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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think something is off here?

290 replies

Thegirlinthegreenscarf · 30/04/2025 23:53

Way back early 2022 my colleague said that she got diagnosed with stage 4 Glioblastoma brain cancer. Of course we all naturally felt so sorry for her and since have done everything we can to make sure that her life is easier. She has a husband and two young children. In 2024 my colleague said that she had surgery which removed most of the tumour but she was still terminally unwell.

The thing that's at the back of my mind is that she's never changed in appearance never looks unwell. Still puts in all the work hours etc.

Am I being unreasonable to think she's maybe playing us all?

OP posts:
Nameychangington · 02/05/2025 22:18

With great respect to posters detailing now you can have various types of cancer and not look ill, a GBM is not that. It's very aggressive, very quickly. If this person has said a low grade astrocytoma that would be plausible, but glioblastoma no. So either it's a different type of brain tumour, or it's a lie.

YourPurpleGal · 02/05/2025 22:03

Tricky one. Have you asked her about the particulars of her treatment? What medication does she take, what amounts and when? Is it consistent with what you can research? What hospital/ consultant is she with? I know you can look them up on the General Medical Council website. Is this lady known for being honest, or the opposite? Do you know her family? What are they like? Could they enlighten you? I'd certainly be asking all of these questions to prove or disprove her claims.

Muddlingalongsomehow · 02/05/2025 21:47

I'm going to add something here. A really ignorant person is taking me to task for highlighting that a high level brain tumour is called Grade 4 not Stage 4 and arguing with me about it. I was carer for my late husband for 8 years, with his GRADE 3 brain tumour. He never had a Stage, because that is not used, certainly in the Uk. I have been trying to add screenshot showing how and why staging is not used for brain tumour- google is your friend here - but I think mumsnet is not uploading them. Staging is for showing how cancer has or hasn't spread. Brain tumours rarely do that.

Out of respect for brain tumour patients and their families, I think this woman an anyone else continuing to insist on the wrong terminology needs to stop now

Mumsgirls · 02/05/2025 21:42

When a family member had a brain tumour it was well hidden by long hair, but after a lot of treatment she was weak and exhausted and being sick. She could not have hidden it or worked for months. Thankfully well now

Muddlingalongsomehow · 02/05/2025 21:40

TheFormidableMrsC · 02/05/2025 21:36

I’m sorry you feel you need an apology. I had grade 2 breast cancer. I understand grading. Glioblastoma is a stage 4 cancer from diagnosis. No amount of removing, debulking, chemo, radio, is going to change the outcome tragically and that outcome rarely surpasses 18 months. Both of my young, fit, previously healthy friends were within a year.

Look. Stop it. You don't know what you're talking about. Have some respect. Ignorant woman

To think something is off here?
TheFormidableMrsC · 02/05/2025 21:40

MummaMummaMumma · 02/05/2025 21:18

I have a friend who definitely has cancer. She's not faking.
To the outside world, you'd never know. She looks fantastic, always happy and joking with a huge smile. She's still got her hair, but had lost some weight.
Even after major surgery, you'd never know unless she told you.

Me too. Stage 4 inflammatory breast cancer. Been “well” for nearly six years if you discount the endless days in bed, sleeping off the hideous chemo, the awful side effects. She looks fabulous and long may that continue ❤️

TheFormidableMrsC · 02/05/2025 21:36

Muddlingalongsomehow · 02/05/2025 19:04

I will await your apology. I just googled it to check. It's referred to on the Brain Tumour Charity website and others as a Grade 4. Grade is the type.

I took a screenshot but it won't let me upload it.

Staging is the point it has reached. Eg I had a grade 2 uterine cancer, thought at first to be Stage 4 as they thought it had metastasised, later thought not.

I’m sorry you feel you need an apology. I had grade 2 breast cancer. I understand grading. Glioblastoma is a stage 4 cancer from diagnosis. No amount of removing, debulking, chemo, radio, is going to change the outcome tragically and that outcome rarely surpasses 18 months. Both of my young, fit, previously healthy friends were within a year.

