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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Or is my hyperlexic 3 year old actually neither ….

110 replies

ForWorthyTiger · 11/03/2025 14:33

Autistic OR ADHD?

First of all, I know we can’t armchair diagnose, but I’m wracking my brains right now with my puzzle of a 3 year old little boy.

Theres my gut mum feeling that he’s without a doubt hyperlexic, hence excellent decoding skills but communication difficulties and poor comprehension. That all makes perfect sense. He fits the description for hyperlexia on almost every single front apart from the fact that he is more a sensory seeker than avoider. He also follows the trajectory; regression at around 18 months, early letter / number / shape recognition (could count, recite alphabet and recognise individual letters and shapes at 18 months - 2 years) then started being able to sight read at 2.5 (could well have been able to before this) and now is starting to develop language is a gestalt learning style. Not a lot of functional communication going on but some is starting to emerge now he is 3.5.

But here’s what always gets me, why is hyperlexia not in the DSM?? Especially given that dyslexia is! It’s a learning style to my knowledge that benefits from a specific range of interventions and supports, rather different to that of autism (without hyperlexia) or ADHD. It is often also shoehorned onto a broader diagnoses as I understand onto ASD when accompanied with communication differences or what they tend to call ‘speech delay’. But my worry is that if my son gets a diagnoses of ASD, of which doesn’t entirely fit him in my opinion, in school they will concentrate on that and not the hyperlexia.

If anything I feel like he skews more ADHD as he does not crave order, or sameness or routine, but enjoys novelty, movement and sensory input. And maybe what makes him ‘appear’ autistic is actually the fact that his communication difficulties very much make him behave autistic-like?

I have to admit I was never the type to think that a hyperlexic child like mine wasn’t also ergo autistic but the more he grows and develops the more I doubt it. I was the first one to raise concerns about autism or certainly the signs of atypical development in my son when he had his first developmental review at which I was promptly dismissed given that he was seemingly engaged doing all the typical things at the time, but something niggled at the back of my mind, and of course I am right in that he’s without a doubt neurodivergent, but all I can see in him is hyperlexia but not necessarily an actual diagnosable condition such as ASD or ADHD, or even AuDHD as they just don’t seem to ‘fit’.

Intervention / therapy wise nothing that is recommended for autism or ADHD has been super effective but approaches used for hyperlexia have.

Has anyone else experienced this at all??

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ThesebeautifulthingsthatIvegot · 11/03/2025 19:31

OP, I am finding your thread really interesting.

I am a SEN specialist and am aware of hyperlexia but until today did not know it existed outside of autism. I am also a person who could read by age 2, but I don't think I have hyperlexia according to the definitions I can find. My visual memory is actually shockingly poor!

I do agree with others that the DSM5 autism diagnosis criteria do seem to fit your son. Obviously with the usual caveats of never having met him and not being a diagnostician, and therefore I'm not saying your son must be autistic; rather, it's a sensible thing to consider if you want him to be diagnosed.

The autism "umbrella" is incredibly wide, and it is the only diagnosis that would explain your son's communication challenges. In our nursery, we have at least 5 children who are probably autistic out of 30. Their needs are all very different - 2 are non-verbal, one sounds like your son, one is a sing-song GLP, and one might be seen as "naughty" but seems to have huge sensory and communication needs. The strategies that work for them are also diverse. A good school will sit down with you and talk about what you find helpful for your child, and try to implement similar strategies or develop their own that work for him.

Northerngirl821 · 11/03/2025 19:25

Why are you so focused on getting an EHCP? He’s only 3.5 so it’s too early to be able to tell what needs he might have at school. Plenty of SEND children manage fine in mainstream education and don’t need 1:1 support. My child’s school have put all sorts of things in place to help him adapt, it’s all done through the SENCO.

You could look into getting him an ASD assessment in the meantime then see how he goes in reception and take it from there.

