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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Or is my hyperlexic 3 year old actually neither ….

110 replies

ForWorthyTiger · 11/03/2025 14:33

Autistic OR ADHD?

First of all, I know we can’t armchair diagnose, but I’m wracking my brains right now with my puzzle of a 3 year old little boy.

Theres my gut mum feeling that he’s without a doubt hyperlexic, hence excellent decoding skills but communication difficulties and poor comprehension. That all makes perfect sense. He fits the description for hyperlexia on almost every single front apart from the fact that he is more a sensory seeker than avoider. He also follows the trajectory; regression at around 18 months, early letter / number / shape recognition (could count, recite alphabet and recognise individual letters and shapes at 18 months - 2 years) then started being able to sight read at 2.5 (could well have been able to before this) and now is starting to develop language is a gestalt learning style. Not a lot of functional communication going on but some is starting to emerge now he is 3.5.

But here’s what always gets me, why is hyperlexia not in the DSM?? Especially given that dyslexia is! It’s a learning style to my knowledge that benefits from a specific range of interventions and supports, rather different to that of autism (without hyperlexia) or ADHD. It is often also shoehorned onto a broader diagnoses as I understand onto ASD when accompanied with communication differences or what they tend to call ‘speech delay’. But my worry is that if my son gets a diagnoses of ASD, of which doesn’t entirely fit him in my opinion, in school they will concentrate on that and not the hyperlexia.

If anything I feel like he skews more ADHD as he does not crave order, or sameness or routine, but enjoys novelty, movement and sensory input. And maybe what makes him ‘appear’ autistic is actually the fact that his communication difficulties very much make him behave autistic-like?

I have to admit I was never the type to think that a hyperlexic child like mine wasn’t also ergo autistic but the more he grows and develops the more I doubt it. I was the first one to raise concerns about autism or certainly the signs of atypical development in my son when he had his first developmental review at which I was promptly dismissed given that he was seemingly engaged doing all the typical things at the time, but something niggled at the back of my mind, and of course I am right in that he’s without a doubt neurodivergent, but all I can see in him is hyperlexia but not necessarily an actual diagnosable condition such as ASD or ADHD, or even AuDHD as they just don’t seem to ‘fit’.

Intervention / therapy wise nothing that is recommended for autism or ADHD has been super effective but approaches used for hyperlexia have.

Has anyone else experienced this at all??

OP posts:
Unexpecteddrivinginstructor · 11/03/2025 16:22

ForWorthyTiger · 11/03/2025 15:54

I’m no expert but autism, ADHD and dyslexia are all considered neurodivergence’s, and are all diagnosable. ADHD and ASD are considered neurodevelopmental conditions not psychiatric conditions.

ADHD, ASD and dyslexia are all life long conditions though. Hyperlexia, in isolation, people age out of as others catch up with them in terms of reading ability. In isolation as well it is not a disadvantage.

Have you tried using signs (makaton or BSL)? You might find that reduces frustration. Ds was late to talk (although within normal range) and signs were useful to reduce frustration.

MissDoubleU · 11/03/2025 16:21

ForWorthyTiger · 11/03/2025 16:19

Could say the same for you though…

🤔 I am diagnosed ASD since childhood myself, so I would say my understanding is quite hard earned. What exactly have I said that displays a lack of understanding?

ForWorthyTiger · 11/03/2025 16:19

MissDoubleU · 11/03/2025 16:18

But your opinion is very skewed and not coming from a full understanding of the autism spectrum, as PP and myself have already pointed out.

Could say the same for you though…

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MissDoubleU · 11/03/2025 16:18

ForWorthyTiger · 11/03/2025 16:15

You sound more like me, but my son I think in his case his communication difficulties are a direct result of his hyperlexia.

But your opinion is very skewed and not coming from a full understanding of the autism spectrum, as PP and myself have already pointed out.

ForWorthyTiger · 11/03/2025 16:15

ItGhoul · 11/03/2025 16:11

But here’s what always gets me, why is hyperlexia not in the DSM??

Because hyperlexia in isolation isn't, in itself, a problem. If it presents alongside communication/comprehension difficulties (which it often doesn't) it's those difficulties that are the problem, not the hyperlexia itself.

Your son's communication difficulties sit alongside his hyperlexia - they're not caused by it. It's possible that your son has hyperlexia as part of a spectrum of autistic traits, but again, the hyperlexia in that case is merely one symptom and it wouldn't be helpful to look at it in isolation.