Worriedsickmostofthetime · 02/05/2025 21:36

Yes already posted before but reiterating that it I don’t believe it’s something easily hidden. It’s brutal and devastating. Surgery is huge and has a significant recovery depending on location of tumor. Treatment (chemo and radiation) is also not something you just sail through. Radiotherapy to your head region almost always has serious fatigue as a side effect.

DeborahVancesBeehive · 02/05/2025 21:29

MuddlingThroughLife · 01/05/2025 08:42

My 10 year old ds died from stage 4 medulloblastoma. Having watched him have a 7 hour brain surgery which resulted in weakness down his left side and difficulty walking, watching him do daily radiotherapy for 6 weeks which made all his hair even his eye lashes fall out followed by 4 months of intensive chemo, go into remission then die 3 months later because it came back and nothing more could be done, I'm afraid I don't believe your colleague.

I was off work for the whole year of his treatment to look after him.

I'm so incredibly sorry xxx

MummaMummaMumma · 02/05/2025 21:18

I have a friend who definitely has cancer. She's not faking.
To the outside world, you'd never know. She looks fantastic, always happy and joking with a huge smile. She's still got her hair, but had lost some weight.
Even after major surgery, you'd never know unless she told you.

Threesacrow · 02/05/2025 21:09

Sounds unlikely to me. My parents both had grade 4 glioblastomas. My father survived 10 months, much longer than his consultant expected, with just steroids, but he was very ill throughout. My mother 's tumour was debulked but she only survived three months. Glioblastomas are usually only found when they metastasis, which is why they have such a poor outcome. I would be very surprised that your colleague could appear well and without symptoms. I suspect Munchausens.

Khayker · 02/05/2025 20:45

Thegirlinthegreenscarf · 01/05/2025 00:58

That's what I watched that started me thinking about things.

Had a colleague some years ago died of glioblastoma at 27. He had operations beforehand which prolonged his life but had hair loss and scaring where his skull was opened to get at the tumour. He lost some function, memory, speech etc., with every op. Only lasted two years after diagnosis. If your colleague doesn't have obvious signs of an op or deterioration she's very lucky.

IsItTheBlackOneOrTheRedOne · 02/05/2025 20:37

Thegirlinthegreenscarf · 01/05/2025 00:35

@CountryMumof4 that's the thing she does go on about it and makes everyone aware of it all the time. She's even been in the local rag because of it. So sorry to read about your miscarriages Flowers I hope you are ok.

That’s a red flag for me tbh. I had TWO different work colleagues fake cancer. One of them was very attention seeking and appeared in several local rags. The problem was, her shaved head never had any bald spots. Her partner was totally duped.

Jellybellyjiggle · 02/05/2025 20:15

I have incurable cancer which has spread to various places, including my brain. I have 3 weekly chemo and brain radiotherapy when new tumours pop up. From the outside I think I look normal, and I've long outlived my prognosis (they thought I'd live for a year or so....that was 5 years ago!) I've two young children and many mums and dads on the playground have no idea i have incurable cancer. Of the people who do know, I'd be horrified if it even crossed their minds I'd made it up!

WearyAuldWumman · 02/05/2025 19:59

To clarify - my relative had shaved her hair all over - no sign of an operation site. (Plus there was no word of her ever being accompanied to chemotherapy by anyone in the family and no word of an operation of any kind.)

WearyAuldWumman · 02/05/2025 19:57

ColdWaterDipper · 02/05/2025 19:36

A bit different, because I have had a different type of cancer, but a very aggressive sort. Mine wasn’t metastatic though, so not terminal although I had to have 3 years of several types of chemo to stop it as it was on the point of spreading. However, I carried on, worked through chemo, carried on doing the school runs, exercising when I could, doing most of my normal stuff and I didn’t particularly want to talk about it as cancer can become all consuming with everyone asking how you are all the time.

so I would cut your colleague some slack - maybe she is faking, but quite possibly she isn’t. My mum has had stage 4 cancer for 12 years now but it’s not the same type as your colleague and is very stable with meds luckily. A friend of mine had a benign brain tumour, had it removed and has had no further trouble, but that was never cancer as it was benign.

