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To Be At Crisis Point With TMJ Pain

86 replies

BeeDaisy · 31/03/2025 13:21

I am really struggling. I’ve been to the dental hospital numerous times to see the TMJ consultant and they just give me a mouth guard and send me on my way. It doesn’t nothing but cause even more pain.

The doctor just throws medication at me all of which I’m struggling with. I came off Amytriplyine because I couldn’t cope with the side effects. I’ve now had to do the same with Nortyriptyline.

I take cocodamol and naproxen daily. I try and take breaks at the weekend and switch to ibruprofen and anadin. Nothing fully gets rid of the pain.

I went to see an osteopath and felt relief for two hours afterwards. Unfortunately after this I was in agony much more than normal for 2 days and still counting.

I just don’t know what to do with myself anymore. I’m so fed up and sad about it all. Not a moment goes by when I’m not in pain. My sleep is disturbed.

I’ve been reading up on Botox and other private things but I’m worried I will pay all that money and it won’t do anything.

I am also worried about the damage all the painkillers could be doing to my body.

I also want dental treatment to make my front teeth look nice but no one will touch me whilst I’m in so much pain with TMJ.

Has anyone found a long term solution please? Or got rid of most of the pain?

It is really affecting my quality of life at this point.

I don’t know where to go from here.

OP posts:
New posts on this thread. Refresh page
Deedoo · 08/11/2025 16:59

@Borracha rud you have teeth pain with tmj

Deedoo · 08/10/2025 14:40

@BeeDaisy did your pain go

Starrrz · 16/09/2025 19:25

@BeeDaisy how are? Im suffering c

stayathomegardener · 22/05/2025 12:11

Thanks I will try that.

OneSpryBee · 22/05/2025 10:11

stayathomegardener · 22/05/2025 09:32

@clickyteeclickI would be interested in the details please, three years into jaw pain and it’s driving me nuts.

Ironically I have found chewing gum relaxes my jaw so it’s clearly more muscular and less of a joint issue.

You basically use your thumb to massage the inside of your cheeks, near the back. You press hard at points where the most pain is and it releases the tension. I went to a physio who specialises in TMJ and it sorted out my issue, I only needed a couple of sessions and she taught me how to massage my own cheeks.

stayathomegardener · 22/05/2025 09:32

@clickyteeclickI would be interested in the details please, three years into jaw pain and it’s driving me nuts.

Ironically I have found chewing gum relaxes my jaw so it’s clearly more muscular and less of a joint issue.

ReplacementBusService · 22/05/2025 06:47

You don't seem to have had some of the very basics of treatment ie jaw exercises, relaxation techniques, physiotherapy, or if you have you've skirted over that side of things. Maybe revisit that for starters. You can always use UK treatment guidelines to support your discussion with your GP

cks.nice.org.uk/topics/temporomandibular-disorders-tmds/management/management/

clickyteeclick · 22/05/2025 06:38

Imgoingtobefree · 18/05/2025 10:18

I have suffered from TMJ, but not as badly as you. I couldn’t open my mouth very wide and would have constant headaches.

My NHS dentist also suffered similar and showed me a wonderful technique for it, although it’s harder to self administer.

He would basically massage/stretch the inside of my cheeks, as mentioned by another poster. If you feel into the inside of your mouth behind your upper and lower back teeth you will feel a hard, strong like band of muscle/ligament/tendon? It feels a bit like a leather hinge. It’s further forward than your actual jaw joint and is in the check muscle.

He would push hard on this band backwards and outwards. The more tight the band the more it hurts when it gets stretched. But the relief is fairly instant and stays for a while. He would do this regularly for me on my checkups, or I would make a specific appointment for this. It would always allow me to open my mouth wider after. I also grind my teeth at night. He also gave me mouth exercises to do.

Unfortunately my dentist retired and I’ve never found another dentist who knows about this. I think it’s to do with Trigger Point Therapy.

I also think it’s helps to do strong massage on the outside of your jaw, below the cheek bones as suggested by another poster.

If you try this, please read up on it first. Because by dentist showed me, I sort of know how to do it to myself. But I do not know if it could cause damage if you do it wrongly.

