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To wonder whether gaslighting is part of the UK medical curriculum?

112 replies

Seeingred70 · 21/03/2025 13:14

Slightly inflammatory title, but the recent thread by the poor mum who had to fight to get her concerns about her son (who turned out to have a brain tumour) heard and actioned, so mirrored my own experience of getting my daughter’s (now stage 4) cancer diagnosed, and those of friends and acquaintances who’re battling or have battled to get their concerns about their/their child’s health taken seriously, that I can’t help wondering whether doctors are actually trained not just to assume most patients are ‘worried-well’, but to actively come up with benign explanations for clinical signs and symptoms of disease that will reassure patients and negate the need to treat them, until they are so ill that it is a medical emergency.

My story: in brief:

My daughter was completely and utterly exhausted with elevated inflammatory markers, that went from 4 x the upper normal limit, then 8, then 11. The paediatrician (after a four month wait during which 4 attempts to expedite the appointment failed): ‘that’s probably just her normal - my inflammatory markers are often in the 30s’. By this point, she had lost almost all daily functioning. She had anaemia, and pretty much every symptom of systemic inflammation there is, plus rare antibodies associated with several serious conditions in her blood and other biochemical signs of disease. The paediatrician insisted it was chronic fatigue. It took a very robust challenge from me (two letters and an argument in clinic) to get referred to a specialist , who ultimately ordered a ct angiogram, which ultimately lead to a diagnosis of cancer.

I’ve recently been experiencing severe palpitations, and had two abnormal ECGs in A & E. Family history of dilated cardiomyopathy. Cardiologist: they probably just positioned the leads incorrectly. I have challenged this and am booked in for an echo. But why assume incorrrect positioning when the results reflected the symptoms?

Step-daughter had a 5 cm mass detected at her anomaly scan. Referred to gynaecology: growing uterus obscured the ovaries so rescheduled for 12 weeks post-partum. Ovaries were clear - gynaecologist: must have been an ovarian cyst that burst. Me: hmm, can the ovaries even be visualised at the 20 week abdominal ultrasound? (Quick google and the answer is, more often than not, no, not both of them). Is it possible that what the midwife sonography saw was higher up? More fights; scan performed; abdominal tumour of the same variety as my daughter’s is discovered; 7.5 cm ((turns out husband has a dodgy mutation).

Other anecdotes: a friend whose daughter’s recurrent migraines were attributed to eating too much fatty food by a paediatrician who didn’t even ask about her diet (which, incidentally, contains very little fatty food). A friend whose son’s pronounced limp - which a private podiatrist put down to a protective gait due to the pain he is experiencing (and refused to take payment because he couldn’t help - said he needed an MRI to locate the source of the pain) was attributed to psychosomatic pain due to poor mental health, with the accompanying burst blood vessels around his ankles being attributed to friction from his socks. A friend whose son was hospitalised with an asthma attack on the day she had seen the GP with concerns he was asthmatic and was told he ‘just had a cold’.

So, what do you think? Am I just one very unlucky ‘service user’ with some very unlucky friends, or is there something wrong here? It has to be said, once diagnosed, the doctors are great, at least in so far as all the gaslighting stops and they start listening to you, rather than dismissing you, but I feel like it is unnecessarily difficult to get to that point, and I dread to think what happens to those who assume the doctor always knows best.

OP posts:
Resilience · 21/03/2025 15:05

My experience of the NHS is overwhelmingly positive, and thank you to all those reading who work in the NHS.

However, like all large organisations there are shit members of staff and processes/pressures that encourage staff to take the easiest route rather than what’s actually best for the patient. Fortunately, I am good at advocating for myself but I do have quite strong concerns for those who are not.

I guess it’s a 50/50 chance but interestingly ALL my negative experiences have been with male Doctors, one of whom lied outright when I went as far as making an official complaint (the only one I’ve ever made in my 50 years of life - I’m by far the type of person more likely to send a letter of thanks).

For all its talk of patient-centred holistic care there is still a culture of Dr knows best among certain types. I suspect overwhelmingly that these are men since the evidence-base now shows it is women who suffer poor outcomes disproportionately.

BellesAndGraces · 21/03/2025 15:03

I also think it’s arrogance and a superiority complex. I saw a female GP repeatedly for about 4 years following DD’s birth complaining of virtually non-existent but excruciating periods. Kept being told that periods change after childbirth and sometimes they can get more painful with age and she refused to refer me to a consultant. Wrote in my medical notes that I was anxious. Eventually paid to see a private consultant who asked a lot of questions and then managed to diagnose me within a 30 minute consultation. Turns out my uterus had fused with my bladder and bowel and I needed 3 surgeries to separate them.

