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Mum has denied DSis’s disability her whole life - I don’t know how to deal with it anymore

107 replies

sergkuchkin · 16/03/2025 12:02

NC for this because it’s quite identifying.

My DSis (mid-30s) has a disability that affects her mobility and some aspects of daily life. It was diagnosed when she was a toddler, and she’s always had medical support for it. But DM has spent her entire life pretending it doesn’t exist. She refused to let DSis use mobility aids when she was younger, insisted she was “just being lazy” when she struggled, and basically gaslit her into believing she wasn’t disabled. DSis has always been quite quiet and went along with it, but now as an adult, she’s starting to really struggle with the impact of not having the right support growing up.

DM still won’t acknowledge it. She gets weirdly defensive if it’s brought up and acts like we’re making a fuss over nothing. She won’t talk about adjustments that could help DSis and acts like it’s all in her head. It’s so frustrating because DSis is now trying to navigate adulthood with a disability she was never allowed to acknowledge, and it’s making life really hard for her.

I’ve tried gently bringing it up with DM, but she either shuts down the conversation or gets huffy and starts on about how she “did her best” and “didn’t want DSis treated differently.” I get that she probably thought she was helping, but the reality is that DSis was treated differently just in a way that made things harder for her.

I don’t know what to do. Has anyone dealt with anything similar? I just want DSis to be able to get the support she needs without DM making everything so difficult. Would love any advice on how to handle this.

TIA.

OP posts:
FOJN · 16/03/2025 12:19

Your Sister is in her mid 30's, is there a reason she cannot access the support she needs without your mum's involvement?

Why are you directing your attention toward trying to change your mum's mind rather than helping your Sister?

Clearly your mum has been pretty awful wrt your sisters disability but having denied it for so many years she is unlikely to change so your Sister should do whatever she needs to do to make her life easier now.

Aweecupofteaandabiscuit · 16/03/2025 12:16

My Gran did this to my aunt. My aunt was therefore dead before her 40th birthday having never really lived.
My advice is to leave your mum out of it. She’s a dead weight and a lost cause. Support your sister to get whatever help she needs and live her life.
I wish my family had been able to break my aunt free of my gran. She should still be here now.

Lost20211 · 16/03/2025 12:15

I’m very sorry OP, but your mother neglected your sister for refusing to get her the help she needed. She may say that she did “the best she could”, but that’s simply not true. For her own reasons, which are frankly ableist, she denied your sister assistance.

Fluffyeye · 16/03/2025 12:11

Do you mean that your sister is struggling with the emotional impact of growing up with a mother than won’t acknowledge her disability or that she is struggling with the practical aspects of her disability due to being denied aids to help her.

CaptainFuture · 16/03/2025 12:06

Does she still live with your mum? What adaptations has she been denied? Did she not have an ot/sw/school to challenge your mum as a child?
You could maybe support her to self refer to adult services?

MissyB1 · 16/03/2025 12:05

Presumably your sister doesn't live with your mum anymore? Or does she? Sorry I'm struggling to understand how your mum is preventing your sister from getting support with her disability now?

AtrociousCircumstance · 16/03/2025 12:05

Maybe stop being so gentle about bringing it up. Be clear and factual. And don’t rely on her to change her mind or suddenly wish to help. Do all you can to support your sister yourself in practical and emotional terms.

You sound like a very loving sister ❤️