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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Autistic child ?

55 replies

Carol41556 · 13/04/2025 15:06

My son has just turned 5 , I have always suspected something may be wrong since he was younger around 1.5 years when he started to have tantrums. At age 5 , he is really hard to manage at home , he hits his siblings including a baby , attacks me , and every single day has meltdowns over the slightest thing. My health visitor has referred him to the NHS neurodevelopment services to be assessed although this will take around 4 years , at nursery they say he is great , and has no problems , although they pull me to the side weekly to tell me he has attacked his sister, tried to stab her with objects and punched her , they haven't even noted anything down as they didnt think it was serious enough ...even though they have been asked numerous times about his behaviour and even showed videos of him so they would listen to me. I feel invisible to nursery , they just can't see what I'm going through and I want help for him. One teacher told me she disagreed with anything I was saying . He masks his behaviour well at nursery , although they have seen his aggression.
I was advised to apply for cdp for him as although he is my son , I an caring for him twice as much as my other 3 children. I applied and a friend said she would help me fill the form in , when I went to get help she them told me , I'm over reacting, he's just wanting attention , all kids run on roads , hit , have no sense of danger etc...I literally felt deflated and left.
I have since sent this form away but am I right to apply ?
He has to be supervised at night , to the point he now sleeps in my bed as he gets up during the night ,one time taking his younger sister downstairs and climbing up high for scissors and cut her full head of long hair off completely...
He doesn't eat at dinner times etc , I struggle to get him to eat , he talks in a high pitched voice when speaking to siblings which isn't his natural voice , he lashes out and screams every day , he often makes random pig snorting noises when doing things like watching tablet or playing , he has no sense of danger when outside on walks or days out , runs out on road , runs away and doesn't stop when I call him often hysterically as he is in danger and I'm pushing my baby in pram , he likes to climb on kitchen worktops etc , on the cooker , often has aggression that would put himself or my kids in danger when he lashes out or throws things , he can have tantrums that last over an hour ....please can someone tell me I'm not imagining that I think my child is autistic? He is so intelligent, scored 100/100 when health visitor came out to assess him for starting school in August , I did notice he was talking the full time in the voice he puts on though to her. I feel like I am caring for my son as if he has additional needs , a friend telling me I am overreacting has really upset me ..she hardly ever sees him , I manage to video so many of these episodes without him knowing so I have some sort of proof to show doctors etc as nursery think he is great ..any advice

OP posts:
Wishyouwerehere50 · 13/04/2025 17:07

Your sense alone is enough, even without all the examples.

You are right!! Because you are his mum and you know.

You will have your sense minimised at every turn atm. So you must ignore and push through.

Someone else mentioned right to choose. We had no choice but to pay for a private assessment. The NHS refused. Autism and ADHD was diagnosed.

Oioisavaloy27 · 13/04/2025 17:02

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arcticpandas · 13/04/2025 16:36

Not necessarily autistic but ND yes. Are your other kids afraid of him?

CarpetKnees · 13/04/2025 16:33

Not sure what country you are in, but if he has just turned 5, is he not at school ?
You mention Nursery ?
I'm thinking that if both school and Nursery aren't seeing any concerns, that might be different from if only a Nursery weren't.

What you have described does sound like it needs some further investigation, and it seems your HV also has concerns.

4 years seems longer than most areas from referral though.

xmasdealhunter · 13/04/2025 15:25

It does sound like there are additional needs at play. Ask your GP about being referred through the Right to Choose program. It is completely free (and NHS run) but skips the really long queue times. Held Health have a guide on how to do so on their website, and currently have really short wait times (2-8 weeks, but do speak to your GP as soon as you're able as this often jumps up quickly). Right to Choose CYP Autism (ASD) & ADHD assessments with Held Health in support of the NHS — Held Health. You would have to go to one of their in person clinics (Exeter, Manchester or London) but IMO I'd rather do this and get the assessment quickly, so you can get an EHCP in place for him starting school.
Edit: Just a side note, there's no harm in using a set of reins. My DD is autistic and they were lifesavers when we had the buggy with my younger kids in, as it meant she couldn't run off. These ones Hobbledehoo Child Harness Safety For Kids Toddlers Aged 2-7 Orange Walking Supporting SEN Special Needs Leash : Amazon.co.uk: Baby Products are made for SEN kids and are difficult for them to wriggle out of.