Just also a note to everyone talking about shaved heads - chemo makes your hair fall out, you don’t shave your head! I mean it makes all your hair fall out, everywhere on your body (although I only lost half my eyebrows for some reason). It really annoys me when people talk about cancer patients having ‘shaved heads’ and ‘brave the shave’ irritates me for similar reasons - shaving one’s head is nothing like your hair falling out I promise.

Yes, I had a friend who lost her care to chemo. That's why it was so obvious when my relative shaved her hair.

YesHonestly · 02/05/2025 19:48

ColdWaterDipper · 02/05/2025 19:36

A bit different, because I have had a different type of cancer, but a very aggressive sort. Mine wasn’t metastatic though, so not terminal although I had to have 3 years of several types of chemo to stop it as it was on the point of spreading. However, I carried on, worked through chemo, carried on doing the school runs, exercising when I could, doing most of my normal stuff and I didn’t particularly want to talk about it as cancer can become all consuming with everyone asking how you are all the time.

so I would cut your colleague some slack - maybe she is faking, but quite possibly she isn’t. My mum has had stage 4 cancer for 12 years now but it’s not the same type as your colleague and is very stable with meds luckily. A friend of mine had a benign brain tumour, had it removed and has had no further trouble, but that was never cancer as it was benign.

Just also a note to everyone talking about shaved heads - chemo makes your hair fall out, you don’t shave your head! I mean it makes all your hair fall out, everywhere on your body (although I only lost half my eyebrows for some reason). It really annoys me when people talk about cancer patients having ‘shaved heads’ and ‘brave the shave’ irritates me for similar reasons - shaving one’s head is nothing like your hair falling out I promise.

With the greatest of respect, and I’m so sorry to hear you are suffering with cancer, glioblastoma is completely different.

It is one of the most, if not the most, aggressive type of cancer. If the colleague had surgery to remove the tumour as she claims, her head would have been shaved in part at least. I do not believe, after watching a loved one die of this bastard disease, that the colleague has glioblastoma.

treesandsun · 02/05/2025 19:46

I know someone who faked cancer - you don't imagine someone you know would do something like that - I don't want to say anything too outing - they lied to one person for a specific reason - but word got out and it spiralled out of their control and they couldn't actually say - actually I made it up. I can't remember how it was uncovered. They died a few years later - not of cancer.

I think if you don't have any proof just assume they are telling the truth but be careful around money requests.

ColdWaterDipper · 02/05/2025 19:36

A bit different, because I have had a different type of cancer, but a very aggressive sort. Mine wasn’t metastatic though, so not terminal although I had to have 3 years of several types of chemo to stop it as it was on the point of spreading. However, I carried on, worked through chemo, carried on doing the school runs, exercising when I could, doing most of my normal stuff and I didn’t particularly want to talk about it as cancer can become all consuming with everyone asking how you are all the time.

so I would cut your colleague some slack - maybe she is faking, but quite possibly she isn’t. My mum has had stage 4 cancer for 12 years now but it’s not the same type as your colleague and is very stable with meds luckily. A friend of mine had a benign brain tumour, had it removed and has had no further trouble, but that was never cancer as it was benign.

Just also a note to everyone talking about shaved heads - chemo makes your hair fall out, you don’t shave your head! I mean it makes all your hair fall out, everywhere on your body (although I only lost half my eyebrows for some reason). It really annoys me when people talk about cancer patients having ‘shaved heads’ and ‘brave the shave’ irritates me for similar reasons - shaving one’s head is nothing like your hair falling out I promise.

Thegirlinthegreenscarf · 02/05/2025 19:22

So sorry to everyone on this thread that has shared stories of loved ones and friends. I am surprised at the posts about people who have made up and lied about having cancer, I can't get my head around that tbh. The must be really unwell mentally to do that.

