AIBU about how this autistic/ADHD parent manages symptoms around their children.

Again you are wrong. Mild autism is defined as being ASD Level 1. As it is a spectrum then you are obviously going to have mild, moderate and severe cases. Mild just means they require minimal support compared to the other categories

I'm not but thanks

There is no mild form of autism. It needs to have a detrimental impact on life to reach the diagnosis threshold.

I wish you'd learn to read, I said "a lot of adults", not all adults. A lot of later in life diagnosed adults, their lives do not change one iota after having a diagnosis, no medication, no therapies, but they have that diagnosis which to them is a label. Is it cost effective for the NHS to diagnose people in their 50s and 60s or could that money and clinician time be put to better use?

To my knowledge this is the only study done in the area. You don't seem to be able to link to any research that contradicts this. Also, another poster has already anecdotally referred to a GP they know that is sceptical about ADHD diagnoses.

Again you’re confusing assessment and diagnosis- the assessment might not be robust enough. A diagnosis is yes or no. Private clinics have to follow certain guidelines, several different clinicians and professionals have to be in agreement and a lot of evidence of the condition over years is required. You’re repeating a baseless and harmful narrative that undermines people’s struggles and experiences. And, quite frankly, you’re prejudiced. You cannot know what went on behind every single person’s assessment but you’re happy to declare their diagnosis as “not robust”.

Is the 'crappy science' the science that doesn't agree with you? You use a lot of emotive language and I can understand that this is deeply personal to you but it doesn't do anyone any favours to allow false certainty to grow in this area. There is so much about so many of these ND conditions that we don't understand. What causes them? How to definitively test for them? Where the threshold for ND and NT actually is and whether a stalk difference between the two actually exists at all? Whether severe forms of these conditions are actually the same thing as milder forms that we currently put under one umbrella?

Oh the ignorance!

Bullshit! When you have struggled with impulsive and dangerous behaviour, suicidal idealisation, self harm, self medication, massively impacted education and career ….come back and declare it’s just to get a label.

I think adult autism diagnosis are ridiculous TBH and that person is looking for attention or to excuse poor behaviour. What’s the point as an adult - you’ve got this far in life

35 questionnaires!🤣

Amongst other issues it’s because of Covid backlog , funding and an increase in knowledge of how it presents in women’s and girls.

Or should women and girls just not get diagnosed?

I haven't ignored anything. This is one of the few studies done in the area and clearly states concerns about the robustness of diagnoses to be an issue. I never said it was a large scale study but in the absence of a more comprehensive study which you haven't been able to provide then it's the best we have.

You say nobody should have to wait as long as they do for a diagnosis, which can be up to 6 years in some areas. Why do you think this is? An explosion in waiting lists, numbers have increased 7fold in just the last 6 years. Staff able to perform the assessments have not increased at the same rate because a, there aren't the numbers of qualified clinicians available and b, there isn't the money available within each Trust.
Waiting lists for MH conditions have risen at an extraordinary rate over the last decade and there has to be priorities over which services get more funding than others. Society is label led now and for a lot of adults who seek a diagnosis in later life it's just that, to have that label.

There were other concerns re the poor journalism.

The documentary was not discredited. The ADHD foundation - one organisation which cannot be argued to have an objective stance on this issue - did not agree with its findings and pointed out what it perceived to be shortcomings in the way the research was conducted.

What crappy science you are using. Many people have lived with adhd for years and know they have ADHD, are advised to get a diagnosis. Many will be advised on the back of an autism diagnosis so stands to reason most will get a diagnosis.

Complete bullshit and deeply offensive for the families living with the condition.

35 questionnaires 🤣and loving the way you’re choosing to ignore

”lack of availability or uptake of non-pharmacological treatments and a perception that secondary-care physical monitoring was inconsistent.”

As I said many GPs don’t do shared care with NHS diagnosticians due to burden of care. It’s not about reliability. Our excellent GP does not do shared care at all, not even with our fantastic nhs diagnostic service. So the nhs diagnostic service handles prescriptions, titrating, psycology, reviews and alternative treatment.

The controversy is that some private providers have extremely high rates of diagnosis (bordering on 100%). It is therefore completely possible that you have effectively paid for a diagnosis. This doesn't necessarily mean that you don't have ADHD but that the diagnosis that you do have may not be as robust as it should be.

I paid for an assessment- no diagnosis. You’re confusing assessment with diagnosis

The ones in this study https://ejhp.bmj.com/content/25/4/222?ijkey=8e48a26a999344c4512fd62dc6c7ea76f338d984&keytype2=tf_ipsecsha

There is no such definitive 'fact' about ADHD. Scientists are in disagreement and some think there has been diagnosis creep and ADHD is actually over diagnosed. This is what I mean about keeping posts balanced and rooted in science. This is an emerging area of science and we have lots to learn about ADHD, how it interplays with trauma and the extent to which traits are a 'normal' part of the human condition.

You can’t. Any diagnosis needs evidence and historic evidence. It’s expensive.

Nobody struggling with adhd should be having to even consider going private. The nhs is trying to cut waiting times.

Yes, you can.

I just keen to stop ignorance and ableism.

What GPs?

The fact is the issue is ADHD is massively under diagnosed, the NHS is trying to catch up.Nobidy should be having to go private or waiting as long as they are. It wrecks lives.

Figures are just 5% for adults and 3-4% in children.