I do wonder if a male GP would have taken me more seriously but I doubt it.

Seeingred70 · 21/03/2025 15:03

Eixample · 21/03/2025 14:52

In the countries I have lived in, except for the UK, there are different GPs for adults and children. It makes such a difference compared with the UK when your child’s doctor is a paediatrician who only sees age 15 and under.

We do have paediatricians, but they’re in secondary care so the GP has to refer, which inevitably involves a wait. Then they act as the gatekeepers to the paediatric specialists, so, if you manage to get past their gaslighting, you have another wait to see them.

OP posts:
Lolypoly14 · 21/03/2025 14:56

I know a few people who have been told they have something minor and sent away, not listened to and had to fight for tests

My daughter’s boyfriend’s mum - it’s “just” arthritis, it’s to be expected in a woman of your age - months and months of fighting for tests and scans it’s discovered she has stage 4 bone cancer.

My boss’s sister told she had IBS - bowel cancer.

My own daughter is coeliac, but we were sent away by the GP many times having been told her symptoms were IBS and/or anxiety.

sprigatito · 21/03/2025 14:56

I think it is a combination of:

a) the arrogance and hubris of people (particularly men) who have become experts in their field;

b) the extremely unhealthy and insular culture of paternalism and rigid hierarchy that exists in the NHS - nurses of higher bands refusing to speak to lowlier colleagues, consultants being treated like little gods who cannot be challenged, GPs behaving as though medical attention is an ill-deserved personal favour;

c) chronic underfunding and underresourcing, which leads to doctors at all levels twisting themselves into pretzels to insist that the patient’s condition is due to something that doesn’t cost money to fix - even when they know damn well that it isn’t the case, they can at least delay committing to expensive treatment, or better still, avoid being the one responsible for it.

It is a shitshow, it is getting worse, and it is killing people.

JoyousEagle · 21/03/2025 14:53

Yes I had a situation once where I called 111 about my 6 week old. They had a dr call me back and she was so dismissive, said it was nothing, see a GP in a few days if nothing changed etc. Then at the end of the call she happened to ask something which made me mention my older child (3 at the time). Then she said “oh you have an older child? I thought you were just a paranoid first time mother! In that case I think you should go to A&E, I’ll let them know you’re coming.”
DD ended up being admitted to a ward on IV antibiotics. But if I hadn’t had an older child, I’d have been told it was all fine just because she thought I was a “paranoid first time mum”.

Eixample · 21/03/2025 14:52

In the countries I have lived in, except for the UK, there are different GPs for adults and children. It makes such a difference compared with the UK when your child’s doctor is a paediatrician who only sees age 15 and under.

JasmineAllen · 21/03/2025 14:51

Personally, I would take it further if it's possible without too much stress. IMO the only way things change is by pushing back and hopefully the paediatrician might think twice before brushing off another parents entirely understandable concerns.

Good luck x

Seeingred70 · 21/03/2025 14:47

@JasmineAllen thank you. I have complained. Debating whether or not to take the complaint to the ombudsman. I kind of think the whole system is so broken that it will achieve nothing. The other part of me feels like I need to do everything in my power to try to stop this happening to someone else.

OP posts:
JasmineAllen · 21/03/2025 14:42

I'm sorry you've had to go through this OP. I don't know about purposefully gaslighting, but I do believe many medical staffs automatic response is 'no, you are wrong' rather than examining each case individually as you'd hope from a medical professional.

I suspect it comes from a mixture of large ego, lack of time, nhs penny-pinching and general lack of respect for patients.

It infuriates me and I always push back against it. I maybe find that easier than some because as an ex staff nurse I know Dr's are just like the rest of us.

In your case I would definitely make a formal complaint and I wish you and your daughter well x

Seeingred70 · 21/03/2025 14:01

Yes, they attribute a lot to stress/anxiety. That was what was wrong with my daughter for a long time, and they would have carried on with that as an explanation of I hadn’t insisted on blood tests!

OP posts:
kerstina · 21/03/2025 13:27

My son was diagnosed with a stress rash which actually turned out to be scabies. Had it for months before he himself asked the dr if it could be that ? I would have thought this was basic stuff ?