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Are most GP's stopping shared care for ADHD?

67 replies

Milmoe · 10/05/2025 22:26

I am thinking about seeking a private ADHD diagnosis so that I can get some help. I am almost certain I have this condition and I want to get help before I completely waste any potential that I have. I did ask my GP about it some time ago but they were quite dismissive.

I have heard about people being able to pay for a private diagnosis then they are able to get shared care via their GP's for their medication long term. However I am also hearing now that lots of GP's are now doing a blanket refusal on shared care for ADHD and are even ending shared care agreements that have stood for years.

I can barely afford the diagnosis and would not be able to pay £100's monthly for my medication so if there is no chance of shared care via my GP then their would be little point in seeking a diagnosis except for perhaps being able to access some in work modifications.

I just feel so hopeless, the medication for ADHD seems like my last hope of a normal life but it seems I will never be able to actually access it even if I was diagnosed.

OP posts:
Malm0 · 11/05/2025 11:03

Englishsummerblues · 11/05/2025 10:57

ADHD meds are crazy expensive too, I understand why GPs (which are businesses) are reluctant to prescribe.

GPs don’t pay for prescriptions. Many medications and conditions are expensive. Crisis MH care, hospitalisation and self medication which adhd meds in many cases averts are hugely expensive

Englishsummerblues · 11/05/2025 10:57

ADHD meds are crazy expensive too, I understand why GPs (which are businesses) are reluctant to prescribe.

LoveSandbanks · 11/05/2025 10:55

Our whole family has adhd, I’m just about to go to shared care with my gp, having started medication this year. I want to
get youngest assessed (16) and spoke to gp regarding shared care after a private diagnosis. The gp said they are happy to do shared care as long as the prescribing consultant carries out annual checks.

Malm0 · 11/05/2025 10:51

SnoozingFox · 11/05/2025 10:44

It really depends where you are and who is providing your diagnosis. DS who is 22 has a shared care agreement for his medication but spoke to his GP before starting the diagnosis process to ask if he went to X clinic for his assessment would they considered shared care? They said yes, because X clinic used consultant psychiatrists working in the NHS for their diagnosis and the process was the same as it would be in the NHS. Other clinics offering online diagnosis or assessment by a psychologist or similar they would not enter into a shared care agreement with.

This has all happened within the last year, we're in Glasgow.

Yep but some GPs are now not doing shared care with NHS diagnosed patients. If that happens he’ll still get them but via his consultant and have his yearly monitoring(BP)done there which is unnecessary extra hassle,particularly unhelpful when you have adhd.

Malm0 · 11/05/2025 10:49

soupyspoon · 11/05/2025 10:41

My point was, you yourself are experiencing a risk that your daughter cant get her meds, funded or not, services stopping or not, that is likely to be replicated a across the country. The implications of this are huge.

No it’s a very different scenario than is being suggested by yourself and the other poster .

ADHD services and everything they do that I listed are not being stopped. NHS patients are still going to get their meds just via the ADHD dep that diagnosed them in our case and others diagnosed by the NHS -the NHS. Nobody has suggested she isn’t going to get them, our GP is liaising with her consultant to ensure there is no disruption. Whether her GP should be doing that is arguable.

SnoozingFox · 11/05/2025 10:44

It really depends where you are and who is providing your diagnosis. DS who is 22 has a shared care agreement for his medication but spoke to his GP before starting the diagnosis process to ask if he went to X clinic for his assessment would they considered shared care? They said yes, because X clinic used consultant psychiatrists working in the NHS for their diagnosis and the process was the same as it would be in the NHS. Other clinics offering online diagnosis or assessment by a psychologist or similar they would not enter into a shared care agreement with.

This has all happened within the last year, we're in Glasgow.

soupyspoon · 11/05/2025 10:41

Malm0 · 11/05/2025 10:39

Yep you’re right, apologies. It was from somebody else beginning with S.

My point was, you yourself are experiencing a risk that your daughter cant get her meds, funded or not, services stopping or not, that is likely to be replicated a across the country. The implications of this are huge.

