the more that can potentially be done to ease symptoms and slow progress, depending on the type of dementia. I also found that there were support services available l didn’t know about until mum was referred. I think there’s a difference between experiencing and acknowledging memory issues yourself and it becoming noticeable to others.

OP says her mum is repeating things often. This is a red flag for dementia -repeating things frequently, especially in a short time frame can be a coping mechanism - repeating questions, stories, or phrases, are often linked to more significant memory loss and difficulty remembering what was said or done previously.

She doesn't repeat things in a short time frame. She might tell me a story twice within a fortnight for example – I've never been worried about that part. She re-asks questions for reassurance and is aware she has asked them before. My sister and I find it very hard to asses the 'red flags' as many of them seem tied up in her anxiety.

OP posts:
Didimum · 24/05/2025 13:39

Toootss · 24/05/2025 06:57

My DB had Parkinson’s and dementia he did the Montreal Test with a psychiatrist and failed (though I prob wouldn’t get a high score now at 70) - copies are available online.

Get her a white board for the wall that she’d walk past regularly to remind her of things.
I have a big one in my kitchen which DH and I use. Perhaps buy her a diary so she can jot down what she’s done in the day.

Yes, she has these things already which she put in place for herself.

OP posts:
Didimum · 24/05/2025 13:37

Woodenpergola · 24/05/2025 07:29

You have my sympathy op. I could have written your post op, except my dad is still alive. He’s a total fucking twat, always has been and she has gone from a focused, determined, independent woman to a shell of her former self since she retired. I too have noticed the confusion and the lapses in memory and they are definitely getting worse. I don’t know if it is a memory issue or just from years and years of being ground down. I have mentioned it to dad and he just won’t discuss it. He’s also like creeping fucking Jesus and makes sure I never get to speak to her alone, even on the phone he makes her put it on speaker. We’ve had occasional conversations over the years about her leaving him (before she became confused) but she could never find the strength to do it, even with support. I am now in the process of moving them closer to me, which is also complicated because to be honest, I never had a very good relationship with her and the rest of my siblings are very low contact with them. But, she’s vulnerable now and I have to try and protect her. It’s a nightmare and I am very concerned for the future.
In your case. I do think it would be worth getting her assessed so you can put whatever necessary legal measures in place to protect her if she does have a progressive illness.

You have my sympathies too.

My mum was never focused, determined and independent. She went from overbearing parents, straight into an overbearing marriage at 22, and has always been anxious and under the thumb.

POA is in place, so that's not a factor at the moment. The detriment to her happiness with investigations are, however.

OP posts:
Didimum · 24/05/2025 13:33

PandyMoanyMum · 24/05/2025 07:45

I don’t think this new disease modifying drug is available on NHS as not approved by NICE.

I’d suggest chatting with her and seeing if she’d be willing to have blood tests just in case she’s got thyroid problems or things that are easily treatable, but cause memory issues and perhaps make her feel not as good as she could.

Perhaps a gentle chat about anxiety and if there is anything that she would like to do or try.

POA health and finance is a must do.

Yes, I have chatted with her on numerous occasions. She wants help to address her anxiety (which she's had all her life, and isn't new or recent), so me and my sister are trying to put that in place. She gets herself to health MOTs annually, including thyroid.

POA isn't as issue for everyone mentioning it.

OP posts:
Didimum · 24/05/2025 13:28

Koolforkats · 24/05/2025 13:17

My mum was diagnosed with early alzheimers. I worried it was more anxiety and trauma related to significant bereavement but the diagnosis was made and medication given. The memory clinic assessed tgat the anxiety was caused by the memory impairment, nit vice versa.

The medication for her resulted in a significant change. It reduced the anxiety wnd paranoid thoughts and she began to get more pleasure back in her life and be calmer which meant able to do more tasks.

I dont regret the diagnosis and it came at the right time. The medication if Alzheimers may not work for all but was transforming for her and she lived ten years and died of non-dementia illness whilst still having mental capacity.

My mother has has significant anxiety all of her life, which is an issue.

OP posts:
Scimitarsandstars · 24/05/2025 13:24

Didimum · 23/05/2025 20:00

You have to reach a certain criteria beyond MCI to be eligible for medication, and this when it has progressed much further.

I thought my parent had MCI and in fact it is dementia - just for some reason (possibly cognitive reserve) their cognitive skills are pretty good (it was the brain scan that was the giveaway). They are now taking medication which is helping plus has had some brilliant local support.

Koolforkats · 24/05/2025 13:17

My mum was diagnosed with early alzheimers. I worried it was more anxiety and trauma related to significant bereavement but the diagnosis was made and medication given. The memory clinic assessed tgat the anxiety was caused by the memory impairment, nit vice versa.

The medication for her resulted in a significant change. It reduced the anxiety wnd paranoid thoughts and she began to get more pleasure back in her life and be calmer which meant able to do more tasks.

I dont regret the diagnosis and it came at the right time. The medication if Alzheimers may not work for all but was transforming for her and she lived ten years and died of non-dementia illness whilst still having mental capacity.

Discombobble · 24/05/2025 13:07

Sounds like a form of PTSD

PandyMoanyMum · 24/05/2025 13:05

cherrytree12345 · 24/05/2025 09:02

I do appreciate everyone can have different experiences with medication, my DF had a dementia diagnosis and was put on medication to slow it down. The medication had to be taken before bed, my DF experienced flashing lights which he described as a ‘disco’ and it stopped him sleeping. He therefore came off the medication. My DM was on the medication for at least 12 years, once she had been given the diagnosis and put on the tablets there were no follow up appointments at all, she just had them on repeat. Her dementia did progress but was much slower than my Dads. Of course no one can say if that was down to the medication or not

The medications that are typically provided for Alzheimer’s don’t slow the disease. They make the remaining brain signalling work better. I don’t think starting sooner slows the disease. It puts the effects of the disease off for longer.

cherrytree12345 · 24/05/2025 09:02

I do appreciate everyone can have different experiences with medication, my DF had a dementia diagnosis and was put on medication to slow it down. The medication had to be taken before bed, my DF experienced flashing lights which he described as a ‘disco’ and it stopped him sleeping. He therefore came off the medication. My DM was on the medication for at least 12 years, once she had been given the diagnosis and put on the tablets there were no follow up appointments at all, she just had them on repeat. Her dementia did progress but was much slower than my Dads. Of course no one can say if that was down to the medication or not

MilesOfMotivation · 24/05/2025 07:46

From someone who had a parent with dementia, I would get her assessed. Or at least get the ball rolling. It can take SO long to get things into place.

PandyMoanyMum · 24/05/2025 07:45

beetr00 · 23/05/2025 20:24

@Didimum

It is important.

An early diagnosis gives your Mum a better chance of slowing the progress.

There are, in fact, new medications for MCI.

Please look here, remain vigilant but do act earlier rather than later.

I don’t think this new disease modifying drug is available on NHS as not approved by NICE.

I’d suggest chatting with her and seeing if she’d be willing to have blood tests just in case she’s got thyroid problems or things that are easily treatable, but cause memory issues and perhaps make her feel not as good as she could.

Perhaps a gentle chat about anxiety and if there is anything that she would like to do or try.

POA health and finance is a must do.

mehmehma · 24/05/2025 07:43

One thing to consider is writing confidentially to her GP. Although the GP can’t talk to you about your mum’s health (without her permission or a POA), your concerns will get logged and the GP can be on the lookout if she’s there for other issues.