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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To have turned down Munjaro?

136 replies

Uberella · 13/05/2025 19:32

In 2020 I was diagnosed with type two diabetes;I have since then lost 6st in weight to try to help;I was huge at 5ft 4in and a whooping 22st 10lbs.

Roll on now;unfortunately despite my weight loss I’m really struggling with my diabetes at the moment;My blood sugars are really high even when I’m not touched anything sugary.

I’m currently on insulin and statins for high cholesterol.I’ve been told multiple times in the last few months I’m at risk of early death.

which is why I’m wondering if I was right today to have turned down munjaro jabs when offered them during a routine treatment review today.

I know I need to lose more weight;I’ve been doing slimming on and off for a few years but I’m terrified of the munjaro jabs;I know people who have suffered terrible side effects from these jabs plus weight gain after stopping the jabs and I’m not liking the things I’m hearing in the media about it.

I saw another pharmacist at my GP surgery a few months ago that I don’t normally see and he said to me that he doesn’t personally recommend Munjaro as there is evidence it causes hepatitis.

OP posts:
SoSoLong · 13/05/2025 21:30

What if you were given Mounjaro as a diabetes medicine, not for weight loss, would you still turn it down because of the potential side effects?

BabyOrca · 13/05/2025 21:18

Don't believe the hype.

Good for you for sticking to your guns.

I did the same when literally every GP wanted to put me on antidepressants. It genuinely felt like they were trying to strong arm me into it ("why dont you go and read up on it some more and come in next week so we can discuss again").
I know literally everybody in the UK is on some sort of MH pill but I'm glad I resisted as I felt a strong sense of capability when I managed to get myself leveled out by other means.

blettedmedlar · 13/05/2025 21:18

I’ve been prescribed it for type two diabetes, my bloods were sky high, and were within normal levels in two months. I’ve lost three stones and continuing to lose on 5mg. Very few side effects.

HeronTwist · 13/05/2025 21:16

ColinOfficeTrolley · 13/05/2025 19:45

Would LOVE to see where this pharmacist got his information from. Hepatitis???

I don’t know why a few people are finding the hepatitis thing so ridiculous. Many drugs can cause liver failure or renal failure.
Mounjaro can cause serious side effects. We are seeing it in A &E in the hospital I work at. It a new drug and it’s being rolled out far quicker than other drugs because so much of it is being prescribed privately. I prescribe it myself and think it definitely has its place. For the people it works for, it’s amazing. But it doesn’t suit everyone, and if OP thinks the possible side effects would not be worth it, then she shouldn’t disregard that and take it anyway.

BeckiP85 · 13/05/2025 21:14

I've been on MJ for 11 months now and I've lost just over 8 stone so far. I've had very minimal side effects, really cold, and some hair loss, thats about it.

TheSilentSister · 13/05/2025 21:13

As stated by @NeverDropYourMooncup It's a medication designed for diabetes that treats diabetes, obesity, inflammation and high cholesterol.

Read up on some factual information, how it works etc. Yes, a lot of people take it for weight loss but it's only approved on the NHS for diabetes I think. People taking it for weight loss have to pay through a private doctor online.

I'm prediabetic, have lots of inflammation and in the 'overweight' category - I'm taking it.

Congratulations on your big weight loss so far.

Am805463 · 13/05/2025 21:13

Well done on the loss so far! I’d definitely reconsider Mounjaro though. I started in October and have lost 2.5 stone so far, nice and slowly. But the best thing is my T2 diabetes is in remission, I’ve been able to stop Metformin and my A1c has gone from 52 to 30 - my nurse was amazed and in her words - it has obliterated my diabetes! 😂

Peonyyy · 13/05/2025 21:06

I have been taking it for 6 weeks. I have lost 18lbs and have just tipped into 'overweight' from 'obese' BMI. Mild (burping and farting) and transient (just for one day after inj each week) side effects.

I am 58 and I am taking it to reduce my risk of cancer, dementia, stroke, CVD, diabetes, joint issues and reduced mobility due to a lifetime of yoyo diets (90% of my adult life overweight or obese). I have also been very depressed about my body, deteriorating fitness and health.

For me the side effects of obesity (cancer, dementia, stroke, DVD etc) far out weigh the one day a week burping and farting.

guestusername · 13/05/2025 21:04

Your diabetes is not currently well controlled and you are struggling with various things as a result. You should be applauded for losing 6 stone. That is fantastic

But why would you not want to do everything possible to help yourself? You are the very type of person that WLI’s are designed for AND are being offered it in the NHS.

I suggest that you do some very serious research rather than going by what you’ve heard third hand. Spend some time reading through the WLI board on here and you’ll see so many people who this has been life changing, for the better. So many people who have been able to reverse their T2D. Instead of googling Mounjaro side effects, where you’ll be offered nowt but dramatic horror stories, look up Mounjaro benefits fkr diabetes.

I am on the jabs and other than a bit of fatigue every now and again, I’ve been more or less side effect free

EvilNextDoor · 13/05/2025 20:57

I’m a type 2 and my blood sugar was out of control, at dangerous levels. My weight was just borderline obese.

I was prescribed mounjaro and in 5 months I’ve lost over 3 stone and my blood sugar has returned to normal non diabetic levels. (My latest blood sugar was less than 35)

I’ve been able to stop taking my other diabetes medications.

Its also improved my liver function and my kidney function. I’ve also found my inflammation markers have significantly decreased as well from my latest blood test results. i’ve been having a blood test every 4-6 weeks) and I’ve can see the improvements on the app.

Apart from some slight nausea 24/48 hours after the jab and some constipation I have zero side effects 🤷‍♀️

I would speak to a different doctor/pharmacist and do some research into it, for me it’s been life changing, I’m fitter, healthier than I have been for years.

