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Celiac disease

108 replies

Loveduppenguin · 02/05/2025 10:30

Asking here because i don’t where else to post, and traffic should be good here. I’ve been diagnosed as celiac this morning. I’m still waiting on my dietitian and gastroenterologist appointments to discuss things further. But just asking on here for any information on foods, tips etc etc ANYTHING at all to help me out on this transition. It would be so much appreciated ☺️ thank you

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Walksbymoonlight · 02/05/2025 18:53

Loveduppenguin · 02/05/2025 10:51

No im actually in Ireland but when i googled spelling that’s what i got 🤣

Hi @Loveduppenguin , look up the Coeliac Society of Ireland, www.coeliac.ie , for lots of advice, safe food lists and recipes.

Coeliac.ie - Coeliac Society Of Ireland

Guiding Ireland towards excellence in gluten-free living, fostering a healthier & more inclusive environment for all. Supporting, empowering, educating and inspiring those living a gluten free life every day There are an estimated 100,000 people living...

https://www.coeliac.ie/

Whenwillyoumakemyphonering · 02/05/2025 12:49

Loveduppenguin · 02/05/2025 10:39

oh god I don’t have social media 😭 i can’t cope with it. I’ll have to look her up another way maybe. Thank you so much

She has been on This morning a lot recently, perhaps try ITV player and see if you can find it. As another op said she does have a website.
Second that for the new GF.range in Aldi, although mostly midlands & south, so I can't say what it's like as my parents haven't brought my stash north of the border yet!

Peaceloveandhappiness · 02/05/2025 12:21

One thing to watch for, depening on yiur age, is that Coeliacs don't absorb vitamins if they have been eating gluten. Especially Vit D and Calcium which will affect bone density. I was diagnosed with osteoporosis via a Dexa scan after diagnosis early 60's.

Foodwise I like Tesco cereal and choc biscuits. M&S bread, quiche, fish cakes, cheesebakes etc. It is mainly sauces ans coatings to watch out for. My DH and I have same meals, I just have GF version or no sauce but GF gravy, Tesco is nice.

Sharwood and Patak curry sauces mainly GF, lovely with rice, which is usually gf, prawns or chicken. Good luck.

TaggieO · 02/05/2025 12:04

A few subs that make a big difference:
Potato crust quiche
yogurt flatbreads with gf flour

a few things to be really careful of:
soy sauce has gluten in
gluten free doesn’t always mean safe for coeliac. Always say that you are coeliac rather than just asking for gf.

Loveduppenguin · 02/05/2025 11:58

Thank you all for your advice and tips. Lots to look into 🙌

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Scampuss · 02/05/2025 11:31

I'm anaphylactic/allergic to wheat and have been W/GF for 4 years now, and even in that time the quality of GF products has dramatically improved.

Some easy switches are stock cubes (many are GF), soy sauce (use Tamari instead) and Worcester sauce (use Hendo's instead).

There are perfectly acceptable breads, everyone has different preferences though so you'll need to test them for yourself. My 2 favourite bready things are Warburtons pittas and Schar's frozen rolls (which turn into delicious crusty rolls when baked). White Rabbit do excellent pizzas, and for pasta stick to Italian brands - the Italians are great for GF. M&S have some delights (iced buns, teacakes, samosas and spring rolls).

Becky Excell's Yorkshire pudding recipe is a must, and her website and books are a great intro to GF cooking and baking.

Menapausemum1974 · 02/05/2025 11:20

Loveduppenguin · 02/05/2025 10:50

Nooooo I love soy!! 😭🤣

@Loveduppenguin you can buy a gluten free version , tastes the same

TheShiningCarpet · 02/05/2025 11:17

hi there
You are likely more at risk from low b12 and iron due to poor absorption, ideally you should have b12 jabs as you will be poorly absorbing from tablets. You are also more at risk from lactose intolerance.

It is an autoimmune disease so please feel free to correct people who say they also have an 'allergy or intolerance' to wheat. Totally different things!