Weevle84 · 11/03/2025 19:19

Honestly, I don’t see which part you are referring to that doesn’t fit in with ASD. I have an autistic daughter and at that age she had barely any noticeable traits. It was only as she got older it became more obvious as things were no longer age appropriate. My daughter is also a sensory seeker. All Autistic children are different, there is no rigid profile. My daughter doesn’t fit in with what a lot would consider to be Autistic but she most definitely is. The educational psychologist will note the hyperlexia in their tests and recommendations will be put in place which then inform your child’s education plan.

coxesorangepippin · 11/03/2025 19:09

He's only 3

Lougle · 11/03/2025 19:07

Autism spectrum disorder DSM-5 diagnostic criteria: Full text
A. Persistent deficits in social communication and social interaction across multiple contexts, as manifested by the following, currently or by history (examples are illustrative, not exhaustive, see text):

  1. Deficits in social-emotional reciprocity, ranging, for example, from abnormal social approach and failure of normal back-and-forth conversation; to reduced sharing of interests, emotions, or affect; to failure to initiate or respond to social interactions.
  2. Deficits in nonverbal communicative behaviors used for social interaction, ranging, for example, from poorly integrated verbal and nonverbal communication; to abnormalities in eye contact and body language or deficits in understanding and use of gestures; to a total lack of facial expressions and nonverbal communication.
  3. Deficits in developing, maintaining, and understanding relationships, ranging, for example, from difficulties adjusting behavior to suit various social contexts; to difficulties in sharing imaginative play or in making friends; to absence of interest in peers.
* * B. Restricted, repetitive patterns of behavior, interests, or activities, as manifested by at least two of the following, currently or by history (examples are illustrative, not exhaustive; see text):
  1. Stereotyped or repetitive motor movements, use of objects, or speech (e.g., simple motor stereotypies, lining up toys or flipping objects, echolalia, idiosyncratic phrases).
  2. Insistence on sameness, inflexible adherence to routines, or ritualized patterns or verbal nonverbal behavior (e.g., extreme distress at small changes, difficulties with transitions, rigid thinking patterns, greeting rituals, need to take same route or eat food every day).
  3. Highly restricted, fixated interests that are abnormal in intensity or focus (e.g, strong attachment to or preoccupation with unusual objects, excessively circumscribed or perseverative interest).
  4. Hyper- or hyporeactivity to sensory input or unusual interests in sensory aspects of the environment (e.g., apparent indifference to pain/temperature, adverse response to specific sounds or textures, excessive smelling or touching of objects, visual fascination with lights or movement).
Specify current severity: Severity is based on social communication impairments and restricted, repetitive patterns of behavior. C. Symptoms must be present in the early developmental period (but may not become fully manifest until social demands exceed limited capacities or may be masked by learned strategies in later life). D. Symptoms cause clinically significant impairment in social, occupational, or other important areas of current functioning. E. These disturbances are not better explained by intellectual disability (intellectual developmental disorder) or global developmental delay. Intellectual disability and autism spectrum disorder frequently co-occur; to make comorbid diagnoses of autism spectrum disorder and intellectual disability, social communication should be below that expected for general developmental level.

I just wanted to put this here for you @ForWorthyTiger If you consider your DS's sensory seeking behaviour (B4), interest in letters (B3), lack of ability to follow social routines (A3), lack of normal communication (A1), and the fact that pre-school are recommending an EHCP with 1:1 support (D), you'll see that he really does tick a lot of the boxes, from your description.

Soontobe60 · 11/03/2025 18:47

ForWorthyTiger · 11/03/2025 17:57

It’s needs based, and we’re looking at getting an EHCP in place before sep 2026. For now he has no extra funding just some very understanding pre-school teachers who are excellent at their job. He is already reading and knows all the phonic sounds for example but finds it hard to follow complex instructions because he doesn’t always understand what is being said or why, so it’s difficult for teachers to do the EYFS with him, in a nutshell.

LAs have Early years inclusion funding that pre school settings are able to access which would enable providers to employ an additional adult to support children who are likely to require an EHCP.
www.gov.uk/government/publications/early-years-business-sustainability-guides-for-providers/extra-sources-of-income-for-early-years-providers

Soontobe60 · 11/03/2025 18:44

ForWorthyTiger · 11/03/2025 17:36

Maybe ask the setting if your child goes to one how it works in your area, as I believe it has to applied for through the LA. Many schools I think would expect a deferred child to go in with their age group, so your child would start in year 1 if you are able to defer.

