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AIBU?

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To not take my mum to the GP? (Mild cognitive impairment)

87 replies

Didimum · 23/05/2025 19:34

Sorry this is long. I'm fairly certain my mum has mild cognitive impairment. She is 68 and lives alone, after my dad passed away two years ago.

She has had a fairly stressful life for at least the last couple of decades. Firstly my dad had always been very controlling and, to be honest, mildly abusive. She was always very anxious of him. He controlled bills, finances, things around the house etc. She worked in the NHS and the workload was horrendous – she used to cry often and was very beaten down. Luckily she could retire early, so she did. Shorty after she left the NHS, Covid hit and my parents did not fair well – all loss of routine and socialisation, my dad grew worse in his behaviour towards her. She lost an enormous amount of confidence during all this.

My dad then passed suddenly in 2023 after a very short illness. She was shattered and shocked. Her brain fog was severe. She has improved since this, has got happier and does enjoy life on her own – she sees her friends, has a cat, joined a pilates class, keeps up with all medical appointments. I do not worry about her living day to day – she is able to follow her routine perfectly well. She struggles with bills, paperwork, insurance, pensions, computers, etc – but she never had these skills as my dad just took over all of it. Myself and my sister help her mange these things.

My sister and me noticed, probably 5 years ago, that her memory was beginning to be affected in stand out ways. Her short term recall is quite poor (with some things and not others, though she can remember when prompted). For an example, I'm sorted out some insurance stuff for her – I asked if they had called her the day before and she said no. They told me they had, so I prompted her and then she recalled it. Later that evening, my sister asked her the same question and again she said no ... this is fairly typical. However, it's more typical it happens with things like insurance as she just seems to blank it out. She was babysitting my kids recently and asked repeatedly what time to put them to bed. She also repeats questions and stories a fair bit – to the point where others have noticed. She has also been scammed by phone scammers a few times as she panics over the phone when strangers call about something seemingly 'complicated'. She doesn't struggle to find words or follow conversations or take care of herself, cat, medication, her appointments etc. That appears to be the extent of it right now, and it has remained fairly stable over last 5yrs, perhaps dipping a bit when my dad passed.

My sister and I sometimes discuss getting her assessed, but we both really fear that she will be extremely upset and anxious over it and that it will be a detriment and not benefit her. Another really important part of this story is that her sister was diagnosed with dementia in 2019 and just passed away a month ago (sister was 20yrs older than her however, and there is no other family history). My mum, again, was devastated by her sister's rapid decline and death. She is aware of her memory issues and I know she is very anxious that the same fate awaits her.

Long story short - while my mum is still independent and functioning well, AIBU to leave her be and not cause her distress unless it becomes necessary, since there is no treatment for MCI? She has regular check ups and blood tests and is physically very fit and well.

I do know MCI can be caused by stress/depression/anxiety, and my mum is still prone to bouts of upset and crying. She says she feels stupid and that everyone feels annoyed at her all time. This is not true, and I fear her confidence in herself has been battered by decades of how my father used to treat her. He always used to call her stupid and tell her she wasn't capable of anything. I think counselling might be a good option for her?

AIBU? Or is the GP and memory clinic always the best?

OP posts:
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BIossomtoes · 25/05/2025 08:40

BIossomtoes · 25/05/2025 08:32

I really hope it works for you. I did notice the other day that the name of an American politician leapt straight on to my tongue the other day when I might have struggled to remember it a few months ago so it’s definitely worth a try.

Two “the other day”s is what happens when you make a cup of tea halfway through writing a post! 😱😂

BIossomtoes · 25/05/2025 08:32

I really hope it works for you. I did notice the other day that the name of an American politician leapt straight on to my tongue the other day when I might have struggled to remember it a few months ago so it’s definitely worth a try.