I was a hyperlexic child. I was reading fluently by the age of two and reading at an adult level by six or seven. Apart from being miles ahead of everyone else in my class at reading and having a huge advantage in English when I started secondary school, hyperlexia has affected me in no way whatsoever. I have another neurodivergent condition (not autism) but that isn't part of my hyperlexia and isn't caused by it. They're two separate things.

You are greatly over-thinking the hyperlexia. Focus on the big picture and not one detail. Also, your son is only three years old. It might not be possible to diagnose him with anything yet.

You sound more like me, but my son I think in his case his communication difficulties are a direct result of his hyperlexia.

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mamapants · 11/03/2025 16:15

He is a bit old for it now but did you ever do the mchat assessment online? It's for up to 30 month old but might still be worth having a look.

Also you should do some research regarding the spectrum as you don't seem to have a clear understanding of it.

ItGhoul · 11/03/2025 16:11

But here’s what always gets me, why is hyperlexia not in the DSM??

Because hyperlexia in isolation isn't, in itself, a problem. If it presents alongside communication/comprehension difficulties (which it often doesn't) it's those difficulties that are the problem, not the hyperlexia itself.

Your son's communication difficulties sit alongside his hyperlexia - they're not caused by it. It's possible that your son has hyperlexia as part of a spectrum of autistic traits, but again, the hyperlexia in that case is merely one symptom and it wouldn't be helpful to look at it in isolation.

I was a hyperlexic child. I was reading fluently by the age of two and reading at an adult level by six or seven. Apart from being miles ahead of everyone else in my class at reading and having a huge advantage in English when I started secondary school, hyperlexia has affected me in no way whatsoever. I have another neurodivergent condition (not autism) but that isn't part of my hyperlexia and isn't caused by it. They're two separate things.

You are greatly over-thinking the hyperlexia. Focus on the big picture and not one detail. Also, your son is only three years old. It might not be possible to diagnose him with anything yet.

Helpmetogetoverthis · 11/03/2025 16:05

ForWorthyTiger · 11/03/2025 16:00

At the moment he does have clear additional needs yes, and would benefit from 1:1 regardless of diagnosis of anything. So far he’s not disruptive, has never had a meltdown in his life, and tolerates peers well, and is in fact curious about them, just unable to socialise. He’s calm and quiet, much quieter there than at home.

On paper hyperlexia makes the child look intelligent, but in my son’s case (and many others) it certainly poses challenges in accessing the curriculum due to the difficulties often found in comprehension. So he can read, but can he understand everything he reads? No. It’s the opposite of dyslexia brain wise, certainly in my son’s case, so from my perspective should be a diagnosable condition and educators should ideally know what it is and be able to support. Some do and some don’t as far as I can see in UK education.

Edited

Both of my children are autistic, neither talked at all until they were 5.5 and one remains non-verbal. They both presented similarly to how you're describing your son and one was hyperlexic. I really think you should throw your energies into the EHCP and autism assessment processes, you will get nowhere with the hyperlexia stuff, it won't even be recognised and you'll get frustrated. The lack of comprehension is very likely to be due to autism rather than hyperlexia.

I wish you all the luck in this journey!

ForWorthyTiger · 11/03/2025 16:03

MissDoubleU · 11/03/2025 15:57

“A bit of general ND” isn’t a thing. ND is an umbrella term that covers specific diagnosis, not a diagnosis itself. You can’t just be “a bit ND” on the side. It’s either ASD or something else.

Don’t agree having raised my son so far! Also see this description fitting myself. I suppose my thoughts are that we are all on a general spectrum, but either more ND or NT but can be middle ground.

OP posts:
ForWorthyTiger · 11/03/2025 16:00

Helpmetogetoverthis · 11/03/2025 15:56

The pre-school want to apply for an EHCP for 1:1? He must have pretty substantial additional needs - is he toilet trained and does he have challenging behaviour or meltdowns?

I think the reason hyperlexia is not in the DSM as a stand alone diagnosis is because its core features do not present a barrier to learning or participation in society.

Edited

At the moment he does have clear additional needs yes, and would benefit from 1:1 regardless of diagnosis of anything. So far he’s not disruptive, has never had a meltdown in his life, and tolerates peers well, and is in fact curious about them, just unable to socialise. He’s calm and quiet, much quieter there than at home.