But please do have a look at this. It makes so much sense that if it’s due to this band of muscle/ligament/tendon being too tight, then the best way to treat it is to treat the source of the problem, rather than ways that indirectly may help.

It’s so miserable suffering in pain, I do hope you find something that helps you soon.

OP I don’t know if you’re near wilmslow near Manchester at all but I see a physio who specialises in this jaw massage technique.

BeeDaisy · 22/05/2025 06:22

I’ve booked a telephone consultation with my doctor to discuss the painkillers no longer working.

Does anyone know of anything I could ask for instead? I barely ate yesterday as the pain developed into a migraine and I feel on the brink of being sick so went to bed at 8pm.

This morning I still have a migraine and I am in agony. Feeling very fed up with this now.

OP posts:
Imgoingtobefree · 18/05/2025 10:18

I have suffered from TMJ, but not as badly as you. I couldn’t open my mouth very wide and would have constant headaches.

My NHS dentist also suffered similar and showed me a wonderful technique for it, although it’s harder to self administer.

He would basically massage/stretch the inside of my cheeks, as mentioned by another poster. If you feel into the inside of your mouth behind your upper and lower back teeth you will feel a hard, strong like band of muscle/ligament/tendon? It feels a bit like a leather hinge. It’s further forward than your actual jaw joint and is in the check muscle.

He would push hard on this band backwards and outwards. The more tight the band the more it hurts when it gets stretched. But the relief is fairly instant and stays for a while. He would do this regularly for me on my checkups, or I would make a specific appointment for this. It would always allow me to open my mouth wider after. I also grind my teeth at night. He also gave me mouth exercises to do.

Unfortunately my dentist retired and I’ve never found another dentist who knows about this. I think it’s to do with Trigger Point Therapy.

I also think it’s helps to do strong massage on the outside of your jaw, below the cheek bones as suggested by another poster.

If you try this, please read up on it first. Because by dentist showed me, I sort of know how to do it to myself. But I do not know if it could cause damage if you do it wrongly.

But please do have a look at this. It makes so much sense that if it’s due to this band of muscle/ligament/tendon being too tight, then the best way to treat it is to treat the source of the problem, rather than ways that indirectly may help.

It’s so miserable suffering in pain, I do hope you find something that helps you soon.

Mummabear04 · 18/05/2025 09:14

OP I've just started a course of acupuncture and it's not a miracle pain relief but every week it is getting better (I'm on week 3). It's the only thing that's working (not tried botox and have a ridiculously expensive appointment with a private dentist in a few weeks).

onwardsup4 · 17/05/2025 06:55

Oh just read Botox made is worse for you sorry :(

onwardsup4 · 17/05/2025 06:54

I have Botox, booked in for next week as I have started grinding again but the last treatment was over a year ago. It took two treatments a few months apart to work properly and now yearly treatments does the trick.
Mine costs £170 you don’t have to pay £800 that is just too much someone is making massive profit on that. Man who does mine is an eye surgeon.

BeeDaisy · 17/05/2025 02:21

I’m so fed up. Every day now I’m in pain.

im currently lay awake in a nice hotel I booked for me and my partner because I can’t wear earplugs as it makes the pain worse and painkillers are not doing anything.

feeling so fed up and sorry for myself. I’ve paid for a weekend away and it’s going to be ruined due to pain and no sleep.

OP posts:
clickyteeclick · 28/04/2025 06:49

BeeDaisy · 28/04/2025 01:21

Yes it was Manchester. Did you go private? If so can you recommend anywhere?

I did go private but unfortunately for me that wasn’t a success either. You could try though. Dr Paul Ager at a practice in Gatley.

BeeDaisy · 28/04/2025 01:21

Yes it was Manchester. Did you go private? If so can you recommend anywhere?

OP posts:
clickyteeclick · 27/04/2025 22:21

BeeDaisy · 24/04/2025 04:48

So I finally got an appointment at the dental hospital. He spent all of 5 minutes and then said he will do me a splint. And recommended heat for pain.