Communitywebbing · 25/05/2025 08:07

BIossomtoes · 25/05/2025 07:34

I’m sorry to hear that @Communitywebbing, it must be distressing. I’m 71 and have no symptoms, they were dreadful during the menopause and cleared afterwards. You might find Lions Mane helpful, my son recommended it to me a few months ago as he found it helped him to focus during a particularly demanding period at work. I now take it as a precautionary measure. I buy Nutra Geek from Amazon.

Thank you I will try that. Yes my memory thing is distressing and not improved by seeing similar in many of my peer group! It’s good to talk to people who are still mentally sharp, including a 97 year old friend.

SwayzeM · 25/05/2025 07:54

Although it sounds like your dad wasn't a nice man, your mum did still suffer a bereavement. Also it sounds like it came as a real shock and you said she was shattered. Bereavement can cause memory issues like you describe, and it can take several years to recover. Add to that the likely stress and depression caused by her situwhile he was still alive, and it isn't surprising she's been having short term memory issues.

I'm not saying she will recover her cognitive capabilities fully, but my mil had the same difficulties after losing her dh 6 years ago. She has improved a bit in the last few years, although still has some brain fog moments. But so do I, partly menopause related and partly stress at times.

Depression, anxiety, stress and loss all affect our brain function, as well as aging, so I'd just keep an eye on her, and if you're really worried because she deteriorates, let her go know. My cousin arranged to go with her mum about a different health matter, the hung back to talk afterwards to say she was worried., but her symptoms were a lot worse than your mum.

BIossomtoes · 25/05/2025 07:34

I’m sorry to hear that @Communitywebbing, it must be distressing. I’m 71 and have no symptoms, they were dreadful during the menopause and cleared afterwards. You might find Lions Mane helpful, my son recommended it to me a few months ago as he found it helped him to focus during a particularly demanding period at work. I now take it as a precautionary measure. I buy Nutra Geek from Amazon.

IveGotAnUnusuallyLargePelvisISwear · 25/05/2025 07:06

I think your dad was a lot more abusive than you realise or want to admit. Not having a go but the behaviour you know about won’t be as bad as how he was when it was just them. The lockdowns must have been hell for your poor mum. I’m glad she’s free of him now and is building a life for herself but maybe she could do with some counselling? Maybe her “brain fog” has been caused by years of trauma and her self worth being battered. Just a thought.

Communitywebbing · 25/05/2025 06:44

BIossomtoes · 24/05/2025 22:34

Her symptoms sound quite mild and ordinary for her time of life,

She’s 68. Most people aren’t exhibiting cognitive impairment at that age.

I am around that age and most of my peer group
including me have symptoms. I did pursue it with my gp and the testing offered was for a much higher level of decline so I came out as being fine. I’m certainly not fine, but putting strategies in place to manage everyday life as are most my friends. The doctor put my frequent short term memory lapses down to poor sleep. I suspect that OPs mum would have a similar experience and since she doesn’t want to do it, it’s best not to push her.

WayneEyre · 25/05/2025 06:16

Yep. No, I don't agree with not encouraging her to address this cognitive change. Could be anything. The OP doesn't know everything

What's the rationale of protecting her by not encouraging her to potentially get the intervention she needs? You provide support alongside,.

tartancarpetslippers · 25/05/2025 00:20

WayneEyre · 24/05/2025 23:46

You have knowledge of all other possible health conditions and she's been tested for everything? Pray what are you asking then?

It appears she has diagnosed her mother with mild cognitive impairment and wants to know if she is okay for not taking her mother to the GP about it.

Absolutely does not want any input on alternative conditions or exacerbating factors for her mum's mental state. I guess a doctor might bring up those, too.

WayneEyre · 24/05/2025 23:46

Didimum · 24/05/2025 20:22

And with respect, I do have knowledge of the other conditions and relevant health checks. She has been tested for all that you mention.

