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Share your dilemmas and get honest opinions from other Mumsnetters.

To think MNHQ should delete all chat about ‘the golden/bonus dose’ for those on WLI?

240 replies

istrich · 01/05/2025 16:03

I use the weight loss forums quite a lot and with the arrival of WLI they are busier than ever. But, it’s worrying the amount of people who are misusing their prescription and discussing with others how to do so. Should MNHQ take action here?

OP posts:
istrich · 01/05/2025 17:24

naemates · 01/05/2025 17:23

are you in favour of doing it, just not talking about it?

No

OP posts:
Azureshores · 01/05/2025 17:24

youcannaecallherfanny · 01/05/2025 17:21

You crack on then.

I wouldn’t. But I can easily afford the pens and cba with ordering syringes, breaking pens and trying to scrape every last ml out.

I can easily afford the pens too but to effectively chuck away £50 worth of medication is bonkers. It's easy as pie to do it with an insulin syringe - actually easier than faffing with the screw on needle.

naemates · 01/05/2025 17:24

Sorry I didn’t see you’d replied already

naemates · 01/05/2025 17:23

are you in favour of doing it, just not talking about it?

Azureshores · 01/05/2025 17:22

I think it would be a nightmare for MN to monitor those posts, and people are going to do it regardless so better they are properly informed on sites like MN where there are many experienced long term users.

The only reason pharmacies advise against it is bc it means less money for them, let's be honest. Has anyone ended up in hospital yet for taking the bonus dose? I don't think so.

istrich · 01/05/2025 17:22

naemates · 01/05/2025 17:20

OP, to try and understand your position, could you say what perspective you’re coming from? Got friends/family you’re concerned about, or a medical background, or looking into it for yourself? Just interested? I think it would help us understand you.

for me, even if someone doesn’t understand dosage, the leftover amount is more or less one dose, and even if it’s slightly over, having used the 4 previous doses means that your body should be able to cope on a higher dosage anyway. Assuming they stick the needle in the same place as the previous injections, I don’t see how wrong it can go?

I don’t really have a position tbh. I was asking if IABU and I guess the answer is yes.

fair dos

OP posts:
istrich · 01/05/2025 17:21

OuchyEars · 01/05/2025 17:10

YABU for not having a vote.
YAalsoBU for using jargon which most AIBU readers won't know.
YABU for putting it here for the traffic because of both the above reasons.

I vote YABU.

Sorry I didnt even see how to do a vote but it’s ok I’m guessing 100% would pick IABU

OP posts:
youcannaecallherfanny · 01/05/2025 17:21

SilenceInside · 01/05/2025 17:18

@youcannaecallherfanny it's always been at least 0.6ml and often more like 0.8 or 0.9ml for me. It would only be less than 0.6ml if you had done lots of priming that released a lot of liquid. And then, you could still measure it and work out what dose it would be and decide if it was worth using it.

The fact that the manufacturer doesn't intend for people to use the leftover medication, doesn't mean that it isn't possible or that it is somehow different to the rest of the medication in the pen.

You crack on then.

I wouldn’t. But I can easily afford the pens and cba with ordering syringes, breaking pens and trying to scrape every last ml out.

naemates · 01/05/2025 17:20

OP, to try and understand your position, could you say what perspective you’re coming from? Got friends/family you’re concerned about, or a medical background, or looking into it for yourself? Just interested? I think it would help us understand you.

for me, even if someone doesn’t understand dosage, the leftover amount is more or less one dose, and even if it’s slightly over, having used the 4 previous doses means that your body should be able to cope on a higher dosage anyway. Assuming they stick the needle in the same place as the previous injections, I don’t see how wrong it can go?

istrich · 01/05/2025 17:20

RinkyDinkDrink · 01/05/2025 17:19

Aren’t you asking to delete discussions you don’t like, though? 🤔

Anyone can ask for this to be deleted if they don’t like it

OP posts:
istrich · 01/05/2025 17:20

nomas · 01/05/2025 17:13

It doesn’t matter that you’re ‘just asking’, as soon as you make MN responsible for deleting health information, you make them liable.

Their current approach of a disclaimer is better.