Loveduppenguin · 02/05/2025 11:08

NewJobNewMeNewLife · 02/05/2025 11:03

I too have coeliac disease. it is hard at first, and it’s a lot to get your head round.
15 years later though, its second nature to me. I wear a naturally gluten free diet and don’t eat anything off the gluten free aisle at all (except for frozen pizza to cook in an emergency) I eat out regularly and travel/ go on holiday.

the people you live with need to understand too, so they don’t misunderstand or buy something assuming it is gluten free. And so you can avoid cross contamination. I don’t have a gluten free house but will not touch gluten in case I accidentally ingest any. My children have learned about this from being small.

It’s a big adjustment that’s for sure

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NewJobNewMeNewLife · 02/05/2025 11:03

I too have coeliac disease. it is hard at first, and it’s a lot to get your head round.
15 years later though, its second nature to me. I wear a naturally gluten free diet and don’t eat anything off the gluten free aisle at all (except for frozen pizza to cook in an emergency) I eat out regularly and travel/ go on holiday.

the people you live with need to understand too, so they don’t misunderstand or buy something assuming it is gluten free. And so you can avoid cross contamination. I don’t have a gluten free house but will not touch gluten in case I accidentally ingest any. My children have learned about this from being small.

redblonde · 02/05/2025 11:02

M&S bread products are the best (but my god do they know how to charge!)
Asda flour is the best I find, and baking works fine, just substitute it for normal flour, add some xanthum gum powder and poss a bit extra liquid.
Asda gf pasta is fine and not madly expensive
Morrisons (at least our local one does) has a small chiller/freezer in the free from aisle and has some good stuff in it (my daughter loves the frozen Mac n cheese balls!)
Other supermarkets can make it harder to find frozen gf stuff but it’s generally there somewhere.

Good luck

MrsCravensworth · 02/05/2025 10:59

Loveduppenguin · 02/05/2025 10:54

Fantastic I shop in Lidl and Aldi mostly

Things like sausages, “breaded” chicken are easy in aldi. A lot of their sausages say GF on the front, and the tempura battered chicken says GF. As are their falafel, the bbq bits in the summer. Lidl is getting better too.

Loveduppenguin · 02/05/2025 10:54

MrsCravensworth · 02/05/2025 10:53

I did notice that Adli have started doing GF products over the last couple of weeks. The bread was half the price of other supermarkets when I looked.

Fantastic I shop in Lidl and Aldi mostly

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MrsCravensworth · 02/05/2025 10:53

I did notice that Adli have started doing GF products over the last couple of weeks. The bread was half the price of other supermarkets when I looked.

Atarin · 02/05/2025 10:53

Loveduppenguin · 02/05/2025 10:39

oh god I don’t have social media 😭 i can’t cope with it. I’ll have to look her up another way maybe. Thank you so much

She has a website.

There is a board on here for Celiacs, you’ll probably get a lot more traffic there.

Loveduppenguin · 02/05/2025 10:51

Whatsgoingonherethenagain · 02/05/2025 10:43

Are you in the US? Just because you’re using the US spelling celiac rather than the UK coeliac…

as that will make quite a bit of difference in product and food availability.

we find the US is more gluten aware generally. It seems to be the norm for people to avoid gluten, so there are more products. They’d often arranged differently as well- in the UK supermarkets will have an (overpriced!) “free from” aisle where all their GF products are. US will have the GF cookies in the cookie (biscuit) aisle.

No im actually in Ireland but when i googled spelling that’s what i got 🤣

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Loveduppenguin · 02/05/2025 10:50

ZaZathecat · 02/05/2025 10:42

Just a little tip, as it came as a surprise to me, soy sauce usually contains wheat so you need special gluten free soy sauce or tamari sauce which is normally g/f.
It's hard to eat in Chinese restaurants, Thai is better.

Nooooo I love soy!! 😭🤣

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MrsCravensworth · 02/05/2025 10:46

ZaZathecat · 02/05/2025 10:42

Just a little tip, as it came as a surprise to me, soy sauce usually contains wheat so you need special gluten free soy sauce or tamari sauce which is normally g/f.
It's hard to eat in Chinese restaurants, Thai is better.