You have knowledge of all other possible health conditions and she's been tested for everything? Pray what are you asking then?

tartancarpetslippers · 24/05/2025 23:01

Didimum · 24/05/2025 21:31

I have said twice, in original and subsequent posts, that my mum has got herself to various health checks – no, I don’t need to reel off the list she has had. I am allowed to clarify when someone mentions a specific test. No, I don’t know the answer – I didn’t say I did.

My post is concerning a very complex balance of mental health issues, mental wellbeing and physical wellbeing. I did not ask for other conditions or what else to check for.

But you've suggested in your very thread title that you think it is mild cognitive impairment.

It may equally well be complex grief, after the death of an abusive husband, causing an increase in anxiety and sleeplessness.

I've noticed people on MN are quick to assume dementia is likely or inevitable in even slightly older people, and that really isn't the case for the vast majority.

BIossomtoes · 24/05/2025 22:34

Her symptoms sound quite mild and ordinary for her time of life,

She’s 68. Most people aren’t exhibiting cognitive impairment at that age.

SleeplessInWherever · 24/05/2025 22:25

Anecdotally, my ex FIL declined from MCI to dementia very quickly.

I would say within 6 months of getting his MCI diagnosis he’d declined rapidly and was really struggling in a lot more areas. Within the year he wasn’t using cutlery to eat, for example. He was fully diagnosed in 2018 and by summer 2019 he’d forgotten his grandkids.

I know that’s doom and gloom, but still.

My only concern would be that delaying now, while it’s not too bad, might put a delay on getting the help you need quickly if things change.

Communitywebbing · 24/05/2025 22:17

I'm with you OP in thinking it's best not to press your mum to pursue getting her memory checked. Her symptoms sound quite mild and ordinary for her time of life, and even if, God forbid, there is some disease starting, the memory clinic would be unlikely to pick it up at this stage. And there's no treatment, so no point in stressing her and probably making the cognitive problem worse.
Also it sounds as if she would refuse to go, and she has capacity and can make her own decision about that.
She's very lucky to have your love and concern.

clickyteeclick · 24/05/2025 21:59

Could I jump on this thread and ask hue about you go getting your patent checked if they refuse to go to the doctors. I have absolutely no doubt in my mind that my mum has issues (I can’t bring myself to say the actual term I’m sorry 💔) but she refuses to go the GP about it as she’s scared. I don’t know what else to do. I’ve rung the helpline and they advised she does sound like she has it and to see the GP but she won’t go.

TuesdaysAreBest · 24/05/2025 21:40

Sorry, looks like I’ve repeated a question already answered.

TuesdaysAreBest · 24/05/2025 21:38

mehmehma · 24/05/2025 07:43

One thing to consider is writing confidentially to her GP. Although the GP can’t talk to you about your mum’s health (without her permission or a POA), your concerns will get logged and the GP can be on the lookout if she’s there for other issues.

This. It can be sensitively handled as a suggestion to attend for a routine health check or similar, or maybe a visit from a district nurse depending on the practice.

Didimum · 24/05/2025 21:31

JDM625 · 24/05/2025 21:09

Why have you posted at all then OP??? Any post which have offered support and suggestions of what might be other issues/concerns that can be corrected and are not signs of dementia- you have apparently now already checked, yet not mentioned in your OP earlier! That is great that results are all normal. Why not mention this in your op to save so many of us making suggestions- when you have already done this and know the answer??? 😕

I have said twice, in original and subsequent posts, that my mum has got herself to various health checks – no, I don’t need to reel off the list she has had. I am allowed to clarify when someone mentions a specific test. No, I don’t know the answer – I didn’t say I did.

My post is concerning a very complex balance of mental health issues, mental wellbeing and physical wellbeing. I did not ask for other conditions or what else to check for.

OP posts:
JDM625 · 24/05/2025 21:09

Didimum · 24/05/2025 20:22

And with respect, I do have knowledge of the other conditions and relevant health checks. She has been tested for all that you mention.