On paper hyperlexia makes the child look intelligent, but in my son’s case (and many others) it certainly poses challenges in accessing the curriculum due to the difficulties often found in comprehension. So he can read, but can he understand everything he reads? No. It’s the opposite of dyslexia brain wise, certainly in my son’s case, so from my perspective should be a diagnosable condition and educators should ideally know what it is and be able to support. Some do and some don’t as far as I can see in UK education.

OP posts:
MissDoubleU · 11/03/2025 15:57

ForWorthyTiger · 11/03/2025 15:46

I do think it’s perfectly plausible that ASD is a factor, but I also think that his main profile is hyperlexia with a bit of general ND. ADHD because he in a way prefers disorder and chaos to order and routine. He likes surprises, spontaneity and novelty, and he runs rather than walks, low sleep needs, low attention. In lots of ways I think what makes him appear autistic is the fact that he scripts, and is clearly a GLP and his understanding at the moment is limited, or at least of what he can express.

“A bit of general ND” isn’t a thing. ND is an umbrella term that covers specific diagnosis, not a diagnosis itself. You can’t just be “a bit ND” on the side. It’s either ASD or something else.

Helpmetogetoverthis · 11/03/2025 15:56

ForWorthyTiger · 11/03/2025 14:49

AIBU because often parents get criticised for denying ASD or ADHD, and I never thought I’d be in this position of doubting it!

He will be assessed for autism at an imaginary point in the future, that is for certain, and pre-school have suggested an EHCP with 1:1 support, of which we as parents totally agree with at this point in time. I suppose I was hoping parents of hyperlexic children who are atypical for ASD or ADHD would have some insight. I feel so alone and I don’t trust the so-called specialists to do right by my child.

The pre-school want to apply for an EHCP for 1:1? He must have pretty substantial additional needs - is he toilet trained and does he have challenging behaviour or meltdowns?

I think the reason hyperlexia is not in the DSM as a stand alone diagnosis is because its core features do not present a barrier to learning or participation in society.

mamapants · 11/03/2025 15:55

Low sleep needs is very common in autistic individuals also.
I'm not sure if you are confused regarding autism symptoms as your description of him sounds like he has many traits.
Once he has his assessment he will be assessed by experts. But school will be looking at the child not tge diagnosis anyway. If the tactics for hyperlexia are yielding results they will use those.
All autistic children are different so just because a child gets a diagnosis doesn't mean they will adopt some unsuitable blanket approach.

ForWorthyTiger · 11/03/2025 15:54

BodyKeepingScore · 11/03/2025 15:35

It's not in the DSM because it isn't a psychiatric condition...

I’m no expert but autism, ADHD and dyslexia are all considered neurodivergence’s, and are all diagnosable. ADHD and ASD are considered neurodevelopmental conditions not psychiatric conditions.

OP posts:
ForWorthyTiger · 11/03/2025 15:50

Soontobe60 · 11/03/2025 15:38

Has this been picked up by paediatrics or is it just your observations? Where are you up to with the EHCP application process?
You have another 18 months before he starts in Reception and a lot may change before then. I would suggest you put the idea that he has a specific condition to the black of your mind and focus on which milestones he is not achieving at the relevant stages.

Been to pediatrics, about as helpful as a chocolate fireguard, helpful to the point of it’s a box ticked and on paper it’s been done. The paediatrician clearly thought ‘not autistic’ until we mentioned he had never pointed (he started at 2.5 but only to label things) and the fact that he was not talking, or he was but in letters, numbers and shapes and literally nothing more (at the time). It was speech and language who referred for an ASD assessment, of which I think is the right thing to do, but want the right diagnosis with all the right information to support it.

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ForWorthyTiger · 11/03/2025 15:46

Jade520 · 11/03/2025 15:36

It sounds exactly like ASD to me, every child with ASD is different. It's perfectly possible for a child with ASD to be sensory seeking - stimming is a form of sensory seeking. Many kids with ASD like bright, flashing lights for example, mine loved fireworks and I remember randomly he loved seeing clowns doing slap stick at the circus! Kids with ASD can also be extremely sociable and love other kids/people, a lot don't tick every box in the ASD check list! DS never flapped or lined anything up or was obsessed with spinning wheels.

I'm not really seeing why you think he might have ADHD or might not have ASD and I really think you're over thinking the hyperlexia tbh.

I do think it’s perfectly plausible that ASD is a factor, but I also think that his main profile is hyperlexia with a bit of general ND. ADHD because he in a way prefers disorder and chaos to order and routine. He likes surprises, spontaneity and novelty, and he runs rather than walks, low sleep needs, low attention. In lots of ways I think what makes him appear autistic is the fact that he scripts, and is clearly a GLP and his understanding at the moment is limited, or at least of what he can express.

