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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

AIBU about how this autistic/ADHD parent manages symptoms around their children.

214 replies

Flamingmango · 26/03/2025 12:18

Someone in my family has been recently diagnosed with ADHD (privately in UK) and believe they also have autism, I'm not sure they are seeking a diagnosis for that. They have two young children, a 3 year old and a 6 year old.

I'm struggling with some behaviour they do that they excuse with the ND, like, at meal tables watching a video on their phone with earphones and one of their children trying to talk to them, they'll ignore them or say "I told you I'm watching something". And being very intense about the kids always having to be quiet or other stuff which I consider expecting the children to be responsible for the parent's triggers. They complain about these children so much and seem to think they are very difficult but I honestly find them incredibly delightful typical kids (I do also consider them a little overmanaged).

I understand the need to regulate if not coping, for example, if a parent told me their ND kid gets time on their tablet at the table or whatever to regulate to get through meal times then I would understand that. But when you are a neurodivergent parent, I think you need to be finding ways for you to manage your symptoms without hindering your kids and also maybe also adhering to social norms/rudeness (this happens at family meals and events too? Is that unfair? I'm genuinely worried I'm being ableist I guess. Would love to hear from other ND parents.

OP posts:
Bumpitybumper · 27/03/2025 06:04

1vyBerry · 27/03/2025 06:00

Ah another anti ND thread Bumpity, you seem to love these.

I'm on a range on threads. I am not anti ND. I just like scientific reality to be acknowledged on discussions like this as I notice posters like yourself very keen to shut down discourse on this.

Emilyschinchilla · 27/03/2025 06:03

The lack of specialist support for ND parents is a real gap in family support/ ND services.

I expect because ND ‘advocates’ would be up in arms at the suggestion that ND could negatively affect their parenting. Instead, spouses and kids are left to suffer. And all out of political cowardice.

1vyBerry · 27/03/2025 06:00

Bumpitybumper · 27/03/2025 05:58

Sorry, but that absolutely doesn't discredit the documentary at all. The ADHD Foundation's complaints are mostly around the BBC not providing sufficient context about the system and constraints within it. They obviously can't say that the man wasn't given a false diagnosis as this is clearly what happened. The argument that a more comprehensive test would lead to a different result than the more common assessment type just makes a mockery of the whole area and highlights how poor our understanding of ADHD is. If you need three hours to distinguish between someone that does and doesn't have ADHD then nobody should be given a diagnosis until they have gone through the more rigorous testing. Also their diagnosis should be presented in the context of our limited understanding in this area and in a way that reflects the scientific uncertainty that exists in this area.

They Foundation even acknowledges that there are some private providers offering a poor quality of service by suggesting that only some private providers offer a quality service. Overall it's a particularly unconvincing attempt to discredit a piece of work.

Ah another anti ND thread Bumpity, you seem to love these.

Bumpitybumper · 27/03/2025 05:59

1vyBerry · 27/03/2025 05:49

Also many GPs don’t do shared care with NHS diagnosticians due to burden of care. It’s not about reliability. Our excellent GP does not do shared care at all, not even with our fantastic nhs diagnostic service. So the nhs diagnostic service handles prescriptions, titrating, psycology, reviews and alternative treatment.

The GPs specifically cited concerns about the reliability of diagnoses.

Bumpitybumper · 27/03/2025 05:58

1vyBerry · 27/03/2025 05:44

Sorry, but that absolutely doesn't discredit the documentary at all. The ADHD Foundation's complaints are mostly around the BBC not providing sufficient context about the system and constraints within it. They obviously can't say that the man wasn't given a false diagnosis as this is clearly what happened. The argument that a more comprehensive test would lead to a different result than the more common assessment type just makes a mockery of the whole area and highlights how poor our understanding of ADHD is. If you need three hours to distinguish between someone that does and doesn't have ADHD then nobody should be given a diagnosis until they have gone through the more rigorous testing. Also their diagnosis should be presented in the context of our limited understanding in this area and in a way that reflects the scientific uncertainty that exists in this area.

They Foundation even acknowledges that there are some private providers offering a poor quality of service by suggesting that only some private providers offer a quality service. Overall it's a particularly unconvincing attempt to discredit a piece of work.

goldenretrieverenergy · 27/03/2025 05:57

Going just by this example, I feel incredibly sorry for their children.

Of course we don’t know the whole picture and whether they are involved parent rest of the time.

I do think that if they are not able to sit down and have dinner with their children, they should removed themselves from that situation and eat elsewhere. Or take a break and go lie down to another room.

Ignoring children at the dinner table, wearing headphones and watching a video on their phone while their kids trying to talk to them is really sad and will have an impact on them.

No one is saying they can’t take a break when it’s all too much. But their current coping strategies are impacting their kids and that’s not okay.

arcticpandas · 27/03/2025 05:57

Flamingmango · 26/03/2025 19:52

I would argue it's more than a snapshot.... I see them frequently HOWEVER I certainly am there only when there is a lot of people so I do think it's probably a more triggering time than a typical day.