With regards to my colleague its not something that I think deeply about or impacts my life. It was just a niggle at the back of my mind so I thought I'd ask on here for opinions. I would definitely never say anything to anyone about this, will keep quiet and see what happens in the future I suppose.

OP posts:
Muddlingalongsomehow · 02/05/2025 19:16

Muddlingalongsomehow · 02/05/2025 19:04

I will await your apology. I just googled it to check. It's referred to on the Brain Tumour Charity website and others as a Grade 4. Grade is the type.

I took a screenshot but it won't let me upload it.

Staging is the point it has reached. Eg I had a grade 2 uterine cancer, thought at first to be Stage 4 as they thought it had metastasised, later thought not.

This clarifies it

To think something is off here?
Muddlingalongsomehow · 02/05/2025 19:04

TheFormidableMrsC · 02/05/2025 18:34

Glioblastoma is always Stage 4 (nothing to do with grading). I understand given your experience with your husband why you are annoyed but it’s not the same by a long way.

I will await your apology. I just googled it to check. It's referred to on the Brain Tumour Charity website and others as a Grade 4. Grade is the type.

I took a screenshot but it won't let me upload it.

Staging is the point it has reached. Eg I had a grade 2 uterine cancer, thought at first to be Stage 4 as they thought it had metastasised, later thought not.

GiveDogBone · 02/05/2025 19:01

Thegirlinthegreenscarf · 30/04/2025 23:53

Way back early 2022 my colleague said that she got diagnosed with stage 4 Glioblastoma brain cancer. Of course we all naturally felt so sorry for her and since have done everything we can to make sure that her life is easier. She has a husband and two young children. In 2024 my colleague said that she had surgery which removed most of the tumour but she was still terminally unwell.

The thing that's at the back of my mind is that she's never changed in appearance never looks unwell. Still puts in all the work hours etc.

Am I being unreasonable to think she's maybe playing us all?

If she’s had time off work or they’ve had to accommodate her in various ways you’d have thought they’d have required evidence to do so. Of course she could have faked it, but it’s unlikely they wouldn’t have asked for something.(and if she provided a false document that’s now fraud, a criminal offence). And your employer can of course check up on it (by contacting the named doctor for example).

But I agree with you, it’s very unlikely she’d have lasted this long without physical signs, deterioration, etc. And if she had an operation there would be physical signs, eg scars - you have to drill holes in the skull to access the brain!

Snoringdogsfarting · 02/05/2025 18:35

My relative lived for 6 weeks from diagnosis.

TheFormidableMrsC · 02/05/2025 18:34

Muddlingalongsomehow · 02/05/2025 18:06

Oh god, you absolutely need to backtrack here. First, it's a GRADE 4 cancer, not stage, that means something different.

I recently lost my husband of 41 years to a Grade 3 brain tumour. His prognosis was 3-5 years if you're lucky, 12-18 months if not (with that latter scenario meaning it would have become a Grade 4). He lived nearly 8 years. On the Brain Tumour Charity support page, there are indeed many people who die within months or years with a Grade 4. But there are some who live several years. It depends on so much.

For many people, the first choice of chemotherapy - temazolomide - is reasonably well tolerated. It's pills not intravenous, usually a few days per month. For my husband, it just made him very tired in week 3. Nothing more. Radiotherapy is usually soon after surgery, daily for a few minutes for some weeks. Again fatigue is the main consequence.

People wouldn't have known there was anything wrong with my husband except that his speech and memory were hit, because of the tumour location. There's a helpful gif showing life with a brain tumour, of an iceberg in the sea. Top bit is labelled something like "You look fine" and then the 90% below labels all the hidden side effects and consequences.

So honestly, unless you've got solid evidence something is amiss with her story, you have to drop this. If anyone had judged or suspected my husband as exaggerating or faking his illness, it would have absolutely broken me. And it was hard enough to deal with all the people saying "Ooh he's looking great! Doing so well!" and I wanted to say "you haven't a fucking clue"

Glioblastoma is always Stage 4 (nothing to do with grading). I understand given your experience with your husband why you are annoyed but it’s not the same by a long way.