OP posts:
mamapants · 11/03/2025 15:45

I'm not really sure what you are seeing that conflicts with an autism diagnosis.
You state: If anything I feel like he skews more ADHD as he does not crave order, or sameness or routine, but enjoys novelty, movement and sensory input.
My autistic son doesn't crave sameness or routine, enjoys movement and sensory input, he's definitely autistic though.
School will try different methods of engaging him based on his needs and responses though and not just on diagnosis.

Soontobe60 · 11/03/2025 15:38

Has this been picked up by paediatrics or is it just your observations? Where are you up to with the EHCP application process?
You have another 18 months before he starts in Reception and a lot may change before then. I would suggest you put the idea that he has a specific condition to the black of your mind and focus on which milestones he is not achieving at the relevant stages.

Jade520 · 11/03/2025 15:36

It sounds exactly like ASD to me, every child with ASD is different. It's perfectly possible for a child with ASD to be sensory seeking - stimming is a form of sensory seeking. Many kids with ASD like bright, flashing lights for example, mine loved fireworks and I remember randomly he loved seeing clowns doing slap stick at the circus! Kids with ASD can also be extremely sociable and love other kids/people, a lot don't tick every box in the ASD check list! DS never flapped or lined anything up or was obsessed with spinning wheels.

I'm not really seeing why you think he might have ADHD or might not have ASD and I really think you're over thinking the hyperlexia tbh.

BodyKeepingScore · 11/03/2025 15:35

It's not in the DSM because it isn't a psychiatric condition...

FoolishHips · 11/03/2025 15:34

It can be very difficult to tell at that age. My hyperlexic child has always been very obviously autistic. My other child seemed pretty normal until about year 4 and then all his classmates developed more complex social skills that he couldn't keep up with. He's only just been diagnosed with autism at age 22 (for reasons relating to his idiotic father). But what I'm saying is, that sometimes you just have to wait until their environment becomes more difficult for them.

ForWorthyTiger · 11/03/2025 15:30

Unexpecteddrivinginstructor · 11/03/2025 15:26

Do you though remember your experience of reading when you were three? You will probably encounter many more issues over the coming years whether he has enough to get a diagnosis or not. He will also change in the coming years almost beyond recognition. All you can do is advocate for his needs now and although I know it is almost impossible to do, try not to lose too much sleep or tears over it.

It’s so much easier said than done, I can’t help but feel that all I do is try to research and help him and advocate to the point that I’m mentally exhausted. All of the therapy is down to me as the NHS are not actively intervening, I do try to just enjoy him and love him just the way he is, just want to best for his education given that it’s such a major part of a child’s life. Sad

OP posts:
Unexpecteddrivinginstructor · 11/03/2025 15:26

Do you though remember your experience of reading when you were three? You will probably encounter many more issues over the coming years whether he has enough to get a diagnosis or not. He will also change in the coming years almost beyond recognition. All you can do is advocate for his needs now and although I know it is almost impossible to do, try not to lose too much sleep or tears over it.

ForWorthyTiger · 11/03/2025 15:21

Octavia64 · 11/03/2025 15:15

I'm hyperlexic.

A general lack of communication skills isn't hyperlexia.

A friend of mine had a child who was also hyperlexic. It just means reading early. Her daughter was very intelligent and her comprehension was also at a high level.

I think this would be me too, when I look at my childhood. I could certainly sight read and confidently before school and thought phonics was a fun different way to learn. I never thought I was different, and really was I? In contrast to my son I was verbal and had good /equal comprehension skills to my reading ability.

OP posts:
MissDoubleU · 11/03/2025 15:18

Have you considered that you yourself are ASD?

Your bright, happy, curious boy will be absolutely fine. I think sitting up all night stressing over what specific label is going to make his life better and who will or will not help matters isn’t going to help him. He needs you to relax and just be his mum. Advocate for him, but don’t obsess over him.

My son was diagnosed at 4 and he has came on leaps and bounds. We have everything in place we can but really, we just let him be him. Hovering over him and analysing his every move and every development (“was it on target? Was that a stim? Is he matching peers?”) will add pressure he doesn’t need, to BOTH of you.

In the end, it’s all bloody fine. Advocate for him and help him, but let him be. Celebrate who he is rather than trying to figure out what he is.