I have known deferred children to spend an additional year in Nursery then go into Reception. I’ve never known a deferred child to go straight into Y1 as that would make little sense.

ForWorthyTiger · 11/03/2025 18:30

Neemie · 11/03/2025 18:16

Lots of ND children don’t fit into any particular box. Most educators know that. If you aren’t sure what you want, wait a bit and see how he matures and develops. Is it you or the pre-school who are pushing to go for the EHCP?

At his first setting and with a few professionals who have seen and worked with him they have taken a rather blanket approach to him and ignored his individual needs so I suppose I’ve become overly cautious that the worst case scenario is that he’ll end up with someone who just doesn’t ’get him’. Especially if they think ‘autism’ so I must take this particular approach where we’ve tried and have proven not to work with my son at all. His pre-school teachers have got the ball rolling for EHCP because it takes so long (in my area anyway) if he doesn’t get granted one then he’ll definitely be under SEN. His current teachers all know him and I can breathe knowing they know his individual needs separate from any looming diagnosis.

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Twittable · 11/03/2025 18:18

I’d like to reassure you that most school teachers & TAs will get to know your son as the unique individual he is and will offer him interventions that are appropriate for him - not to a label. Don’t borrow trouble by worrying before you get there - it could all be fully documented by then if you are on a diagnosis pathway.

Neemie · 11/03/2025 18:16

ForWorthyTiger · 11/03/2025 17:57

It’s needs based, and we’re looking at getting an EHCP in place before sep 2026. For now he has no extra funding just some very understanding pre-school teachers who are excellent at their job. He is already reading and knows all the phonic sounds for example but finds it hard to follow complex instructions because he doesn’t always understand what is being said or why, so it’s difficult for teachers to do the EYFS with him, in a nutshell.

Lots of ND children don’t fit into any particular box. Most educators know that. If you aren’t sure what you want, wait a bit and see how he matures and develops. Is it you or the pre-school who are pushing to go for the EHCP?

Itisbetter · 11/03/2025 18:10

He sounds like language disorder is going to be a big part of his experience.

ForWorthyTiger · 11/03/2025 17:57

Neemie · 11/03/2025 17:54

Hyperlexia would not require a 1:1 or an ehcp, so it can’t just be that. Like everyone else, no two autistic people are the same, so he will be treated like an individual by his 1:1 regardless of his diagnosis. If he is in mainstream school with no extra support, he will be lumped in with everyone else as no one, apart from the frazzled SENDCo, will have read what the specialists have said.

It’s needs based, and we’re looking at getting an EHCP in place before sep 2026. For now he has no extra funding just some very understanding pre-school teachers who are excellent at their job. He is already reading and knows all the phonic sounds for example but finds it hard to follow complex instructions because he doesn’t always understand what is being said or why, so it’s difficult for teachers to do the EYFS with him, in a nutshell.

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Neemie · 11/03/2025 17:54

Hyperlexia would not require a 1:1 or an ehcp, so it can’t just be that. Like everyone else, no two autistic people are the same, so he will be treated like an individual by his 1:1 regardless of his diagnosis. If he is in mainstream school with no extra support, he will be lumped in with everyone else as no one, apart from the frazzled SENDCo, will have read what the specialists have said.

ForWorthyTiger · 11/03/2025 17:53

Soontobe60 · 11/03/2025 17:47

When is his birthday?

September born. He would start reception for a weeks age 4 then turn 5 being one of the oldest in his year, but golly does he need that extra year at pre-school gives us a bit of breathing space for now.

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Soontobe60 · 11/03/2025 17:47

ForWorthyTiger · 11/03/2025 16:27

September, he luckily has an entire extra year in pre-school otherwise I’d be applying to defer.

When is his birthday?

ForWorthyTiger · 11/03/2025 17:46

ForWorthyTiger · 11/03/2025 17:36

Maybe ask the setting if your child goes to one how it works in your area, as I believe it has to applied for through the LA. Many schools I think would expect a deferred child to go in with their age group, so your child would start in year 1 if you are able to defer.