Malm0 · 11/05/2025 10:39

soupyspoon · 11/05/2025 10:18

I didnt say that, you're quoting the wrong post.

Yep you’re right, apologies. It was from somebody else beginning with S.

soupyspoon · 11/05/2025 10:38

beautyqueeen · 11/05/2025 10:27

The nhs don’t have enough psychs to deal with the demand so have outsourced to psychiatry uk via the right to choose system, once sorted and stable you’ll be passed back to gp via shared care, and like PP say it’s literally a repeat prescription and yearly BP check, hardly difficult for them!

What they won’t accept is diagnosis from many online sources, most of whom don’t hold the appropriate qualifications to be able to diagnose! It’s very difficult to find a reputable private company that the NHS will accept a diagnosis from.

Do you know about what happens to diagnoses that are made as children via private companies, once those children get to adulthood, would there be problems?

We have huge numbers of these at work

beautyqueeen · 11/05/2025 10:27

The nhs don’t have enough psychs to deal with the demand so have outsourced to psychiatry uk via the right to choose system, once sorted and stable you’ll be passed back to gp via shared care, and like PP say it’s literally a repeat prescription and yearly BP check, hardly difficult for them!

What they won’t accept is diagnosis from many online sources, most of whom don’t hold the appropriate qualifications to be able to diagnose! It’s very difficult to find a reputable private company that the NHS will accept a diagnosis from.

soupyspoon · 11/05/2025 10:18

Malm0 · 11/05/2025 09:37

No you said

“Adult adhd services are potentially stopping being funded by the NHS altogether as part of the cuts.“

ADHd services do diagnosis, titration, prescription, psychotherapy and alternative ADHD treatments .

Nowhere has it been said that these services are going to potentially stop being funded by the nhs altogether.

I didnt say that, you're quoting the wrong post.

Malm0 · 11/05/2025 09:40

Whispee · 11/05/2025 09:36

No, it'll be a blanket decision which you'd expect was off the back of another service getting actual funding to provide the prescribing duties.

Sorry could you elaborate a bit more. Are you saying they are arguing that NHS ADHD services are paid to do the monitoring after prescription so should do it as opposed to concerns re monitoring being done properly as has been suggested on this thread .It was a generic letter which showed zero examining of individual cases, zero reasons and was really poor?

Malm0 · 11/05/2025 09:37

soupyspoon · 11/05/2025 09:34

I now realise it was you I was referring to when I said that people on this thread are experiencing the risk they cant get meds. You spoke of your daughter not being able to get her meds. Surely that is a service to her that is going to be stopped? You sound like you're contradicting

Whether its widespread is a moot point, if its happening in your area, its very likely happening to other areas, potentially affecting thousands of people.

No you said

“Adult adhd services are potentially stopping being funded by the NHS altogether as part of the cuts.“

ADHd services do diagnosis, titration, prescription, psychotherapy and alternative ADHD treatments .

Nowhere has it been said that these services are going to potentially stop being funded by the nhs altogether.

Whispee · 11/05/2025 09:36

Malm0 · 11/05/2025 09:27

But my daughter was diagnosed but the leading NHS ADHD psychiatrist of the trust so are they accusing the trust of not following guidelines and policies?

No, it'll be a blanket decision which you'd expect was off the back of another service getting actual funding to provide the prescribing duties.

soupyspoon · 11/05/2025 09:34

Malm0 · 11/05/2025 09:28

But it’s not a widespread policy at all. NHS ADHD services and departments are not going to be stopped. Some have had to close wait lists, the department is still running.

I now realise it was you I was referring to when I said that people on this thread are experiencing the risk they cant get meds. You spoke of your daughter not being able to get her meds. Surely that is a service to her that is going to be stopped? You sound like you're contradicting

Whether its widespread is a moot point, if its happening in your area, its very likely happening to other areas, potentially affecting thousands of people.

Malm0 · 11/05/2025 09:28

soupyspoon · 11/05/2025 09:26

Except people on this very thread are facing a risk that they cant get their meds, so not scaremongering

But it’s not a widespread policy at all. NHS ADHD services and departments are not going to be stopped. Some have had to close wait lists, the department is still running.