It’s incredibly hard to get it on the NHS if you’ve been offered it I’d snap their hand off to get it.

User5274959 · 13/05/2025 20:55

Your decision but it seems a strange decision to me when you’re so at risk if you do nothing,

also it’s MOUNjaro not munjaro

CautiousLurker01 · 13/05/2025 20:54

I’d recommend speaking to someone who knows what they’re talking about. I’ve taken it for 2 years, no issues after the first few months, 6.5 st lost am on a maintenance programme; my 17yo has been on it for 9m, lost 4.5st, no issues just has another stone to lose; a friend with diabetes also on it. All of us under the care of endocrinologists. Blood tests (sugars, thyroid, cholesterol, liver function etc) all optimal.

I think, given you have diabetes and GLP1 meds have been tested with diabetics for several decades now, that you should speak to an endocrinologist before deciding whether mounjaro or a completely different medication would help you. Not a practice nurse, or even a GP with no recent training in diabetes and current medications. A diabetes specialist.

MsTamborineMan · 13/05/2025 20:53

FortyElephants · 13/05/2025 20:31

The only way Mounjaro will give you hepatitis is if you share a needle with someone who has hepatitis. Don't do that and you'll be fine 🙄

If the fear of some short term side effects is greater than the fear of dying from diabetes then turn down Mounjaro by all means. Millions of people are on Mounjaro with no ill effects, losing weight with very little effort.

Hepatitis is liver inflammation

Can be viral. Can be alcohol related. Can be medication related

There is a possibility you could 'get hepatitis' from mounjaro, there is a report in the literature, but it seems very rare. Poorly controlled diabetes will put more strain on the liver, but still it's not an eyeroll situation

SilenceInside · 13/05/2025 20:53

Hepatitis isn't a reported side effect, it's been reported rarely (once?) and without definitive evidence it was actually the Mounjaro causing it. It is bizarre for a pharmacist to warn people off using an appropriate medication for T2 diabetes by mentioning this. They should have discussed the actual list of possible side effects rather than scare monger about hepatitis.

bridgetreilly · 13/05/2025 20:47

ChrissyAndMe · 13/05/2025 20:39

Is it ok to take Mounjaro as well as being on HRT?

It was never mentioned as an issue for me, prescribed on the NHS.

Jamclag · 13/05/2025 20:47

FortyElephants · 13/05/2025 20:31

The only way Mounjaro will give you hepatitis is if you share a needle with someone who has hepatitis. Don't do that and you'll be fine 🙄

If the fear of some short term side effects is greater than the fear of dying from diabetes then turn down Mounjaro by all means. Millions of people are on Mounjaro with no ill effects, losing weight with very little effort.

Hepatitis is just inflammation of the liver it's not necessarily caused by an infection. Inflammation can be triggered by medicines, alcohol, poisons etc so not a completely ridiculous suggestion - although I have no idea whether this is a reported side effect or not 🤷

FortyElephants · 13/05/2025 20:46

ChrissyAndMe · 13/05/2025 20:39

Is it ok to take Mounjaro as well as being on HRT?

Yep

bridgetreilly · 13/05/2025 20:46

Congratulations on losing 6 stones! That is amazing.

But you know you need to lose almost as much again, and it will be even harder than the first six. I also have uncontrolled diabetes, lost some weight (about 3 stones) several years ago, but I know I don’t have it in me to do the same again. So when I was offered MJ, I said yes.

They are monitoring me carefully because I have some liver issues, but the side effects I’ve had were very minor indeed. And even in the first few weeks, my appetite has changed, I feel healthier, sleep better and have more energy. I would honestly recommend you have another conversation with your doctor about it.

After any weight loss there is the risk of regaining it. That is true whether you use MJ or not. But if you don’t lose the weight in the first place, you’ll never manage to keep it off.

Merryoldgoat · 13/05/2025 20:46

Yes - YABU.

The drug was created for the treatment of diabetes and has been used safely for years.

MsTamborineMan · 13/05/2025 20:45

Why is mounjaro causing hepatitis batshit or hilarious?

Medications can cause hepatitis. There is at least one incident in the literature of mounjaro causing hepatitis. Generally though it's considered safe and the benefits to your liver (reduced NAFLD and better diabetes control) outweigh any risks.

CountryQueen · 13/05/2025 20:43

You’re ignoring the doctor over someone who told you mounjaro can cause hepatitis? Can’t have been a pharmacist, more likely just a boots employee

ElaineBurdock · 13/05/2025 20:43

I'm taking Zepbound, which is the same as Mounjaro. I'm paying $500 a month for it and it's worth every penny. No side effects at all, just reduced appetite and weight loss. I can't believe you'd turn down this medication, especially when you're offered it for free!

People on Reddit are calling it a miracle drug as they've found it has helped them not only lose a lot of weight but has fixed many health problems they had, including fatty liver and migraines.

I have also have seen improvements to my health, which started in the first two weeks of taking it.

SilenceInside · 13/05/2025 20:39

You're focussing on Mounjaro as a weight loss medication, but for you it would be prescribed to try to control your diabetes and any weight loss is a positive additional outcome. Why would you turn down a medication that has been shown to be extremely effective at treating your condition? Your GP would likely keep you on the lowest dose that controlled the diabetes, rather than increase it just for the weight loss.

I know it's because you're scared of taking it, but those fears are not in proportion to the actual risk of side effects. You're basing a medical decision on stories from friends and from the media, that's not a reliable and reasonable source of information.

ChrissyAndMe · 13/05/2025 20:39

Is it ok to take Mounjaro as well as being on HRT?

Branleuse · 13/05/2025 20:38

Its up to you, but it seems to be one of those medications that they're finding more and more benefits for