Sorry I forgot to add that I believe any communication difficulties would mean your child could qualify for a deferral despite being February born.

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ForWorthyTiger · 11/03/2025 17:42

Tryinghardtobefair · 11/03/2025 17:39

Craving order, sameness and routine is a bit of an ASD stereotype. Not every autistic person craves routine and order. And not every autistic person avoids sensory input. . It's very common to be a sensory seeker because of vestibular dysfunction and poor proprioception. My daughter is autistic and is happiest on her spinning chair with all of her sensory lamps switched on.
Being a chaotic sensory seeker doesn't mean your son can't be autistic. Especially if he displays other traits within the diagnostic criteria

The DSM 5 actually specifies a child only needs to have two out of the four traits they've described for restrictive and repetitive behaviour. I'm sure many children don't meet the need for sameness and order. It also specifies you can be a sensory seeker OR avoider.

It's worth going through the DSM 5 yourself to see what criteria he meets. That way you can put any doubts to rest and whatnot

Thanks for the info.

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Tryinghardtobefair · 11/03/2025 17:39

Craving order, sameness and routine is a bit of an ASD stereotype. Not every autistic person craves routine and order. And not every autistic person avoids sensory input. . It's very common to be a sensory seeker because of vestibular dysfunction and poor proprioception. My daughter is autistic and is happiest on her spinning chair with all of her sensory lamps switched on.
Being a chaotic sensory seeker doesn't mean your son can't be autistic. Especially if he displays other traits within the diagnostic criteria

The DSM 5 actually specifies a child only needs to have two out of the four traits they've described for restrictive and repetitive behaviour. I'm sure many children don't meet the need for sameness and order. It also specifies you can be a sensory seeker OR avoider.

It's worth going through the DSM 5 yourself to see what criteria he meets. That way you can put any doubts to rest and whatnot

ForWorthyTiger · 11/03/2025 17:36

IVFmumoftwo · 11/03/2025 17:17

Just usually you can only defer if summer born I believe (April-August). My son has a speech delay and I suspect autistic but because he will be four next year February I don't think he can be delayed.

Maybe ask the setting if your child goes to one how it works in your area, as I believe it has to applied for through the LA. Many schools I think would expect a deferred child to go in with their age group, so your child would start in year 1 if you are able to defer.

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Itisbetter · 11/03/2025 17:19

He sounds like a fairly commonly presenting autistic to me. I’m not sure why you think he would be better served by being considered hyperlexic? If you want people to share their experiences then AIBU isn’t where parents of disabled children tend to open up. Try posting in SNchat or SNchildren.

IVFmumoftwo · 11/03/2025 17:17

ForWorthyTiger · 11/03/2025 17:14

England. We can only really defer children who are not typically developing or have good reason otherwise to have an extra year in nursery / pre-school. If we were to defer him here I believe he’d go straight into year 1, which makes little sense! We have an extra year to help get him as ready as possible so fingers and toes crossed.

Just usually you can only defer if summer born I believe (April-August). My son has a speech delay and I suspect autistic but because he will be four next year February I don't think he can be delayed.

ForWorthyTiger · 11/03/2025 17:14

IVFmumoftwo · 11/03/2025 17:12

Are you in Scotland?

England. We can only really defer children who are not typically developing or have good reason otherwise to have an extra year in nursery / pre-school. If we were to defer him here I believe he’d go straight into year 1, which makes little sense! We have an extra year to help get him as ready as possible so fingers and toes crossed.

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IVFmumoftwo · 11/03/2025 17:12

ForWorthyTiger · 11/03/2025 16:27

September, he luckily has an entire extra year in pre-school otherwise I’d be applying to defer.

Are you in Scotland?

ForWorthyTiger · 11/03/2025 17:08

Hoardasurass · 11/03/2025 17:06

That should have said hyperlexia not hyperextension thanks auto correct

You’ve criticised me for using too much Google…but I behoove you to Google what hyperlexia is. My son is not typically developing at all, and also has SEN Grin

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