I’ve had appointments through the earliest being January. Sigh.

meanwhile I’m still in pain every single day and losing the will to live. I’ve switched from cocodamol to anadin to see if a different painkiller works but no.

Can your body get too used to painkillers and this result in them no longer working?

I really want to get my top teeth fixed and can only afford composite bonding but worry I’ll chip them with my jaw clenching. I can wait until January or I can pay privately for a split to be made.

The dentist recommended teeth whitening first but that is also expensive. Plus I say the hygienist last week which only lasted 10 minutes but I was in absolute agony the entire time trying to hold my mouth open. So I’m worried I may not even be able to manage any dental treatment. I’d even taken full painkillers before the appointment.

I really don’t know where to go from here.

Can I hazard a guess that you’ve been reared to dental hospital in Manchester? If so go private. They’re useless! I’ve been waiting side 2018 for a fix and each appointment is a waste of time!

BeeDaisy · 27/04/2025 21:27

Is it possible for painkillers to just not work anymore? I feel like nothing I take now has any effect at all!

OP posts:
RonObvious · 24/04/2025 07:44

I'm another one who found the exercises really helpful, but I guess it all depends on the underlying cause. For me though, I woke up one day and was unable to close my mouth - it was just stuck open. Fun times. I started doing the exercises several times a day, and it gradually got better. Since then, I have been very careful with my jaw, and haven't had any issues.

HelenWheels · 24/04/2025 07:27

try the heat treatment op

BeeDaisy · 24/04/2025 06:55

I have had Botox and it made it worse unfortunately.

OP posts:
Elsvieta · 24/04/2025 06:08

BeeDaisy · 24/04/2025 04:48

So I finally got an appointment at the dental hospital. He spent all of 5 minutes and then said he will do me a splint. And recommended heat for pain.

I’ve had appointments through the earliest being January. Sigh.

meanwhile I’m still in pain every single day and losing the will to live. I’ve switched from cocodamol to anadin to see if a different painkiller works but no.

Can your body get too used to painkillers and this result in them no longer working?

I really want to get my top teeth fixed and can only afford composite bonding but worry I’ll chip them with my jaw clenching. I can wait until January or I can pay privately for a split to be made.

The dentist recommended teeth whitening first but that is also expensive. Plus I say the hygienist last week which only lasted 10 minutes but I was in absolute agony the entire time trying to hold my mouth open. So I’m worried I may not even be able to manage any dental treatment. I’d even taken full painkillers before the appointment.

I really don’t know where to go from here.

The splint helped me a lot. I'd recommend Botox though - that's pretty much fixed it.

Zanatdy · 24/04/2025 05:41

I had 6 months of terrible TMJ pain 15yrs ago, then it went away. Now I just have to be careful eating things like baguettes.

BeeDaisy · 24/04/2025 04:48

So I finally got an appointment at the dental hospital. He spent all of 5 minutes and then said he will do me a splint. And recommended heat for pain.

I’ve had appointments through the earliest being January. Sigh.

meanwhile I’m still in pain every single day and losing the will to live. I’ve switched from cocodamol to anadin to see if a different painkiller works but no.

Can your body get too used to painkillers and this result in them no longer working?

I really want to get my top teeth fixed and can only afford composite bonding but worry I’ll chip them with my jaw clenching. I can wait until January or I can pay privately for a split to be made.

The dentist recommended teeth whitening first but that is also expensive. Plus I say the hygienist last week which only lasted 10 minutes but I was in absolute agony the entire time trying to hold my mouth open. So I’m worried I may not even be able to manage any dental treatment. I’d even taken full painkillers before the appointment.

I really don’t know where to go from here.

OP posts:
OneSpryBee · 13/04/2025 08:34

I had this for months and could barely open my mouth to eat. The doctor just emailed me some exercises, but I ended up finding a private physio who specialised in TMJ. She showed me some exercises but also spent the session massaging the insides of my cheeks and my neck. My muscles were ridiculously tight and causing all the issues.

The pain relief was instant and I could open my mouth wider. I only had a couple of sessions, but she showed me how to massage my own mouth and that really sorted it out. I'm completely pain free now, so that's just another avenue you could try.

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