Well I’m no lawyer so I didn’t know that would make them liable.

OP posts:
RinkyDinkDrink · 01/05/2025 17:19

istrich · 01/05/2025 16:19

it’s a discussion that’s all

Aren’t you asking to delete discussions you don’t like, though? 🤔

istrich · 01/05/2025 17:19

Anothercoat · 01/05/2025 17:15

I can only imagine that you’re the UK product manager for Mounjaro.

Haha

OP posts:
youcannaecallherfanny · 01/05/2025 17:18

I wouldn’t use it as it’s prepping dose and shouldn’t really leave enough for a full dose if the prep is done properly to avoid air bubbles. breaking a syringe to use another syringe to extract medication - doesn’t sound safe to me.

SilenceInside · 01/05/2025 17:18

@youcannaecallherfanny it's always been at least 0.6ml and often more like 0.8 or 0.9ml for me. It would only be less than 0.6ml if you had done lots of priming that released a lot of liquid. And then, you could still measure it and work out what dose it would be and decide if it was worth using it.

The fact that the manufacturer doesn't intend for people to use the leftover medication, doesn't mean that it isn't possible or that it is somehow different to the rest of the medication in the pen.

Anothercoat · 01/05/2025 17:15

istrich · 01/05/2025 16:58

None. Well none yet anyway. There is a bigger picture though and the future of these medications is vastly unknown. The misuse of the pens could lead to tighter prescription regulations and higher cost which will ultimately affect me at some point. So yes I do have an interest but also it’s worrying to see ill informed people messing about injecting themselves
.
as an aside becsue it’s obviously not on mumsnet but the amount not videos of people taking their WLI and they wipe themselves and not the pen is shocking.

I can only imagine that you’re the UK product manager for Mounjaro.

youcannaecallherfanny · 01/05/2025 17:14

Summerseagull · 01/05/2025 16:53

Don't be daft
It's expensive stuff .
Why would a you waste a week's worth every month

Because it’s not meant to be used as a dose and isn’t even a full dose anyway?

nomas · 01/05/2025 17:13

istrich · 01/05/2025 16:48

Goodness no don’t be ridiculous.

’people like me’? I’m just asking if it should be a ‘no go’ area. That’s all. I’m not looking to bloody sue anyone.

It doesn’t matter that you’re ‘just asking’, as soon as you make MN responsible for deleting health information, you make them liable.

Their current approach of a disclaimer is better.

SilenceInside · 01/05/2025 17:12

@Scottishdreams1991 the two issues mentioned in those articles are

  1. that the amount is not measured and therefore the dosage is unknown.

This is not correct. If you extract with a syringe, you can measure the amount of medication and calculate the dosage. If you break the pen mechanism and use the pen as before, you will be getting a normal 0.6ml dose.

  1. Quoted from the linked article - "There is also an increased chance of damage to the Mounjaro pen by trying to get an extra dose from it. This means that it would no longer be usable, and would mean that another pen would need to be purchased."

This is a bit of an odd objection! You would only use the remaining liquid after you have done 4 doses. You wouldn't be expecting to try to use the pen afterwards. Mainly because it would be empty!

OuchyEars · 01/05/2025 17:10

YABU for not having a vote.
YAalsoBU for using jargon which most AIBU readers won't know.
YABU for putting it here for the traffic because of both the above reasons.

I vote YABU.

balloonraces · 01/05/2025 17:09

I took the extra dose from twisting the pen with a pair of pliers op

SilenceInside · 01/05/2025 17:08

@Crikeyalmighty a 5th dose from the pen is fully in date, as it fits easily within the 30 days. Days 1, 8, 15, 22 and 28.

CopperWhite · 01/05/2025 17:08

People are already ordering this stuff off the internet so they must be comfortable with the risk associated with that. I can’t see why it makes any difference except to the people who are charging for it.

Crikeyalmighty · 01/05/2025 17:06

I am taking at the moment - I am very unsure if it is fully in date to be honest if doing this as whilst the in date on the outside of the box is quite a few months , once you have pierced and used isn’t it meant to be used up within 30 days? and to be fair I can’t be arsed with the faff , so haven’t done it .

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