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If a Childrens dermatologist said this to you..

59 replies

AmberHiker · 28/04/2025 23:53

When my son turned 7 out of no where he got a rash , that then signalled two years of back to back episodes of welts,hives, rashes , and to the point his whole body bar his feet has been affected. We have been mainly under the gp who dishes out emolienfs , steroids , bath treatments and advice. I paid private last year to be seen at the hospital under the children’s team who did no testing but wrote a report and chucked the term itchyosis in there ( son doesn’t have this ) said my child needed urgent dermatology appointment and today one year later we went.

she agreed it was unusual in placement and listened to his history but then said what about his school bag? He’s 9 he carries if briefly to school each day. I looked at her kinda dumbstruck .. I said if this was being caused by a backpack what about Summer holidays and weekends when it’s not used … she just looked at me . While they have agreed to do a basic patch test ( no idea when it will be ) and wrote another prescription for more emolients and a stronger steroid there was no concern about the fact

it’s seasonal
doesn’t present like excema
it’s more like Hives and welts
only responds to steroids
no antihestime works
no previous allergy or excema in him or family
no pets or obvious triggers

I’m gonna attach a photo to show what it’s like at its very worst during a typical summer time flare , im just at my wits end . Ive had medical people say its excema then its not then maybe its allergy then maybe its a serious skin condition and now maybe its the school back pack. What would you do at this point

OP posts:
GildedRage · 29/04/2025 01:08

no photo but allergies can be really strange. my ds is allergic to a type of algae that blooms only part of the year and should fish eat that algae he flairs up with welts and hives like a world map. so sea food is out as is fish sauce.
i have friends who are allergic to wine tannin which is only added to some wines some time.

Needspaceforlego · 29/04/2025 00:55

Op does it affect his face or head?

Do you stick to the same soap powder?

It sounds similar to what I had a couple of years ago, I think it was triggered by Daz soap powder.

The antihistamines sort of kept on top of it but didn't clear it. It didn't clear until they gave me a couse of steroids.

SunshineCatcher · 29/04/2025 00:53

I greatly sympathise! My child came out in a full body rash at the weekend. He is usually extremely well and healthy. I took him to a world renowned medical facility. They told me that it was like looking for a needle in a haystack and to give him Benadryl! I paid for that appointment! He still has the full body rash and I have no idea what caused it. I’m sorry that you are not getting any answers!

avillage · 29/04/2025 00:44

Is it during summers only? Does he get sweaty? If it is prickly heat rash we in south asia get them during summers. Tbh nothing helps. Just wash as soon as you get sweaty. In our culture it helps when you stand in the summer rain and it goes away really quick.

Have you tired natural, breathable fabrics for clothes. Like just pure cotton without any polyester? Try getting boys kurtas from pakistani/indian shops. Look for cotton fabric.

Also have they tested for food allergies? I had a friend who used to get big red patchy, itchy rash and was told to avoid meat, eggs, okra etc by the doctor. Food also has an impact on the body. Some will make you warm, some will cool you. Meat will make you warm and you will notice it that yyou will feel hot if you eat too much meat. Similalry eggs have a warming affect. Give him things that cool his body. Water melons, melons, lassi, milk mixed with water...these are all good ways to cool the body.

AmberHiker · 29/04/2025 00:18

I’ve posted photos but they are under review. No health issues no problems with regulating body temp. We just go in cycles and circles for two years . His skin is moistures 3 times daily but it’s back to back flares with a few short random times where it’s calm. She saw it today and said it looked bad I said this is calm for him. Today was a good day . I have tried everything in terms of showering how to dry skin removing any obvious triggers . Hopefully photos will be up soon. One year nhs wait as emergency to be told she would like to test his back pack 😳

OP posts:
Zanina · 29/04/2025 00:11

Does your child struggle to regulate their temp?

BlackeyedSusan · 29/04/2025 00:06

MCAS can be weird. I've not read about it recently so probably wrong. I have hyper mobility syndrome and that is one of the delightful conditions that are co morbid in some people with HSD.

There are loads of skin conditions I'd never heard of when I was researching my itchy rash a couple of years ago.

Valhalla17 · 28/04/2025 23:59

Post the photo if you can op. I'm not a Dr but I've had all sorts of weird skin issues, am highly allergic etc..I might be able to make a suggestion

TheTigerWhoCameToBrunch · 28/04/2025 23:57

What a nightmare for you OP.

Could you try a complete sugar detox for your son?

My mum got a rash she couldn’t shift many years ago and finally arrived at cutting out sugar and it was the one thing that worked. Perhaps because sugar causes inflammation in the body.

Start with refined sugars and move up to complex to see if it makes a difference.

Good luck!

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