And Worcester sauce!

Drinks too. I used to love Vimto, but it contains barley. That’s the one thing I miss.

Debtfreegoals · 02/05/2025 10:45

Celiac for 17 years here. It might seem very daunting but it’s not as bad as it can seem at first. Most restaurants will have gluten free options but here are some tips that I can give.

  1. takeaways are usually not advised unless they can guarantee a gluten free space.
  2. any cuisine that uses soy sauce will usually 99% have gluten in unless is specifically states not.
  3. if you go on holiday, message the accommodation (hotel) if you are on a board basis and let them know ahead of your stay. They will be able to offer you gluten free items.
  4. Sainsbury’s in my opinion has the best gluten free brands.
  5. old El Paso corn tortilla wraps are gluten free and state on the packaging.
  6. Becky Excell and Megan McKenna cook books have been so helpful to me.
MrsCravensworth · 02/05/2025 10:45

I’ve found eating out to be a pain in the arse. While many places have “non gluten containing” menus, they all have the disclaimer about cross contamination. I’ve been caught out a few times so I don’t bother anymore.

MrsCravensworth · 02/05/2025 10:44

Loveduppenguin · 02/05/2025 10:40

To be honest I’m going to make the whole house gluten free going forward. It’s the only way I’ll know.

I tried that at first, but it depends who lives with you. It can get expensive and I wouldn’t inflict gluten free products on my worst enemy 🤣

It’s okay if you are careful. I make my children normal sandwiches next to my own food, it’s okay, you get used to being careful, having your own chopping board and knife etc. it becomes second nature.

Whatsgoingonherethenagain · 02/05/2025 10:43

Are you in the US? Just because you’re using the US spelling celiac rather than the UK coeliac…

as that will make quite a bit of difference in product and food availability.

we find the US is more gluten aware generally. It seems to be the norm for people to avoid gluten, so there are more products. They’d often arranged differently as well- in the UK supermarkets will have an (overpriced!) “free from” aisle where all their GF products are. US will have the GF cookies in the cookie (biscuit) aisle.

ZaZathecat · 02/05/2025 10:42

Just a little tip, as it came as a surprise to me, soy sauce usually contains wheat so you need special gluten free soy sauce or tamari sauce which is normally g/f.
It's hard to eat in Chinese restaurants, Thai is better.

Loveduppenguin · 02/05/2025 10:41

MrsCravensworth · 02/05/2025 10:40

I didn’t find it too daunting as I mainly ate meat, dairy and some veg anyway, so bread etc didn’t bother me.

Yeah I don’t eat masses of bread thank god!

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Loveduppenguin · 02/05/2025 10:40

BazzleandWeeps · 02/05/2025 10:39

First of all sending you gentle hugs, it's a bit overwhelming when you start but you soon get into the swing of things.

Don't feel like you can only shop in the free from aisles of the supermarket - there are lots of things that are naturally gluten free and you soon learn to visually check for gluten containing ingredients. What you need to look for is Barley, Rye, Oats, Wheat and Spelt (BROWS) also as a coeliac you shouldn't be eating anything that is a "may contain" unless you've been told by a medical expert that you can.

Avoid the scanner apps - their information is not often up to date. Coeliac UK is good for advice, there are a lot of coeliac friendly Facebook Groups, including some created by chefs. I hugely recommend the Facebook group, recipe books and website of Becky Excell Gluten Free (website is glutenfreecuppatea)

You might need to shop around to find the food that you like as lots taste different - don't rule our GF bread because one brand didn't taste nice, there are lots of others and they all taste slightly different.

At home you need to keep some things separate - we only have one toaster, but my daughter's toast goes in a toaster bag to avoid gluteny crumbs. You can't share butter/spread (she has her own in the fridge) If cooking her stuff goes at the top of the oven and gluten stuff at the bottom, although we ofter just naturally cook GF.

You're welcome to message me - we've been doing this for 4 years and it does get easier.

To be honest I’m going to make the whole house gluten free going forward. It’s the only way I’ll know.

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