Why have you posted at all then OP??? Any post which have offered support and suggestions of what might be other issues/concerns that can be corrected and are not signs of dementia- you have apparently now already checked, yet not mentioned in your OP earlier! That is great that results are all normal. Why not mention this in your op to save so many of us making suggestions- when you have already done this and know the answer??? 😕

Menopausalmum43 · 24/05/2025 21:00

My mum.had very similar symptoms at that age, she has remained the same the last couple.of years but has now been diagnosed wih Alzheimers. She is having and ECG so she can access medication to support her condition. She was diagnosed with MCI first please seek early help. You might not like the news but it's better in the long run.

Rosscameasdoody · 24/05/2025 20:42

Didimum · 24/05/2025 13:42

She doesn't repeat things in a short time frame. She might tell me a story twice within a fortnight for example – I've never been worried about that part. She re-asks questions for reassurance and is aware she has asked them before. My sister and I find it very hard to asses the 'red flags' as many of them seem tied up in her anxiety.

OP if you can get her to the GP ask about mirtazipine. It’s an anti anxiety medication and it works well for older people with cognitive issues. They start with a low dose and build up as needed, and the beauty of it is that it doesn’t need to be taken every day - just as needed. If taken at night it helps with sleep too. Was a game changer for my mum as she had anxiety and panic attacks alongside the dementia.

Didimum · 24/05/2025 20:24

Funnyduck60 · 24/05/2025 14:39

I'm 61 and my memory is terrible. I also am poor with organisational stuff, even though 15 years ago i was a valued secretary. I do have insomnia though. My MIL has mixed dementia and takes memantine which is a drug that may help symptoms of dementia and slow decline so there may be a value in a diagnosis if you continue to worry.

I suspect your mum isn't sleeping well and may be depressed. As friends and family retire she may feel she's missing out on that side of life, even if it wasn't something she would have done anyway, for example going on a cruise with her husband. Maybe give her some one to one time just having fun so doesn't feel guilty with you sorting things out?

You’re correct, she sleeps quite often poorly.

OP posts:
Didimum · 24/05/2025 20:23

Breadcat24 · 24/05/2025 17:12

Hi if there are genuine concerns then she needs to be assessed in order to get access to medication that might significantly slow her decline.
There is not much out there to treat later stages but there are drugs to help at early stage to slow progression. How will you or she feel if she loses the opportunity to be treated by these drugs by avoiding seeing a doctor until it is too late? Cholinesterase inhibitors are the primary drugs - but you need a diagnosis.
It may also be the case that she would benefit from antidepressants
Assessment need not be awful. My father was assessed in his own home by a doctor- who kept it a reasonably light conversation and did not push too hard if my did not want to count backwards in 3s etc.
If she still has capacity then you need to do power of attorneys now. You cannot do it after mental incapacity has been diagnosed.
You could minimize the stress of doing the POA by saying you were doing one for yourself.

I have already said POA is in place.

OP posts:
Didimum · 24/05/2025 20:22

WayneEyre · 24/05/2025 15:32

With respect you haven't got a great deal of knowledge of the issue. Cognitive change could be a sign of other health or neuro problems too.

I would present this to your mum as a 'baseline check' so she can take action if need be.

Might be an idea to have bloods (e.g. cholesterol), a hearing check too.

There are meds that aim to slow down the progression of dementia. Management plans don't revert the patient to their 40 year old self, that's not realistic but please encourage your mum to speak to the GP. Also it will help if she keeps herself as mentally and physically active as possible.

And with respect, I do have knowledge of the other conditions and relevant health checks. She has been tested for all that you mention.

OP posts:
BIossomtoes · 24/05/2025 17:16

Timpot · 23/05/2025 19:52

I disagree. I think if dementia is identified she can be given meds to significantly slow the progress of the condition, but she can't get back what has been lost. She's young enough that she could have 15 or 20 years of quality life ahead of her. I would definitely make an appointment.

This. My biggest fear is dementia because it’s very prevalent in my mum’s family. I’ll be off to the GP at the merest hint of a symptom so progress can be slowed.