Malm0 · 11/05/2025 09:27

Whispee · 11/05/2025 09:11

It is essentially unpaid work for some (that is dependent on various factors). It's also voluntary so they can refuse if they don't have the bandwidth to do it. If they are prescribing in their name they need to be satisfied that the consultant who did the diagnosis did so in line with all policy and guidelines; it's a big responsibility putting your name to someone else's work essentially- spending the time and effort reassuring themselves of this can take time.

But my daughter was diagnosed but the leading NHS ADHD psychiatrist of the trust so are they accusing the trust of not following guidelines and policies?

soupyspoon · 11/05/2025 09:26

Malm0 · 11/05/2025 07:54

But that’s not what your quite scaremongering previous post said

“Adult adhd services are potentially stopping being funded by the NHS altogether as part of the cuts.“

NHS adhd services have long waits and in extreme cases wait lists have been closed. Nowhere has it been said that adhd services are going to be cut altogether.

Except people on this very thread are facing a risk that they cant get their meds, so not scaremongering

soupyspoon · 11/05/2025 09:24

I dont understand the issue here, how is this different to any other drug that is prescribed by a consultant but issued by the GP

So Im on a medication which was prescribed by neurology and is issued by the GP. I have never had a review of it mind you, coming up 3 years. Is that what is considered shared care?

What about ENT prescribed medication, again have been prescribed medication for sinuses years ago which are for life from ENT, issued by GP of course.

Why is ADHD meds any different?

Hettyhopeless · 11/05/2025 09:15

My GP said they have a blanket ban on shared care for adult adhd. They told me with children, it was a possibility but would go to panel for the partners to decide on a case by case basis.

Ladymuck2022 · 11/05/2025 09:14

Hi,

There was a thing about this on BBC1’s morning programme con or cure, very hard on people, can’t recall what day last week.
see if you can get on
i-player

Whispee · 11/05/2025 09:11

Malm0 · 11/05/2025 08:56

How is it an unmanageable burden?The service does the yearly med review and the GP does a blood pressure check. The prescription goes to the pharmacy. GPs process hoards of prescriptions.

It is essentially unpaid work for some (that is dependent on various factors). It's also voluntary so they can refuse if they don't have the bandwidth to do it. If they are prescribing in their name they need to be satisfied that the consultant who did the diagnosis did so in line with all policy and guidelines; it's a big responsibility putting your name to someone else's work essentially- spending the time and effort reassuring themselves of this can take time.

Malm0 · 11/05/2025 08:56

Whispee · 11/05/2025 08:03

It's also an additional burden on already unmanageable workloads for GPs. With an NHS diagnosis it should really be the clinician that made the diagnosis prescribing (now it's all electronic it doesn't involve lots of running around by patients, can still select a local pharmacy to collect from etc).

OP it's worth getting on the NHS wait list regardless as the time will pass anyway as they say. If you do seek a private diagnosis in the meantime it's safer to assume that you won't get shared care.

How is it an unmanageable burden?The service does the yearly med review and the GP does a blood pressure check. The prescription goes to the pharmacy. GPs process hoards of prescriptions.

Whispee · 11/05/2025 08:03

Ahsheeit · 10/05/2025 23:53

The reason why a lot of GPs refuse shared care is due to patients and private firms not adhering to correct protocol for the medication - not having 6 monthly check ups etc. GPs have a duty of care to their patients when prescribing class A drugs, and don't want to risk it if the monitoring isn't being done. Some will agree later on if proof of correct protocol being followed can be evidenced.

Got this directly from an NHS GP.

It's also an additional burden on already unmanageable workloads for GPs. With an NHS diagnosis it should really be the clinician that made the diagnosis prescribing (now it's all electronic it doesn't involve lots of running around by patients, can still select a local pharmacy to collect from etc).

OP it's worth getting on the NHS wait list regardless as the time will pass anyway as they say. If you do seek a private diagnosis in the meantime it's safer to assume that you won't get shared care.

crossstitchingnana · 11/05/2025 07:58

Private diagnoses tend to disproportionately diagnose ADHD. Suggestion is they are not 100% reliable.