So you don't know anything about their daily life? Just how the dad reacts during gatherings of people?

Frenchbluesea · 27/03/2025 05:53

minnienono · 26/03/2025 16:32

I’m sorry but too many people are buying a diagnosis and using it as an excuse for poor behaviour.

Go to a private diagnosis company, pay your fee and you will get a diagnosis, my gp friend says it’s 99%, the remaining 1% actually have a different perhaps more serious condition that was overlooked by busy doctors. Few will have clinically significant neurodiversity but most will be just one of the many ordinary functioning people (like all of my family including me) that meet the criteria.

My dc is autistic, properly autistic as in diagnosed aged 2 though mid-high functioning thankfully as an adult and I never accepted poor behaviour, being anti social, she needs to fit in with this world.

I’m really struggling with your comment. “Properly autistic”? Do you mean not being diagnosed two means someone is not really autistic?
Do you think private diagnosis is not a valid diagnosis?
Do you see neurodivergent behaviour as poor behaviour?
Do you think neurodivergent people have to change to fit in?
This seems to be what you’re saying but hoping I’ve misunderstood

1vyBerry · 27/03/2025 05:49

Bumpitybumper · 27/03/2025 05:40

https://www.bbc.co.uk/news/health-65534448

It is absolutely happening. There was also a study in Northern Ireland that showed that GPs were reluctant to support the medicalisation of ADHD due to doubts over the reliability of private diagnoses.

Also many GPs don’t do shared care with NHS diagnosticians due to burden of care. It’s not about reliability. Our excellent GP does not do shared care at all, not even with our fantastic nhs diagnostic service. So the nhs diagnostic service handles prescriptions, titrating, psycology, reviews and alternative treatment.

Soontobe60 · 27/03/2025 05:49

Paganpentacle · 26/03/2025 16:25

She has a disability ffs.

People with disabilities can also be crappy parents - the two things aren’t mutually exclusive.

Soontobe60 · 27/03/2025 05:48

Lyannaa · 26/03/2025 16:04

Let me get this clear? The ND parent is the one having screen time and ignoring their children?

If so, no this is not something that I would do as a ND parent myself. My children’s needs come above mine. That’s the choice I accepted when I had children.

However, I certainly don’t think it’s wrong to let ND children have as much screen time as they need. Research shows that it’s actually beneficial to them.

What research is that?

1vyBerry · 27/03/2025 05:44

Bumpitybumper · 27/03/2025 05:40

https://www.bbc.co.uk/news/health-65534448

It is absolutely happening. There was also a study in Northern Ireland that showed that GPs were reluctant to support the medicalisation of ADHD due to doubts over the reliability of private diagnoses.

This documentary was discredited.

www.adhdfoundation.org.uk/2023/05/15/response-to-bbc-panorama-private-adhd-clinics-exposed/

LimitedBrightSpots · 27/03/2025 05:42

Is this man a single parent?

I'm reading this feeling sorry for the kids of selfish dads, whether ND or NT, who don't have female parents who put them first (in some cases, by leaving).

In the hierarchy of needs, people still seem to be ok with it being "men-children-women". Remove the woman from a family and there is no one who is societally expected to be effective in prioritising the kids' needs.

Slimbear · 27/03/2025 05:40

ADHD is hereditary as I understand it. So one person in a family is unlikely to be the only one with it. I have noticed some people who have it or appear to have it and may have a late diagnosis have alcoholism, smokers in the family and I would suspect this is self medication.

Bumpitybumper · 27/03/2025 05:40

1vyBerry · 27/03/2025 05:27

Evidence?

https://www.bbc.co.uk/news/health-65534448

It is absolutely happening. There was also a study in Northern Ireland that showed that GPs were reluctant to support the medicalisation of ADHD due to doubts over the reliability of private diagnoses.

Hand holding a bottle of pills

ADHD: Private clinics exposed by BBC undercover investigation

An undercover journalist for Panorama is diagnosed and given drugs without proper checks.

https://www.bbc.co.uk/news/health-65534448

TheOnlyLivingBoyInNewCross · 27/03/2025 05:39

Lyannaa · 27/03/2025 01:32

Evidence? Like I said before, if you’re going to make bold statements, substantiate it.

This article from the British Journal of General Practice considers concerns over the robustness of private diagnosis: ADHD and the rise of the private diagnosis

The Panorama documentary screened in 2023 also raises similar concerns with its undercover reporter being able to obtain a diagnosis from all three of the private clinics he attended despite failing to meet the clinical threshold for diagnosis in any of the eighteen recognised symptoms.

ADHD and the rise of the private diagnosis

It’s a topic that is emotive for patients, parents, and carers. The diagnosis of attention deficit hyperactivity disorder (ADHD) can be a difficult area to navigate, with significant delays in the referral and diagnostic process frustrating patients an...

https://bjgp.org/content/73/733/358

Bumpitybumper · 27/03/2025 05:35

MaySea · 27/03/2025 04:47

Sounds like my childhood. We weren't allowed to talk, yet he always shouted. We weren't allowed to move, he could see it out of the corner of his eye and it annoyed him. We were all autistic but mine and my siblings stims had to be silenced and supressed as my dad's comfort (and stims) were the only priority.

