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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To hate the whole SEND system and everyone in it and wish they would all sod off

166 replies

ASimpleLampoon · 22/03/2025 23:24

Not really but I'm just fed up.

I have one child in mainstream school. Has a health issue, no diagnosis, support plan in place in school. Everything is fine. Model student , great relationship with school.

I have a child with multiple disabilities /issues in a SEND school , considered "complex" and I am just fed up with doing my best but it never being enough.

I'm fed up of worrying if he'll want to go on his transport every day , or if we all get a call to pick him up.

I'm fed up of checking the school app every day , and waiting in e afternoon if I'm going to get a call to say he's had a bad day.

I'm fed up of the endless paperwork, the endless meetings , the phone calls, re waiting lists the appointments.

I don't want to talk to a teacher or support worker or pediatrician or OT or SALT.

I just want to have a normal day where I don't have to share with strangers every intimate detail of my life.
I constantly feel scrutinised and judged and like nothing I do is enough.

Yet I no longer have a .career or any hope of working more than part time, my social life is limited , I do have friends I meet up with but nowhere near the freedom I'd have if I wasn't a carer.

I don't have a life outside of caring for my child, and in a way that's OK, I love him and would do anything for him and he's amazing..

But I think I'm going to scream if I have to fill in one more form or go to one more appointment or one more meeting or speak to one more professional

I'm a. Private person and I can't stand the constant intrusion.

OP posts:
ASimpleLampoon · 23/03/2025 00:00

QueenofLouisiana · 22/03/2025 23:39

What sort of respite care is in place for your family? Do you access any?

I teach in specialist provision, my class are all complex needs within an SLD setting and I cannot begin to imagine how tough it might be at home some days. If you aren’t getting respite, can you talk to your welfare team at school?

Thanks. For the acknowledgement, and what you do for the kids.

( I don't really want anyone to sod off just feeling burnt out)

We get 3 hours per week.

OP posts:
Signetsarah · 22/03/2025 23:58

BusterGonad · 22/03/2025 23:58

Can you, why don't you. Pretty much the same thing.

🤣 not really is it. Goodness me. Get to bed!

BusterGonad · 22/03/2025 23:58

Signetsarah · 22/03/2025 23:53

What are you talking about?

please do show me where I said “why don’t you home educate?”

I said “can you?”

some people love being a professional victim, this isn’t even your thread my goodness haven’t you got better things to do?

Can you, why don't you. Pretty much the same thing.

Signetsarah · 22/03/2025 23:53

Ruminatingly · 22/03/2025 23:43

It's absolutely exhausting seeing your child failed over and over again and fighting tooth and nail for them to have very reasonable adjustments to which they are entitled. It's then massively disheartening for people to then ask why you don't home educate.

I don't need to justify to people why it's not right for us, but why is the answer that I should stop working? Why isn't the first reply any king of solidarity instead of asking what the OP does with her days?

What are you talking about?

please do show me where I said “why don’t you home educate?”

I said “can you?”

some people love being a professional victim, this isn’t even your thread my goodness haven’t you got better things to do?

ASimpleLampoon · 22/03/2025 23:51

Signetsarah · 22/03/2025 23:38

Okay not sure what advice you’re after but wish you all the best x

Not after advice, just someone who understands \ is going through the same.

OP posts:
Ruminatingly · 22/03/2025 23:43

It's absolutely exhausting seeing your child failed over and over again and fighting tooth and nail for them to have very reasonable adjustments to which they are entitled. It's then massively disheartening for people to then ask why you don't home educate.

I don't need to justify to people why it's not right for us, but why is the answer that I should stop working? Why isn't the first reply any king of solidarity instead of asking what the OP does with her days?

Duckyfondant · 22/03/2025 23:42

I feel you. So much scrutiny and so far we've had so little help in return. Constant calls and appointments

chillichoclove · 22/03/2025 23:40

its ok to just wish your life was “normal” It’s so exhausting. I’m sorry. It’s also the fear that it’s always going to be like this. Look after yourself. You’re not alone

QueenofLouisiana · 22/03/2025 23:39

What sort of respite care is in place for your family? Do you access any?

I teach in specialist provision, my class are all complex needs within an SLD setting and I cannot begin to imagine how tough it might be at home some days. If you aren’t getting respite, can you talk to your welfare team at school?

BusterGonad · 22/03/2025 23:38

I've only had a fraction of what you've been through, but I understand. It's such hard work. It's hard for people to understand just how much it affects your life.

Signetsarah · 22/03/2025 23:38

ASimpleLampoon · 22/03/2025 23:36

Free services have long wait lists, paid for services not affordable

Okay not sure what advice you’re after but wish you all the best x

ASimpleLampoon · 22/03/2025 23:36

Signetsarah · 22/03/2025 23:33

It sounds very very stressful. Are there any advocate type places that can help you or perhaps be an inbetween for all the admit work?

Free services have long wait lists, paid for services not affordable

OP posts:
Signetsarah · 22/03/2025 23:33

Admin**

Signetsarah · 22/03/2025 23:33

ASimpleLampoon · 22/03/2025 23:32

I work part time, and volunteer , I have friends I meet with.

I think home education would bring more not less problems, and more burn out for me. His school placement is fine, I'm just fed up with he SEND "lifestyle"

It sounds very very stressful. Are there any advocate type places that can help you or perhaps be an inbetween for all the admit work?

ASimpleLampoon · 22/03/2025 23:32

Signetsarah · 22/03/2025 23:25

Can you home educate? What do you do I the daytimes? Sounds stressful tbh waiting for their call etc I’d rather have your child at home if you can?

I work part time, and volunteer , I have friends I meet with.

I think home education would bring more not less problems, and more burn out for me. His school placement is fine, I'm just fed up with he SEND "lifestyle"

OP posts:
Signetsarah · 22/03/2025 23:25

Can you home educate? What do you do I the daytimes? Sounds stressful tbh waiting for their call etc I’d rather have your child at home if you can?

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