He was a narcissistic bully and we have all struggled with addiction and mental health issues. Generational trauma is very common in autistic families.

I think this is the other side of the story for all those who seem to think that the parent's needs must come first and be met in anyway that he seems fit. He is completely overriding and ignoring the needs of his children. These kids could well be ND themselves too, but even if they weren't, their needs and wants matter too and shouldn't just be sacrificed on the alter of managing his condition.

Young children are not mature adults and not necessarily as capable of making allowances and adjustments for a parent's disability. They just won't have the understanding and maturity to understand why the adjustments need to be made and what it all means. All they will experience is a disengaged parent that gets angry at them when they make noise. It's also likely that young children have problems with impulse control and will struggle to keep quiet in the way that the father wants them to which will lead to more conflict.

Ultimately the father is the grown up that has chosen to have the children. He needs to find a way to manage his conditions whilst minimising the impact it has on the children. The onus should be on him to do this and not to place ridiculous and cruel expectations on young children who are behaving completely age appropriately if they are enjoying their dinner and making some noise.

MissBattleaxe · 27/03/2025 05:34

Stonefromthehenge · 26/03/2025 20:57

Does your GP friend take responsibility for thd fact that she's unable to offer assessment for patients supposedly under her care? What is she doing about that? Does she not believe her patients? Does she think she knows best? Doesn't sound very scientific. What's her solution to thd decades long undef diagnosis of women and the harm it's caused?

GP appt are 10 to 15 minutes long. They are not specialists in everything and that's why they do referrals. It's not fair to expect GPs to take responsibility for this, or to expect them to diagnose ADHD or autism during an appointment. There has been a huge rise in people wanting a diagnosis for neuro diversity and primary care isn't a one size fits all.

1vyBerry · 27/03/2025 05:27

Manyplanetsfromthesun · 26/03/2025 23:15

You Absolutely can. Many mass ADHD assessment providers, including those contracted to fill the NHS void, are paid to confirm what a person comes to seek.

Edited

Evidence?

SerfwithaT · 27/03/2025 05:12

Theseventhmagpie · 27/03/2025 05:02

Don’t be so naive, of course you can!

Is she rich OP? has she got grands to be throwing around so family members can turn up and be around for an hour or two before deciding it's a fake diagnosis?

You don't sound like you know this woman at all, you're definitely not someone she needs around.
This Autistic/ADHD parent (who happens to be your relative?) weird way of describing a relative tbh

SerfwithaT · 27/03/2025 05:07

I wanna slag off a family members parenting without her knowing PS shes suffering shit I don't understand and have no intention of asking about. Slag her off with me.

OK

Theseventhmagpie · 27/03/2025 05:02

Lyannaa · 26/03/2025 16:39

You can’t buy a diagnosis

Don’t be so naive, of course you can!

SuperSleepyBaby · 27/03/2025 04:58

I believe there are people who definitely have autism and ADHD. My son has autism and needs a lot of help to function.

But I think some over diagnosis will make people start to doubt the genuine cases,

A relative recently was diagnosed with ADHD and i have my doubts- i wouldn’t say it to the person though. Since childhood they have managed very well in school, plenty of friends, progressed to university and did well there. Got married, got a house, had children - doing well in their job. Still have lots of friends as an adult and do lots of hobbies. Raising children as well as anyone else.

There is nothing significantly up with them if they can function well in society and have never needed support. They bring up the ADHD all the time like to explain why they feel they are disorganised- but to me it looks like standard levels of disorganisation - like sometimes losing your car keys or feeling a bit overwhelmed when you have a lot to do.

My relative us always implying things are exceptionally difficult for them but I think most humans have issues and struggles but have to get on with it without a label.

There are plenty of genuine cases that do need help. My son needs a lot of help as a child but my hope for his sake is that he manages to function to some extent in society- if his life turned out as my relative with ADHD, with his own home, family, career then it would be amazing..

MaySea · 27/03/2025 04:47

Sounds like my childhood. We weren't allowed to talk, yet he always shouted. We weren't allowed to move, he could see it out of the corner of his eye and it annoyed him. We were all autistic but mine and my siblings stims had to be silenced and supressed as my dad's comfort (and stims) were the only priority.

He was a narcissistic bully and we have all struggled with addiction and mental health issues. Generational trauma is very common in autistic families.

SuperSleepyBaby · 27/03/2025 04:41

But what are they like overall as a parent?

i might spend a lot of the day listening to my children, going for a walk with them, breaking up fights, giving them baths, giving dinners etc.

then i just want some time alone to eat dinner while looking at my phone - and i will tell them not to bother me - leave me alone until after. Even if they are begging to ask me a question they get a firm ‘no’.

Every human has limits and needs some space to unwind.